Re: Possible Zoom meet Saturday or Sunday
Thanks - yes, i would welcome a slightly more congenial time for UK NAION sufferers than 11pm. My days of attending all-night 'raves' are sadly long gone. How about 9pm or even 10pm? That would still give Californians and others a decent time.
On Thu, 24 Apr 2025 at 23:27, Debra B via groups.io <debrownstein@...> wrote: There is an option to attend a new Zoom meetup for those unable to attend the last one (yesterday).?
?I just want everyone to have an opportunity to talk with other NAION people. We are not alone.
I can set it up another Zoom for anytime you might want Saturday or Sunday.? I just want help verifying time zones.? I live in California but can get up in the middle of the night with no problem.
Please let me know if you have any interest directly at?
my email below. Include your time zone and time preferences.
Thank you,? Debra B
|
Re: Possible Zoom meet Saturday or Sunday
I was unable to participate Wednesday. Life got in the way. Either day works for me. I am in EST in KY.?
Debra thank you for organizing this event.?
I know the emails I see, have provided valuable information that I am going to use to discuss with my ophthalmologist and PCP.?
Cheryl C.?
There is an option to attend a new Zoom meetup for those unable to attend the last one (yesterday).?
?I just want everyone to have an opportunity to talk with other NAION people. We are not alone.
I can set it up another Zoom for anytime you might want Saturday or Sunday.? I just want help verifying time zones.? I live in California but can get up in the middle of the night with no problem.
Please let me know if you have any interest directly at?
my email below. Include your time zone and time preferences.
Thank you,? Debra B
|
Possible Zoom meet Saturday or Sunday
There is an option to attend a new Zoom meetup for those unable to attend the last one (yesterday).?
?I just want everyone to have an opportunity to talk with other NAION people. We are not alone.
I can set it up another Zoom for anytime you might want Saturday or Sunday.? I just want help verifying time zones.? I live in California but can get up in the middle of the night with no problem.
Please let me know if you have any interest directly at?
my email below. Include your time zone and time preferences.
Thank you,? Debra B
|
Re: NAION Peer Support Zoom LINK & Time
Hi George,?
Sorry you were not able to attend.? We will do Zoom Group again next month, did not video record it because of privacy concerns. Would a Saturday Zoom work better for you? And what time-zone are you in?
Thank you, Debra B
On Wed, Apr 23, 2025 at 5:35?PM George Ousler via <sailfishin= [email protected]> wrote:
Hi Deb,
I wish I could have made the Zoom! But my workday went later than expected. I will definitely attend the next meeting. In the meantime, was the meeting recorded? And if so, is this something that you can share? Thanks so much!
All the Best,?
George?
On Wednesday, April 23, 2025 at 07:46:40 PM EDT, Debra B via <debrownstein= [email protected]> wrote:
Oh Paul, we missed you. ?
We will do another ZOOM Meetig next month if you want to try again.? I had no requirement for a Zoom account to join our meeting¡ ?So I just asked ¡°Perplexity¡±, the AI App if someone ?needed a Zoom account to join a Zoom meeting and these are the answers I received: ¡°You do not need a Zoom account to join a Zoom meeting as a participant. You can join simply by clicking the meeting link or entering the meeting ID and passcode provided by the host. Joining without an account is possible via the Zoom app or directly from a web browser with limited features.
However, if the meeting host has enabled authentication profiles requiring participants to sign in, then you must have a Zoom account to join. Also, creating a Zoom account is necessary if you want to host your own meetings, send invitations, or access personal settings¡±
¡°You can join a Zoom meeting without a Zoom account by simply clicking the meeting invite link or entering the meeting ID and passcode on Zoom¡¯s website or app as a guest. When prompted, you can join from your browser by clicking ¡°Join from your browser¡± without downloading the Zoom app. You will need to enter your name to join the meeting. This allows access to basic meeting features without signing in.
