Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

Since my NAION attack .. I never take any Pharm .. without my M.D. comments. Full stop.

Alternative to Ozempic? Oh .. exercise .. reduce fats and carbs ..

On Tuesday, April 29, 2025 at 04:16:38 PM EDT, cathysalder via groups.io <cathysalder@...> wrote:

Wow! Thanks for sharing this article. It is really becoming a related problem. Super frustrating as I know you’re like me and never would have taken it is there was that side effect listed.?

Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

#2191

Agree!

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On Wed, Apr 30, 2025 at 8:59?AM GaryGBrown via <bhmvol=[email protected]> wrote:

Yes most of us know this is out there. As is the case with many new occurrences in medicine it’s wise to be cautious as to committing your thoughts to one idea. Ozempic is a common factor as is obesity and diabetes. Is OSA or CA another factor? Is HBP? Disk ratio? AFIB? Could it be that morbid obesity was more of a threat to life than the side effects of the medication?? We don’t know the answers to these things. The onset of NAION is a very emotional experience for all of us. The percentage of Ozempic users with NAION is miniscule. Let’s use caution if the medication is ever suggested but let’s not throw the baby out with the bath water…yet, until we now if these new drugs are the cause. At this point like every other theoretical cause of NAION, we really don’t know if any of them are actually to blame.?

Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

#2190

STONE-COLD REAL .. PHARMS carry risk. To think otherwise is to be absurd and nonsensical.

Medicine is risk/reward. Nothing is 100%, except taxes and death.

Ex: take a statin -- increase risk of Parkinson's. The choice: Parkinson's at 75 -- or DEATH at 62. Your call.

-----

On Wednesday, April 30, 2025 at 09:27:15 AM EDT, Andrew Watson via groups.io <aowats3@...> wrote:

All so true. However, were I a person with one NAION eye already, you can be damned sure I wouldn’t touch GLP-1’s until there’s an answer. “Association” isn’t causality, but it’s enough for me.

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On Apr 30, 2025, at 08:59, GaryGBrown via groups.io <bhmvol@...> wrote:

?
Yes most of us know this is out there. As is the case with many new occurrences in medicine it’s wise to be cautious as to committing your thoughts to one idea. Ozempic is a common factor as is obesity and diabetes. Is OSA or CA another factor? Is HBP? Disk ratio? AFIB? Could it be that morbid obesity was more of a threat to life than the side effects of the medication? ?We don’t know the answers to these things. The onset of NAION is a very emotional experience for all of us. The percentage of Ozempic users with NAION is miniscule. Let’s use caution if the medication is ever suggested but let’s not throw the baby out with the bath water…yet, until we now if these new drugs are the cause. At this point like every other theoretical cause of NAION, we really don’t know if any of them are actually to blame.?

Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

#2189

开云体育

All so true. However, were I a person with one NAION eye already, you can be damned sure I wouldn’t touch GLP-1’s until there’s an answer. “Association” isn’t causality, but it’s enough for me.

Show quoted text

On Apr 30, 2025, at 08:59, GaryGBrown via groups.io <bhmvol@...> wrote:

?
Yes most of us know this is out there. As is the case with many new occurrences in medicine it’s wise to be cautious as to committing your thoughts to one idea. Ozempic is a common factor as is obesity and diabetes. Is OSA or CA another factor? Is HBP? Disk ratio? AFIB? Could it be that morbid obesity was more of a threat to life than the side effects of the medication? ?We don’t know the answers to these things. The onset of NAION is a very emotional experience for all of us. The percentage of Ozempic users with NAION is miniscule. Let’s use caution if the medication is ever suggested but let’s not throw the baby out with the bath water…yet, until we now if these new drugs are the cause. At this point like every other theoretical cause of NAION, we really don’t know if any of them are actually to blame.?

Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

#2188

Yes most of us know this is out there. As is the case with many new occurrences in medicine it’s wise to be cautious as to committing your thoughts to one idea. Ozempic is a common factor as is obesity and diabetes. Is OSA or CA another factor? Is HBP? Disk ratio? AFIB? Could it be that morbid obesity was more of a threat to life than the side effects of the medication? ?We don’t know the answers to these things. The onset of NAION is a very emotional experience for all of us. The percentage of Ozempic users with NAION is miniscule. Let’s use caution if the medication is ever suggested but let’s not throw the baby out with the bath water…yet, until we now if these new drugs are the cause. At this point like every other theoretical cause of NAION, we really don’t know if any of them are actually to blame.?

Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

#2187

Great information, thank you!

Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

#2186

My husband was taking Sexenda and lost vision in both eyes, 7 months apart. We flew down to Baskin Palmer Institute in Miami and saw two ocular neurologists.? They both knew about the supposed connection between GLP. 1 and NAION. They both thought there is no true connection because there is not an increase in NAION worldwide yet there are so many people taking GLP’s. Just another prospective on the issue. ?

