Re: Another update on my dad
Thanks to each of you for your kind words, thoughts, prayers, and best wishes.
We had a nice Father's Day together, and I was able to do a little priestessing to calm him down....He had made a list of additional things to tell us about, but it was getting down to relatively inconsequential things like his coin collection in the attic. Yet he still seemed so anxious about it all. I interrupted him and said something along these lines, "I just wanted to say, you've taken care of us for decades. You've lined up all your financial paperwork...you've set everything up to KEEP taking care of us. We're grateful--and we're going to take care of you now, you and Mom. This stuff you're talking about is the less critical stuff--it's great you're telling us, but if you forgot anything, it's going to be fine. You raised two smart girls. We will FIGURE IT OUT. You don't have to worry anymore--you can just relax and be with us."? Tears rolled down his cheeks and he thanked me. Seemed a lot more relaxed the rest of the day. Later Susan thanked me for saying that. He had me delete his Facebook account (he doesn't want anything about his illness there), and also order an external hard drive so I can back up his computer and have his files. We are preparing for me to take over bill paying once he can't. As he runs out of "things to do," I hope he will feel calmer and able to enjoy what time we have left with him.? Yesterday I asked them to think about letting Susan and I have a small 60th Anniversary open house for them...at their house, or at the church. Just family, church members, and a few friends. Their 60th anniversary is Oct 13 but I suggested we have it as soon as possible. They've been together 60 years--but we can call it their 59 9/12 anniversary if the want.? I thought it could be a nice time and allow an opportunity for him to see a lot of people for a final time but under the guess of an anniversary celebration vs. around his imminent death. I'll let you know if he lets us. :)
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------- Original Message -------
On Thursday, June 23rd, 2022 at 4:07 PM, RayRay RHImprov@... wrote:
Dear Jill,
My heart hurts to hear this news about your beloved Dad. ?My best wishes are very much with you and your family.
As I recall, your choice to live near your parents included your desire to be close to them for whatever time they have left in this life and to be there to support them if need be. ?
I am happy for him that you and your sister are close by.
May your father live the time he has left with love and support all around him. ?May he know how much he is loved.
Big Love,
RayRay ??_.,.,
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Re: Another update on my dad
Dear Jill,
My heart hurts to hear this news about your beloved Dad. ?My best wishes are very much with you and your family.
As I recall, your choice to live near your parents included your desire to be close to them for whatever time they have left in this life and to be there to support them if need be. ? I am happy for him that you and your sister are close by.?
May your father live the time he has left with love and support all around him. ?May he know how much he is loved.
Big Love, RayRay ??
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Re: Blessed solstice--beautiful song
Wow Jill, this is awesome! Thank you for sharing.?
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On Jun 23, 2022, at 12:42 PM, Abigail J <ajeanh@...> wrote:
? Umm. That was awesome! I love how the instruments were all made out of wood and hide. That was really beautiful Hello sisters,
I'm a day late with this, but I thought this solstice celebrating song was just beautiful:?
From the comments:
This song is praising oak trees - one of the symbols of masculinity in Latvian folklore. During the summer solstice (J¨¡?i) men (especially those named J¨¡nis) will wear crowns made from oak leaves. The lyrics are about how mighty, powerful and old the oak tree is.
You'll hear the same word (sounds like "lee-gwa") as a chorus at the end of every line...two comments:
1.?"l¨©go" is basically a connective. Most summer solstice songs have "l¨©go" in the end of every line of the lyrics. The meaning of the word is a bit blurry - some say it means "to sway", but not really and it's almost impossible to explain. 2.?L¨©go means to sway in harmony, where everyone is on the same wave, just like when the wind is swaying trees, they all sway in unison, not chaotically.
Beautifully filmed also, setting, traditional dress, flower and oak leaf crowns, instruments. If you know Karin Green, look for her doppelganger!
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Re: Blessed solstice--beautiful song
Umm. That was awesome! I love how the instruments were all made out of wood and hide. That was really beautiful
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Hello sisters,
I'm a day late with this, but I thought this solstice celebrating song was just beautiful:?
From the comments:
This song is praising oak trees - one of the symbols of masculinity in Latvian folklore. During the summer solstice (J¨¡?i) men (especially those named J¨¡nis) will wear crowns made from oak leaves. The lyrics are about how mighty, powerful and old the oak tree is.
You'll hear the same word (sounds like "lee-gwa") as a chorus at the end of every line...two comments:
1.?"l¨©go" is basically a connective. Most summer solstice songs have "l¨©go" in the end of every line of the lyrics. The meaning of the word is a bit blurry - some say it means "to sway", but not really and it's almost impossible to explain. 2.?L¨©go means to sway in harmony, where everyone is on the same wave, just like when the wind is swaying trees, they all sway in unison, not chaotically.
Beautifully filmed also, setting, traditional dress, flower and oak leaf crowns, instruments. If you know Karin Green, look for her doppelganger!
|
Re: Blessed solstice--beautiful song
I echo that.? And it was fun, too!? I got a kick out of the oak leaf headdresses.? Thank you for sharing it, Jillsy. ? ? Yay!? Life Rewards Action!? High-five! gretchenkainz.com 850-774-2236 she/her ?
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From: [email protected] < [email protected]> On Behalf Of Noreen Sent: Thursday, June 23, 2022 5:58 AM To: [email protected]Subject: Re: [Sacredsistersrising] Blessed solstice--beautiful song ? ? Wow! Really lovely. Thank you Jill! ? I'm a day late with this, but I thought this solstice celebrating song was just beautiful:? This song is praising oak trees - one of the symbols of masculinity in Latvian folklore. During the summer solstice (J¨¡?i) men (especially those named J¨¡nis) will wear crowns made from oak leaves. The lyrics are about how mighty, powerful and old the oak tree is. You'll hear the same word (sounds like "lee-gwa") as a chorus at the end of every line...two comments: 1.?"l¨©go" is basically a connective. Most summer solstice songs have "l¨©go" in the end of every line of the lyrics. The meaning of the word is a bit blurry - some say it means "to sway", but not really and it's almost impossible to explain. 2.?L¨©go means to sway in harmony, where everyone is on the same wave, just like when the wind is swaying trees, they all sway in unison, not chaotically. Beautifully filmed also, setting, traditional dress, flower and oak leaf crowns, instruments. If you know Karin Green, look for her doppelganger!
--
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Re: Blessed solstice--beautiful song
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Wow! Really lovely. Thank you Jill!
Hello sisters,
I'm a day late with this, but I thought this solstice celebrating song was just beautiful:?
From the comments:
This song is praising oak trees - one of the symbols of masculinity in Latvian folklore. During the summer solstice (J¨¡?i) men (especially those named J¨¡nis) will wear crowns made from oak leaves. The lyrics are about how mighty, powerful and old the oak tree is.
You'll hear the same word (sounds like "lee-gwa") as a chorus at the end of every line...two comments:
1.?"l¨©go" is basically a connective. Most summer solstice songs have "l¨©go" in the end of every line of the lyrics. The meaning of the word is a bit blurry - some say it means "to sway", but not really and it's almost impossible to explain. 2.?L¨©go means to sway in harmony, where everyone is on the same wave, just like when the wind is swaying trees, they all sway in unison, not chaotically.
