Hello everyone,
I had my NAION ?event May of 2022, and after many very difficult months I am starting to settle into my new norm.?
My GP has recommended getting the shingles vaccine and when I questioned the possibility of an adverse reaction, he said it could be worse if I got shingles and affected my one good eye. Has anyone gotten the
shingles vaccination and how did you fair?
Thank you for anyone’s input.
Don
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Re: vision worsening after 6 months....Shingles vaccine???
Sorry you went through all that...sounds exhausting.? I don't have much insight for you though..."lucky" for me I've not had much change in vision (or lack thereof) in the 3+ years since my incident. Had 2 covid vaccines, but stopped there as I got spooked.? ?Never been a big fan of doctors and meds, so I've never had a flu shot and haven't done the shingles thing either... but I've flown 3 times since the incident and that went well... anyhow, I'm sure none of that is helping, but I wanted to acknowledge your email...
The only reasons I can discern as the cause of my NAION in left eye? August 2022 are stress and anemia, (also that infamous low disc cup ratio thing),? although my iron levels were at the lowest end of normal, I had so many symptoms.? So after 9 weeks of high dose steroids, crazy no sleep, temporal artery biopsy (negative for giant cell), I got pneumonia for the first time in my life and was hospitalized and got to have more steroids... ugg. After about 8 weeks of recovery and having to miss my covid vaccine....yeah, got covid.? Finally around January, started feeling almost normal, almost back to normal energy levels....sleep still really elusive.
So 2 weeks ago, I got the first of the new double shingles vaccine.? My doctor approved. That afternoon I began having muscle aches and exhaustion.? After research, I attributed this to the vaccine.? But now 2 weeks later...still tired and achy and now have lost more vision.? Before, most of my vision blurriness was below mid-line, now there's a lot of central vision blurriness.? I was told to get blood-work immediately and inflammation levels were normal.? I have apt with my Neuro Opth. next week.? High dose steroids were mentioned.? I just don't think I can do that again and can't imagine why??? Anyone else go to Vanderbilt Eye Institute in Nashville?
Just want to say thanks for being out there, thanks for letting me vent, and all input and ideas are most appreciated.? Thank you!
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vision worsening after 6 months....Shingles vaccine???
The only reasons I can discern as the cause of my NAION in left eye? August 2022 are stress and anemia, (also that infamous low disc cup ratio thing),? although my iron levels were at the lowest end of normal, I had so many symptoms.? So after 9 weeks of high dose steroids, crazy no sleep, temporal artery biopsy (negative for giant cell), I got pneumonia for the first time in my life and was hospitalized and got to have more steroids... ugg. After about 8 weeks of recovery and having to miss my covid vaccine....yeah, got covid.? Finally around January, started feeling almost normal, almost back to normal energy levels....sleep still really elusive.
So 2 weeks ago, I got the first of the new double shingles vaccine.? My doctor approved. That afternoon I began having muscle aches and exhaustion.? After research, I attributed this to the vaccine.? But now 2 weeks later...still tired and achy and now have lost more vision.? Before, most of my vision blurriness was below mid-line, now there's a lot of central vision blurriness.? I was told to get blood-work immediately and inflammation levels were normal.? I have apt with my Neuro Opth. next week.? High dose steroids were mentioned.? I just don't think I can do that again and can't imagine why??? Anyone else go to Vanderbilt Eye Institute in Nashville?
Just want to say thanks for being out there, thanks for letting me vent, and all input and ideas are most appreciated.? Thank you!
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On Wed, Feb 22, 2023 at 5:43 AM, Wuensch, Karl Louis <WUENSCHK@...> wrote:
My cataract was extracted from my right eye yesterday morning and replaced with an artificial lens.? At this time I cannot read with my right eye, even when I remove the shield that is taped over it.? I can
read 18 point Arial font with my left eye, so to compose a message I do it in Word in that font and then paste it into the messaging app.? There is an interesting difference in my color perception between the two eyes.? What looks green with my left eye looks
blue with my right eye and with the right eye it is like the lights are very bright.