However, if the host has enabled authentication restrictions, you may be required to sign in with a Zoom account to join.
In summary, to join without an account:
? Click the meeting link or go to
? Enter the meeting ID and passcode
? Choose ¡°Join from your browser¡± if you don¡¯t want to download the app
? Enter your display name and join the meeting
This works on desktop or mobile devices.¡±
Best vision,? Debra B
On Wed, Apr 23, 2025 at 3:05?PM Paul Campano via <campano21= [email protected]> wrote:
For some reason I can't establish a zoom account-their support site is worthless!
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
?
?
Hello NAION friends,
You are invited to attend our?free NAION?peer support group. Please note with your voluntarily ?participation you agree to release all other participants, volunteers and organizers of any and all liability.?
?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time.
? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
?
Where?
Zoom Link click?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
?
We are building a NAION?community together.?
Thank you,
Debra B?
Volunteer
NAION Bilateral since March 4, 2025
?
|
Re: NAION Peer Support Zoom LINK & Time
Thank you Russ, great suggestion.?
ABOUT SETTING TIME?
recommend use Greenwich Mean Time (GMT: LONDON: 00:00 base) .. NYC, +5
global simplicity..
On Wed, Apr 23, 2025 at 2:51 PM, Debra B via Hello NAION friends, You are invited to attend our? free NAION? peer support group. Please note w ith your voluntarily ? participation you agree to release all other participants, volunteers and organizers of any and all liability.?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time. ? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
Where?Zoom Link click ?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
We are building a NAION?community together.?
Thank you,
Debra B? Volunteer NAION Bilateral since March 4, 2025
|
Re: NAION Peer Support Zoom LINK & Time
ABOUT SETTING TIME?
recommend use Greenwich Mean Time (GMT: LONDON: 00:00 base) .. NYC, +5
global simplicity..
On Wed, Apr 23, 2025 at 2:51 PM, Debra B via groups.io <debrownstein@...> wrote: Hello NAION friends, You are invited to attend our? free NAION? peer support group. Please note w ith your voluntarily ? participation you agree to release all other participants, volunteers and organizers of any and all liability.?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time. ? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
Where?Zoom Link click ?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
We are building a NAION?community together.?
Thank you,
Debra B? Volunteer NAION Bilateral since March 4, 2025
|
Re: NAION Peer Support Zoom LINK & Time
Hi Deb
Jennifer from Melbourne Australia here.
Has this meeting been held.
Just logged in Melb time at 12noon 24/4/25??
Get
toggle quoted message
Show quoted text
Hi Debra,
I actually did manage to join-I was Mac user; thanks for a great session and talk to you soon!
Paul
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
On 04/23/2025 7:46 PM EDT Debra B via groups.io <debrownstein@...> wrote:
?
?
Oh Paul, we missed you. ?
?
We will do another ZOOM Meetig next month if you want to try again.? I had no requirement for a Zoom account to join our meeting¡ ?So I just asked ¡°Perplexity¡±, the AI App if someone ?needed a Zoom account to join a Zoom meeting and these are
the answers I received:
¡°You do not need a Zoom account to join a Zoom meeting as a participant. You can join simply by clicking the meeting link or entering the meeting ID and passcode provided by the host. Joining without an account is possible via the Zoom app or
directly from a web browser with limited features.
However, if the meeting host has enabled authentication profiles requiring participants to sign in, then you must have a Zoom account to join. Also, creating a Zoom account is necessary if you want to host your own meetings, send invitations, or access personal
settings¡±
?
¡°You can join a Zoom meeting without a Zoom account by simply clicking the meeting invite link or entering the meeting ID and passcode on Zoom¡¯s website or app as a guest. When prompted, you can join from your browser by clicking ¡°Join from
your browser¡± without downloading the Zoom app. You will need to enter your name to join the meeting. This allows access to basic meeting features without signing in.
