Stop saying the toddler is "unwilling" to use a cane-
Dr. Grace Ambrose-Zaken, COMS
The cane is a safety device. Like a seat belt - it must be employed when the child is blind. A two-year-old can no more be unwilling to use a cane, than be unwilling to use a seat belt. If a child said "no" I don't want to wear my seat belt- would you
drive with them in the car? Risk getting a ticket- or worse, risk an accident with an unbuckled child?????
If you know that the child is blind - is unable to visually avoid collisions - if you do not provide that child with the safety device she needs- you are negligent.
A child who is blind and walking and crashing into things or not walking and not talking - is not learning.
Blind babies are not experiencing safe mobility simply "holding a cane for five seconds- 30 seconds, 2 minutes in diagonal technique with constant prompting." It matters if the cane is forming an arc or off the ground or behind them. It matters that the
cane is in the right place, at the right time, all the time. There is no other reason to hold a cane except to achieve safe mobility.
If you want to make a difference in the lives of blind babies - start understanding the purpose of the cane.
Canes are equal to wheelchairs - life is better when you get full benefit from them.
Blind babies can't wait to be safe. They need SAFE MOBILITY IMMEDIATELY - if not sooner.
For children five and younger- they need pediatric belt canes or (age three to five) rectangular canes- they don't need to be punished for being "unwilling to protect themselves" that is not healthy way to be a early education COMS.
Grace
Dr. Grace Ambrose-Zaken, Certified O&M Specialist
Project Coordinator RT and O&M Programs
Hunter College CUNY
695 Park Ave 1140W
New York, NY 10065
212-772-4741
Top 5 Reasons to Choose Hunter Programs in Blindness and Visual Impairments:
?
Hunter College ITI Programs: Advanced Certificate in TVI
and O&M?
|
Looking for OM resources/contacts in Las Vegas area for College student.
Good day,? I have a College student transferring to the? University of Nevada, Las Vegas . 1515 E Tropicana Ave, Las Vegas, NV 89119 arriving? around??August 18th in the state.? She is a long cane user needing?O&M around the
campus and community.
Any suggestions for OM contacts private or state?
Meg Robertson COMS
Director Orientation & Mobility Department
Massachusetts Commission for the Blind
600 Washington St.
Boston MA 02111
Meg.Robertson@...?
617-626-7581
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Arkansas AER Virtual Conference: Building a Stronger Vision in 20/20
T he Arkansas chapter of AER will be hosting their annual conference on September 17-18, 2020.
?
Please join us for our virtual conference as we are “Building a Stronger Vision in 20/20". We are excited to be joined by presenters:? Barry Kran, Kevin McCormack, Yue-Ting Siu, and Darick Wright.? We look forward to the opportunity to learn, network, and grow together!
?
Conference registration and our “Conference-at-a-Glace” can be found on our website?.???Be sure and check for updates on our Facebook page?!
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Re: Should we change the definition of independent walking?
Dr. Grace Ambrose-Zaken, COMS
Hi Chris:
I posted your words of support, because men like you with credibility, status and influence in O&M can substantially improve the quality of life for children born blind and mobility visually impaired - by letting others read them.
I apologize I should have asked your permission first.
Thanks again,
Grace
Dr. Grace Ambrose-Zaken, Certified O&M Specialist
Project Coordinator RT and O&M Programs
Hunter College CUNY
695 Park Ave 1140W
New York, NY 10065
914-204-9292
toggle quoted message
Show quoted text
From: [email protected] [[email protected]] on behalf of Chris Tabb via groups.io [chris@...]
Sent: Wednesday, July 15, 2020 1:10 PM
To: Open International O&M listserv
Subject: Re: [OandM] Should we change the definition of independent walking?
Grace,
Though the last message was sent to you privately as a personal encouragement; very grateful that you continue to bring new ideas and concepts to the field to consider as options for those we serve.?
—
Christopher J. Tabb, M.A., COMS
chris@...
Mobile: ?512.660.2750
On Jul 15, 2020, at 12:50 PM, Dr. Grace Ambrose-Zaken, COMS < gambrose@...> wrote:
From:?Chris Tabb [chris@...]