?
?
Karl L. Wuensch, Professor and ECU Scholar/Teacher, Dept. of Psychology
East Carolina University, Greenville NC? 27858-4353, USA,?
Voice:? 252-328-9420???? Fax:? 252-328-6283
?
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This email originated from outside ECU.
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Re: Visit to Eye Specialist
Yes.? Me to.
On 2/21/2023 11:01 PM, Chiarina Blake
wrote:
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Firstly, I would like to thank you all for your good suggestions
and help.? I am grateful.? Yesterday, I went to see my Specialist
and as usual, he put in those eye drops that dilate the pupil.? It
seems that every time he does this at visits, it takes my eye a
few days to settle down.? My vision today has been a lot more
ineffective than before.? Does anyelse have the same issue? Its
been getting me down today.?
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My cataract was extracted from my right eye yesterday morning and replaced with an artificial lens.? At this time I cannot read with my right eye, even when I remove the shield that is taped over it.? I can
read 18 point Arial font with my left eye, so to compose a message I do it in Word in that font and then paste it into the messaging app.? There is an interesting difference in my color perception between the two eyes.? What looks green with my left eye looks
blue with my right eye and with the right eye it is like the lights are very bright.
?
?
Karl L. Wuensch, Professor and ECU Scholar/Teacher, Dept. of Psychology
East Carolina University, Greenville NC? 27858-4353, USA,?
Voice:? 252-328-9420???? Fax:? 252-328-6283
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Re: Visit to Eye Specialist
Thank you very much Paul. My vision fluctuates so much that it’s frustrating! Do those eye drops effect your vision too? Thank you x?
Hi Chiarina. Any change to your vision at the moment will cause you to worry. I remember waking up most mornings thinking my eyesight had deteriorated. This will stop as your eyesight stabilises. You will notice as we go into Autumn the light fades it seems
to worsen our eyesight but it doesn’t it’s just the quality of light. I find November to March quite difficult but it does improve towards Spring. So try not to worry to much
?Firstly, I would like to thank you all for your good suggestions and help.? I am grateful.? Yesterday, I went to see my Specialist and as usual, he put in those eye drops that dilate the pupil.? It seems that every time he does this at visits,
it takes my eye a few days to settle down.? My vision today has been a lot more ineffective than before.? Does anyelse have the same issue? Its been getting me down today.?
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Re: Visit to Eye Specialist
Hi Chiarina. Any change to your vision at the moment will cause you to worry. I remember waking up most mornings thinking my eyesight had deteriorated. This will stop as your eyesight stabilises. You will notice as we go into Autumn the light fades it seems
to worsen our eyesight but it doesn’t it’s just the quality of light. I find November to March quite difficult but it does improve towards Spring. So try not to worry to much
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On 22 Feb 2023, at 07:01, Chiarina Blake <jc.blake2@...> wrote:
?Firstly, I would like to thank you all for your good suggestions and help.? I am grateful.? Yesterday, I went to see my Specialist and as usual, he put in those eye drops that dilate the pupil.? It seems that every time he does this at visits,
it takes my eye a few days to settle down.? My vision today has been a lot more ineffective than before.? Does anyelse have the same issue? Its been getting me down today.?
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Firstly, I would like to thank you all for your good suggestions and help.? I am grateful.? Yesterday, I went to see my Specialist and as usual, he put in those eye drops that dilate the pupil.? It seems that every time he does this at visits, it takes my eye a few days to settle down.? My vision today has been a lot more ineffective than before.? Does anyelse have the same issue? Its been getting me down today.?
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Re: Naion eye progression
I agree it can be scary regarding information. It took me 3 weeks before I even wanted to know the term for what happened to my eye and just now started conversing about it. Illnesses can be scary.! I even told the drs to keep it simple at first they were giving me too much info that I was making my anxiety worse. We already had plans to drive to our destination anyway so I won’t have to deal with the plane now anyway. Thank you for writing??