However, if the host has enabled authentication restrictions, you may be required to sign in with a Zoom account to join.
In summary, to join without an account:
? Click the meeting link or go to
? Enter the meeting ID and passcode
? Choose ¡°Join from your browser¡± if you don¡¯t want to download the app
? Enter your display name and join the meeting
This works on desktop or mobile devices.¡±
?
Best vision,?
Debra B
?
?
?
On Wed, Apr 23, 2025 at 3:05?PM Paul Campano via
<campano21= [email protected]> wrote:
For some reason I can't establish a zoom account-their support site is worthless!
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
?
?
Hello NAION friends,
You are invited to attend our?free
NAION?peer support group. Please note with your voluntarily
?participation you agree to release all other participants, volunteers and organizers of any and all liability.?
?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time.
? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
?
Where?
Zoom Link click?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
?
We are building a NAION?community together.?
Thank you,
Debra B?
Volunteer
NAION Bilateral since March 4, 2025
?
?
?
|
Re: NAION Peer Support Zoom LINK & Time
Hi Debra,
I actually did manage to join-I was Mac user; thanks for a great session and talk to you soon!
Paul
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
toggle quoted message
Show quoted text
On 04/23/2025 7:46 PM EDT Debra B via groups.io <debrownstein@...> wrote:
?
?
Oh Paul, we missed you. ?
?
We will do another ZOOM Meetig next month if you want to try again.? I had no requirement for a Zoom account to join our meeting¡ ?So I just asked ¡°Perplexity¡±, the AI App if someone ?needed a Zoom account to join a Zoom meeting and these are the answers I received:
¡°You do not need a Zoom account to join a Zoom meeting as a participant. You can join simply by clicking the meeting link or entering the meeting ID and passcode provided by the host. Joining without an account is possible via the Zoom app or directly from a web browser with limited features.
However, if the meeting host has enabled authentication profiles requiring participants to sign in, then you must have a Zoom account to join. Also, creating a Zoom account is necessary if you want to host your own meetings, send invitations, or access personal settings¡±
?
¡°You can join a Zoom meeting without a Zoom account by simply clicking the meeting invite link or entering the meeting ID and passcode on Zoom¡¯s website or app as a guest. When prompted, you can join from your browser by clicking ¡°Join from your browser¡± without downloading the Zoom app. You will need to enter your name to join the meeting. This allows access to basic meeting features without signing in.
However, if the host has enabled authentication restrictions, you may be required to sign in with a Zoom account to join.
In summary, to join without an account:
? Click the meeting link or go to
? Enter the meeting ID and passcode
? Choose ¡°Join from your browser¡± if you don¡¯t want to download the app
? Enter your display name and join the meeting
This works on desktop or mobile devices.¡±
?
Best vision,?
Debra B
?
?
?
On Wed, Apr 23, 2025 at 3:05?PM Paul Campano via <campano21= [email protected]> wrote:
For some reason I can't establish a zoom account-their support site is worthless!
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
?
?
Hello NAION friends,
You are invited to attend our?free NAION?peer support group. Please note with your voluntarily ?participation you agree to release all other participants, volunteers and organizers of any and all liability.?
?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time.
? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
?
Where?
Zoom Link click?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
?
We are building a NAION?community together.?
Thank you,
Debra B?
Volunteer
NAION Bilateral since March 4, 2025
?
?
?
|
Re: NAION Peer Support Zoom LINK & Time
Hi Deb,
I wish I could have made the Zoom! But my workday went later than expected. I will definitely attend the next meeting. In the meantime, was the meeting recorded? And if so, is this something that you can share? Thanks so much!
All the Best,?
George?
On Wednesday, April 23, 2025 at 07:46:40 PM EDT, Debra B via groups.io <debrownstein@...> wrote:
Oh Paul, we missed you. ?