Sent:?Wednesday, July 15, 2020 11:56 AM
To:?Grace Ambrose
Subject:?Re: [OandM] Should we change the definition of independent walking?
Continuing to enjoy your evolution in concept, terminology (helping us expand our concepts of what a cane is and that we have different kinds of canes for different needs, i.e. belt cane and rod cane). Thank you for hanging in their while we catch
up.?
; )
On Jul 15, 2020, at 9:32 AM, Dr. Grace Ambrose-Zaken, COMS < gambrose@...> wrote:
I have so many families request belt canes explain they would like a belt cane, because although their children are "walking" ?"able to walk"
meant "he will fall or hit is head if something is in front of him He easily runs into doors and walls. Trips over planters and steps on his younger sibling."? (this was from a family of 38 month old boy with CVI)
For far too long, O&M specialists have allowed this hurtful definition of walking to be part of our discussion with parents of young children. But please remember we have a unique profession.
Unlike the others.
TVIs, PTs - they don't know what we know about the importance of safe mobility to walking. In fact, that's the only reason why we teach cane skills - cane arc safe mobility is a game
changer for all who can employ rod canes this way.
A child at 24 months, 35 months- 15 months- wearing belt canes now has info to stop these body blows, and begin self-confident exploration and real independent walking - not painful excursions
into the unknown.
Belt canes are canes for children who are blind and mobility visually impaired.
Dr. Grace Ambrose-Zaken, Certified O&M Specialist
Project Coordinator RT and O&M Programs
Hunter College CUNY
695 Park Ave 1140W
New York, NY 10065
212-772-4741
Top 5 Reasons to Choose Hunter Programs in Blindness
and Visual Impairments:??
Hunter College
ITI Programs: Advanced Certificate in TVI and O&M?
|
Re: Should we change the definition of independent walking?
Grace,
Though the last message was sent to you privately as a personal encouragement; very grateful that you continue to bring new ideas and concepts to the field to consider as options for those we serve.?
— Christopher J. Tabb, M.A., COMS chris@...Mobile: ?512.660.2750
toggle quoted message
Show quoted text
On Jul 15, 2020, at 12:50 PM, Dr. Grace Ambrose-Zaken, COMS < gambrose@...> wrote:
From:?Chris Tabb [chris@...]
Sent:?Wednesday, July 15, 2020 11:56 AM
To:?Grace Ambrose
Subject:?Re: [OandM] Should we change the definition of independent walking?
Continuing to enjoy your evolution in concept, terminology (helping us expand our concepts of what a cane is and that we have different kinds of canes for different needs, i.e. belt cane and rod cane). Thank you for hanging in their while we catch up.?
; ) On Jul 15, 2020, at 9:32 AM, Dr. Grace Ambrose-Zaken, COMS < gambrose@...> wrote:
I have so many families request belt canes explain they would like a belt cane, because although their children are "walking" ?"able to walk" meant "he will fall or hit is head if something is in front of him He easily runs into doors and walls. Trips over planters and steps on his younger sibling."? (this was from a family of 38 month old boy with CVI)
For far too long, O&M specialists have allowed this hurtful definition of walking to be part of our discussion with parents of young children. But please remember we have a unique profession. Unlike the others.
TVIs, PTs - they don't know what we know about the importance of safe mobility to walking. In fact, that's the only reason why we teach cane skills - cane arc safe mobility is a game changer for all who can employ rod canes this way.
A child at 24 months, 35 months- 15 months- wearing belt canes now has info to stop these body blows, and begin self-confident exploration and real independent walking - not painful excursions into the unknown.
Belt canes are canes for children who are blind and mobility visually impaired.
Dr. Grace Ambrose-Zaken, Certified O&M Specialist Project Coordinator RT and O&M Programs Hunter College CUNY 695 Park Ave 1140W New York, NY 10065 212-772-4741 Top 5 Reasons to Choose Hunter Programs in Blindness and Visual Impairments:?? Hunter College ITI Programs: Advanced Certificate in TVI and O&M?
|
Should we change the definition of independent walking?