I was diagnosed in December 2021 and have flown across the Atlantic twice in that period with agreement from both my NO and retina specialist.? I’ve had no issues as a result of those flights. As mentioned above, most everything is anecdotal.? There are just few if any answers.? As a side thought, I also have idiopathic peripheral neuralgia.? The same happens with that “family.” There are no clear cut causes for INO yet people are always grasping at straws trying to make sense of it and to find a miraculous cure which could be staring at them from the shelf of a drug store or a vendor at a homeopathic market. It’s difficult not knowing exactly what happened, why it happened and how it can be sorted.? I am thankful for the conversations that occur here but to be honest often they scare me as well.?
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Re: Naion eye progression
Hi Lisa.? I am a traveller and I live in Australia so flights from here to anywhere take a lot of time.? Last year, I flew to Europe via Dubai and had no problems.? I asked my eye specialist if it was okay to fly long distance and he said it was fine.? The only issue I had was seeing the seat numbers on the plane so I just asked the flight attendant to take me to my seat.? I also have sleep Apnea so I brought my machine with me.? Whilst I didn't use it on board the flight, I saw a man on the same flight that had one and he was moved to another area of the plane where he could use it.?? I have low vision in both my eyes and I think the doctors are always reminding me to wear glasses when I am outdoors and just to be careful generally especially around my cat and dog and busy toddlers who may accidentally?bump or scratch the eye.? You just have to be careful. P.S A flight to Europe from Australia is 22 hours which includes transit and a flight to the USA is 12 to 14 hours.??
Thank you Scott for answering all my questions ?? the dr did tell me not to do anything dangerous bc I need to keep that good eye. We are going on vacation the end of march and she did say no snorkeling or scuba diving now. Wondering if that is just for now or forever. Do you know if people with NAION can go in airplanes? On Sun, Feb 19, 2023 at 9:52 PM Scott MacCumber via <scottmac1234= [email protected]> wrote:
Hi Lisa, I don’t have sleep apnea. After much testing, it revealed no typical risk factors except for small cup to disk ratios in both eyes. 0.2 in affected eye and 0.1 in good eye.? Always good bp,?on no medications and overall health was very good.? The only thing different in my life for the 3 months leading up my naion was a lot of stress at work and at home.? Can’t be sure but I think that messed with my otherwise normal bp.
8 years later, don’t think about it so much, and just trying to stay healthy to save my good eye.
Take care...Scott On Sunday, February 19, 2023, 7:45 PM, Lisa f <Lisabieznieks@...> wrote: Gosh,, thanks for sharing. I have sleep apnea do you? Seems like quite a few of us do? On Sun, Feb 19, 2023 at 9:25 PM Scott MacCumber via <scottmac1234= [email protected]> wrote:
Further to Lisa’s question about progression. ? August 22 was normal checkup. October 8 was first photo of naion. November 4 shows further hemorrahaging. At that point I had lost my central vision. April 15 shows how it has looked since then,
Scott
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Re: Immunotherapy induced NAION- Migraines
Clare,
? I just wanted to describe my wife's experience and how it is
somewhat similar to yours.
About a week or two previous we had to put down our much-loved dog
due to kidney failure. Then she had to have a breast biopsy and xray
scan which took about a half an hour. She was very stressed out due
to both of these situations.
During the biopsy she had to lay on her left side on a hard table
and was told not to move. She was very uncomfortable but could not
move. Two nights later she suffered NAION in her left eye. Initially
no one knew what it was. The first optometrist just Googled her
symptoms to find out more. 2 weeks later she got to see a neuro
opthologist who spent another 10 days sending her for every test in
the book to rule out everything else. No sterioids by then.
