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Re: FanTAStic webinar on Charles Bonnet Syndrome


 

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Please do share. Kent said that if it helps anyone he would be happy to be interviewed about his CBS, as long, of course, that such an interview is not made public.?

On Feb 22, 2025, at 1:29?PM, Dona Sauerburger via groups.io <dona@...> wrote:

Oh Jenine, thank you for sharing that. ?I hope you don¡¯t mind I¡¯m copying Belinda, who helped organize the webinar, so she can share it with the FABULOUS presenter. ?All of us should watch it and be informed?

¡ª Dona
¡ª¡ª¡ª¡ª¡ª¡ª¡ª¡ª¡ª
Dona Sauerburger, COMS
Certified Orientation and Mobility Specialist for the blind
www.sauerburger.org

On Feb 22, 2025, at 12:44?PM, Jenine Stanley via groups.io <jenine.stanley@...> wrote:

?Thanks so much Dona, as usual, you¡¯re a great source of info.?

My husband has CBS and we¡¯ve found that it can grow worse with stress. He also has PTSD and TBI, a regular acronym soup. He refuses to tell even our GP, who is generally very curious about such things and not judgmental.?


On Feb 22, 2025, at 11:00?AM, Dona Sauerburger via groups.io <dona@...> wrote:

Thank you, Angela! ?I¡¯m pretty sure that about a third of the people we work with have it, they just don¡¯t talk about it. Just yesterday, I was taking a friend / former client shopping, she has macular degeneration, and said she saw a mouse running across the floor. I was distracted and didn¡¯t say anything, but later she said oh, those are floaters.

So I told her that many people have these hallucinations and wondered if she has any. ¡°Of course,¡± she said.?

I¡¯ve known her for several years, and she has never mentioned it.

¡ª Dona
¡ª¡ª¡ª¡ª¡ª¡ª¡ª¡ª¡ª
Dona Sauerburger, COMS
Certified Orientation and Mobility Specialist for the blind
www.sauerburger.org

On Feb 22, 2025, at 10:24?AM, Angela Tabb via groups.io <angela.tabb@...> wrote:

?Thank you, Dona for sharing. It is an interesting syndrome. I worked with an elderly gentleman that had it. I look forward to watching the video.?

Hope you¡¯re doing amazing.?
Angela Tabb

Make it a beautiful day! ?

On Feb 22, 2025, at 8:30?AM, Dona Sauerburger via groups.io <dona@...> wrote:

?Hi everyone! There¡¯s a wonderful webinar on a condition that many of our students and clients have, the Charles Bonnet syndrome. ?It explains so many things I didn¡¯t realize, and suggestions for dealing with it. ?Check out the link below.

¡ª Dona
¡ª¡ª¡ª¡ª¡ª¡ª¡ª¡ª¡ª
Dona Sauerburger, COMS
Certified Orientation and Mobility Specialist for the blind
www.sauerburger.org

Begin forwarded message:

From: Belinda Leibowitz <belinda.leibowitz@...>
Date: February 22, 2025 at 5:16:23?AM EST
To: Belinda Leibowitz <belindaleibowitz@...>
Subject: Herewith the recording of the talk on Charles Bonnet Syndrome

?

--
BELINDA LEIBOWITZ
OCCUPATIONAL THERAPIST
SPECIAL INTEREST IN LOW VISION

Jenine Stanley
Director, Customer Success & Engagement
Aira Tech Corp.
jenine.stanley@...
Direct Dial: 1-614-600-7408

Access to visual information is a human right.?
Customer Care?
1-800-835-1934
support@...
Learn more about visual interpreting at https://aira.io.




Jenine Stanley
Director, Customer Success & Engagement
Aira Tech Corp.
jenine.stanley@...
Direct Dial: 1-614-600-7408

Access to visual information is a human right.?
Customer Care?
1-800-835-1934
support@...
Learn more about visual interpreting at https://aira.io.



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