Dr. Grace Ambrose-Zaken, COMS
From: Chris Tabb [chris@...]
Sent: Wednesday, July 15, 2020 11:56 AM
To: Grace Ambrose
Subject: Re: [OandM] Should we change the definition of independent walking?
Continuing to enjoy your evolution in concept, terminology (helping us expand our concepts of what a cane is and that we have different kinds of canes for different needs, i.e. belt cane and rod cane). Thank you for hanging in their while we catch up.?
; )
On Jul 15, 2020, at 9:32 AM, Dr. Grace Ambrose-Zaken, COMS < gambrose@...> wrote:
I have so many families request belt canes explain they would like a belt cane, because although their children are "walking" ?"able to walk"
meant "he will fall or hit is head if something is in front of him He easily runs into doors and walls. Trips over planters and steps on his younger sibling."? (this was from a family of 38 month old boy with CVI)
For far too long, O&M specialists have allowed this hurtful definition of walking to be part of our discussion with parents of young children. But please remember we have a unique profession.
Unlike the others.
TVIs, PTs - they don't know what we know about the importance of safe mobility to walking. In fact, that's the only reason why we teach cane skills - cane arc safe mobility is a game
changer for all who can employ rod canes this way.
A child at 24 months, 35 months- 15 months- wearing belt canes now has info to stop these body blows, and begin self-confident exploration and real independent walking - not painful excursions
into the unknown.
Belt canes are canes for children who are blind and mobility visually impaired.
Dr. Grace Ambrose-Zaken, Certified O&M Specialist
Project Coordinator RT and O&M Programs
Hunter College CUNY
695 Park Ave 1140W
New York, NY 10065
212-772-4741
Top 5 Reasons to Choose Hunter Programs in Blindness
and Visual Impairments:??
Hunter College
ITI Programs: Advanced Certificate in TVI and O&M?
|
New resource for remote instruction (tactile intersections)
Terrific idea for product that works for remote instruction from LightHouse for the Blind - San Francisco Bay Area Would be great if these could also be available in downloadable format so that folks with access to a PIAF or Tactile Image Enhancer (or any fuser) could print and send to each learner developing these concepts.
— Christopher J. Tabb, M.A., COMS chris@...Mobile: ?512.660.2750
|
Distance Learning for Assistive Technology Skills: 2 minute video
Learn how BVI students can learn assistive technology gestures using? fun & engaging games, at home or at school. You can customize remotely, and monitor their progress remotely. WATCH NOW AT: --Marty Schultz President, Objective Ed
|
Should we change the definition of independent walking?
Dr. Grace Ambrose-Zaken, COMS
I have so many families request belt canes explain they would like a belt cane, because although their children are "walking"
"able to walk" meant "he will fall or hit is head if something is in front of him He easily runs into doors and walls. Trips over planters and steps on his younger sibling."? (this was from a family of 38 month old boy with CVI)
For far too long, O&M specialists have allowed this hurtful definition of walking to be part of our discussion with parents of young children. But please remember we have a unique profession.
Unlike the others.
TVIs, PTs - they don't know what we know about the importance of safe mobility to walking. In fact, that's the only reason why we teach cane skills - cane arc safe mobility is a game
changer for all who can employ rod canes this way.
A child at 24 months, 35 months- 15 months- wearing belt canes now has info to stop these body blows, and begin self-confident exploration and real independent walking - not painful excursions
into the unknown.
Belt canes are canes for children who are blind and mobility visually impaired.
Dr. Grace Ambrose-Zaken, Certified O&M Specialist
Project Coordinator RT and O&M Programs
Hunter College CUNY
695 Park Ave 1140W
New York, NY 10065
212-772-4741
Top 5 Reasons to Choose Hunter Programs in Blindness and Visual Impairments:
?