?? So Stress plus pressure on the eye plus it was found she has
"disc at risk" in both eyes. This was 5 years ago. Little change but
some improvement since then.
Dean
On 2/18/2023 12:18 PM, Clare C via
groups.io wrote:
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Hi All,?
2 days before
my NAION episode I did note some blurring/rippling in my visual
field that resolved.? It
is this area that is now affected permanently so in hindsight
something was already going on within my eye.? On the day of my NAION
episode I had a massage.? While
prone with my head was resting in the cradle, I suffered eye
pain/pressure in my right eye which resolved with repositioning.? (I've had massages for
over 30 years due to a back issue and never experienced eye pain
with a massage prior to that day).? That evening, several hours later, I noted
the visual defect in my right inner eye that persists to this
day.? My
ophthalmologist told me there may be a connection between
crowded optic disc and venous congestion leading to compartment
syndrome and NAION but most of the time the cause of our NAION
is unknown (as we all know).?
He?advised me to avoid laying my head in a massage
cradle and to try and avoid exercises when I work out that would
have the blood pooling in my head.? I think that is a reasonable suggestion.? He did suggest that I
may want to pursue better control of my HA’s.??
?
Something upset
the eye’s autoregulation, I will never know for sure.? I suspect
it was a combination of many factors that led to my NAION
episode, a "perfect storm" so to speak.? I too suspect there is
a relationship between have migraine HA and NAION, perhaps it
sets us up for developing NAION (along with our crowded eye
structure).? Hopefully there will be more research in this
area.???
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Re: Naion eye progression
Thank you all for sharing your experiences with longer air flights, all the tips and for the links Adam.? Good to know about people using their CPAP machines on the flights as it's been a while since I've taken a red eye overseas flight.? (I find out if I have sleep apnea on Wednesday.)?
Agree with Gary that all the unknowns with NAION make this an especially tough diagnosis.? Thx again.??
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Re: Naion eye progression
For what it is worth my NO said to stay hydrated ad don't sleep
on the plane.? That would be hard on a long flight.? My sister who
flies long distances a lot says there are a lot of people on her
flights with portable CPAP machines sleeping away.
On 2/20/2023 2:09 PM, Bobbie James
wrote:
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I
was diagnosed in December 2021 and have flown across the
Atlantic twice in that period with agreement from both my NO
and retina specialist.? I’ve had no issues as a result of
those flights. As mentioned above, most everything is
anecdotal.? There are just few if any answers.? As a side
thought, I also have idiopathic peripheral neuralgia.? The
same happens with that “family.” There are no clear cut causes
for INO yet people are always grasping at straws trying to
make sense of it and to find a miraculous cure which could be
staring at them from the shelf of a drug store or a vendor at
a homeopathic market. It’s difficult not knowing exactly what
happened, why it happened and how it can be sorted.? I am
thankful for the conversations that occur here but to be
honest often they scare me as well.?
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Re: Naion eye progression
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I was diagnosed in December 2021 and have flown across the Atlantic twice in that period with agreement from both my NO and retina specialist.? I’ve had no issues as a result of those flights. As mentioned above, most everything is anecdotal.? There are just few if any answers.? As a side thought, I also have idiopathic peripheral neuralgia.? The same happens with that “family.” There are no clear cut causes for INO yet people are always grasping at straws trying to make sense of it and to find a miraculous cure which could be staring at them from the shelf of a drug store or a vendor at a homeopathic market. It’s difficult not knowing exactly what happened, why it happened and how it can be sorted.? I am thankful for the conversations that occur here but to be honest often they scare me as well.?
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Re: Naion eye progression
I was diagnosed in December 2021 and have flown across the Atlantic twice in that period with agreement from both my NO and retina specialist. ?I’ve had no issues as a result of those flights. As mentioned above, most everything is anecdotal. ?There are just few if any answers. ?As a side thought, I also have idiopathic peripheral neuralgia. ?The same happens with that “family.” There are no clear cut causes for INO yet people are always grasping at straws trying to make sense of it and to find a miraculous cure which could be staring at them from the shelf of a drug store or a vendor at a homeopathic market. It’s difficult not knowing exactly what happened, why it happened and how it can be sorted. ?I am thankful for the conversations that occur here but to be honest often they scare me as well.?
