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Ischemic optic neuropathy


 

Most of you have anemia and low blood pressure. Is it true?


 

Not me. I have always had normal blood pressure and I have never been anemic.

Marc

On Thu, Jan 19, 2023 at 3:19 PM Medi Far <f.far977@...> wrote:
Most of you have anemia and low blood pressure. Is it true?


 

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No





-------- Original message --------
From: Marc Gold <marcgold@...>
Date: 1/19/23 12:47 PM (GMT-08:00)
Subject: Re: [NAION] Ischemic optic neuropathy

Not me. I have always had normal blood pressure and I have never been anemic.

Marc

On Thu, Jan 19, 2023 at 3:19 PM Medi Far <f.far977@...> wrote:
Most of you have anemia and low blood pressure. Is it true?


prenni5
 

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No anemia. Just low blood pressure at night when diagnosed. Lowered the blood pressure medicine and it fixed the problem. Also have sleep apnea which is common among NAION patients.?

On Jan 19, 2023, at 1:45 PM, Medi Far <f.far977@...> wrote:

?Most of you have anemia and low blood pressure. Is it true?


 

I do not on either.

On Thu, Jan 19, 2023 at 12:19 PM Medi Far <f.far977@...> wrote:
Most of you have anemia and low blood pressure. Is it true?

--
Christopher Knaak
805-603-2433


 

No anemia or hypotension, just recently diagnosed with sleep apnea which (per a recent Eyewiki article) is "associated with NAION although in all of the cases, no causal relationship has been definitely established".? ? Probably not new information for most of the group but thought I would share for the newer members.? ?I just started this journey in November 2022.? ?

Here's the link.? ?


 

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No anemia, BP was always on the low side but normal.

On 1/19/2023 3:19 PM, Medi Far wrote:

Most of you have anemia and low blood pressure. Is it true?


 

Hi Deane. Yes. My blood pressure has been on the lower to normal side. I am a vegetarian so had lower iron levels. My blood pressure dropped too low during the night and my optic nerve was starved if oxygen due to Slepp Apnea?

On Fri, 20 Jan 2023 at 9:21 am, Deane Williams <pyroartist@...> wrote:
No anemia, BP was always on the low side but normal.

On 1/19/2023 3:19 PM, Medi Far wrote:
Most of you have anemia and low blood pressure. Is it true?


 

Nope.? Apparently I was perfectly healthy when this happened to me...all tests negative, etc.? Just potentially bad anatomy.?


On Thu, Jan 19, 2023, 3:19 PM Medi Far <f.far977@...> wrote:
Most of you have anemia and low blood pressure. Is it true?


 

Nope...I was under a lot of stress but no high blood pressure or anemia.

Paula


On Thu, Jan 19, 2023 at 5:38 PM Bobbie James <rrjames61@...> wrote:
Nope.? Apparently I was perfectly healthy when this happened to me...all tests negative, etc.? Just potentially bad anatomy.?

On Thu, Jan 19, 2023, 3:19 PM Medi Far <f.far977@...> wrote:
Most of you have anemia and low blood pressure. Is it true?



--
Professor Paula McGlasson?? She, Her, Hers
Production Manager, URI Theatre
(401) 874-2712 office
(401) 315-2227 home
(401) 743-1039 cell


 

No blood pressure issues or anemia here mine happened pretty soon after I got out of the hospital for severe case of covid so my theory is something to do with the low blood oxygen I was experiencing for over a week.


On Thu, Jan 19, 2023, 3:19 PM Medi Far <f.far977@...> wrote:
Most of you have anemia and low blood pressure. Is it true?


 

Ischemia is lack of or lessening of blood flow. ?Blood provides oxygen to cells therefore if you starve a cell or neuron in our case of blood long enough the risk of neuropathy (death of the neuron) increases. ?Theories are that low blood pressure complicated by sleep apnea are of high potential to cause NAION. ?Anemia can also assist, if you will in causing ischemia as it robs the blood of its oxygen carrying ability. ?In all of our cases, no one knows exactly what actually caused our neuropathy. ?All we truly have are scholarly guesses. ?


 

i take medicine to lower my BP but am anemic...i take iron but it doesn't do much good.? fixing to have a endoscope to make sure i'm not bleeding anywhere.


 

Welcome and sorry to hear?that this has happened to you.? ?In general none of us knows why this happened to us because the medical community doesn't know why it happens.? I do hope you get some sight back.? I'll keep my fingers?crossed.??


