I don¡¯t think there is good enough information to know for sure about flying¡ªeverything is anecdotal, and at best based on trying to be sensible about avoiding drops in blood flow/bp and oxygen. ? In addition, it is known that high altitude (eg. Himalayas) ?climbers get optic disc swelling and neuropathy, so the advice makes at least some sense; ?see for example:? ;? ? ? A modern jet has similar cabin pressure to an altitude of 8000 feet. However, it is known that oxygen saturation levels drop even in modern aircraft. See ? and go to the section on ¡°Significantly Altered Physiology during Airline Flights¡±. ? I personally have flown a number of times since I got NAION, including from the US East Coast to Hawaii overnight, even after I knew about the paper above, and I will be flying again. ?But I personally would not go hiking above 8,000 feet or so, out of caution. But other people will come to a different conclusion given the same (fundamentally unknown) risks. ? Some other things I have heard to be careful of with NAION are weightlifting and playing woodwind and some brass instruments: Both temporarily increase intraocular pressure, which my NO said to avoid especially in the 8 weeks or so after I got NAION (ie, no pushups, weightlifting, sit-ups, lifting more than 30 lbs). But again, this was just his professional opinion, and not based on any rigorous study. ? Adam ? ? ?
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From: [email protected] < [email protected]> On Behalf Of Lisa f Sent: Monday, February 20, 2023 8:16 AM To: [email protected]Subject: Re: [NAION] Naion eye progression ? Hello. I believe it is the suction of the mask. My event just happened 4 weeks ago and vacation is a month away so maybe that¡¯s just for vacation.. ? On Mon, Feb 20, 2023 at 7:49 AM Danette Janickovic <Mommyflyz@...> wrote: Curious why snorkeling would be out? I have family that lives in Hawaii and visit often. Since my event I have snorkeled 10-12 times (over six visits). Not for long periods of time; perhaps an hour at longest.? I also had the bright flash of light with loud noises (one night even when my husband closed the magnetic cover on his iPad).? It had seemed to go away but recently has happened again. My event was in 2020.?
On Feb 19, 2023, at 9:15 PM, Scott MacCumber via <scottmac1234=[email protected]> wrote:
? Hi Lisa, I have flown a handful of times without incident but all my flights have been less than 5 hours.? In reviewing old posts, many?people fly many times a year without incident while a couple of people stated that their naion occurred after flying the day before.? So based on statistics it seems safe.? What I do is to avoid?red eye flights so that it doesn¡¯t interfere with my normal sleep schedule.? For the first six months I was advised to avoid high intensity sports, avoid lifting heavy objects, stay out of hot baths, saunas, and hot tubs, stay very hydrated, basically not do?anything that could mess with blood pressure.? One weird thing that I noticed in the first 18 months, and others have commented as well, is that a sharp or sudden noise will cause a bright flash in my naion eye. ? I don¡¯t snorkel or scuba dive so can¡¯t comment on that, maybe others can. Scott?
On Sunday, February 19, 2023, 7:57 PM, Lisa f <Lisabieznieks@...> wrote: Thank you Scott for answering all my questions ?? the dr did tell me not to do anything dangerous bc I need to keep that good eye. We are going on vacation the end of march and she did say no snorkeling or scuba diving now. Wondering if that is just for now or forever. Do you know if people with NAION can go in airplanes? ? On Sun, Feb 19, 2023 at 9:52 PM Scott MacCumber via <scottmac1234=[email protected]> wrote: Hi Lisa, I don¡¯t have sleep apnea. After much testing, it revealed no typical risk factors except for small cup to disk ratios in both eyes. 02 in affected eye and 0.1 in good eye.? Always good bp,?on no medications and overall health was very good.? The only thing different in my life for the 3 months leading up my naion was a lot of stress at work and at home.? Can¡¯t be sure but I think that messed with my otherwise normal bp. 8 years later, don¡¯t think about it so much, and just trying to stay healthy to save my good eye. Take care...Scott
On Sunday, February 19, 2023, 7:45 PM, Lisa f <Lisabieznieks@...> wrote: Gosh,, thanks for sharing. I have sleep apnea do you? Seems like quite a few of us do? ? On Sun, Feb 19, 2023 at 9:25 PM Scott MacCumber via <scottmac1234=[email protected]> wrote: Further to Lisa¡¯s question about progression. ? August 22 was normal checkup. October 8 was first photo of naion. November 4 shows further hemorrahaging. At that point I had lost my central vision. April 15 shows how it has looked since then,
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