Re: Congenital Stationary Night Blindness
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I worked with ?a child ?with stationary night blindness for 3 years. Originally, he was misdiagnosed as having RP and then the diagnosis was corrected. I performed a FVA during the day and another one at night and dim illumination for comparison side by side, which proved very useful since he functioned pretty well during the day. We decided to work on cane training for night travel and visual efficiency and telescope training for day travel in addition to the traditional orientation and mobility skills and concepts ( intersection analysis, environmental concepts, etc). I highly recommend ?performing a night time FVA given the diagnosis to have a better understanding of his needs. Fabiana
Marty, Chris was talking about having the child explore the bedroom
non-visually, not videogames.
--
Dona ________________________________________ Dona Sauerburger,
COMS Orientation and Mobility Specialist for the blind Gambrills, Maryland
dona@... /
301-858-0138 ________________________________________
?
From: Marty
Schultz
Sent: Friday, July 3, 2020 9:34 AM
Subject: Re: [OandM] Congenital Stationary Night
Blindness
?
Chris,
?
Were you thinking about ObjectiveEd’s Wayfinding or Barnyard, or some of
the Blindfold Games.? If it’s the latter, I was wondering which you were
referring to.
?
Happy 4th.? Are you back in Texas?
?
—惭补谤迟测
?
On Jul 3, 2020, at 8:24 AM, Chris Tabb
<chris@...> wrote:
?
Hi Anne,
?
Though I have never worked with a child with CSNB, I would have to
imagine the night lights just do not provide enough illumination to provide
him a clear enough picture of gross object perception or even perhaps a visual
target for him to walk toward. One thing to encourage Mom to try is some games
under blindfold; games they can do together in the daytime or during lighted
conditions so that he does not feel forced to travel non-visually, it would be
a choice. Once he/they have had some fun exploring non-visually, his
confidence in his ability to use clues in his environment, the wall line to
trail along, etc. he will likely have a much easier go of things at night
because he has learned how to travel non-visually in play.
?
?
—
Chris Tabb
?
chris@...
Mobile: 512.660.2750
On Jul 2, 2020, at 5:22 PM, Anne Evrard (MCQ)
<anne_evrard@...> wrote:
?
Hi
from Québec!
Next
week, I am going? to? meet a young boy (10 yeard old) whose
diagnosis is CSNB,: according to the ophtalmologist report, he has? a
relatively good VA and VF (I am waiting for the results of the most recent
vision test).
Mom
relates the only problem in his mobility happens? at night when he has
to go by himself to the bathroom. Because he is sharing the room with
vbrother, he can't turn on the general light in the bedroom and hall.
Mom
says there are night-lights on the way to go and he can use his?
own? flash light also.?
Yet,
he always calls his mom to go to the bathroom.
?
Anyone
in the group has experience with children with CSNB?
I
would really appreciate your sharing , knowing that I was asked to just
giving some advices (not directly working with him!)!
?
Thanks
and Happy July the 4th!
?
Anne
?
?
Anne
EVRARD?- ?????
???????
COMS, Spécialiste en
Orientation et Mobilité
????????????
<Outlook-tz5m1i0z.jpg>????
<Outlook-p4c5y45t.jpg>
CIUSSS de la
Mauricie-et-du-Centre-du-Québec
Centre de réadaptation en déficience physique-Déficience
Visuelle
Tél: 1 (819) ?378
4083? ext.1504
fax: 1 (819) 374 4967
E-Mail:?anne_evrard@...
?
?
--
Fabiana Perla, Ed.D, COMS, CLVT
(she/her/hers)
Chair, Dept. of Blindness & Low Vision Studies
College of Education & Rehabilitation
8360 Old York Road
Elkins Park, PA 19027
215-780-1367
FPerla@...
www.s
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