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Re: Naion eye progression
I don’t think there is good enough information to know for sure about flying—everything is anecdotal, and at best based on trying to be sensible about avoiding drops in blood flow/bp and oxygen. ? In addition, it is known that high altitude (eg. Himalayas) ?climbers get optic disc swelling and neuropathy, so the advice makes at least some sense; ?see for example:? ;? ? ? A modern jet has similar cabin pressure to an altitude of 8000 feet. However, it is known that oxygen saturation levels drop even in modern aircraft. See ? and go to the section on “Significantly Altered Physiology during Airline Flights”. ? I personally have flown a number of times since I got NAION, including from the US East Coast to Hawaii overnight, even after I knew about the paper above, and I will be flying again. ?But I personally would not go hiking above 8,000 feet or so, out of caution. But other people will come to a different conclusion given the same (fundamentally unknown) risks. ? Some other things I have heard to be careful of with NAION are weightlifting and playing woodwind and some brass instruments: Both temporarily increase intraocular pressure, which my NO said to avoid especially in the 8 weeks or so after I got NAION (ie, no pushups, weightlifting, sit-ups, lifting more than 30 lbs). But again, this was just his professional opinion, and not based on any rigorous study. ? Adam ? ? ?
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From: [email protected] < [email protected]> On Behalf Of Lisa f Sent: Monday, February 20, 2023 8:16 AM To: [email protected]Subject: Re: [NAION] Naion eye progression ? Hello. I believe it is the suction of the mask. My event just happened 4 weeks ago and vacation is a month away so maybe that’s just for vacation.. ? On Mon, Feb 20, 2023 at 7:49 AM Danette Janickovic <Mommyflyz@...> wrote: Curious why snorkeling would be out? I have family that lives in Hawaii and visit often. Since my event I have snorkeled 10-12 times (over six visits). Not for long periods of time; perhaps an hour at longest.? I also had the bright flash of light with loud noises (one night even when my husband closed the magnetic cover on his iPad).? It had seemed to go away but recently has happened again. My event was in 2020.?
On Feb 19, 2023, at 9:15 PM, Scott MacCumber via <scottmac1234=[email protected]> wrote:
? Hi Lisa, I have flown a handful of times without incident but all my flights have been less than 5 hours.? In reviewing old posts, many?people fly many times a year without incident while a couple of people stated that their naion occurred after flying the day before.? So based on statistics it seems safe.? What I do is to avoid?red eye flights so that it doesn’t interfere with my normal sleep schedule.? For the first six months I was advised to avoid high intensity sports, avoid lifting heavy objects, stay out of hot baths, saunas, and hot tubs, stay very hydrated, basically not do?anything that could mess with blood pressure.? One weird thing that I noticed in the first 18 months, and others have commented as well, is that a sharp or sudden noise will cause a bright flash in my naion eye. ? I don’t snorkel or scuba dive so can’t comment on that, maybe others can. Scott?
