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Hey folks, this may have been discussed previously, but I am curious as to when each of you discovered you had a disc-at-risk. After my attack, I asked my optometrist,?if surgeon?would have discovered it during cataract surgery, and my optom said he already knew about it.? The more I think about the fact that he had had this information about my eye for some time and didn't share it with me, bothers me, and I feel like that is something all optometrists should let their patients in on.? That way, if we have any of the possible contributing factors, we would be more apt to act on them.
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Hi Ruby, I wasn’t told for ages. I saw references from other sufferers to crowded discs and so asked my optician whether this applied to me. She told me no. Later, when having further tests I was shown scan results of my optic nerve head and told that I definitely
had 2 discs at risk. This was several months after my initial first episode of NAION. I get very frustrated at the lack of knowledge and expertise for our condition.
So difficult to get support and understanding, let alone useful advice.
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On 11 Nov 2024, at 22:32, Ruby via groups.io <rcroyhome@...> wrote:
?
Hey folks, this may have been discussed previously, but I am curious as to when each of you discovered you had a disc-at-risk.
After my attack, I asked my optometrist,?if surgeon?would have discovered it during cataract surgery, and my optom said he already knew about it.? The more I think about the fact that he had had this information about my eye for some time and didn't share
it with me, bothers me, and I feel like that is something all optometrists should let their patients in on.? That way, if we have any of the possible contributing factors, we would be more apt to act on them.
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COULDN'T AGREE MORE!
Diane Keasler
Life is the school, love is the lesson.
On Monday, November 11, 2024 at 05:47:56 PM EST, Tracey Dowsing via groups.io <thedowsinggirls@...> wrote:
Hi Ruby, I wasn’t told for ages. I saw references from other sufferers to crowded discs and so asked my optician whether this applied to me. She told me no. Later, when having further tests I was shown scan results of my optic nerve head and told that I definitely
had 2 discs at risk. This was several months after my initial first episode of NAION. I get very frustrated at the lack of knowledge and expertise for our condition.
So difficult to get support and understanding, let alone useful advice.
On 11 Nov 2024, at 22:32, Ruby via groups.io <rcroyhome@...> wrote:
?
Hey folks, this may have been discussed previously, but I am curious as to when each of you discovered you had a disc-at-risk.
After my attack, I asked my optometrist,?if surgeon?would have discovered it during cataract surgery, and my optom said he already knew about it.? The more I think about the fact that he had had this information about my eye for some time and didn't share
it with me, bothers me, and I feel like that is something all optometrists should let their patients in on.? That way, if we have any of the possible contributing factors, we would be more apt to act on them.
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I never found out until after I lost my eyesight. ?My medical treatment was next to worthless.
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
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On 11/11/2024 6:03 PM EST Diane Keasler via groups.io <dlkeasler@...> wrote:
?
?
COULDN'T AGREE MORE!
?
Diane Keasler
Life is the school, love is the lesson.
?
?
On Monday, November 11, 2024 at 05:47:56 PM EST, Tracey Dowsing via groups.io <thedowsinggirls@...> wrote:
?
?
Hi Ruby, I wasn’t told for ages. I saw references from other sufferers to crowded discs and so asked my optician whether this applied to me. She told me no. Later, when having further tests I was shown scan results of my optic nerve head and told that I definitely had 2 discs at risk. This was several months after my initial first episode of NAION. I get very frustrated at the lack of knowledge and expertise for our condition.
So difficult to get support and understanding, let alone useful advice.
?
On 11 Nov 2024, at 22:32, Ruby via groups.io <rcroyhome@...> wrote:
Hey folks, this may have been discussed previously, but I am curious as to when each of you discovered you had a disc-at-risk.
After my attack, I asked my optometrist,?if surgeon?would have discovered it during cataract surgery, and my optom said he already knew about it.? The more I think about the fact that he had had this information about my eye for some time and didn't share it with me, bothers me, and I feel like that is something all optometrists should let their patients in on.? That way, if we have any of the possible contributing factors, we would be more apt to act on them.
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Most of these posts about knowledge of NAION by professionals refer to "opticians" and "optometrists".? I don't think we can rely on their abilities in this field.? Only ophthalmologists? can be expected to understand, and I've encountered several of them that also lack knowledge.? My attack was 30 years ago, and the first ophthalmologist I went to see (a good friend) had no idea; he referred me to another one in the same city (Washington, DC).? That one misdiagnosed it and when that finally became evident to him, he referred me to yet another? -- who finally got it right.? But whoever assesses it, sadly sees it after the fact, too late.
On Mon, Nov 11, 2024 at 5:03?PM Diane Keasler via <dlkeasler= [email protected]> wrote: COULDN'T AGREE MORE!
Diane Keasler
Life is the school, love is the lesson.
On Monday, November 11, 2024 at 05:47:56 PM EST, Tracey Dowsing via <thedowsinggirls= [email protected]> wrote:
Hi Ruby, I wasn’t told for ages. I saw references from other sufferers to crowded discs and so asked my optician whether this applied to me. She told me no. Later, when having further tests I was shown scan results of my optic nerve head and told that I definitely
had 2 discs at risk. This was several months after my initial first episode of NAION. I get very frustrated at the lack of knowledge and expertise for our condition.
So difficult to get support and understanding, let alone useful advice.
?
Hey folks, this may have been discussed previously, but I am curious as to when each of you discovered you had a disc-at-risk.