Hunter College ITI Programs: Advanced Certificate in TVI
and O&M?
|
Webinar - Supporting People with Vision Impairments in Automated Vehicles
Someone just sent me info on this webinar on a project titled Supporting People with Vision Impairments in Automated Vehicles. I hadn't heard anything about the project.? Seems like something many O&Mers would like to know more about.? Webinar is free; link to registration info is:
Janet
--
Janet M. Barlow
Accessible Design for the Blind
3 Manila Street
Asheville, NC 28806
770-317-0611
jmbarlow@...
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Sunday is SOMA Deadline for Call for Papers!
Hi everyone!? Our “LIVE” Online SOMA conference is December 14-15,
2020, and folks are getting excited – it’s so gratifying to see what happens
when O&Ms get their creative juices going!? I just got off the phone
brainstorming with an O&M who has so much to share, but has never presented
or published – she is now putting together some proposals for SOMA
sessions!
?
One of her proposals is for a Roundtable on a topic she’s very interested
in exploring.? This is a great medium for any of you who aren’t confident
that you’ll have enough information to support a whole presentation by December,
but you want to get your feet wet and lead a discussion on a topic that
interests you.? The Roundtable moderator can start off with a short
presentation to share ideas and set the stage, and then open it up for
discussion.? If you’d like to do that, send us your proposal!
?
We plan to offer enough concurrent sessions that we can keep the audience
small (30-50 people) to facilitate interaction.? That means we may ask
presenters to do their session twice, like we did for the 2016 SOMA in
Chattanooga. This gives participants more choices for each session (they can
choose 2 out of each 8 sessions instead of only 1 out of every 4)
?
To submit your proposal or get more information, go to our -- this
Sunday is the deadline, so put your thinking cap on and get back to us!? If
you want to brainstorm your ideas like the O&M did this afternoon, or if you
want to submit a proposal but can’t get it ready by Sunday, let us know.
?
Meanwhile, folks from around the U.S. and Canada have been – the end of this month is the deadline for the Early Bird registration
of $99 (fully refunded if requested by September).
?
For more
information, check out our website at
?
--
Dona
________________________________________
Dona Sauerburger,
COMS
Orientation and Mobility Specialist for the blind
Gambrills, Maryland
dona@... /
301-858-0138
www.sauerburger.org
________________________________________
|
Feeling through experience
Thought I would forward this for those who want any accessible features you have to pay attention to the special links. Why this is I do not know I am not affiliated with them but as someone who has benefited from the asl/ video description it truly makes a difference when you cannot see the screen? Vargo and Amanda Stine
Begin forwarded?
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?
Making Meaningful Connections! |
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In case you missed the first virtual screening of
The Feeling Through Experience, there is another in
just one week in honor of the 30th Anniversary
of the Americans with Disabilities Act (ADA)!
In honor of the 30th anniversary of the Americans with Disabilities Act (ADA) there will be a special livestream of The Feeling Through Experience! Sign up for this FREE event: www.feelingthrough.com/register ? July 16th ? 4pm PT/7pm ET
Hosted by New York City Mayor's Office for People with Disabilities & NYC DOT.
*Accessibility will include: ASL interpretation, live captions, link for braille displays & descriptive audio option
#HKSLiveThriveGrow
#FeelingThrough
#MakingMeaningfulConnections
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This week on Feeling Through Fridays, Doug will be?speaking with Walei Sabry, the digital accessibility coordinator for NYC, about how people can better educate themselves and embrace accessibility to promote a more?inclusive world. |
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Feeling Through Live is a weekly live stream series featuring timely conversations with the deaf-blind community and beyond about?issues relevant to all. Accessibility?includes: ASL interpreter, voice interpreter, live captions.?FTL?is for everyone, building?bridges between communities.
- Airing 11am PT/2pm ET on Fridays at Facebook Live () AND YouTube Live at?
NOTE: Captions will only be available on Facebook Live
- Created by?The Feeling Through Experience?in partnership with Helen Keller Services.
In case you missed previous weeks
episodes you can watch them?on
?
