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Re: 1 / DB: the print version of that YouTube video on NAION
KEY POINT IN ALL THIS .. after initial NAION attack .. patient IMMEDIATELY sought treatments .. IMHO, probably saved 50% of his vision in left eye ---
On Saturday, May 10, 2025 at 12:05:31 AM EDT, Russ Poter via groups.io <russpoter@...> wrote:
The patient in the YouTube video from Stanford Medical
On Saturday, May 10, 2025 at 12:03:29 AM EDT, Russ Poter via groups.io <russpoter@...> wrote:
DB .. this is the print version of that YouTube video ..
On Friday, May 9, 2025 at 04:33:32 PM EDT, Debra B via groups.io <debrownstein@...> wrote:
Dear NIAON friends, Some Zoom participants on Saturday asked me to share with our email group what my Neuro-Ophthalmologist, recommended to me when I was first diagnosed with NAION (vitamins, eye drops etc).? I have attached in two pdfs (below) an after visit summary of her recommendations for me. When 21 months later I had my 2nd NAION event in the 2nd eye, she suggested I try Hyperbaric Oxygen treatments in addition to the protocol we had used previously. I did try the Hyperbaric treatments with positive results. She thought I was very receptive to that type of treatment since I showed great improvement quickly and she is more likely to recommend hyperbaric oxygen treatment to others as my HVF scores greatly improved. It is not covered by most insurances but it did go towards my yearly deductible In closing I just wanted to share what one Neuro-Ophthalmologist gave to me in my moments of need. Am not suggesting this would work as your path of healing but it is nice to compare strategies. All treatments should be monitored by your doctors. Watch a? Best in vision, Debra B |
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Re: 1 / DB: the print version of that YouTube video on NAION
The patient in the YouTube video from Stanford Medical
On Saturday, May 10, 2025 at 12:03:29 AM EDT, Russ Poter via groups.io <russpoter@...> wrote:
DB .. this is the print version of that YouTube video ..
On Friday, May 9, 2025 at 04:33:32 PM EDT, Debra B via groups.io <debrownstein@...> wrote:
Dear NIAON friends, Some Zoom participants on Saturday asked me to share with our email group what my Neuro-Ophthalmologist, recommended to me when I was first diagnosed with NAION (vitamins, eye drops etc).? I have attached in two pdfs (below) an after visit summary of her recommendations for me. When 21 months later I had my 2nd NAION event in the 2nd eye, she suggested I try Hyperbaric Oxygen treatments in addition to the protocol we had used previously. I did try the Hyperbaric treatments with positive results. She thought I was very receptive to that type of treatment since I showed great improvement quickly and she is more likely to recommend hyperbaric oxygen treatment to others as my HVF scores greatly improved. It is not covered by most insurances but it did go towards my yearly deductible In closing I just wanted to share what one Neuro-Ophthalmologist gave to me in my moments of need. Am not suggesting this would work as your path of healing but it is nice to compare strategies. All treatments should be monitored by your doctors. Watch a? Best in vision, Debra B |
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DB: the print version of that YouTube video on NAION
DB .. this is the print version of that YouTube video ..
On Friday, May 9, 2025 at 04:33:32 PM EDT, Debra B via groups.io <debrownstein@...> wrote:
Dear NIAON friends, Some Zoom participants on Saturday asked me to share with our email group what my Neuro-Ophthalmologist, recommended to me when I was first diagnosed with NAION (vitamins, eye drops etc).? I have attached in two pdfs (below) an after visit summary of her recommendations for me. When 21 months later I had my 2nd NAION event in the 2nd eye, she suggested I try Hyperbaric Oxygen treatments in addition to the protocol we had used previously. I did try the Hyperbaric treatments with positive results. She thought I was very receptive to that type of treatment since I showed great improvement quickly and she is more likely to recommend hyperbaric oxygen treatment to others as my HVF scores greatly improved. It is not covered by most insurances but it did go towards my yearly deductible In closing I just wanted to share what one Neuro-Ophthalmologist gave to me in my moments of need. Am not suggesting this would work as your path of healing but it is nice to compare strategies. All treatments should be monitored by your doctors. Watch a? Best in vision, Debra B |
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Re: A NAION After Visit Summary of Instructions (Pages 1-9 & 10))
开云体育Debra,?Thanks for sharing. Very interesting! We all need more doctors that are not afraid to try a new approach. ?Did the hyperbaric oxygen treatment help both eyes? I'm sure we all would welcome a treatment that works with older NAION cases. Were the results noticeable to you and dramatic? Deane (moderator) On 5/9/2025 5:28 PM, eyenul via
groups.io wrote:
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Re: A NAION After Visit Summary of Instructions (Pages 1-9 & 10))
Thank you Debra. Really appreciate it. On Sat, 10 May 2025, 04:33 Debra B via , <debrownstein=[email protected]> wrote:
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A NAION After Visit Summary of Instructions (Pages 1-9 & 10))