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On Tue, Apr 29, 2025 at 5:11?PM Andrew Watson via <aowats3=[email protected]> wrote:

This (Ozempic), I am quite sure, is what caused my NAION in right eye. Took dosages up to 1 mg of Ozempic August ‘24-January ‘25. See online info about Massachusetts Eye and Ear (Harvard affiliated) discovery (which, they say, requires further study) that chances of obese and diabetic patients who take a GLP-1 medication (e.g. Ozempic, Weygovy) is 4-7x more likely than those taking other meds for these conditions. They found an “association,” by did not yet find a “causality.” I know this has been posted before, but we have many new people joining this group.

On Apr 29, 2025, at 17:19, cathysalder via <cathysalder=[email protected]> wrote:

?
Wow! I’ll have to take a look.?

Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

#2185

开云体育

I really appreciate hearing from any and all experiences.?

Show quoted text

On Apr 29, 2025, at 4:11?PM, Andrew Watson via groups.io <aowats3@...> wrote:

?This (Ozempic), I am quite sure, is what caused my NAION in right eye. Took dosages up to 1 mg of Ozempic August ‘24-January ‘25. See online info about Massachusetts Eye and Ear (Harvard affiliated) discovery (which, they say, requires further study) that chances of obese and diabetic patients who take a GLP-1 medication (e.g. Ozempic, Weygovy) is 4-7x more likely than those taking other meds for these conditions. They found an “association,” by did not yet find a “causality.” I know this has been posted before, but we have many new people joining this group.

On Apr 29, 2025, at 17:19, cathysalder via groups.io <cathysalder@...> wrote:

?
Wow! I’ll have to take a look.?

Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

#2184

开云体育

This (Ozempic), I am quite sure, is what caused my NAION in right eye. Took dosages up to 1 mg of Ozempic August ‘24-January ‘25. See online info about Massachusetts Eye and Ear (Harvard affiliated) discovery (which, they say, requires further study) that chances of obese and diabetic patients who take a GLP-1 medication (e.g. Ozempic, Weygovy) is 4-7x more likely than those taking other meds for these conditions. They found an “association,” by did not yet find a “causality.” I know this has been posted before, but we have many new people joining this group.

Show quoted text

On Apr 29, 2025, at 17:19, cathysalder via groups.io <cathysalder@...> wrote:

?
Wow! I’ll have to take a look.?

Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

#2183

Wow! I’ll have to take a look.?

Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

#2182

开云体育

I was watching for that in Ozempic TV ads and all I saw at the bottom of the list was "Vision Changes". HAH!
A HUGE, life-changing vision change!

On 4/29/2025 4:16 PM, cathysalder via groups.io wrote:

Show quoted text

Wow! Thanks for sharing this article. It is really becoming a related problem. Super frustrating as I know you’re like me and never would have taken it is there was that side effect listed.?

Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

#2181

Wow! Thanks for sharing this article. It is really becoming a related problem. Super frustrating as I know you’re like me and never would have taken it is there was that side effect listed.?

"Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"

#2180

https://nypost.com/2025/04/29/us-news/grandma-of-11-and-nj-man-join-growing-chorus-of-ozempic-wegovy-users-claiming-severe-vision-loss?utm_source=nypost&utm_campaign=android_nyp&utm_medium=social

Re: Next Saturday Zoom, May 3 (Details and Link)

#2179

Thank you so much for accommodating us Brits so brilliantly - 4pm: what a treat. Sadly, though, I can't make it myself, as it's my grandson's birthday tea party! That's what we on this side of the pond call 'Sod's Law'. Maybe another time ...

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On Mon, 28 Apr 2025 at 23:41, Debra B via groups.io
<debrownstein@...> wrote:

Re: Saturday Zoom, NAION?peer support group on May 3.?

Hello NAION friends,
Our first Zoom meeting was exciting,?there were many wonderful?participants and?it was fun to talk with so many NAION people! Some?people?rreached?out to me about an?earlier time and a?weekend day might be easier?for them. ?So if you are interested and available please join us for one hour on this next Saturday.

When?
Saturday May 3,?Zoom?Room?opens 15 min before start time.