Beautifully filmed also, setting, traditional dress, flower and oak leaf crowns, instruments. If you know Karin Green, look for her doppelganger!
|
Re: Blessed solstice--beautiful song
Wow! Really lovely. Thank you Jill!
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Hello sisters,
I'm a day late with this, but I thought this solstice celebrating song was just beautiful:?
From the comments:
This song is praising oak trees - one of the symbols of masculinity in Latvian folklore. During the summer solstice (J¨¡?i) men (especially those named J¨¡nis) will wear crowns made from oak leaves. The lyrics are about how mighty, powerful and old the oak tree is.
You'll hear the same word (sounds like "lee-gwa") as a chorus at the end of every line...two comments:
1.?"l¨©go" is basically a connective. Most summer solstice songs have "l¨©go" in the end of every line of the lyrics. The meaning of the word is a bit blurry - some say it means "to sway", but not really and it's almost impossible to explain. 2.?L¨©go means to sway in harmony, where everyone is on the same wave, just like when the wind is swaying trees, they all sway in unison, not chaotically.
Beautifully filmed also, setting, traditional dress, flower and oak leaf crowns, instruments. If you know Karin Green, look for her doppelganger!
|
Blessed solstice--beautiful song
Hello sisters,
I'm a day late with this, but I thought this solstice celebrating song was just beautiful:?
From the comments:
This song is praising oak trees - one of the symbols of masculinity in Latvian folklore. During the summer solstice (J¨¡?i) men (especially those named J¨¡nis) will wear crowns made from oak leaves. The lyrics are about how mighty, powerful and old the oak tree is.
You'll hear the same word (sounds like "lee-gwa") as a chorus at the end of every line...two comments:
1.?"l¨©go" is basically a connective. Most summer solstice songs have "l¨©go" in the end of every line of the lyrics. The meaning of the word is a bit blurry - some say it means "to sway", but not really and it's almost impossible to explain. 2.?L¨©go means to sway in harmony, where everyone is on the same wave, just like when the wind is swaying trees, they all sway in unison, not chaotically.
Beautifully filmed also, setting, traditional dress, flower and oak leaf crowns, instruments. If you know Karin Green, look for her doppelganger!
|
Re: reminder of survey monkey re: Sept weekend RSVP- NLT Jun 22
Greetings I completed the survey and their was a space for my name Did you get my reply? Kate z Allowing for the Possibility
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On Jun 20, 2022, at 11:44 AM, Gretchen via groups.io <gretchenkainz@...> wrote:
? Hi Sisters- ? Thanks to those that filled out the survey monkey.? For those that haven¡¯t yet, I promise it¡¯s super quick¡ less than 3.3 mins. ? Thanks! Love, the Tri-Fohs ? Yay!? Life Rewards Action!? High-five! gretchenkainz.com 850-774-2236 she/her ? From: gretchenkainz@... <gretchenkainz@...> Sent: Wednesday, June 15, 2022 1:10 PM To: '[email protected]' <[email protected]> Subject: oops... one more thing... RE: [Sacredsistersrising] Sept weekend RSVP- need reply NLT Jun 22 ? Hi again, ? I didn¡¯t realize I forgot to include a question of ¡°who are you¡± so that we know who replied.? ?? Sorry¡ didn¡¯t realize until I¡¯ve gotten a few responses, and I don¡¯t know who answered. ? So- if you¡¯ve already answered, please let me know.? If you didn¡¯t respond to it yet, no worries, please include your name somewhere in the survey.? THANK YOU! ? Yay!? Life Rewards Action!? High-five! gretchenkainz.com 850-774-2236 she/her ? ? ? Hey Sacred Sisters, We are almost 90 days away from our September gathering (Sep 23-25).? Per the Dec 2021 Agreements (specific section about Weekend Attendance copied below), we are asking for your RSVP via the SurveyMonkey link above no later than Weds, Jun 22nd.? Although there are many things that are kind of ¡°normal¡± again, we know there are many things that are not.? Therefore, we¡¯re being EVEN MORE intentional with the planning of the September weekend¡ and numbers for in-person attendance really matter!? AND while we know that nothing is super predictable, we ask that when considering your RSVP, please have the mindset as if the state of the world in September will be like it is now (including COVID stuff and anything else that may be important to you).? (Sure- it might be better or it might be worse.? We have no way of knowing¡ so we¡¯ve got to go with what is.)? As an additional note, we have a question about attending if it¡¯s held in New England and one about if it¡¯s not in New England.? There¡¯s no agenda with those questions other than to inform our planning. Our numbers brought it our awareness to ask. - Seven of us live outside of NE (this includes Petra for now, even though she has plans to fly).
- Seven of us live in NE.
? With love, The TRI-FOHs ? Weekend Attendance - Women RSVP 90 days prior to the weekend
- Women pre-contact with the Co-facilitators about late arrival and / or early departure
- If a woman cancels attendance within 90 days of the weekend, she is responsible for:
- Finding a meal replacement
- Finding Leadership role substitute
- Paying her full financial portion of the weekend
- If a woman chose to be absent from a weekend but decides to attend after all, she will:
- Communicate with the Co-facilitators
- Pay the weekend fee
- Take on a leadership role
- Take on shared meal
- Women not attending the weekend either:
- Send a heart-share check-in by email prior to the weekend; and/or
- Remotely attend opening and / or closing circle
? ? Yay!? Life Rewards Action!? High-five! gretchenkainz.com 850-774-2236 she/her ?
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reminder of survey monkey re: Sept weekend RSVP- NLT Jun 22
Hi Sisters- ? Thanks to those that filled out the survey monkey.? For those that haven¡¯t yet, I promise it¡¯s super quick¡ less than 3.3 mins. ? Thanks! Love, the Tri-Fohs ? Yay!? Life Rewards Action!? High-five! gretchenkainz.com 850-774-2236 she/her ?
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From: gretchenkainz@... <gretchenkainz@...> Sent: Wednesday, June 15, 2022 1:10 PM To: ' [email protected]' < [email protected]> Subject: oops... one more thing... RE: [Sacredsistersrising] Sept weekend RSVP- need reply NLT Jun 22 ? Hi again, ? I didn¡¯t realize I forgot to include a question of ¡°who are you¡± so that we know who replied.? ?? Sorry¡ didn¡¯t realize until I¡¯ve gotten a few responses, and I don¡¯t know who answered. ? So- if you¡¯ve already answered, please let me know.? If you didn¡¯t respond to it yet, no worries, please include your name somewhere in the survey.? THANK YOU! ? Yay!? Life Rewards Action!? High-five! gretchenkainz.com 850-774-2236 she/her ? ? ? Hey Sacred Sisters, We are almost 90 days away from our September gathering (Sep 23-25).? Per the Dec 2021 Agreements (specific section about Weekend Attendance copied below), we are asking for your RSVP via the SurveyMonkey link above no later than Weds, Jun 22nd.? Although there are many things that are kind of ¡°normal¡± again, we know there are many things that are not.? Therefore, we¡¯re being EVEN MORE intentional with the planning of the September weekend¡ and numbers for in-person attendance really matter!? AND while we know that nothing is super predictable, we ask that when considering your RSVP, please have the mindset as if the state of the world in September will be like it is now (including COVID stuff and anything else that may be important to you).? (Sure- it might be better or it might be worse.? We have no way of knowing¡ so we¡¯ve got to go with what is.)? As an additional note, we have a question about attending if it¡¯s held in New England and one about if it¡¯s not in New England.? There¡¯s no agenda with those questions other than to inform our planning. Our numbers brought it our awareness to ask. - Seven of us live outside of NE (this includes Petra for now, even though she has plans to fly).