#HKSGratitude
#HKSLiveThriveGrow
#FeelingThroughFridays
#MakingMeaningfulConnections Helen Keller?National Center for Deaf-Blind Youths and Adults and Helen Keller Services for the Blind?are divisions of Helen Keller Services, a 501(c)(3) non-profit organization. |
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180 Livingston Street, Brooklyn, NY 11201
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--
Vargo and Amanda Stine
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No Internet? No problem - Watch this 1 minute video on distance learning
Watch this brief video on how to use ObjectiveEd with students who have no Internet access, or in the car or outside.
WATCH NOW AT:
--Marty Schultz President, ObjectiveEd
|
"Visionary" Shirt Fundraiser
There is still time to snatch up your “Visionary” shirt to support Arkansas AER!
?
??
We are selling t-shirts featuring the word?Visionary. The "o" in?visionary?is depicted as a magnifying glass and?visionary?is also written in braille below the print word. (Note: the braille is not tactual.)? I hope you?will?consider?ordering a shirt and/or sharing this on social media. The shirts will arrive 12 days after the campaign ends.?
Thank you for all your support,
Arkansas AER
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BBC News: Uber: Taxi refusals make man feel 'second-class citizen'
I saw this on the BBC News App and thought you should see it:  Dan Williams says he and guide dog Zodiac have been refused taxi rides more than 100 times. Disclaimer: The BBC is not responsible for the content of this email, and anything written in this email does not necessarily reflect the BBC's views or opinions. Please note that neither the email address nor name of the sender have been verified.
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Your time saving gift from the Allied Independence community
Hi friends!!?
How would it feel to be able to consistently teach impactful lessons, even when you didn't have time to plan? Some leaders in our community created 8 REMOTE LESSON PLANS so you always have a lesson to draw on when things get crazy. They're completely done-for-you and include the digital materials that you need to teach the lesson plan. Plus, they're completely customizable so you can individualize the lesson to your student's needs. (FYI: We don't have any for adult clients but are working on getting you some).
Here's the thing-, from us!?
Over 400 O&M Specialists have grabbed their free remote lesson plans and I didn't want you to miss out. You can grab your copy through this link:?
If these interest you, you'll be happy to know that we are curating monthly lesson plans to help you show up as your best even when life gets hectic. More on Clarity, the brand new monthly lesson plan bundles later.?
For now, check out your free lesson plans:?
Happy to answer your questions and wishing you all the best!
Kassy
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Dr. Grace Ambrose-Zaken, COMS
Dear O&M community:
Blind babies need the protection of cane arc safe mobility, but they cannot correctly employ a hand-held cane. The sooner we forgive blind two and three-year-olds for not being responsible enough for their own safety and being unable to correctly use rod
canes the better, don't you think? Sighted three year olds are not asked to be so responsible.
I'm asking for a friend... (he is blind, age two and still mouthing toys because he doesn't walk, talk or explore- due to the fact that he is blind and is afraid of walking since he can't see where he's going) who is on the waiting list for a belt cane.
Happy Independence day!
Dr. Grace Ambrose-Zaken, Certified O&M Specialist
Project Coordinator RT and O&M Programs
Hunter College CUNY
695 Park Ave 1140W
New York, NY 10065
212-772-4741
Top 5 Reasons to Choose Hunter Programs in Blindness and Visual Impairments:
?
Hunter College ITI Programs: Advanced Certificate in TVI
and O&M?
|
Re: Congenital Stationary Night Blindness
I have 2 students currently w CSNB and one former student, a great success story of transitioning between high school and college and then into adulthood.?
I will state, unequivocally, the most important thing is to ensure they are gaining confidence at dawn and dusk and then into the night. Don and dusk instruction allow you and them to gauge the impact of their condition and evaluate the impact of cones of light
with street lights, headlights, etc.
The three students I have experience with varied greatly in their preferences for facing oncoming traffic with lights or putting their back to them. It’s the most critical issue we determined was the evacuation of buildings in low or no light conditions.
I feel it’s essential that the team explores various parts of the building and the impact it may have been a power outage. Also, building confidence to walk to and from the bus during winter months or daylight savings is also a situation of empowerment.?
Kevin?
On Jul 3, 2020, at 12:27 PM, Dona Sauerburger <dona@...> wrote:
?
Marty, Chris was talking about having the child explore the bedroom non-visually, not videogames.
