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Re: Platform for Crowdsourced data for COVID treatment?


David A. Rice
 

Hi Siobhan,

this Friday, in partnership with one of Nigeria's most prominent philanthropists in healthcare, my company, PocketPatientMD, is launching a suite of free COVID-19 digital health tools.? Her Foundation is kicking-off a national campaign to engage large numbers?of people (our focus is primarily in Africa) in the fight against coronavirus.? There are 5 tools (all free), but the one we think is most-needed is the COVID-19 Health Checker, summarized below.

COVID-19 Health Checker and Early Warning System
The scarcity of tests, the time required to get results, the anticipated influx of requests for tests, and the danger of transmission when people overwhelm health facilities with unnecessary requests, coupled with the importance of rapid testing to limit outbreaks, requires a special solution.

Citizens should be asked to complete the COVID Health Checker, which in just a few questions will determine where there are clusters of high-risk citizens based on age, location, underlying health conditions, current symptoms (if any), and current status (e.g. self-monitoring, quarantine, remotely monitored, etc). ? People completing the checker can choose to provide their name and contact number if they wish, but can also complete the checker and remain anonymous (only their location is known).

The more people that answer all of the questions in the checker, the more relevant information public health officials will have about vulnerable populations and hot spots where an outbreak may already be underway.? This will help them respond quickly and with a targeted and proactive intervention to preserve resources since the results will be heat maps based on aggregate responses.

The key to success for this tool is massive, widespread completion of the checker by as many citizens as possible.? To encourage citizens to complete the checker, mobile phone companies have been asked to send out an announcement regarding the checker and offer those customers who complete it with 500mb of free data as an incentive.? In the absence of testing, this is the most efficient and reliable way to get data critical to determining where a potential outbreak is happening or could happen to a vulnerable population. Since resources are scarce, using them in a way that allows officials to target priority areas is key.

I look forward to your thoughts.

David


On Wed, Apr 1, 2020 at 10:44 PM Siobhan Green <sio@...> wrote:
I do a lot of work assessing and improving health data systems in Africa. While patient level COVID 19 data would be very useful, I am not not clear on how to capture this data in easily shareable formats at scale in a lot of countries, because of the weaknesses of existing data systems.?

My main question is where does the data come from? Who collects it? How is shared? Stored? Who makes sure it accurate? Etc.

Currently, the majority of data collection and reporting systems in many countries are still very paper-based. Formal reporting is done as an aggregate monthly, even if the final outcome is digital data housed in a DHIS2.

There are a few databases of patient level data (deidentified) for HIV for analysis (Kenya and Nigeria have them, for example), which tracks viral load and other key indicators.

Larger, referral hospitals may have an EMR for HIV patients or TB but not for all illnesses. Private healthcare also ranges- some wealthy ones have EMRs but the smaller providers don't.

Would love to hear more about the data collection systems being used or envisioned...

Thanks!!

From: [email protected] <[email protected]> on behalf of Jonathan Jackson via <jjackson=[email protected]>
Sent: Wednesday, April 1, 2020 2:30:43 PM
To: [email protected] <[email protected]>; Avillach, Paul <Paul_Avillach@...>
Cc: sdurbin@... <sdurbin@...>; mkachule@... <mkachule@...>
Subject: Re: [gdhn] Platform for Crowdsourced data for COVID treatment?
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Hi Kate,

Isaac Kohane's?group at Harvard is working on something related to this via i2b2.? I'm including a PI from their lab here, Paul, who can share more.? This is coming from Providers, not crowdsourced, though.

thanks,
Jonathan?



On Wed, Apr 1, 2020 at 2:19 PM Dr. Kate <ktulenko@...> wrote:

It¡¯s great to see the COVID trackers.? Is there a platform for health workers to upload deidentified data on COVID patients, treatments, and outcomes, and the data would be available to anyone looking to study what works?? I¡¯m aware of the WHO study but the WHO study won¡¯t capture most patients.? We are looking at building a crowd-sourced platform of patient data but don¡¯t want to duplicate existing initiatives.? We think it is particularly important to get data on treatments and outcomes of African COVID patients as their course and treatment response may be different than Asian and European patients.

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Best Wishes,

?

Kate

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Dr. Kate Tulenko, MD, MPH, MPhil, FAAP

CEO, Corvus Health

950 N Washington St

Alexandria, VA 22314 USA

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+1 202 460 9919

Skype KateTulenko

Twitter? @ktulenko @Corvus_Health

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From: [email protected] <[email protected]> On Behalf Of PROFOUND RESEARCH from PROFOUND RESEARCH via Groups.Io
Sent: Wednesday, April 1, 2020 10:48 AM
To: [email protected]; sdurbin@...; mkachule@...
Subject: [gdhn] COVID19 Preliminary Reporting

?

Hello team,

Have a look at the improved COVID 19 preliminary reporting tool to be implemented in ODK and Kobo.

Regards

Profound Research and Consulting

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