- Seven of us live in NE.
? With love, The TRI-FOHs ? Weekend Attendance - Women RSVP 90 days prior to the weekend
- Women pre-contact with the Co-facilitators about late arrival and / or early departure
- If a woman cancels attendance within 90 days of the weekend, she is responsible for:
- Finding a meal replacement
- Finding Leadership role substitute
- Paying her full financial portion of the weekend
- If a woman chose to be absent from a weekend but decides to attend after all, she will:
- Communicate with the Co-facilitators
- Pay the weekend fee
- Take on a leadership role
- Take on shared meal
- Women not attending the weekend either:
- Send a heart-share check-in by email prior to the weekend; and/or
- Remotely attend opening and / or closing circle
? ? Yay!? Life Rewards Action!? High-five! gretchenkainz.com 850-774-2236 she/her ?
|
Re: Another update on my dad
Oh Jill, I'll be praying for compassion, presence and love for you all... If I can do anything please let me know. Love you sister!?
Yellow
On Thursday, June 16, 2022 at 04:57:31 PM CDT, Marsia <motherturtlemusic@...> wrote:
¡so sorry to hear this Jill. Blessings to you and your family during this deeply sacred time. Please remember to take of yourself, as you take care of your dad.
Sending love and prayers and best wishes,
Marsia
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Hi everyone,
Yesterday was a crummy day for the Nienhiser family. My sister and I drove to Lexington (hometown, where my parents live, about an hour from our homes in Kansas City) to go with my parents to hear the results of the biopsy my dad had last week.
It was positive for pancreatic cancer. They said stage three, advanced, but not spread beyond the pancreas. However, the mass is wrapped around the portal vein, making surgery not viable if he could even survive major surgery. And they don't think he's strong enough to tolerate chemo and radiation.?
Options were palliative radiation (fewer doses) in hopes of pain relief (I guess it could shrink it a little?) or hospice care. The doctor gave him a prescription for morphine.
Three weeks ago when they told him the pet scan results were indicative of pancreatic cancer, they said they would recommend chemo and radiation; now they don't think he'd survive it. Pancreatic cancer is never a good diagnosis. However, I've been frustrated at the very slow pace of getting him seen, tested, results, seen, tested, results over several months now--long gaps between appointments, losing precious time.
I would have liked him to try the cancer therapy of Dr. Nicholas Gonzalez, who had very good results with even pancreatic cancer. Wouldn't hurt, might buy him some time. However, my dad isn't open to it.
We got home from the hospital and Susan and I stayed with my parents for the rest of the afternoon.?
My dad heard a death sentence (and I'm not saying he was wrong), and immediately was in "I'm dying" mode; "I'll be dead before the end of the year." I'm concerned he's going to talk himself into dying sooner than that. While I don't want him to suffer, I would wish for him to try for presence in the moments he has left. He believes that as soon as he starts the morphine, he will not be able to function mentally anymore. And maybe he is right (although my aunt, a retired nurse, said to me privately that we might be surprised...at first and at least for a while, it might relieve the pain and improve his mood and give him some good time, until we have to start increasing the dose past the point he can function).
He got fixated on calling people to tell them he was dying, immediately. Leaving messages on answering machines if people didn't answer. He and my mom were worked up and my sister and I were struggling to establish a little calmness and talk him down from the ledge. He thinks if people want to talk to him they need to do it right away, before he starts the morphine. He could be right, but the rest of us were thinking, you don't have to call everyone TODAY, an hour after you heard this news.
I finally talked him out of more calls when I pointed out that he'd just told someone he had COVID instead of pancreatic cancer. He agreed to get some sleep.?
My sister and I were talking in the car on the way home realizing we are wondering what it is that will kill him. If the pancreatic cancer keeps growing, will the pancreas stop functioning? Will pressure on other organs impair their function fatally? Or will the tumor just keep causing more pain from the pressure inside, and we'll have to keep upping the morphine until he overdoses??
I hate seeing him in physical pain but also just seeing him debilitated physically and mentally. He has always been so capable, and so reliable. A constant, stable presence in my life. I knew that we were likely going to hear that he definitely had cancer yesterday. However, I thought he might be getting treatment, which will unlikely to cure him, might have bought him some time--hopefully good time. Of course there still might be some good days ahead. Seeing him yesterday, though, and how much worse he was just since I was last there, I worry that the dad I knew is already gone and I won't see him again. That he will be weak and afraid and in pain and angry and demanding for the remaining time we have and all we can do is try to ease him along to the end.?
He is frustrated and ordering us about as we get him dressed, in the car, into bed, getting him fed, etc. I am hoping I can find a lucid moment to tell him he needs to speak to us with a bit more patience and gratitude, especially my mom. There is more to say there about what Susan and I have seen about their relationship these past months, but I'll save it for another time. I know he's afraid and grasping for control so he's trying to control us, but it's pretty trying.
When I got home, Dane was great. This morning he went out to get me a bagel and coffee before he left for work. Susan just texted me that she and Scott and Zachary are going there Sunday (father's day) so we will probably join them.
I welcome your best wishes for all of us as we navigate this.
-- Marsia S. Harris/Mother Turtle Artist and Creator of?Healing the Stories We Tell Ourselves with Mother Turtle
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Re: Another update on my dad
¡so sorry to hear this Jill. Blessings to you and your family during this deeply sacred time. Please remember to take of yourself, as you take care of your dad.
Sending love and prayers and best wishes,
Marsia
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Hi everyone,
Yesterday was a crummy day for the Nienhiser family. My sister and I drove to Lexington (hometown, where my parents live, about an hour from our homes in Kansas City) to go with my parents to hear the results of the biopsy my dad had last week.
It was positive for pancreatic cancer. They said stage three, advanced, but not spread beyond the pancreas. However, the mass is wrapped around the portal vein, making surgery not viable if he could even survive major surgery. And they don't think he's strong enough to tolerate chemo and radiation.?
Options were palliative radiation (fewer doses) in hopes of pain relief (I guess it could shrink it a little?) or hospice care. The doctor gave him a prescription for morphine.
Three weeks ago when they told him the pet scan results were indicative of pancreatic cancer, they said they would recommend chemo and radiation; now they don't think he'd survive it. Pancreatic cancer is never a good diagnosis. However, I've been frustrated at the very slow pace of getting him seen, tested, results, seen, tested, results over several months now--long gaps between appointments, losing precious time.
I would have liked him to try the cancer therapy of Dr. Nicholas Gonzalez, who had very good results with even pancreatic cancer. Wouldn't hurt, might buy him some time. However, my dad isn't open to it.
We got home from the hospital and Susan and I stayed with my parents for the rest of the afternoon.?