-- Dona
________________________________________
Dona Sauerburger, COMS
Orientation and Mobility Specialist for the blind
Gambrills, Maryland
dona@... / 301-858-0138
________________________________________
?
From: Marty Schultz
Sent: Friday, July 3, 2020 9:34 AM
Subject: Re: [OandM] Congenital Stationary Night Blindness
?
Chris,
?
Were you thinking about ObjectiveEd’s Wayfinding or Barnyard, or some of the Blindfold Games.? If it’s the latter, I was wondering which you were referring to.
?
Happy 4th.? Are you back in Texas?
?
—惭补谤迟测
?
On Jul 3, 2020, at 8:24 AM, Chris Tabb <chris@...> wrote:
?
Hi Anne,
?
Though I have never worked with a child with CSNB, I would have to imagine the night lights just do not provide enough illumination to provide him a clear enough picture of gross object perception or even perhaps a visual target for him to walk toward.
One thing to encourage Mom to try is some games under blindfold; games they can do together in the daytime or during lighted conditions so that he does not feel forced to travel non-visually, it would be a choice. Once he/they have had some fun exploring non-visually,
his confidence in his ability to use clues in his environment, the wall line to trail along, etc. he will likely have a much easier go of things at night because he has learned how to travel non-visually in play.
?
?
—
Chris Tabb
?
chris@...
Mobile: 512.660.2750
On Jul 2, 2020, at 5:22 PM, Anne Evrard (MCQ) <anne_evrard@...> wrote:
?
Hi from Québec!
Next week,
I am going? to? meet a young boy (10 yeard old) whose diagnosis is CSNB,: according to the ophtalmologist report, he has? a relatively good VA and VF (I am waiting for the results of the most recent vision test).
Mom relates the only problem in his mobility happens? at night when he has to go by himself to the bathroom. Because he is sharing the room with vbrother, he can't turn on the general light in the bedroom and hall.
Mom says there are night-lights on the way to go and he can use his? own? flash light also.?
Yet, he always calls his mom to go to the bathroom.
?
Anyone in the group has experience with children with CSNB?
I would really appreciate your sharing , knowing that I was asked to just giving some advices (not directly working with him!)!
?
Thanks and Happy July the 4th!
?
Anne
?
?
Anne EVRARD?-
????? ???????
COMS, Spécialiste en Orientation et Mobilité
????????????
<Outlook-tz5m1i0z.jpg>????
<Outlook-p4c5y45t.jpg>
CIUSSS de la Mauricie-et-du-Centre-du-Québec
Centre de réadaptation en déficience physique-Déficience Visuelle Vachon
375, rue Vachon
Trois-Rivières (Québec) G8T 8P6
Tél: 1 (819) ?378 4083? ext.1504
fax: 1 (819) 374 4967
E-Mail:?anne_evrard@...
?
?
This e-mail transmission from the Francis Howell School District including any accompanying data or files is confidential and is intended only for the use of the named recipient. If you are not the intended recipient, an addressee, or the person responsible
for delivering this to an addressee, you are hereby notified that reading, using, copying, or distributing any part of this message is strictly prohibited. If you receive this message in error, or are not the named recipient(s), please notify the sender at
the email address above, delete this email from your computer, and destroy any copies in any form immediately. Improper retention of this e-mail and any attachment(s) to this e-mail could subject you to legal action under pertinent federal and state statutes,
and result in civil and criminal penalties.
|
Re: Congenital Stationary Night Blindness
thanks so much Fabiana, Staci and Chris for helping me! it's really appreciated!
Anne
Anne EVRARD -?????? ???????
COMS, Spécialiste en Orientation et Mobilité
? ? ? ? ? ??? ? ? ?
CIUSSS de la Mauricie-et-du-Centre-du-Québec
Centre de réadaptation en déficience physique-Déficience Visuelle?Vachon
375, rue Vachon
Trois-Rivières (Québec) G8T 8P6
Tél: 1 (819)? 378 4083? ext.1504
fax: 1 (819) 374 4967
E-Mail: anne_evrard@...
| ? |
Avertissement automatisé : Ce courriel provient de l'extérieur de votre organisation. Ne cliquez pas sur les liens et les pièces jointes si vous ne reconnaissez pas l'expéditeur.