? Pacific Daylight Time (PDT) 8:00 AM?
? Central Time (CDT): 10:00 AM.
? Eastern Time (EDT): 11:00 AM.
? Dublin (IST) 4:00 PM
? London, UK (BST): 4:00 PM
? Paris, 5:00 PM (CEST) 5:00 PM
? Cape Town, South Africa?(SAST) 5:00 PM
? Melbourne, Australia?(AEST)1:00?AM?May 4
? Aukland, New Zealand (NZST)?3:00 AM?May 4
? Hawa’i, (H§T) 5AM

Where?
For?Zoom Link,?click on this web address:

Please note with your voluntarily??participation you agree to release all other participants, volunteers and organizers of any and all liability.?
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161

Let’s have fun,
Debra B?(volunteer)
debrownstein@...
NAION Bilateral since March 4, 2025

Re: Next Saturday Zoom, May 3 (Details and Link)

#2178

Great. Thank you

Show quoted text

On Tue, 29 Apr 2025 at 00:41, Debra B via <debrownstein=[email protected]> wrote:

Re: Saturday Zoom, NAION?peer support group on May 3.?

Hello NAION friends,
Our first Zoom meeting was exciting,?there were many wonderful?participants and?it was fun to talk with so many NAION people! Some?people?rreached?out to me about an?earlier time and a?weekend day might be easier?for them. ?So if you are interested and available please join us for one hour on this next Saturday.

When?
Saturday May 3,?Zoom?Room?opens 15 min before start time.

? Pacific Daylight Time (PDT) 8:00 AM?
? Central Time (CDT): 10:00 AM.
? Eastern Time (EDT): 11:00 AM.
? Dublin (IST) 4:00 PM
? London, UK (BST): 4:00 PM
? Paris, 5:00 PM (CEST) 5:00 PM
? Cape Town, South Africa?(SAST) 5:00 PM
? Melbourne, Australia?(AEST)1:00?AM?May 4
? Aukland, New Zealand (NZST)?3:00 AM?May 4
? Hawa’i, (H§T) 5AM

Where?
For?Zoom Link,?click on this web address:

Please note with your voluntarily??participation you agree to release all other participants, volunteers and organizers of any and all liability.?
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161

Let’s have fun,
Debra B?(volunteer)
debrownstein@...
NAION Bilateral since March 4, 2025

Next Saturday Zoom, May 3 (Details and Link)

#2177

Re: Saturday Zoom, NAION?peer support group on May 3.?

Hello NAION friends,

Our first Zoom meeting was exciting,?there were many wonderful?participants and?it was fun to talk with so many NAION people! Some?people?rreached?out to me about an?earlier time and a?weekend day might be easier?for them. ?So if you are interested and available please join us for one hour on this next Saturday.

When?

Saturday May 3,?Zoom?Room?opens 15 min before start time.

? Pacific Daylight Time (PDT) 8:00 AM?
? Central Time (CDT): 10:00 AM.
? Eastern Time (EDT): 11:00 AM.

? Dublin (IST) 4:00 PM

? London, UK (BST): 4:00 PM

? Paris, 5:00 PM (CEST) 5:00 PM

? Cape Town, South Africa?(SAST) 5:00 PM

? Melbourne, Australia?(AEST)1:00?AM?May 4

? Aukland, New Zealand (NZST)?3:00 AM?May 4

? Hawa’i, (H§T) 5AM

Where?

For?Zoom Link,?click on this web address:

Please note with your voluntarily??participation you agree to release all other participants, volunteers and organizers of any and all liability.?

If the link isn't working use:

Meeting ID: 627 175 4286
Passcode: 7388161

Let’s have fun,

Debra B?(volunteer)

debrownstein@...

NAION Bilateral since March 4, 2025

Re: Our new NAION Zoom Group starts Wednesday April 23,2025

#2176

I really enjoyed our conversation and look forward to the next one. Thank you for putting this together and for everyone’s input and shared life experiences. ?It feels good to visit with people who really “get it” instead of trying to explain to people what it’s like.?

Re: Our new NAION Zoom Group starts Wednesday April 23,2025

#2175

Hi Pamela. I did meet with a low vision speciality and found him very helpful. He told me about some goggles you can add your prescription to that you buy on amazon and they were only around $15. I did purchase a pair and hacn’t tried them in our swim spa yet but hopefully soon.?

Re: Possible Zoom meet Saturday or Sunday

#2174

Yes

Re: Possible Zoom meet Saturday or Sunday

#2173

Thanks - yes, i would welcome a slightly more congenial time for UK NAION sufferers than 11pm. My days of attending all-night 'raves' are sadly long gone. How about 9pm or even 10pm? That would still give Californians and others a decent time.

Show quoted text

On Thu, 24 Apr 2025 at 23:27, Debra B via groups.io
<debrownstein@...> wrote:

There is an option to attend a new Zoom meetup for those unable to attend the last one (yesterday).?

?I just want everyone to have an opportunity to talk with other NAION people. We are not alone.

I can set it up another Zoom for anytime you might want Saturday or Sunday.? I just want help verifying time zones.? I live in California but can get up in the middle of the night with no problem.

Please let me know if you have any interest directly at?
my email below. Include your time zone and time preferences.

Thank you,?
Debra B
debrownstein@...