My dad heard a death sentence (and I'm not saying he was wrong), and immediately was in "I'm dying" mode; "I'll be dead before the end of the year." I'm concerned he's going to talk himself into dying sooner than that. While I don't want him to suffer, I would wish for him to try for presence in the moments he has left. He believes that as soon as he starts the morphine, he will not be able to function mentally anymore. And maybe he is right (although my aunt, a retired nurse, said to me privately that we might be surprised...at first and at least for a while, it might relieve the pain and improve his mood and give him some good time, until we have to start increasing the dose past the point he can function).
He got fixated on calling people to tell them he was dying, immediately. Leaving messages on answering machines if people didn't answer. He and my mom were worked up and my sister and I were struggling to establish a little calmness and talk him down from the ledge. He thinks if people want to talk to him they need to do it right away, before he starts the morphine. He could be right, but the rest of us were thinking, you don't have to call everyone TODAY, an hour after you heard this news.
I finally talked him out of more calls when I pointed out that he'd just told someone he had COVID instead of pancreatic cancer. He agreed to get some sleep.?
My sister and I were talking in the car on the way home realizing we are wondering what it is that will kill him. If the pancreatic cancer keeps growing, will the pancreas stop functioning? Will pressure on other organs impair their function fatally? Or will the tumor just keep causing more pain from the pressure inside, and we'll have to keep upping the morphine until he overdoses??
I hate seeing him in physical pain but also just seeing him debilitated physically and mentally. He has always been so capable, and so reliable. A constant, stable presence in my life. I knew that we were likely going to hear that he definitely had cancer yesterday. However, I thought he might be getting treatment, which will unlikely to cure him, might have bought him some time--hopefully good time. Of course there still might be some good days ahead. Seeing him yesterday, though, and how much worse he was just since I was last there, I worry that the dad I knew is already gone and I won't see him again. That he will be weak and afraid and in pain and angry and demanding for the remaining time we have and all we can do is try to ease him along to the end.?
He is frustrated and ordering us about as we get him dressed, in the car, into bed, getting him fed, etc. I am hoping I can find a lucid moment to tell him he needs to speak to us with a bit more patience and gratitude, especially my mom. There is more to say there about what Susan and I have seen about their relationship these past months, but I'll save it for another time. I know he's afraid and grasping for control so he's trying to control us, but it's pretty trying.
When I got home, Dane was great. This morning he went out to get me a bagel and coffee before he left for work. Susan just texted me that she and Scott and Zachary are going there Sunday (father's day) so we will probably join them.
I welcome your best wishes for all of us as we navigate this.
-- Marsia S. Harris/Mother Turtle Artist and Creator of?Healing the Stories We Tell Ourselves with Mother Turtle
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Re: Another update on my dad
Jill I hear your aching heart and the holding of your Dad. Sending lots of love and?prayers.?
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Oh Jill, that sounds incredibly painful. I am so sorry to hear this. Sending so much love to you and your family.? ------- Blessings, Chaya Leia Aronson, RN, BSN chaya@...508-243-5383 , 3H Haydenville, MA 01039 ¡°The female pelvis is a powerhouse of energy transformation; the very? throne of creation through which universal creative energy patterns course? and flow. This depends on balance within the system.¡± Dr. Rosita Arvigo, DN
Cancellations --?If you need to cancel or reschedule, please do so at least 48 hours in advance. We charge for the full session for cancellations made with less than 48 hours notice. In the event of inclement weather, Chaya will contact you that day. Chaya is quite forgiving when a woman needs reschedule due to menstruation, but requires that you reschedule, or you will be charged for the full session. Thank you for understanding.?
Oh Jill, my heart goes out to you and your family. Is there a particular way you/ your family would like to be held during this time?? Love and prayers,? Matooka? ? Jill-
I am so so sorry this was such a hard place in this part of your dad's and family's journey with this illness.? Many layers there for you all to navigate. Sending love and energy for patience, compassion, grace, strength and connection for you all.? And if you'd like to talk at any point I'm around in the evenings and some this weekend too.
I love you, Paige
Jill, this is so much... reading, witnessing, and sending love to you and your family.
Love, Meggie
On Thursday, June 16, 2022 at 10:40:43 AM EDT, Jill via <jnienhiser= [email protected]> wrote:
Hi everyone,
Yesterday was a crummy day for the Nienhiser family. My sister and I drove to Lexington (hometown, where my parents live, about an hour from our homes in Kansas City) to go with my parents to hear the results of the biopsy my dad had last week.
It was positive for pancreatic cancer. They said stage three, advanced, but not spread beyond the pancreas. However, the mass is wrapped around the portal vein, making surgery not viable if he could even survive major surgery. And they don't think he's strong enough to tolerate chemo and radiation.?
Options were palliative radiation (fewer doses) in hopes of pain relief (I guess it could shrink it a little?) or hospice care. The doctor gave him a prescription for morphine.
Three weeks ago when they told him the pet scan results were indicative of pancreatic cancer, they said they would recommend chemo and radiation; now they don't think he'd survive it. Pancreatic cancer is never a good diagnosis. However, I've been frustrated at the very slow pace of getting him seen, tested, results, seen, tested, results over several months now--long gaps between appointments, losing precious time.
I would have liked him to try the cancer therapy of Dr. Nicholas Gonzalez, who had very good results with even pancreatic cancer. Wouldn't hurt, might buy him some time. However, my dad isn't open to it.
We got home from the hospital and Susan and I stayed with my parents for the rest of the afternoon.?
My dad heard a death sentence (and I'm not saying he was wrong), and immediately was in "I'm dying" mode; "I'll be dead before the end of the year." I'm concerned he's going to talk himself into dying sooner than that. While I don't want him to suffer, I would wish for him to try for presence in the moments he has left. He believes that as soon as he starts the morphine, he will not be able to function mentally anymore. And maybe he is right (although my aunt, a retired nurse, said to me privately that we might be surprised...at first and at least for a while, it might relieve the pain and improve his mood and give him some good time, until we have to start increasing the dose past the point he can function).
He got fixated on calling people to tell them he was dying, immediately. Leaving messages on answering machines if people didn't answer. He and my mom were worked up and my sister and I were struggling to establish a little calmness and talk him down from the ledge. He thinks if people want to talk to him they need to do it right away, before he starts the morphine. He could be right, but the rest of us were thinking, you don't have to call everyone TODAY, an hour after you heard this news.
I finally talked him out of more calls when I pointed out that he'd just told someone he had COVID instead of pancreatic cancer. He agreed to get some sleep.?
My sister and I were talking in the car on the way home realizing we are wondering what it is that will kill him. If the pancreatic cancer keeps growing, will the pancreas stop functioning? Will pressure on other organs impair their function fatally? Or will the tumor just keep causing more pain from the pressure inside, and we'll have to keep upping the morphine until he overdoses??
I hate seeing him in physical pain but also just seeing him debilitated physically and mentally. He has always been so capable, and so reliable. A constant, stable presence in my life. I knew that we were likely going to hear that he definitely had cancer yesterday. However, I thought he might be getting treatment, which will unlikely to cure him, might have bought him some time--hopefully good time. Of course there still might be some good days ahead. Seeing him yesterday, though, and how much worse he was just since I was last there, I worry that the dad I knew is already gone and I won't see him again. That he will be weak and afraid and in pain and angry and demanding for the remaining time we have and all we can do is try to ease him along to the end.?
