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There was a WONDERFUL webinar a few months ago on the Charles Bonnet Syndrome that might help you, Amy, if this is similar as Chris suggested.? Chris, can you find the link to that recording?? If not, I'll search for it.? It was SO helpful for how to help folks with these hallucinations and I would think would be helpful for folks who have distortions in their perceptions.

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- Dona

On 05/05/2025 5:02 PM EDT Chris Tabb via <chris=[email protected]> wrote:

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Hi Amy,

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A few general resources attached. Here is one summary list from one of the articles (in some ways, seems similar to Charles Bonnet Syndrome, e.g. "When symptoms of AIWS are transient and

not associated with any other pathology, reassurance that the symptoms themselves are not harmful may suffice.”)

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AIWS is characterized by perceptual

distortions rather than hallucinations or

illusions and therefore needs to be

distinguished from schizophrenia spectrum

and other psychotic disorders

? When symptoms of AIWS are transient and

not associated with any other pathology,

reassurance that the symptoms themselves

are not harmful may suffice

? Based on the large spectrum of known

etiologies and the prospect of improved

outcome, I recommend auxiliary

investigations to address symptom

reoccurrence causing major distress or

dysfunction, with or without other

pathology

? In clinical cases, treatment needs to be

directed at underlying conditions

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Another summary included sound distortion; important for consideration of discerning approaching vehicles, traffic surges, etc.?

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While AIWS symptoms can vary from person to person and even episode to episode, these are some that are more commonly reported.

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Size distortion, in which your body or objects around you appear to be sized differently from reality. These include:

Micropsia – things appear to grow smaller

Macropsia – things appear to grow larger

Perceptual distortion, in which the relation of objects near you appear to be different from reality. These include:

Pelopsia – things seem larger than they are because they appear to be closer

Telopsia – in which things seem smaller than they are because they appear to be farther away

Time distortion, when time appears to be moving faster or slower than reality.

Sound distortion, in which every sound, including those that are typically hushed, seems amplified and disruptive.

Loss of limb control or coordination, when you may feel as if your body is moving involuntarily and you’ve lost the ability to control how you move or walk.

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—
Christopher J. Tabb, M.A., COMS

chris@...
Mobile:??512.660.2750

Image: ACVREP Digital Badge for COMS

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On May 5, 2025, at 2:44?PM, Amy Downard via <adownardtvi=[email protected]> wrote:

Hi Friends,?

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I just?received a referral request on this syndrome that is neurological and temporary. Any VI/O&M supports?

Aloha

Amy