We will do another ZOOM Meetig next month if you want to try again.? I had no requirement for a Zoom account to join our meeting¡ ?So I just asked ¡°Perplexity¡±, the AI App if someone ?needed a Zoom account to join a Zoom meeting and these are the answers I received: ¡°You do not need a Zoom account to join a Zoom meeting as a participant. You can join simply by clicking the meeting link or entering the meeting ID and passcode provided by the host. Joining without an account is possible via the Zoom app or directly from a web browser with limited features.
However, if the meeting host has enabled authentication profiles requiring participants to sign in, then you must have a Zoom account to join. Also, creating a Zoom account is necessary if you want to host your own meetings, send invitations, or access personal settings¡±
¡°You can join a Zoom meeting without a Zoom account by simply clicking the meeting invite link or entering the meeting ID and passcode on Zoom¡¯s website or app as a guest. When prompted, you can join from your browser by clicking ¡°Join from your browser¡± without downloading the Zoom app. You will need to enter your name to join the meeting. This allows access to basic meeting features without signing in.
However, if the host has enabled authentication restrictions, you may be required to sign in with a Zoom account to join.
In summary, to join without an account:
? Click the meeting link or go to
? Enter the meeting ID and passcode
? Choose ¡°Join from your browser¡± if you don¡¯t want to download the app
? Enter your display name and join the meeting
This works on desktop or mobile devices.¡±
Best vision,? Debra B
On Wed, Apr 23, 2025 at 3:05?PM Paul Campano via <campano21= [email protected]> wrote:
For some reason I can't establish a zoom account-their support site is worthless!
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
?
?
Hello NAION friends,
You are invited to attend our?free NAION?peer support group. Please note with your voluntarily ?participation you agree to release all other participants, volunteers and organizers of any and all liability.?
?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time.
? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
?
Where?
Zoom Link click?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
?
We are building a NAION?community together.?
Thank you,
Debra B?
Volunteer
NAION Bilateral since March 4, 2025
?
|
Re: NAION Peer Support Zoom LINK & Time
Oh Paul, we missed you. ?
We will do another ZOOM Meetig next month if you want to try again.? I had no requirement for a Zoom account to join our meeting¡ ?So I just asked ¡°Perplexity¡±, the AI App if someone ?needed a Zoom account to join a Zoom meeting and these are the answers I received: ¡°You do not need a Zoom account to join a Zoom meeting as a participant. You can join simply by clicking the meeting link or entering the meeting ID and passcode provided by the host. Joining without an account is possible via the Zoom app or directly from a web browser with limited features.
However, if the meeting host has enabled authentication profiles requiring participants to sign in, then you must have a Zoom account to join. Also, creating a Zoom account is necessary if you want to host your own meetings, send invitations, or access personal settings¡±
¡°You can join a Zoom meeting without a Zoom account by simply clicking the meeting invite link or entering the meeting ID and passcode on Zoom¡¯s website or app as a guest. When prompted, you can join from your browser by clicking ¡°Join from your browser¡± without downloading the Zoom app. You will need to enter your name to join the meeting. This allows access to basic meeting features without signing in.
However, if the host has enabled authentication restrictions, you may be required to sign in with a Zoom account to join.
In summary, to join without an account:
? Click the meeting link or go to
? Enter the meeting ID and passcode
? Choose ¡°Join from your browser¡± if you don¡¯t want to download the app
? Enter your display name and join the meeting
This works on desktop or mobile devices.¡±
Best vision,? Debra B
On Wed, Apr 23, 2025 at 3:05?PM Paul Campano via <campano21= [email protected]> wrote:
For some reason I can't establish a zoom account-their support site is worthless!
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
?
?
Hello NAION friends,
You are invited to attend our?free NAION?peer support group. Please note with your voluntarily ?participation you agree to release all other participants, volunteers and organizers of any and all liability.?
?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time.
? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
?
Where?
Zoom Link click?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
?
We are building a NAION?community together.?
Thank you,
Debra B?