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?
I worked with ?a child ?with stationary night blindness for 3 years. Originally, he was misdiagnosed as having RP and then the diagnosis was corrected. I performed a FVA during the day and another one at night and dim illumination for comparison
side by side, which proved very useful since he functioned pretty well during the day. We decided to work on cane training for night travel and visual efficiency and telescope training for day travel in addition to the traditional orientation and mobility
skills and concepts ( intersection analysis, environmental concepts, etc). I highly recommend ?performing a night time FVA given the diagnosis to have a better understanding of his needs.
Fabiana
Marty, Chris was talking about having the child explore the bedroom non-visually, not videogames.
-- Dona
________________________________________
Dona Sauerburger, COMS
Orientation and Mobility Specialist for the blind
Gambrills, Maryland
dona@... / 301-858-0138
________________________________________
?
From: Marty Schultz
Sent: Friday, July 3, 2020 9:34 AM
Subject: Re: [OandM] Congenital Stationary Night Blindness
?
Chris,
?
Were you thinking about ObjectiveEd’s Wayfinding or Barnyard, or some of the Blindfold Games.? If it’s the latter, I was wondering which you were referring to.
?
Happy 4th.? Are you back in Texas?
?
—惭补谤迟测
?
On Jul 3, 2020, at 8:24 AM, Chris Tabb <chris@...> wrote:
?
Hi Anne,
?
Though I have never worked with a child with CSNB, I would have to imagine the night lights just do not provide enough illumination to provide him a clear enough picture of gross object perception or even perhaps a visual target for him to walk toward.
One thing to encourage Mom to try is some games under blindfold; games they can do together in the daytime or during lighted conditions so that he does not feel forced to travel non-visually, it would be a choice. Once he/they have had some fun exploring non-visually,
his confidence in his ability to use clues in his environment, the wall line to trail along, etc. he will likely have a much easier go of things at night because he has learned how to travel non-visually in play.
?
?
—
Chris Tabb
?
chris@...
Mobile: 512.660.2750
On Jul 2, 2020, at 5:22 PM, Anne Evrard (MCQ) <anne_evrard@...> wrote:
?
Hi from Québec!
Next week,
I am going? to? meet a young boy (10 yeard old) whose diagnosis is CSNB,: according to the ophtalmologist report, he has? a relatively good VA and VF (I am waiting for the results of the most recent vision test).
Mom relates the only problem in his mobility happens? at night when he has to go by himself to the bathroom. Because he is sharing the room with vbrother, he can't turn on the general light in the bedroom and hall.
Mom says there are night-lights on the way to go and he can use his? own? flash light also.?
Yet, he always calls his mom to go to the bathroom.
?
Anyone in the group has experience with children with CSNB?
I would really appreciate your sharing , knowing that I was asked to just giving some advices (not directly working with him!)!
?
Thanks and Happy July the 4th!
?
Anne
?
?
Anne EVRARD?-
????? ???????
COMS, Spécialiste en Orientation et Mobilité
????????????
<Outlook-tz5m1i0z.jpg>????
<Outlook-p4c5y45t.jpg>
CIUSSS de la Mauricie-et-du-Centre-du-Québec
Centre de réadaptation en déficience physique-Déficience Visuelle
Tél: 1 (819) ?378 4083? ext.1504
fax: 1 (819) 374 4967
E-Mail:?anne_evrard@...
?
?
--
Fabiana Perla, Ed.D, COMS, CLVT
(she/her/hers)
Chair, Dept. of Blindness & Low Vision Studies
College of Education & Rehabilitation
8360 Old York Road
Elkins Park, PA 19027
215-780-1367
FPerla@...
www.s
--
Anne EVRARD?-?????? ???????
COMS, Spécialiste en Orientation et Mobilité
? ? ? ? ? ??? ? ? ?
