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I was going to ask Russ, is NAION truly permanent? So Jo hope for any improvement? My own doctor told me that there would be no improvement but it won¡¯t get worse. Surely there is hope?

 

No hope. No cases of spontaneous remission.?

On the other hand I have lived with NAION for 11 years and after the first month of being fearful, it has hardly affected my life since then. The most serious?side effect for me has been that it has been slightly more difficult to light a roach (joint).

M.
 

Thanks Marc. I feel sad about it all. My problem is that my NAION happened in my only good functioning eye.?

On Wed, 14 Dec 2022 at 2:36 pm, Marc Gold <marcgold@...> wrote:
No hope. No cases of spontaneous remission.?

On the other hand I have lived with NAION for 11 years and after the first month of being fearful, it has hardly affected my life since then. The most serious?side effect for me has been that it has been slightly more difficult to light a roach (joint).

M.
 

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Could I just ask our ages on here. There seems to be some research that the optimum age for NIAION is 57 and if you have had one eye affected there¡¯s a 30-40% chance that within 2 years there¡¯s likely to be a attack in the other eye. But after that there¡¯s not much evidence of further attacks


On 14 Dec 2022, at 07:06, Chiarina Blake <jc.blake2@...> wrote:

?
Thanks Marc. I feel sad about it all. My problem is that my NAION happened in my only good functioning eye.?

On Wed, 14 Dec 2022 at 2:36 pm, Marc Gold <marcgold@...> wrote:
No hope. No cases of spontaneous remission.?

On the other hand I have lived with NAION for 11 years and after the first month of being fearful, it has hardly affected my life since then. The most serious?side effect for me has been that it has been slightly more difficult to light a roach (joint).

M.
Russ Poter
 

1/ after a first NAION attack .. there is a 20% chance of a second attack, within five years, according to U. of Iowa.??
? ? ? IMHO, those are not bad odds .. the odds are in the PT's favor.

2/ damage to optic nerve is permanent. There are two main lines of research .. (1) gear that bypasses the optic nerve (Elon Musk) and (2) repair the optic nerve.
? ? ? This a very big area of research, tied to glaucoma (which we still have to be concerned about).? Whoever finds a solution could win Nobel Prize in Medicine.
? ? ? ?Could be a solution in a few years .. maybe 12 years.


On Tuesday, December 13, 2022 at 10:35:51 PM EST, Marc Gold <marcgold@...> wrote:


No hope. No cases of spontaneous remission.?

On the other hand I have lived with NAION for 11 years and after the first month of being fearful, it has hardly affected my life since then. The most serious?side effect for me has been that it has been slightly more difficult to light a roach (joint).

M.
 

Hi there.? I was 59 when I got hit with this condition.? I got it because of a fall in blood pressure due to sleep apena.??


On Wed, Dec 14, 2022 at 6:42 PM Paul Stratford <p.stratford@...> wrote:
Could I just ask our ages on here. There seems to be some research that the optimum age for NIAION is 57 and if you have had one eye affected there¡¯s a 30-40% chance that within 2 years there¡¯s likely to be a attack in the other eye. But after that there¡¯s not much evidence of further attacks


On 14 Dec 2022, at 07:06, Chiarina Blake <jc.blake2@...> wrote:

?
Thanks Marc. I feel sad about it all. My problem is that my NAION happened in my only good functioning eye.?

On Wed, 14 Dec 2022 at 2:36 pm, Marc Gold <marcgold@...> wrote:
No hope. No cases of spontaneous remission.?

On the other hand I have lived with NAION for 11 years and after the first month of being fearful, it has hardly affected my life since then. The most serious?side effect for me has been that it has been slightly more difficult to light a roach (joint).

M.
 

¿ªÔÆÌåÓý

I was 57, now 62. ?I would not say ¡°optimum¡± age exactly¡ªI¡¯d rather get it at age 135, if I had a choice. ??

?

?

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From: [email protected] <[email protected]> On Behalf Of Chiarina Blake
Sent: Wednesday, December 14, 2022 7:41 PM
To: [email protected]
Subject: Re: [NAION] I was going to ask Russ, is NAION truly permanent? So Jo hope for any improvement? My own doctor told me that there would be no improvement but it won¡¯t get worse. Surely there is hope?

?

Hi there.? I was 59 when I got hit with this condition.? I got it because of a fall in blood pressure due to sleep apena.??

?

On Wed, Dec 14, 2022 at 6:42 PM Paul Stratford <p.stratford@...> wrote:

Could I just ask our ages on here. There seems to be some research that the optimum age for NIAION is 57 and if you have had one eye affected there¡¯s a 30-40% chance that within 2 years there¡¯s likely to be a attack in the other eye. But after that there¡¯s not much evidence of further attacks



On 14 Dec 2022, at 07:06, Chiarina Blake <jc.blake2@...> wrote:

?

Thanks Marc. I feel sad about it all. My problem is that my NAION happened in my only good functioning eye.?

?

On Wed, 14 Dec 2022 at 2:36 pm, Marc Gold <marcgold@...> wrote:

No hope. No cases of spontaneous remission.?

?

On the other hand I have lived with NAION for 11 years and after the first month of being fearful, it has hardly affected my life since then. The most serious?side effect for me has been that it has been slightly more difficult to light a roach (joint).

?

M.

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