On Sunday, February 19, 2023, 7:57 PM, Lisa f <Lisabieznieks@...> wrote: Thank you Scott for answering all my questions ?? the dr did tell me not to do anything dangerous bc I need to keep that good eye. We are going on vacation the end of march and she did say no snorkeling or scuba diving now. Wondering if that is just for now or forever. Do you know if people with NAION can go in airplanes? ? On Sun, Feb 19, 2023 at 9:52 PM Scott MacCumber via <scottmac1234=[email protected]> wrote: Hi Lisa, I don’t have sleep apnea. After much testing, it revealed no typical risk factors except for small cup to disk ratios in both eyes. 02 in affected eye and 0.1 in good eye.? Always good bp,?on no medications and overall health was very good.? The only thing different in my life for the 3 months leading up my naion was a lot of stress at work and at home.? Can’t be sure but I think that messed with my otherwise normal bp. 8 years later, don’t think about it so much, and just trying to stay healthy to save my good eye. Take care...Scott
On Sunday, February 19, 2023, 7:45 PM, Lisa f <Lisabieznieks@...> wrote: Gosh,, thanks for sharing. I have sleep apnea do you? Seems like quite a few of us do? ? On Sun, Feb 19, 2023 at 9:25 PM Scott MacCumber via <scottmac1234=[email protected]> wrote: Further to Lisa’s question about progression. ? August 22 was normal checkup. October 8 was first photo of naion. November 4 shows further hemorrahaging. At that point I had lost my central vision. April 15 shows how it has looked since then,
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Re: Naion eye progression
Thanks for the information on noises and flashing light in the affected eye.? I had noticed that right after my event (11/4/22) but it seems to not happen as often now.? Figured it was part of NAION but good to confirm.?
I do not know why snorkeling would be contraindicated so cannot answer that question.??
?
Regarding flying.? I did fly a week before my episode; short hops of 1 ? and 2 ? hours. (Nothing I have not done many times before).? I will be flying to Europe this fall and one flight will be 9 ? hours long.?
I saw Karl’s link from July 21 about flying and I am a little nervous now about my good eye.? I did a quick internet search and the link below is from a 2022 eyewiki article about airflight.??
Has anyone taken long flights after their episode?? I’ve been on flights of 8-9 hours before my NAION episode and tolerated them well.??This trip was postponed due to the pandemic and I really would like to go on the trip.? I?plan to talk to my MD but thought I would reach out for other’s experiences.? Thanks
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Re: Naion eye progression
Hello. I believe it is the suction of the mask. My event just happened 4 weeks ago and vacation is a month away so maybe that’s just for vacation..
On Mon, Feb 20, 2023 at 7:49 AM Danette Janickovic < Mommyflyz@...> wrote: Curious why snorkeling would be out? I have family that lives in Hawaii and visit often. Since my event I have snorkeled 10-12 times (over six visits). Not for long periods of time; perhaps an hour at longest.?
I also had the bright flash of light with loud noises (one night even when my husband closed the magnetic cover on his iPad).? It had seemed to go away but recently has happened again. My event was in 2020.?
Danette On Feb 19, 2023, at 9:15 PM, Scott MacCumber via <scottmac1234=[email protected]> wrote:
?
Hi Lisa, I have flown a handful of times without incident but all my flights have been less than 5 hours.? In reviewing old posts, many?people fly many times a year without incident while a couple of people stated that their naion occurred after flying the day before.? So based on statistics it seems safe.? What I do is to avoid?red eye flights so that it doesn’t interfere with my normal sleep schedule.? For the first six months I was advised to avoid high intensity sports, avoid lifting heavy objects, stay out of hot baths, saunas, and hot tubs, stay very hydrated, basically not do?anything that could mess with blood pressure.? One weird thing that I noticed in the first 18 months, and others have commented as well, is that a sharp or sudden noise will cause a bright flash in my naion eye. ?
I don’t snorkel or scuba dive so can’t comment on that, maybe others can.
Scott? On Sunday, February 19, 2023, 7:57 PM, Lisa f <Lisabieznieks@...> wrote: Thank you Scott for answering all my questions ?? the dr did tell me not to do anything dangerous bc I need to keep that good eye. We are going on vacation the end of march and she did say no snorkeling or scuba diving now. Wondering if that is just for now or forever. Do you know if people with NAION can go in airplanes? On Sun, Feb 19, 2023 at 9:52 PM Scott MacCumber via <scottmac1234= [email protected]> wrote:
Hi Lisa, I don’t have sleep apnea. After much testing, it revealed no typical risk factors except for small cup to disk ratios in both eyes. 0.2 in affected eye and 0.1 in good eye.? Always good bp,?on no medications and overall health was very good.? The only thing different in my life for the 3 months leading up my naion was a lot of stress at work and at home.? Can’t be sure but I think that messed with my otherwise normal bp.