Volunteer
NAION Bilateral since March 4, 2025
?
|
Re: NAION Peer Support Zoom LINK & Time
For some reason I can't establish a zoom account-their support site is worthless!
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
toggle quoted message
Show quoted text
On 04/23/2025 2:50 PM EDT Debra B via groups.io <debrownstein@...> wrote:
?
?
Hello NAION friends,
You are invited to attend our?free NAION?peer support group. Please note with your voluntarily ?participation you agree to release all other participants, volunteers and organizers of any and all liability.?
?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time.
? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
?
Where?
Zoom Link click?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
?
We are building a NAION?community together.?
Thank you,
Debra B?
Volunteer
NAION Bilateral since March 4, 2025
?
|
Re: Correction to UK Zoom Time now 11pm
I mistakenly wrote down 5 pm, but I¡¯m in Eastern US time zone and have a dinner commitment. Look forward to hearing what was discussed/learned.
toggle quoted message
Show quoted text
On Apr 23, 2025, at 16:40, Debra B via groups.io <debrownstein@...> wrote:
Thank you for this correction. I relied on AI to tell me the times and it was mistaken!? .Hopefully if there are any other corrections people will find their correct corresponding time! Thank you Ronnie! -?
On Wed, Apr 23, 2025 at 11:56?AM ronnie landau via <ronnielandau= [email protected]> wrote:
You've got UK time as 3am tomorrow. But we're only 5 hours ahead of EDT!? So, it should be 11pm this evening for the UK.? Please confirm asap. Thanks
On Wednesday, 23 April 2025 at 19:51:29 BST, Debra B via <debrownstein= [email protected]> wrote:
Hello NAION friends, You are invited to attend our? free NAION? peer support group. Please note w ith your voluntarily ? participation you agree to release all other participants, volunteers and organizers of any and all liability.?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time. ? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 11:00 PM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
Where?Zoom Link click ?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
We are building a NAION?community together.?
Thank you,
Debra B? Volunteer NAION Bilateral since March 4, 2025
|
Correction to UK Zoom Time now 11pm
Thank you for this correction. I relied on AI to tell me the times and it was mistaken!? .Hopefully if there are any other corrections people will find their correct corresponding time! Thank you Ronnie! -?
On Wed, Apr 23, 2025 at 11:56?AM ronnie landau via <ronnielandau= [email protected]> wrote:
You've got UK time as 3am tomorrow. But we're only 5 hours ahead of EDT!? So, it should be 11pm this evening for the UK.? Please confirm asap. Thanks
On Wednesday, 23 April 2025 at 19:51:29 BST, Debra B via <debrownstein= [email protected]> wrote:
Hello NAION friends, You are invited to attend our? free NAION? peer support group. Please note w ith your voluntarily ? participation you agree to release all other participants, volunteers and organizers of any and all liability.?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time. ? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 11:00 PM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
Where?Zoom Link click ?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
We are building a NAION?community together.?
Thank you,
Debra B? Volunteer NAION Bilateral since March 4, 2025
|
Re: NAION Peer Support Zoom LINK & Time
You've got UK time as 3am tomorrow. But we're only 5 hours ahead of EDT!? So, it should be 11pm this evening for the UK.? Please confirm asap. Thanks
On Wednesday, 23 April 2025 at 19:51:29 BST, Debra B via groups.io <debrownstein@...> wrote:
Hello NAION friends, You are invited to attend our? free NAION? peer support group. Please note w ith your voluntarily ? participation you agree to release all other participants, volunteers and organizers of any and all liability.?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time. ? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
Where?Zoom Link click ?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
We are building a NAION?community together.?
Thank you,
Debra B? Volunteer NAION Bilateral since March 4, 2025
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NAION Peer Support Zoom LINK & Time
Hello NAION friends, You are invited to attend our?free NAION?peer support group. Please note with your voluntarily ?participation you agree to release all other participants, volunteers and organizers of any and all liability.?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time.? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
Where?Zoom Link click?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
We are building a NAION?community together.?
