I guess you completely ignored my post regarding Leiden Factor V Mutation, and the fact it¡¯s hereditary. It¡¯s really dumbfounding that I¡¯ve talked about this for 10 years but it¡¯s been completely ignored. Guess I¡¯m just stupid, my kids on the other hand got themselves tested and know the risks.
On Sun, Sep 8, 2024 at 8:21?PM Joseph W Harrison via <joeharrison1776=
[email protected]> wrote:
Interesting to read that your brother suffered NAION also.? This is the first time I can recall hearing about it occurring twice within a family, and in a fraternal way especially.? ?Does anyone else in our group have comments on this aspect?
On Sun, Sep 8, 2024 at 8:42?PM Carolyn Franke via <carolynfranke0123=
[email protected]> wrote:
Hello,?
I am so happy to have found this group.? My episode causing NAION happened less than a month ago.? I am 65, in good health and my left eye is still 20/20. Goodness knows the cause; I have sleep apnea but it has been completely managed; my respirologist is very pleased with my unwavering compliance since diagnosis.? Elevated cholesterol; well yes, but never high enough to be recommended to be on statins.? I am a nurse and diabetes educator so I¡¯m pretty up to date with the healthy lifestyle advice and I try to practice what I preach.? My affected eye has, as predicted, gotten worse over the last couple of weeks; I do hope it stabilizes now.? A grey mist, and a blank in the very centre of my vision. What a pain. I can¡¯t read even the top line of the Snellen chart, which is alarming.? But I must say my first thoughts were of how grateful I was that it wasn¡¯t worse.? My brother also developed NAION 9 years ago when he was 59 and he has coped very well, living life to the full and is a great inspiration to me.? I also found NAIONLIFE.com inspirational and so kind and helpful.? What I liked the best was the reassurance that it is possible to live a fulfilling and happy life with this or any other disability; one just needs to keep on going!? I have always been a cautious driver and now I am twice as cautious; parallel parking is done by muscle memory as much as anything else!? I liked how the website gives an estimate of when the effects will seem less; 9 -12 months.? That seems very reasonable to me.? In the meantime, I would like to ask the group, does anyone ever wear an eyepatch over the affected eye or will that make the eye lose function faster?? I find sunglasses which grey everything down help, as they ¡°level the playing field¡± with the affected eye.? Anyway, many thanks to the website developer and all contributors.? Bring on the optic nerve regeneration science!