CIUSSS de la Mauricie-et-du-Centre-du-Québec
Centre de réadaptation en déficience physique-Déficience Visuelle?Vachon
375, rue Vachon
Trois-Rivières (Québec) G8T 8P6
Tél: 1 (819)??378 4083? ext.1504
fax: 1 (819) 374 4967
E-Mail:?anne_evrard@...
|
Re: Congenital Stationary Night Blindness
I worked with ?a child ?with stationary night blindness for 3 years. Originally, he was misdiagnosed as having RP and then the diagnosis was corrected. I performed a FVA during the day and another one at night and dim illumination for comparison side by side, which proved very useful since he functioned pretty well during the day. We decided to work on cane training for night travel and visual efficiency and telescope training for day travel in addition to the traditional orientation and mobility skills and concepts ( intersection analysis, environmental concepts, etc). I highly recommend ?performing a night time FVA given the diagnosis to have a better understanding of his needs. Fabiana
Marty, Chris was talking about having the child explore the bedroom
non-visually, not videogames.
--
Dona ________________________________________ Dona Sauerburger,
COMS Orientation and Mobility Specialist for the blind Gambrills, Maryland
dona@... /
301-858-0138 ________________________________________
?
From: Marty
Schultz
Sent: Friday, July 3, 2020 9:34 AM
Subject: Re: [OandM] Congenital Stationary Night
Blindness
?
Chris,
?
Were you thinking about ObjectiveEd’s Wayfinding or Barnyard, or some of
the Blindfold Games.? If it’s the latter, I was wondering which you were
referring to.
?
Happy 4th.? Are you back in Texas?
?
—惭补谤迟测
?
On Jul 3, 2020, at 8:24 AM, Chris Tabb
<chris@...> wrote:
?
Hi Anne,
?
Though I have never worked with a child with CSNB, I would have to
imagine the night lights just do not provide enough illumination to provide
him a clear enough picture of gross object perception or even perhaps a visual
target for him to walk toward. One thing to encourage Mom to try is some games
under blindfold; games they can do together in the daytime or during lighted
conditions so that he does not feel forced to travel non-visually, it would be
a choice. Once he/they have had some fun exploring non-visually, his
confidence in his ability to use clues in his environment, the wall line to
trail along, etc. he will likely have a much easier go of things at night
because he has learned how to travel non-visually in play.
?
?
—
Chris Tabb
?
chris@...
Mobile: 512.660.2750
On Jul 2, 2020, at 5:22 PM, Anne Evrard (MCQ)
<anne_evrard@...> wrote:
?
Hi
from Québec!
Next
week, I am going? to? meet a young boy (10 yeard old) whose
diagnosis is CSNB,: according to the ophtalmologist report, he has? a
relatively good VA and VF (I am waiting for the results of the most recent
vision test).
Mom
relates the only problem in his mobility happens? at night when he has
to go by himself to the bathroom. Because he is sharing the room with
vbrother, he can't turn on the general light in the bedroom and hall.
Mom
says there are night-lights on the way to go and he can use his?
own? flash light also.?
Yet,
he always calls his mom to go to the bathroom.
?
Anyone
in the group has experience with children with CSNB?
I
would really appreciate your sharing , knowing that I was asked to just
giving some advices (not directly working with him!)!
?
Thanks
and Happy July the 4th!
?
Anne
?
?
Anne
EVRARD?- ?????
???????
COMS, Spécialiste en
Orientation et Mobilité
????????????
<Outlook-tz5m1i0z.jpg>????
<Outlook-p4c5y45t.jpg>
CIUSSS de la
Mauricie-et-du-Centre-du-Québec
Centre de réadaptation en déficience physique-Déficience
Visuelle
Tél: 1 (819) ?378
4083? ext.1504
fax: 1 (819) 374 4967
E-Mail:?anne_evrard@...
?
?
--
Fabiana Perla, Ed.D, COMS, CLVT
(she/her/hers)
Chair, Dept. of Blindness & Low Vision Studies
College of Education & Rehabilitation
8360 Old York Road
Elkins Park, PA 19027
215-780-1367
FPerla@...
www.s
|
Chris Tabb