Thank you,
Debra B? Volunteer NAION Bilateral since March 4, 2025
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Re: Our new NAION Zoom Group starts Wednesday April 23,2025
Thank You! Wonderful to know there are plenty of options.
On Wed, Apr 23, 2025 at 10:15?AM michael arki via <mikearki= [email protected]> wrote: Hi Pam,
Custom glasses based upon the diagnosis from my Low Vision Specialist. The driving glasses allows me to see all signs and traffic lights from a distance via a custom magnifying glass attached to the lenses. Under normal driving ?conditions you're wearing the glasses but not engaging the magnifying portion, when required you look down through it to quickly read the signs. Similar to looking at your rear view mirror, a quick glance to reference but not sustained. Reading glasses are also custom per individual, the material to read requires close proximity for optimal clarity.?
These glasses are very benificial and are costly but its worth it. If applicable, your medical/vision coverage should cover some if not all of the expenses but you may have to pay upfront and then fight for reimbursement.
Thx, Mike.?
Thank you! Looking forward to the meeting tomorrow. On Tue, Apr 22, 2025 at 9:54?AM Pamela Chadick via ??<apchadick88= [email protected]> wrote: Thank You, Mike! Yes, the first time around set me back for a minute, but my left eye was 20/20 and I really hardly missed a beat. This time is different. Incredibly frustrating. I'm driving around my small town and nervous about that. Difficult for me, as I've never hesitated going anywhere, anytime. Reading is difficult, but I use my iPad and blow everything up, but it's a slow go. What do you use to drive and read? Pam
On Mon, Apr 21, 2025 at 5:36?PM michael arki via ??<mikearki= [email protected]> wrote: Pam,
I also have bilateral NAION, it happened sequentially (2015 & 2022) - the 2022 episode was life changing as it ended my career.? It did drive me to frequent a low vision Specialist in NJ, Dr. Errol Rummel: ?
He was extremely helpful in improving distance (driving), and reading vision improvements.?
Hope this helps¡. Feel free to reach out to me anytime with any additional questions/concerns.
Thx - Mike?
On Apr 21, 2025, at 9:58?AM, Pamela Chadick via ??<apchadick88= [email protected]> wrote:
Hello, Unfortunately I will miss the zoom meeting -it's my husband and my 37th wedding anniversary- but I do have a question. Have you been to a low vision clinic, and if so, are there tools there that are helpful for NAION. If so, what are they? I have NAION in both eyes and glasses are minimally helpful.?
Thanks for any information any of you may have.?
On Sat, Apr 12, 2025 at 12:53?PM Debra B via ??<debrownstein= [email protected]> wrote: Hello NAION Friends,
So glad there was a strong response indicating interest in supporting each other on Zoom. Our first NAION Zoom meeting will be held on Wednesday, April 23, 2025@ 3:00 PM in California (PDT)?corresponding times are
? Mountain Time (MDT): 4 PM
? Central Time (CDT): 5 PM
? Eastern Time (EDT): 6 PM
? London, UK (BST): 11 PM
? Melbourne, Australia (AEST): 8 AM on April 24.
The Zoom link and other details will follow. All participants with great ideas, experience with groups, and those with suggestions are welcome to email them.? Family members are welcome if over 18 years of age. This is a free peer support group and with your voluntarily participation you agree to release all other participants, volunteers and organizers of any and all liability.?
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Re: Our new NAION Zoom Group starts Wednesday April 23,2025
Hi Pam,
Custom glasses based upon the diagnosis from my Low Vision Specialist. The driving glasses allows me to see all signs and traffic lights from a distance via a custom magnifying glass attached to the lenses. Under normal driving ?conditions you're wearing the glasses but not engaging the magnifying portion, when required you look down through it to quickly read the signs. Similar to looking at your rear view mirror, a quick glance to reference but not sustained. Reading glasses are also custom per individual, the material to read requires close proximity for optimal clarity.?
