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Re: When did you know you had a disc-at-risk?


 

Most of these posts about knowledge of NAION by professionals refer to "opticians" and "optometrists".? I don't think we can rely on their abilities in this field.? Only ophthalmologists? can be expected to understand, and I've encountered several of them that also lack knowledge.? My attack was 30 years ago, and the first ophthalmologist I went to see (a good friend) had no idea; he referred me to another one in the same city (Washington, DC).? That one misdiagnosed it and when that finally became evident to him, he referred me to yet another? -- who finally got it right.? But whoever assesses it, sadly sees it after the fact, too late.

On Mon, Nov 11, 2024 at 5:03?PM Diane Keasler via <dlkeasler=[email protected]> wrote:
COULDN'T AGREE MORE!

Diane Keasler

Life is the school, love is the lesson.


On Monday, November 11, 2024 at 05:47:56 PM EST, Tracey Dowsing via <thedowsinggirls=[email protected]> wrote:


Hi Ruby, I wasn¡¯t told for ages. I saw references from other sufferers to crowded discs and so asked my optician whether this applied to me. She told me no. Later, when having further tests I was shown scan results of my optic nerve head and told that I definitely had 2 discs at risk. This was several months after my initial first episode of NAION. I get very frustrated at the lack of knowledge and expertise for our condition.
So difficult to get support and understanding, let alone useful advice.

On 11 Nov 2024, at 22:32, Ruby via <rcroyhome=[email protected]> wrote:

?
Hey folks, this may have been discussed previously, but I am curious as to when each of you discovered you had a disc-at-risk.
After my attack, I asked my optometrist,?if surgeon?would have discovered it during cataract surgery, and my optom said he already knew about it.? The more I think about the fact that he had had this information about my eye for some time and didn't share it with me, bothers me, and I feel like that is something all optometrists should let their patients in on.? That way, if we have any of the possible contributing factors, we would be more apt to act on them.

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