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Re: Just joined as well


 

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I had my first occurrence in 2004 at age 54 and became bilateral in 2006 at age 56. ?I have the small cup to disk ratio and possible sleep apnea as the possible causes. I am unable to see the top line on the vision chart with my left eye, but I still work regularly and drive locally. My sister was also bilateral that happened at age 56. My mother suffered vision loss in her mid-50¡¯s and was diagnosed with a blood clot as the cause and never given any other information.

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Ron Mantlo

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From: [email protected] <[email protected]> On Behalf Of Joseph W Harrison via groups.io
Sent: Sunday, September 8, 2024 10:21 PM
To: [email protected]
Subject: Re: [NAION] Just joined as well

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Interesting to read that your brother suffered NAION also.? This is the first time I can recall hearing about it occurring twice within a family, and in a fraternal way especially.? ?Does anyone else in our group have comments on this aspect?

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On Sun, Sep 8, 2024 at 8:42?PM Carolyn Franke via <carolynfranke0123=[email protected]> wrote:

Hello,?

I am so happy to have found this group.? My episode causing NAION happened less than a month ago.? I am 65, in good health and my left eye is still 20/20. Goodness knows the cause; I have sleep apnea but it has been completely managed; my respirologist is very pleased with my unwavering compliance since diagnosis.? Elevated cholesterol; well yes, but never high enough to be recommended to be on statins.? I am a nurse and diabetes educator so I¡¯m pretty up to date with the healthy lifestyle advice and I try to practice what I preach.? My affected eye has, as predicted, gotten worse over the last couple of weeks; I do hope it stabilizes now.? A grey mist, and a blank in the very centre of my vision. What a pain. I can¡¯t read even the top line of the Snellen chart, which is alarming.? But I must say my first thoughts were of how grateful I was that it wasn¡¯t worse.? My brother also developed NAION 9 years ago when he was 59 and he has coped very well, living life to the full and is a great inspiration to me.? I also found NAIONLIFE.com inspirational and so kind and helpful.? What I liked the best was the reassurance that it is possible to live a fulfilling and happy life with this or any other disability; one just needs to keep on going!? I have always been a cautious driver and now I am twice as cautious; parallel parking is done by muscle memory as much as anything else!? I liked how the website gives an estimate of when the effects will seem less; 9 -12 months.? That seems very reasonable to me.? In the meantime, I would like to ask the group, does anyone ever wear an eyepatch over the affected eye or will that make the eye lose function faster?? I find sunglasses which grey everything down help, as they ¡°level the playing field¡± with the affected eye.? Anyway, many thanks to the website developer and all contributors.? Bring on the optic nerve regeneration science!

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