These glasses are very benificial and are costly but its worth it. If applicable, your medical/vision coverage should cover some if not all of the expenses but you may have to pay upfront and then fight for reimbursement.
Thx, Mike.?
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On Apr 22, 2025, at 4:25?PM, Patrick Ward via groups.io <Pwardoe@...> wrote:
Thank you! Looking forward to the meeting tomorrow. On Tue, Apr 22, 2025 at 9:54?AM Pamela Chadick via ??<apchadick88= [email protected]> wrote: Thank You, Mike! Yes, the first time around set me back for a minute, but my left eye was 20/20 and I really hardly missed a beat. This time is different. Incredibly frustrating. I'm driving around my small town and nervous about that. Difficult for me, as I've never hesitated going anywhere, anytime. Reading is difficult, but I use my iPad and blow everything up, but it's a slow go. What do you use to drive and read? Pam
On Mon, Apr 21, 2025 at 5:36?PM michael arki via ??<mikearki= [email protected]> wrote: Pam,
I also have bilateral NAION, it happened sequentially (2015 & 2022) - the 2022 episode was life changing as it ended my career.? It did drive me to frequent a low vision Specialist in NJ, Dr. Errol Rummel: ?
He was extremely helpful in improving distance (driving), and reading vision improvements.?
Hope this helps¡. Feel free to reach out to me anytime with any additional questions/concerns.
Thx - Mike?
On Apr 21, 2025, at 9:58?AM, Pamela Chadick via ??<apchadick88= [email protected]> wrote:
Hello, Unfortunately I will miss the zoom meeting -it's my husband and my 37th wedding anniversary- but I do have a question. Have you been to a low vision clinic, and if so, are there tools there that are helpful for NAION. If so, what are they? I have NAION in both eyes and glasses are minimally helpful.?
Thanks for any information any of you may have.?
On Sat, Apr 12, 2025 at 12:53?PM Debra B via ??<debrownstein= [email protected]> wrote: Hello NAION Friends,
So glad there was a strong response indicating interest in supporting each other on Zoom. Our first NAION Zoom meeting will be held on Wednesday, April 23, 2025@ 3:00 PM in California (PDT)?corresponding times are
? Mountain Time (MDT): 4 PM
? Central Time (CDT): 5 PM
? Eastern Time (EDT): 6 PM
? London, UK (BST): 11 PM
? Melbourne, Australia (AEST): 8 AM on April 24.
The Zoom link and other details will follow. All participants with great ideas, experience with groups, and those with suggestions are welcome to email them.? Family members are welcome if over 18 years of age. This is a free peer support group and with your voluntarily participation you agree to release all other participants, volunteers and organizers of any and all liability.?
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Re: Our new NAION Zoom Group starts Wednesday April 23,2025
Due to an early start for work tomorrow, I am afraid that I will be unable to join this call. ?( UK)? I hope it goes well & that I am able to join you next time.?
Kind Regards
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On 23 Apr 2025, at 15:37, Terry Berelowitz via groups.io <craigberelowitz@...> wrote:
? Was the time not already moved??
PLEASE CONFIRM TIMES?
PLEASE SEND ZOOM DETAILS
many thanks On Wed, 23 Apr 2025 at 16:33, ronnie landau via <ronnielandau= [email protected]> wrote: May I respectfully suggest that, since a lot of group members are in the UK, that 11pm is a tad late to begin the Zoom session. Just saying ...
But wait, there are Australians, too, so perhaps just disregard this post. Can't please everyone, I guess.