8 years later, don’t think about it so much, and just trying to stay healthy to save my good eye.
Take care...Scott On Sunday, February 19, 2023, 7:45 PM, Lisa f <Lisabieznieks@...> wrote: Gosh,, thanks for sharing. I have sleep apnea do you? Seems like quite a few of us do? On Sun, Feb 19, 2023 at 9:25 PM Scott MacCumber via <scottmac1234= [email protected]> wrote:
Further to Lisa’s question about progression. ? August 22 was normal checkup. October 8 was first photo of naion. November 4 shows further hemorrahaging. At that point I had lost my central vision. April 15 shows how it has looked since then,
Scott
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Re: Naion eye progression
Curious why snorkeling would be out? I have family that lives in Hawaii and visit often. Since my event I have snorkeled 10-12 times (over six visits). Not for long periods of time; perhaps an hour at longest.?
I also had the bright flash of light with loud noises (one night even when my husband closed the magnetic cover on his iPad). ?It had seemed to go away but recently has happened again. My event was in 2020.?
Danette
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On Feb 19, 2023, at 9:15 PM, Scott MacCumber via groups.io <scottmac1234@...> wrote:
?
Hi Lisa, I have flown a handful of times without incident but all my flights have been less than 5 hours. ?In reviewing old posts, many?people fly many times a year without incident while a couple of people stated that their naion occurred after flying the day before. ?So based on statistics it seems safe. ?What I do is to avoid?red eye flights so that it doesn’t interfere with my normal sleep schedule. ?For the first six months I was advised to avoid high intensity sports, avoid lifting heavy objects, stay out of hot baths, saunas, and hot tubs, stay very hydrated, basically not do?anything that could mess with blood pressure. ?One weird thing that I noticed in the first 18 months, and others have commented as well, is that a sharp or sudden noise will cause a bright flash in my naion eye. ?
I don’t snorkel or scuba dive so can’t comment on that, maybe others can.
Scott? On Sunday, February 19, 2023, 7:57 PM, Lisa f <Lisabieznieks@...> wrote: Thank you Scott for answering all my questions ?? the dr did tell me not to do anything dangerous bc I need to keep that good eye. We are going on vacation the end of march and she did say no snorkeling or scuba diving now. Wondering if that is just for now or forever. Do you know if people with NAION can go in airplanes? On Sun, Feb 19, 2023 at 9:52 PM Scott MacCumber via <scottmac1234= [email protected]> wrote:
Hi Lisa, I don’t have sleep apnea. After much testing, it revealed no typical risk factors except for small cup to disk ratios in both eyes. 0.2 in affected eye and 0.1 in good eye.? Always good bp,?on no medications and overall health was very good.? The only thing different in my life for the 3 months leading up my naion was a lot of stress at work and at home.? Can’t be sure but I think that messed with my otherwise normal bp.
8 years later, don’t think about it so much, and just trying to stay healthy to save my good eye.
Take care...Scott On Sunday, February 19, 2023, 7:45 PM, Lisa f <Lisabieznieks@...> wrote: Gosh,, thanks for sharing. I have sleep apnea do you? Seems like quite a few of us do? On Sun, Feb 19, 2023 at 9:25 PM Scott MacCumber via <scottmac1234= [email protected]> wrote:
Further to Lisa’s question about progression. ? August 22 was normal checkup. October 8 was first photo of naion. November 4 shows further hemorrahaging. At that point I had lost my central vision. April 15 shows how it has looked since then,
Scott
<IMG_0321.jpg>
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GaryGBrown
Danette Janickovic