On Sat, Feb 11, 2023, 11:54 AM <bdc@...> wrote:
i take medicine to lower my BP but am anemic...i take iron but it doesn't do much good.? fixing to have a endoscope to make sure i'm not bleeding anywhere.


 

Hi there Paula.? I had severe Sleep apnea and refused to use a CPAP machine.? My blood pressure got very low at night because of it.? Optic nerve was starved of oxygen? and hence my situation.??


On Fri, Jan 20, 2023 at 9:41 AM Paula Mcglasson <paulam@...> wrote:
Nope...I was under a lot of stress but no high blood pressure or anemia.

Paula

On Thu, Jan 19, 2023 at 5:38 PM Bobbie James <rrjames61@...> wrote:
Nope.? Apparently I was perfectly healthy when this happened to me...all tests negative, etc.? Just potentially bad anatomy.?

On Thu, Jan 19, 2023, 3:19 PM Medi Far <f.far977@...> wrote:
Most of you have anemia and low blood pressure. Is it true?



--
Professor Paula McGlasson?? She, Her, Hers
Production Manager, URI Theatre
(401) 874-2712 office
(401) 315-2227 home
(401) 743-1039 cell


 

I was diagnosed four weeks ago. My right eye almost half is very blurry. I have sleep apnea and low blood pressure not due to meds. The only thing drs found after 2 cat scans. 1 mri is high cholesterol. Drs told me 6 weeks for eye to be stable for a new eye exam to get glasses. Does this scenario sound familiar to anyone? Sincerely, Lisa


 

How severe is your eye damage? Did the damage change at all in the weeks after initially noticed?


 

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There is no single path.? My vision got better over time, but others not so much.? Everyone also has different level of damage.? It matters a lot where the damage is, central vision or not.? My doctor told me second attacks are rare because initial? damage is usally associated with having a disk at rist, crowded space behind the eye.? He said that the first attack usually frees up space reducing the risk of another.? ?Even so it is in the back of my mind.? I just try and keep it there.





-------- Original message --------
From: Lisa f <Lisabieznieks@...>
Date: 2/11/23 7:30 PM (GMT-08:00)
Subject: Re: [NAION] Ischemic optic neuropathy

How severe is your eye damage? Did the damage change at all in the weeks after initially noticed?


 

Hi LIsa.? Yes.? This is my story too.? I think it was 6 months for the eye to stabilize and then the sight you have is the sight you will live with.? Glasses have only helped me a little.? My vision is still a little blurry.? My doctor told me it won't get worse and may not get any better.? I can still see and do daily activities but I have had to give up my work as a teacher and I cannot drive long distances.? My vision is like looking through a dirty window or window mesh.? I hope all goes well with you.??


On Sun, Feb 12, 2023 at 1:26 PM Lisa f <Lisabieznieks@...> wrote:
I was diagnosed four weeks ago. My right eye almost half is very blurry. I have sleep apnea and low blood pressure not due to meds. The only thing drs found after 2 cat scans. 1 mri is high cholesterol. Drs told me 6 weeks for eye to be stable for a new eye exam to get glasses. Does this scenario sound familiar to anyone? Sincerely, Lisa


 

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Good post Chiarina. Couldn’t agree more with your post. Find most days you get some form of frustration from the lack of vision. As to what caused it not a clue I had never been fitter than I was when I had my first episode at 57. Driving wise much the same as you I only drive in day light and only places I’m familiar with. This is allowed with an annual eye test from the British drivers licensing centre


On 12 Feb 2023, at 05:15, Chiarina Blake <jc.blake2@...> wrote:

?
Hi LIsa.? Yes.? This is my story too.? I think it was 6 months for the eye to stabilize and then the sight you have is the sight you will live with.? Glasses have only helped me a little.? My vision is still a little blurry.? My doctor told me it won't get worse and may not get any better.? I can still see and do daily activities but I have had to give up my work as a teacher and I cannot drive long distances.? My vision is like looking through a dirty window or window mesh.? I hope all goes well with you.??

On Sun, Feb 12, 2023 at 1:26 PM Lisa f <Lisabieznieks@...> wrote:
I was diagnosed four weeks ago. My right eye almost half is very blurry. I have sleep apnea and low blood pressure not due to meds. The only thing drs found after 2 cat scans. 1 mri is high cholesterol. Drs told me 6 weeks for eye to be stable for a new eye exam to get glasses. Does this scenario sound familiar to anyone? Sincerely, Lisa