On Wed, 23 Apr 2025 at 15:03, Terry Berelowitz via Please forward the zoom link
Thank you Debra, Thanks for leading this effort. I'll be on the call (Tim Trela) with my wife Maryclare who has NAION in both eyes. The incidents were 3 years?apart with the most recent occurring in July of last year. I've kept?her familiar with the group. Tim
Hello NAION Friends,
So glad there was a strong response indicating interest in supporting each other on Zoom. Our first NAION Zoom meeting will be held on Wednesday, April 23, 2025@ 3:00 PM in California (PDT) corresponding times are
? Mountain Time (MDT): 4 PM
? Central Time (CDT): 5 PM
? Eastern Time (EDT): 6 PM
? London, UK (BST): 11 PM
? Melbourne, Australia (AEST): 8 AM on April 24.
The Zoom link and other details will follow. All participants with great ideas, experience with groups, and those with suggestions are welcome to email them.? Family members are welcome if over 18 years of age. This is a free peer support group and with your voluntarily participation you agree to release all other participants, volunteers and organizers of any and all liability.?
|
Re: Our new NAION Zoom Group starts Wednesday April 23,2025
Was the time not already moved??
PLEASE CONFIRM TIMES?
PLEASE SEND ZOOM DETAILS
many thanks
On Wed, 23 Apr 2025 at 16:33, ronnie landau via <ronnielandau= [email protected]> wrote: May I respectfully suggest that, since a lot of group members are in the UK, that 11pm is a tad late to begin the Zoom session. Just saying ...
But wait, there are Australians, too, so perhaps just disregard this post. Can't please everyone, I guess.
On Wed, 23 Apr 2025 at 15:03, Terry Berelowitz via Please forward the zoom link
Thank you Debra, Thanks for leading this effort. I'll be on the call (Tim Trela) with my wife Maryclare who has NAION in both eyes. The incidents were 3 years?apart with the most recent occurring in July of last year. I've kept?her familiar with the group. Tim
Hello NAION Friends,
So glad there was a strong response indicating interest in supporting each other on Zoom. Our first NAION Zoom meeting will be held on Wednesday, April 23, 2025@ 3:00 PM in California (PDT) corresponding times are
? Mountain Time (MDT): 4 PM
? Central Time (CDT): 5 PM
? Eastern Time (EDT): 6 PM
? London, UK (BST): 11 PM
? Melbourne, Australia (AEST): 8 AM on April 24.
The Zoom link and other details will follow. All participants with great ideas, experience with groups, and those with suggestions are welcome to email them.? Family members are welcome if over 18 years of age. This is a free peer support group and with your voluntarily participation you agree to release all other participants, volunteers and organizers of any and all liability.?
|
Re: Our new NAION Zoom Group starts Wednesday April 23,2025
May I respectfully suggest that, since a lot of group members are in the UK, that 11pm is a tad late to begin the Zoom session. Just saying ... But wait, there are Australians, too, so perhaps just disregard this post. Can't please everyone, I guess.
On Wed, 23 Apr 2025 at 15:03, Terry Berelowitz via groups.io <craigberelowitz@...> wrote: Please forward the zoom link
Thank you Debra, Thanks for leading this effort. I'll be on the call (Tim Trela) with my wife Maryclare who has NAION in both eyes. The incidents were 3 years?apart with the most recent occurring in July of last year. I've kept?her familiar with the group. Tim
Hello NAION Friends,
So glad there was a strong response indicating interest in supporting each other on Zoom. Our first NAION Zoom meeting will be held on Wednesday, April 23, 2025@ 3:00 PM in California (PDT) corresponding times are
? Mountain Time (MDT): 4 PM
? Central Time (CDT): 5 PM
? Eastern Time (EDT): 6 PM
? London, UK (BST): 11 PM
? Melbourne, Australia (AEST): 8 AM on April 24.
The Zoom link and other details will follow. All participants with great ideas, experience with groups, and those with suggestions are welcome to email them.? Family members are welcome if over 18 years of age. This is a free peer support group and with your voluntarily participation you agree to release all other participants, volunteers and organizers of any and all liability.?
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