He is frustrated and ordering us about as we get him dressed, in the car, into bed, getting him fed, etc. I am hoping I can find a lucid moment to tell him he needs to speak to us with a bit more patience and gratitude, especially my mom. There is more to say there about what Susan and I have seen about their relationship these past months, but I'll save it for another time. I know he's afraid and grasping for control so he's trying to control us, but it's pretty trying.
When I got home, Dane was great. This morning he went out to get me a bagel and coffee before he left for work. Susan just texted me that she and Scott and Zachary are going there Sunday (father's day) so we will probably join them.
I welcome your best wishes for all of us as we navigate this.
|
Re: Another update on my dad
Oh Jill, that sounds incredibly painful. I am so sorry to hear this. Sending so much love to you and your family.? ------- Blessings, Chaya Leia Aronson, RN, BSN chaya@...508-243-5383 132 Main Street, 3H Haydenville, MA 01039 ¡°The female pelvis is a powerhouse of energy transformation; the very? throne of creation through which universal creative energy patterns course? and flow. This depends on balance within the system.¡± Dr. Rosita Arvigo, DN
Cancellations --?If you need to cancel or reschedule, please do so at least 48 hours in advance. We charge for the full session for cancellations made with less than 48 hours notice. In the event of inclement weather, Chaya will contact you that day. Chaya is quite forgiving when a woman needs reschedule due to menstruation, but requires that you reschedule, or you will be charged for the full session. Thank you for understanding.?
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Oh Jill, my heart goes out to you and your family. Is there a particular way you/ your family would like to be held during this time?? Love and prayers,? Matooka? ? Jill-
I am so so sorry this was such a hard place in this part of your dad's and family's journey with this illness.? Many layers there for you all to navigate. Sending love and energy for patience, compassion, grace, strength and connection for you all.? And if you'd like to talk at any point I'm around in the evenings and some this weekend too.
I love you, Paige
Jill, this is so much... reading, witnessing, and sending love to you and your family.
Love, Meggie
On Thursday, June 16, 2022 at 10:40:43 AM EDT, Jill via <jnienhiser= [email protected]> wrote:
Hi everyone,
Yesterday was a crummy day for the Nienhiser family. My sister and I drove to Lexington (hometown, where my parents live, about an hour from our homes in Kansas City) to go with my parents to hear the results of the biopsy my dad had last week.
It was positive for pancreatic cancer. They said stage three, advanced, but not spread beyond the pancreas. However, the mass is wrapped around the portal vein, making surgery not viable if he could even survive major surgery. And they don't think he's strong enough to tolerate chemo and radiation.?
Options were palliative radiation (fewer doses) in hopes of pain relief (I guess it could shrink it a little?) or hospice care. The doctor gave him a prescription for morphine.
Three weeks ago when they told him the pet scan results were indicative of pancreatic cancer, they said they would recommend chemo and radiation; now they don't think he'd survive it. Pancreatic cancer is never a good diagnosis. However, I've been frustrated at the very slow pace of getting him seen, tested, results, seen, tested, results over several months now--long gaps between appointments, losing precious time.
I would have liked him to try the cancer therapy of Dr. Nicholas Gonzalez, who had very good results with even pancreatic cancer. Wouldn't hurt, might buy him some time. However, my dad isn't open to it.
We got home from the hospital and Susan and I stayed with my parents for the rest of the afternoon.?
My dad heard a death sentence (and I'm not saying he was wrong), and immediately was in "I'm dying" mode; "I'll be dead before the end of the year." I'm concerned he's going to talk himself into dying sooner than that. While I don't want him to suffer, I would wish for him to try for presence in the moments he has left. He believes that as soon as he starts the morphine, he will not be able to function mentally anymore. And maybe he is right (although my aunt, a retired nurse, said to me privately that we might be surprised...at first and at least for a while, it might relieve the pain and improve his mood and give him some good time, until we have to start increasing the dose past the point he can function).
He got fixated on calling people to tell them he was dying, immediately. Leaving messages on answering machines if people didn't answer. He and my mom were worked up and my sister and I were struggling to establish a little calmness and talk him down from the ledge. He thinks if people want to talk to him they need to do it right away, before he starts the morphine. He could be right, but the rest of us were thinking, you don't have to call everyone TODAY, an hour after you heard this news.
I finally talked him out of more calls when I pointed out that he'd just told someone he had COVID instead of pancreatic cancer. He agreed to get some sleep.?
My sister and I were talking in the car on the way home realizing we are wondering what it is that will kill him. If the pancreatic cancer keeps growing, will the pancreas stop functioning? Will pressure on other organs impair their function fatally? Or will the tumor just keep causing more pain from the pressure inside, and we'll have to keep upping the morphine until he overdoses??
I hate seeing him in physical pain but also just seeing him debilitated physically and mentally. He has always been so capable, and so reliable. A constant, stable presence in my life. I knew that we were likely going to hear that he definitely had cancer yesterday. However, I thought he might be getting treatment, which will unlikely to cure him, might have bought him some time--hopefully good time. Of course there still might be some good days ahead. Seeing him yesterday, though, and how much worse he was just since I was last there, I worry that the dad I knew is already gone and I won't see him again. That he will be weak and afraid and in pain and angry and demanding for the remaining time we have and all we can do is try to ease him along to the end.?
He is frustrated and ordering us about as we get him dressed, in the car, into bed, getting him fed, etc. I am hoping I can find a lucid moment to tell him he needs to speak to us with a bit more patience and gratitude, especially my mom. There is more to say there about what Susan and I have seen about their relationship these past months, but I'll save it for another time. I know he's afraid and grasping for control so he's trying to control us, but it's pretty trying.
When I got home, Dane was great. This morning he went out to get me a bagel and coffee before he left for work. Susan just texted me that she and Scott and Zachary are going there Sunday (father's day) so we will probably join them.
I welcome your best wishes for all of us as we navigate this.
|
Re: Another update on my dad
Oh Jill, my heart goes out to you and your family. Is there a particular way you/ your family would like to be held during this time?? Love and prayers,?
toggle quoted message
Show quoted text
On Jun 16, 2022, at 11:24 AM, Paige <pgly.gardner@...> wrote:
? Jill-
I am so so sorry this was such a hard place in this part of your dad's and family's journey with this illness.? Many layers there for you all to navigate. Sending love and energy for patience, compassion, grace, strength and connection for you all.? And if you'd like to talk at any point I'm around in the evenings and some this weekend too.
I love you, Paige
Jill, this is so much... reading, witnessing, and sending love to you and your family.
Love, Meggie
On Thursday, June 16, 2022 at 10:40:43 AM EDT, Jill via <jnienhiser= [email protected]> wrote:
Hi everyone,
Yesterday was a crummy day for the Nienhiser family. My sister and I drove to Lexington (hometown, where my parents live, about an hour from our homes in Kansas City) to go with my parents to hear the results of the biopsy my dad had last week.
