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I had my first occurrence in 2004 at age 54 and became bilateral in 2006 at age 56. I have the small cup to disk ratio and possible sleep apnea as the possible causes. I am unable to see the top line

For those who want to learn more about Leiden V here is a good summary: https://en.wikipedia.org/wiki/Factor_V_Leiden Small cup-to-disc ratio, known as Disc at Risk, does seem to be the most? common

Correction: 20/20 left in the uninjured eye. Go have your daily morning coffee, Eileen

Carolyn, I bought an eye patch only to be told by my NAION doctor that it is not recommended as it blocks light from entering the injured eye. Mine was a total vision loss in my right eye. It will get

I looked Leiden V up earlier and have a question for you. ?Do you also have disk at risk or is your NAION likely to be caused only by clotting? Likely seems to still be the key term in most

I guess you completely ignored my post regarding Leiden Factor V Mutation, and the fact it’s hereditary. It’s really dumbfounding that I’ve talked about this for 10 years but it’s been

Interesting to read that your brother suffered NAION also. This is the first time I can recall hearing about it occurring twice within a family, and in a fraternal way especially. Does anyone else in

Hi Carolyn. Welcome to the group. I am glad we can support one another ! I am so glad you still have the confidence to drive. I was told not to and I can read the first three lines of the chart. I

Hello, I am so happy to have found this group. ?My episode causing NAION happened less than a month ago. ?I am 65, in good health and my left eye is still 20/20. Goodness knows the cause; I have

Hi Diana. Thank you for sharing your story. My sincere condolences on the death of your son. How terribly sad. I am also sorry that you have now had to endure this new challenge. I had my attach back

Hi Diana, I’m so sorry you are a member of our club but am certainly happy to welcome you. ?I think I may be more fortunate, so far anyway, than most of us here as I have only lost my central

Hi Diana, Its always sad when another sufferer joins this group. All I can say is that your brain will adapt to the change and you will have improved vision after time, how long, is different for each

Welcome! Thanks Paula and Diana for your stories. I am building a website that addresses the emotional, psychological and practical issues for us NAION affected. Would appreciate feedback back and

Dear Diana, I experienced my only episode of NAION several years ago. It was quickly diagnosed and I almost immediately started a regimen of high-dose steroids. I am one of the fortunate ones who

Hi everyone, my name is Diana Patrick. Ive been married for 20 yrs to my husband Matt we have 2 children our daughter Gabby(22), and our son Malichi (we lost at 16 yrs old). I suffered my NAION event

Thanks so much for your hard and vital work!

Looks great thank you . Struggling a bit today [email protected]> wrote:

Hi Michael, You've done a beautiful job! Paul The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we

Hi Paul. Thanks Deb for the kudos and remembering the site. It has taken on a life of its own. Started out to be exclusive to NAION and monocular vision life. Then include binaural in the event

UNIVERSITY OF PENN This is similar to research on-going at Stanford Medical/Opth