After my attack, I asked my optometrist,?if surgeon?would have discovered it during cataract surgery, and my optom said he already knew about it.? The more I think about the fact that he had had this information about my eye for some time and didn't share
it with me, bothers me, and I feel like that is something all optometrists should let their patients in on.? That way, if we have any of the possible contributing factors, we would be more apt to act on them.
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Let me share with all of you that there are huge number of patients who can be said to have?disc at risk, but hardly anyone progresses to NAION.
This was found to be a retrospective common factor to patients suffering from NAION.
Even if you?had known this beforehand, you cannot to anything to prevent NAION, the pathophysiology of which is drop in blood pressure in vessels supplying to the optic nerves.
Don’t blame your Optometrist, Ophthalmologist or yourself for this condition.
We are just plain unlucky - that’s all. Nothing more, nothing less.
Hope this helps
On Tuesday, November 12, 2024, 7:55 AM, Joseph W Harrison via groups.io <joeharrison1776@...> wrote: Most of these posts about knowledge of NAION by professionals refer to "opticians" and "optometrists".? I don't think we can rely on their abilities in this field.? Only ophthalmologists? can be expected to understand, and I've encountered several of them that also lack knowledge.? My attack was 30 years ago, and the first ophthalmologist I went to see (a good friend) had no idea; he referred me to another one in the same city (Washington, DC).? That one misdiagnosed it and when that finally became evident to him, he referred me to yet another? -- who finally got it right.? But whoever assesses it, sadly sees it after the fact, too late. On Mon, Nov 11, 2024 at 5:03?PM Diane Keasler via <dlkeasler= [email protected]> wrote: COULDN'T AGREE MORE!
Diane Keasler
Life is the school, love is the lesson.
On Monday, November 11, 2024 at 05:47:56 PM EST, Tracey Dowsing via <thedowsinggirls= [email protected]> wrote:
Hi Ruby, I wasn’t told for ages. I saw references from other sufferers to crowded discs and so asked my optician whether this applied to me. She told me no. Later, when having further tests I was shown scan results of my optic nerve head and told that I definitely
had 2 discs at risk. This was several months after my initial first episode of NAION. I get very frustrated at the lack of knowledge and expertise for our condition.
So difficult to get support and understanding, let alone useful advice.
?
Hey folks, this may have been discussed previously, but I am curious as to when each of you discovered you had a disc-at-risk.
After my attack, I asked my optometrist,?if surgeon?would have discovered it during cataract surgery, and my optom said he already knew about it.? The more I think about the fact that he had had this information about my eye for some time and didn't share
it with me, bothers me, and I feel like that is something all optometrists should let their patients in on.? That way, if we have any of the possible contributing factors, we would be more apt to act on them.
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Sobering comments - but very ?helpful to put in perspective. ? Think we all look for causes, reasons and what we (or someone) did wrong but I think you’re right. ? We’re just unlucky.?
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On 12 Nov 2024, at 11:12, Aloke Gupta via groups.io <gaurieyeclinic@...> wrote:
? Let me share with all of you that there are huge number of patients who can be said to have?disc
at risk, but hardly anyone progresses to NAION.
This was found to be a retrospective common factor to patients suffering from NAION.
Even if you?had known this beforehand, you cannot to anything to prevent NAION, the pathophysiology of which is drop in blood pressure in vessels supplying to the optic nerves.
Don’t blame your Optometrist, Ophthalmologist or yourself for this condition.
We are just plain unlucky - that’s all. Nothing more, nothing less.
Hope this helps
Aloke
On Tuesday, November 12, 2024, 7:55 AM, Joseph W Harrison via groups.io <joeharrison1776@...> wrote:
Most of these posts about knowledge of NAION by professionals refer to "opticians" and "optometrists".? I don't think we can rely on their abilities in this field.? Only ophthalmologists? can be expected to understand,
and I've encountered several of them that also lack knowledge.? My attack was 30 years ago, and the first ophthalmologist I went to see (a good friend) had no idea; he referred me to another one in the same city (Washington, DC).? That one misdiagnosed it
and when that finally became evident to him, he referred me to yet another? -- who finally got it right.? But whoever assesses it, sadly sees it after the fact, too late.
On Mon, Nov 11, 2024 at 5:03?PM Diane Keasler via
<dlkeasler= [email protected]> wrote:
COULDN'T AGREE MORE!
Diane Keasler
Life is the school, love is the lesson.
On Monday, November 11, 2024 at 05:47:56 PM EST, Tracey Dowsing via <thedowsinggirls= [email protected]> wrote:
Hi Ruby, I wasn’t told for ages. I saw references from other sufferers to crowded discs and so asked my optician whether this applied to me. She told me no. Later, when having further tests I was shown scan results of my optic nerve head and told that
I definitely had 2 discs at risk. This was several months after my initial first episode of NAION. I get very frustrated at the lack of knowledge and expertise for our condition.
So difficult to get support and understanding, let alone useful advice.
?
Hey folks, this may have been discussed previously, but I am curious as to when each of you discovered you had a disc-at-risk.
After my attack, I asked my optometrist,?if surgeon?would have discovered it during cataract surgery, and my optom said he already knew about it.? The more I think about the fact that he had had this information about my eye for some time and didn't share
it with me, bothers me, and I feel like that is something all optometrists should let their patients in on.? That way, if we have any of the possible contributing factors, we would be more apt to act on them.
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Tracey Dowsing