It was positive for pancreatic cancer. They said stage three, advanced, but not spread beyond the pancreas. However, the mass is wrapped around the portal vein, making surgery not viable if he could even survive major surgery. And they don't think he's strong enough to tolerate chemo and radiation.?
Options were palliative radiation (fewer doses) in hopes of pain relief (I guess it could shrink it a little?) or hospice care. The doctor gave him a prescription for morphine.
Three weeks ago when they told him the pet scan results were indicative of pancreatic cancer, they said they would recommend chemo and radiation; now they don't think he'd survive it. Pancreatic cancer is never a good diagnosis. However, I've been frustrated at the very slow pace of getting him seen, tested, results, seen, tested, results over several months now--long gaps between appointments, losing precious time.
I would have liked him to try the cancer therapy of Dr. Nicholas Gonzalez, who had very good results with even pancreatic cancer. Wouldn't hurt, might buy him some time. However, my dad isn't open to it.
We got home from the hospital and Susan and I stayed with my parents for the rest of the afternoon.?
My dad heard a death sentence (and I'm not saying he was wrong), and immediately was in "I'm dying" mode; "I'll be dead before the end of the year." I'm concerned he's going to talk himself into dying sooner than that. While I don't want him to suffer, I would wish for him to try for presence in the moments he has left. He believes that as soon as he starts the morphine, he will not be able to function mentally anymore. And maybe he is right (although my aunt, a retired nurse, said to me privately that we might be surprised...at first and at least for a while, it might relieve the pain and improve his mood and give him some good time, until we have to start increasing the dose past the point he can function).
He got fixated on calling people to tell them he was dying, immediately. Leaving messages on answering machines if people didn't answer. He and my mom were worked up and my sister and I were struggling to establish a little calmness and talk him down from the ledge. He thinks if people want to talk to him they need to do it right away, before he starts the morphine. He could be right, but the rest of us were thinking, you don't have to call everyone TODAY, an hour after you heard this news.
I finally talked him out of more calls when I pointed out that he'd just told someone he had COVID instead of pancreatic cancer. He agreed to get some sleep.?
My sister and I were talking in the car on the way home realizing we are wondering what it is that will kill him. If the pancreatic cancer keeps growing, will the pancreas stop functioning? Will pressure on other organs impair their function fatally? Or will the tumor just keep causing more pain from the pressure inside, and we'll have to keep upping the morphine until he overdoses??
I hate seeing him in physical pain but also just seeing him debilitated physically and mentally. He has always been so capable, and so reliable. A constant, stable presence in my life. I knew that we were likely going to hear that he definitely had cancer yesterday. However, I thought he might be getting treatment, which will unlikely to cure him, might have bought him some time--hopefully good time. Of course there still might be some good days ahead. Seeing him yesterday, though, and how much worse he was just since I was last there, I worry that the dad I knew is already gone and I won't see him again. That he will be weak and afraid and in pain and angry and demanding for the remaining time we have and all we can do is try to ease him along to the end.?
He is frustrated and ordering us about as we get him dressed, in the car, into bed, getting him fed, etc. I am hoping I can find a lucid moment to tell him he needs to speak to us with a bit more patience and gratitude, especially my mom. There is more to say there about what Susan and I have seen about their relationship these past months, but I'll save it for another time. I know he's afraid and grasping for control so he's trying to control us, but it's pretty trying.
When I got home, Dane was great. This morning he went out to get me a bagel and coffee before he left for work. Susan just texted me that she and Scott and Zachary are going there Sunday (father's day) so we will probably join them.
I welcome your best wishes for all of us as we navigate this.
|
Re: Another update on my dad
Jill-
I am so so sorry this was such a hard place in this part of your dad's and family's journey with this illness.? Many layers there for you all to navigate. Sending love and energy for patience, compassion, grace, strength and connection for you all.? And if you'd like to talk at any point I'm around in the evenings and some this weekend too.
I love you, Paige
toggle quoted message
Show quoted text
Jill, this is so much... reading, witnessing, and sending love to you and your family.
Love, Meggie
On Thursday, June 16, 2022 at 10:40:43 AM EDT, Jill via <jnienhiser= [email protected]> wrote:
Hi everyone,
Yesterday was a crummy day for the Nienhiser family. My sister and I drove to Lexington (hometown, where my parents live, about an hour from our homes in Kansas City) to go with my parents to hear the results of the biopsy my dad had last week.
It was positive for pancreatic cancer. They said stage three, advanced, but not spread beyond the pancreas. However, the mass is wrapped around the portal vein, making surgery not viable if he could even survive major surgery. And they don't think he's strong enough to tolerate chemo and radiation.?
Options were palliative radiation (fewer doses) in hopes of pain relief (I guess it could shrink it a little?) or hospice care. The doctor gave him a prescription for morphine.
Three weeks ago when they told him the pet scan results were indicative of pancreatic cancer, they said they would recommend chemo and radiation; now they don't think he'd survive it. Pancreatic cancer is never a good diagnosis. However, I've been frustrated at the very slow pace of getting him seen, tested, results, seen, tested, results over several months now--long gaps between appointments, losing precious time.
I would have liked him to try the cancer therapy of Dr. Nicholas Gonzalez, who had very good results with even pancreatic cancer. Wouldn't hurt, might buy him some time. However, my dad isn't open to it.
We got home from the hospital and Susan and I stayed with my parents for the rest of the afternoon.?
My dad heard a death sentence (and I'm not saying he was wrong), and immediately was in "I'm dying" mode; "I'll be dead before the end of the year." I'm concerned he's going to talk himself into dying sooner than that. While I don't want him to suffer, I would wish for him to try for presence in the moments he has left. He believes that as soon as he starts the morphine, he will not be able to function mentally anymore. And maybe he is right (although my aunt, a retired nurse, said to me privately that we might be surprised...at first and at least for a while, it might relieve the pain and improve his mood and give him some good time, until we have to start increasing the dose past the point he can function).
He got fixated on calling people to tell them he was dying, immediately. Leaving messages on answering machines if people didn't answer. He and my mom were worked up and my sister and I were struggling to establish a little calmness and talk him down from the ledge. He thinks if people want to talk to him they need to do it right away, before he starts the morphine. He could be right, but the rest of us were thinking, you don't have to call everyone TODAY, an hour after you heard this news.
I finally talked him out of more calls when I pointed out that he'd just told someone he had COVID instead of pancreatic cancer. He agreed to get some sleep.?
My sister and I were talking in the car on the way home realizing we are wondering what it is that will kill him. If the pancreatic cancer keeps growing, will the pancreas stop functioning? Will pressure on other organs impair their function fatally? Or will the tumor just keep causing more pain from the pressure inside, and we'll have to keep upping the morphine until he overdoses??
I hate seeing him in physical pain but also just seeing him debilitated physically and mentally. He has always been so capable, and so reliable. A constant, stable presence in my life. I knew that we were likely going to hear that he definitely had cancer yesterday. However, I thought he might be getting treatment, which will unlikely to cure him, might have bought him some time--hopefully good time. Of course there still might be some good days ahead. Seeing him yesterday, though, and how much worse he was just since I was last there, I worry that the dad I knew is already gone and I won't see him again. That he will be weak and afraid and in pain and angry and demanding for the remaining time we have and all we can do is try to ease him along to the end.?
