Re: I was going to ask Russ, is NAION truly permanent? So Jo hope for any improvement? My own doctor told me that there would be no improvement but it won¡¯t get worse. Surely there is hope?
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1/ after a first NAION attack .. there is a 20% chance of a second attack, within five years, according to U. of Iowa.?? ? ? ? IMHO, those are not bad odds .. the odds are in the PT's favor.
2/ damage to optic nerve is permanent. There are two main lines of research .. (1) gear that bypasses the optic nerve (Elon Musk) and (2) repair the optic nerve. ? ? ? This a very big area of research, tied to glaucoma (which we still have to be concerned about).? Whoever finds a solution could win Nobel Prize in Medicine. ? ? ? ?Could be a solution in a few years .. maybe 12 years.
On Tuesday, December 13, 2022 at 10:35:51 PM EST, Marc Gold <marcgold@...> wrote:
No hope. No cases of spontaneous remission.?
On the other hand I have lived with NAION for 11 years and after the first month of being fearful, it has hardly affected my life since then. The most serious?side effect for me has been that it has been slightly more difficult to light a roach (joint).
M.
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