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Re: Immunotherapy induced NAION- Migraines


 

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Clare,
? I just wanted to describe my wife's experience and how it is somewhat similar to yours.
About a week or two previous we had to put down our much-loved dog due to kidney failure. Then she had to have a breast biopsy and xray scan which took about a half an hour. She was very stressed out due to both of these situations.
During the biopsy she had to lay on her left side on a hard table and was told not to move. She was very uncomfortable but could not move. Two nights later she suffered NAION in her left eye. Initially no one knew what it was. The first optometrist just Googled her symptoms to find out more. 2 weeks later she got to see a neuro opthologist who spent another 10 days sending her for every test in the book to rule out everything else. No sterioids by then.
?? So Stress plus pressure on the eye plus it was found she has "disc at risk" in both eyes. This was 5 years ago. Little change but some improvement since then.

Dean

On 2/18/2023 12:18 PM, Clare C via groups.io wrote:

Hi All,?


2 days before my NAION episode I did note some blurring/rippling in my visual field that resolved.? It is this area that is now affected permanently so in hindsight something was already going on within my eye.? On the day of my NAION episode I had a massage.? While prone with my head was resting in the cradle, I suffered eye pain/pressure in my right eye which resolved with repositioning.? (I've had massages for over 30 years due to a back issue and never experienced eye pain with a massage prior to that day).? That evening, several hours later, I noted the visual defect in my right inner eye that persists to this day.? My ophthalmologist told me there may be a connection between crowded optic disc and venous congestion leading to compartment syndrome and NAION but most of the time the cause of our NAION is unknown (as we all know).? He?advised me to avoid laying my head in a massage cradle and to try and avoid exercises when I work out that would have the blood pooling in my head.? I think that is a reasonable suggestion.? He did suggest that I may want to pursue better control of my HA¡¯s.??

?

Something upset the eye¡¯s autoregulation, I will never know for sure.? I suspect it was a combination of many factors that led to my NAION episode, a "perfect storm" so to speak.? I too suspect there is a relationship between have migraine HA and NAION, perhaps it sets us up for developing NAION (along with our crowded eye structure).? Hopefully there will be more research in this area.???


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