He is frustrated and ordering us about as we get him dressed, in the car, into bed, getting him fed, etc. I am hoping I can find a lucid moment to tell him he needs to speak to us with a bit more patience and gratitude, especially my mom. There is more to say there about what Susan and I have seen about their relationship these past months, but I'll save it for another time. I know he's afraid and grasping for control so he's trying to control us, but it's pretty trying.
When I got home, Dane was great. This morning he went out to get me a bagel and coffee before he left for work. Susan just texted me that she and Scott and Zachary are going there Sunday (father's day) so we will probably join them.
I welcome your best wishes for all of us as we navigate this.
|
Re: Another update on my dad
Jill, this is so much... reading, witnessing, and sending love to you and your family.
Love, Meggie
On Thursday, June 16, 2022 at 10:40:43 AM EDT, Jill via groups.io <jnienhiser@...> wrote:
Hi everyone,
Yesterday was a crummy day for the Nienhiser family. My sister and I drove to Lexington (hometown, where my parents live, about an hour from our homes in Kansas City) to go with my parents to hear the results of the biopsy my dad had last week.
It was positive for pancreatic cancer. They said stage three, advanced, but not spread beyond the pancreas. However, the mass is wrapped around the portal vein, making surgery not viable if he could even survive major surgery. And they don't think he's strong enough to tolerate chemo and radiation.?
Options were palliative radiation (fewer doses) in hopes of pain relief (I guess it could shrink it a little?) or hospice care. The doctor gave him a prescription for morphine.
Three weeks ago when they told him the pet scan results were indicative of pancreatic cancer, they said they would recommend chemo and radiation; now they don't think he'd survive it. Pancreatic cancer is never a good diagnosis. However, I've been frustrated at the very slow pace of getting him seen, tested, results, seen, tested, results over several months now--long gaps between appointments, losing precious time.
I would have liked him to try the cancer therapy of Dr. Nicholas Gonzalez, who had very good results with even pancreatic cancer. Wouldn't hurt, might buy him some time. However, my dad isn't open to it.
We got home from the hospital and Susan and I stayed with my parents for the rest of the afternoon.?
My dad heard a death sentence (and I'm not saying he was wrong), and immediately was in "I'm dying" mode; "I'll be dead before the end of the year." I'm concerned he's going to talk himself into dying sooner than that. While I don't want him to suffer, I would wish for him to try for presence in the moments he has left. He believes that as soon as he starts the morphine, he will not be able to function mentally anymore. And maybe he is right (although my aunt, a retired nurse, said to me privately that we might be surprised...at first and at least for a while, it might relieve the pain and improve his mood and give him some good time, until we have to start increasing the dose past the point he can function).
He got fixated on calling people to tell them he was dying, immediately. Leaving messages on answering machines if people didn't answer. He and my mom were worked up and my sister and I were struggling to establish a little calmness and talk him down from the ledge. He thinks if people want to talk to him they need to do it right away, before he starts the morphine. He could be right, but the rest of us were thinking, you don't have to call everyone TODAY, an hour after you heard this news.
I finally talked him out of more calls when I pointed out that he'd just told someone he had COVID instead of pancreatic cancer. He agreed to get some sleep.?
My sister and I were talking in the car on the way home realizing we are wondering what it is that will kill him. If the pancreatic cancer keeps growing, will the pancreas stop functioning? Will pressure on other organs impair their function fatally? Or will the tumor just keep causing more pain from the pressure inside, and we'll have to keep upping the morphine until he overdoses??
I hate seeing him in physical pain but also just seeing him debilitated physically and mentally. He has always been so capable, and so reliable. A constant, stable presence in my life. I knew that we were likely going to hear that he definitely had cancer yesterday. However, I thought he might be getting treatment, which will unlikely to cure him, might have bought him some time--hopefully good time. Of course there still might be some good days ahead. Seeing him yesterday, though, and how much worse he was just since I was last there, I worry that the dad I knew is already gone and I won't see him again. That he will be weak and afraid and in pain and angry and demanding for the remaining time we have and all we can do is try to ease him along to the end.?
He is frustrated and ordering us about as we get him dressed, in the car, into bed, getting him fed, etc. I am hoping I can find a lucid moment to tell him he needs to speak to us with a bit more patience and gratitude, especially my mom. There is more to say there about what Susan and I have seen about their relationship these past months, but I'll save it for another time. I know he's afraid and grasping for control so he's trying to control us, but it's pretty trying.
When I got home, Dane was great. This morning he went out to get me a bagel and coffee before he left for work. Susan just texted me that she and Scott and Zachary are going there Sunday (father's day) so we will probably join them.
I welcome your best wishes for all of us as we navigate this.
|
Hi everyone,
Yesterday was a crummy day for the Nienhiser family. My sister and I drove to Lexington (hometown, where my parents live, about an hour from our homes in Kansas City) to go with my parents to hear the results of the biopsy my dad had last week.
It was positive for pancreatic cancer. They said stage three, advanced, but not spread beyond the pancreas. However, the mass is wrapped around the portal vein, making surgery not viable if he could even survive major surgery. And they don't think he's strong enough to tolerate chemo and radiation.?
Options were palliative radiation (fewer doses) in hopes of pain relief (I guess it could shrink it a little?) or hospice care. The doctor gave him a prescription for morphine.
Three weeks ago when they told him the pet scan results were indicative of pancreatic cancer, they said they would recommend chemo and radiation; now they don't think he'd survive it. Pancreatic cancer is never a good diagnosis. However, I've been frustrated at the very slow pace of getting him seen, tested, results, seen, tested, results over several months now--long gaps between appointments, losing precious time.
I would have liked him to try the cancer therapy of Dr. Nicholas Gonzalez, who had very good results with even pancreatic cancer. Wouldn't hurt, might buy him some time. However, my dad isn't open to it.
We got home from the hospital and Susan and I stayed with my parents for the rest of the afternoon.?
My dad heard a death sentence (and I'm not saying he was wrong), and immediately was in "I'm dying" mode; "I'll be dead before the end of the year." I'm concerned he's going to talk himself into dying sooner than that. While I don't want him to suffer, I would wish for him to try for presence in the moments he has left. He believes that as soon as he starts the morphine, he will not be able to function mentally anymore. And maybe he is right (although my aunt, a retired nurse, said to me privately that we might be surprised...at first and at least for a while, it might relieve the pain and improve his mood and give him some good time, until we have to start increasing the dose past the point he can function).
He got fixated on calling people to tell them he was dying, immediately. Leaving messages on answering machines if people didn't answer. He and my mom were worked up and my sister and I were struggling to establish a little calmness and talk him down from the ledge. He thinks if people want to talk to him they need to do it right away, before he starts the morphine. He could be right, but the rest of us were thinking, you don't have to call everyone TODAY, an hour after you heard this news.
I finally talked him out of more calls when I pointed out that he'd just told someone he had COVID instead of pancreatic cancer. He agreed to get some sleep.?