Dear NIAON friends, Some Zoom participants on Saturday asked me to share with our email group what my Neuro-Ophthalmologist, recommended to me when I was first diagnosed with NAION (vitamins, eye drops etc).? I have attached in two pdfs (below) an after visit summary of her recommendations for me. When 21 months later I had my 2nd NAION event in the 2nd eye, she suggested I try Hyperbaric Oxygen treatments in addition to the protocol we had used previously. I did try the Hyperbaric treatments with positive results. She thought I was very receptive to that type of treatment since I showed great improvement quickly and she is more likely to recommend hyperbaric oxygen treatment to others as my HVF scores greatly improved. It is not covered by most insurances but it did go towards my yearly deductible In closing I just wanted to share what one Neuro-Ophthalmologist gave to me in my moments of need. Am not suggesting this would work as your path of healing but it is nice to compare strategies. All treatments should be monitored by your doctors. Watch a? Best in vision, Debra B NAION After Visit Summary of Instructions (pg 10) Dr Liao..PDF
NAION After Visit Summary of Instructions (pg 10) Dr Liao..PDF
NAION After Visit Summary of Instructions (pg1-9) Dr Liao copy.PDF
NAION After Visit Summary of Instructions (pg1-9) Dr Liao copy.PDF
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Saturday NAION Zoom, May 3 (Details and Link within email)
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
Since my NAION attack .. I never take any Pharm .. without my M.D. comments. Full stop. Alternative to Ozempic? Oh .. exercise .. reduce fats and carbs ..
On Tuesday, April 29, 2025 at 04:16:38 PM EDT, cathysalder via groups.io <cathysalder@...> wrote:
Wow! Thanks for sharing this article. It is really becoming a related problem. Super frustrating as I know you’re like me and never would have taken it is there was that side effect listed.?
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
Agree! On Wed, Apr 30, 2025 at 8:59?AM GaryGBrown via <bhmvol=[email protected]> wrote:
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
STONE-COLD REAL .. PHARMS carry risk. To think otherwise is to be absurd and nonsensical. Medicine is risk/reward. Nothing is 100%, except taxes and death. Ex: take a statin -- increase risk of Parkinson's. The choice: Parkinson's at 75 -- or DEATH at 62. Your call. -----
On Wednesday, April 30, 2025 at 09:27:15 AM EDT, Andrew Watson via groups.io <aowats3@...> wrote:
All so true. However, were I a person with one NAION eye already, you can be damned sure I wouldn’t touch GLP-1’s until there’s an answer. “Association” isn’t causality, but it’s enough for me. On Apr 30, 2025, at 08:59, GaryGBrown via groups.io <bhmvol@...> wrote:
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
开云体育All so true. However, were I a person with one NAION eye already, you can be damned sure I wouldn’t touch GLP-1’s until there’s an answer. “Association” isn’t causality, but it’s enough for me.On Apr 30, 2025, at 08:59, GaryGBrown via groups.io <bhmvol@...> wrote:
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
Yes most of us know this is out there. As is the case with many new occurrences in medicine it’s wise to be cautious as to committing your thoughts to one idea. Ozempic is a common factor as is obesity and diabetes. Is OSA or CA another factor? Is HBP? Disk ratio? AFIB? Could it be that morbid obesity was more of a threat to life than the side effects of the medication? ?We don’t know the answers to these things. The onset of NAION is a very emotional experience for all of us. The percentage of Ozempic users with NAION is miniscule. Let’s use caution if the medication is ever suggested but let’s not throw the baby out with the bath water…yet, until we now if these new drugs are the cause. At this point like every other theoretical cause of NAION, we really don’t know if any of them are actually to blame.? |
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
My husband was taking Sexenda and lost vision in both eyes, 7 months apart. We flew down to Baskin Palmer Institute in Miami and saw two ocular neurologists.? They both knew about the supposed connection between GLP. 1 and NAION. They both thought there is no true connection because there is not an increase in NAION worldwide yet there are so many people taking GLP’s. Just another prospective on the issue. ? On Tue, Apr 29, 2025 at 5:11?PM Andrew Watson via <aowats3=[email protected]> wrote:
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
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On Apr 29, 2025, at 4:11?PM, Andrew Watson via groups.io <aowats3@...> wrote:
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
开云体育This (Ozempic), I am quite sure, is what caused my NAION in right eye. Took dosages up to 1 mg of Ozempic August ‘24-January ‘25. See online info about Massachusetts Eye and Ear (Harvard affiliated) discovery (which, they say, requires further study) that chances of obese and diabetic patients who take a GLP-1 medication (e.g. Ozempic, Weygovy) is 4-7x more likely than those taking other meds for these conditions. They found an “association,” by did not yet find a “causality.” I know this has been posted before, but we have many new people joining this group.On Apr 29, 2025, at 17:19, cathysalder via groups.io <cathysalder@...> wrote:
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