My sister and I were talking in the car on the way home realizing we are wondering what it is that will kill him. If the pancreatic cancer keeps growing, will the pancreas stop functioning? Will pressure on other organs impair their function fatally? Or will the tumor just keep causing more pain from the pressure inside, and we'll have to keep upping the morphine until he overdoses??
I hate seeing him in physical pain but also just seeing him debilitated physically and mentally. He has always been so capable, and so reliable. A constant, stable presence in my life. I knew that we were likely going to hear that he definitely had cancer yesterday. However, I thought he might be getting treatment, which will unlikely to cure him, might have bought him some time--hopefully good time. Of course there still might be some good days ahead. Seeing him yesterday, though, and how much worse he was just since I was last there, I worry that the dad I knew is already gone and I won't see him again. That he will be weak and afraid and in pain and angry and demanding for the remaining time we have and all we can do is try to ease him along to the end.?
He is frustrated and ordering us about as we get him dressed, in the car, into bed, getting him fed, etc. I am hoping I can find a lucid moment to tell him he needs to speak to us with a bit more patience and gratitude, especially my mom. There is more to say there about what Susan and I have seen about their relationship these past months, but I'll save it for another time. I know he's afraid and grasping for control so he's trying to control us, but it's pretty trying.
When I got home, Dane was great. This morning he went out to get me a bagel and coffee before he left for work. Susan just texted me that she and Scott and Zachary are going there Sunday (father's day) so we will probably join them.
I welcome your best wishes for all of us as we navigate this.
|
Re: oops... one more thing... RE: [Sacredsistersrising] Sept weekend RSVP- need reply NLT Jun 22
I responded ??want ?me to do it over?
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On Jun 15, 2022, at 3:31 PM, Suzanne via groups.io <winghaug@...> wrote:
?
Yes I was wondering about that.
I just responded this afternoon.
Xo Suzanne
On Wednesday, June 15, 2022, 03:08:48 PM EDT, Gretchen via groups.io <gretchenkainz@...> wrote:
Hi again, ? I didn¡¯t realize I forgot to include a question of ¡°who are you¡± so that we know who replied.? ?? Sorry¡ didn¡¯t realize until I¡¯ve gotten a few responses, and I don¡¯t know who answered. ? So- if you¡¯ve already answered, please let me know.? If you didn¡¯t respond to it yet, no worries, please include your name somewhere in the survey.? THANK YOU! ? Yay!? Life Rewards Action!? High-five! gretchenkainz.com 850-774-2236 she/her ? ? ? Hey Sacred Sisters, We are almost 90 days away from our September gathering (Sep 23-25).? Per the Dec 2021 Agreements (specific section about Weekend Attendance copied below), we are asking for your RSVP via the SurveyMonkey link above no later than Weds, Jun 22nd.? Although there are many things that are kind of ¡°normal¡± again, we know there are many things that are not.? Therefore, we¡¯re being EVEN MORE intentional with the planning of the September weekend¡ and numbers for in-person attendance really matter!? AND while we know that nothing is super predictable, we ask that when considering your RSVP, please have the mindset as if the state of the world in September will be like it is now (including COVID stuff and anything else that may be important to you).? (Sure- it might be better or it might be worse.? We have no way of knowing¡ so we¡¯ve got to go with what is.)? As an additional note, we have a question about attending if it¡¯s held in New England and one about if it¡¯s not in New England.? There¡¯s no agenda with those questions other than to inform our planning. Our numbers brought it our awareness to ask. - Seven of us live outside of NE (this includes Petra for now, even though she has plans to fly).
- Seven of us live in NE.
? With love, The TRI-FOHs ? Weekend Attendance - Women RSVP 90 days prior to the weekend
- Women pre-contact with the Co-facilitators about late arrival and / or early departure
- If a woman cancels attendance within 90 days of the weekend, she is responsible for:
- Finding a meal replacement
- Finding Leadership role substitute
- Paying her full financial portion of the weekend
- If a woman chose to be absent from a weekend but decides to attend after all, she will:
- Communicate with the Co-facilitators
- Pay the weekend fee
- Take on a leadership role
- Take on shared meal
- Women not attending the weekend either:
- Send a heart-share check-in by email prior to the weekend; and/or
- Remotely attend opening and / or closing circle
? ? Yay!? Life Rewards Action!? High-five! gretchenkainz.com 850-774-2236 she/her ?
|
Re: oops... one more thing... RE: [Sacredsistersrising] Sept weekend RSVP- need reply NLT Jun 22
Yes I was wondering about that.
I just responded this afternoon.
Xo Suzanne
On Wednesday, June 15, 2022, 03:08:48 PM EDT, Gretchen via groups.io <gretchenkainz@...> wrote:
Hi again, ? I didn¡¯t realize I forgot to include a question of ¡°who are you¡± so that we know who replied.? ?? Sorry¡ didn¡¯t realize until I¡¯ve gotten a few responses, and I don¡¯t know who answered. ? So- if you¡¯ve already answered, please let me know.? If you didn¡¯t respond to it yet, no worries, please include your name somewhere in the survey.? THANK YOU! ? Yay!? Life Rewards Action!? High-five! gretchenkainz.com 850-774-2236 she/her ?
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From: [email protected] < [email protected]> On Behalf Of Gretchen via groups.io Sent: Wednesday, June 15, 2022 11:26 AM To: [email protected]Subject: [Sacredsistersrising] Sept weekend RSVP- need reply NLT Jun 22 ? ? Hey Sacred Sisters, We are almost 90 days away from our September gathering (Sep 23-25).? Per the Dec 2021 Agreements (specific section about Weekend Attendance copied below), we are asking for your RSVP via the SurveyMonkey link above no later than Weds, Jun 22nd.? Although there are many things that are kind of ¡°normal¡± again, we know there are many things that are not.? Therefore, we¡¯re being EVEN MORE intentional with the planning of the September weekend¡ and numbers for in-person attendance really matter!? AND while we know that nothing is super predictable, we ask that when considering your RSVP, please have the mindset as if the state of the world in September will be like it is now (including COVID stuff and anything else that may be important to you).? (Sure- it might be better or it might be worse.? We have no way of knowing¡ so we¡¯ve got to go with what is.)? As an additional note, we have a question about attending if it¡¯s held in New England and one about if it¡¯s not in New England.? There¡¯s no agenda with those questions other than to inform our planning. Our numbers brought it our awareness to ask. - Seven of us live outside of NE (this includes Petra for now, even though she has plans to fly).
- Seven of us live in NE.
? With love, The TRI-FOHs ? Weekend Attendance - Women RSVP 90 days prior to the weekend
- Women pre-contact with the Co-facilitators about late arrival and / or early departure
- If a woman cancels attendance within 90 days of the weekend, she is responsible for:
- Finding a meal replacement
- Finding Leadership role substitute
- Paying her full financial portion of the weekend
- If a woman chose to be absent from a weekend but decides to attend after all, she will:
- Communicate with the Co-facilitators
- Pay the weekend fee
- Take on a leadership role
- Take on shared meal
- Women not attending the weekend either:
- Send a heart-share check-in by email prior to the weekend; and/or
- Remotely attend opening and / or closing circle
? ? Yay!? Life Rewards Action!? High-five! gretchenkainz.com 850-774-2236 she/her ?
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