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Re: Our new NAION Zoom Group starts Wednesday April 23,2025


 

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Hi Pam,

Custom glasses based upon the diagnosis from my Low Vision Specialist. The driving glasses allows me to see all signs and traffic lights from a distance via a custom magnifying glass attached to the lenses. Under normal driving ?conditions you're wearing the glasses but not engaging the magnifying portion, when required you look down through it to quickly read the signs. Similar to looking at your rear view mirror, a quick glance to reference but not sustained. Reading glasses are also custom per individual, the material to read requires close proximity for optimal clarity.?

These glasses are very benificial and are costly but its worth it. If applicable, your medical/vision coverage should cover some if not all of the expenses but you may have to pay upfront and then fight for reimbursement.

Thx, Mike.?


On Apr 22, 2025, at 4:25?PM, Patrick Ward via groups.io <Pwardoe@...> wrote:

Thank you! Looking forward to the meeting tomorrow.

On Tue, Apr 22, 2025 at 9:54?AM Pamela Chadick via??<apchadick88=[email protected]> wrote:
Thank You, Mike! Yes, the first time around set me back for a minute, but my left eye was 20/20 and I really hardly missed a beat. This time is different. Incredibly frustrating. I'm driving around my small town and nervous about that. Difficult for me, as I've never hesitated going anywhere, anytime. Reading is difficult, but I use my iPad and blow everything up, but it's a slow go. What do you use to drive and read?
Pam

On Mon, Apr 21, 2025 at 5:36?PM michael arki via??<mikearki=[email protected]> wrote:
Pam,

I also have bilateral NAION, it happened sequentially (2015 & 2022) - the 2022 episode was life changing as it ended my career.? It did drive me to frequent a low vision Specialist in NJ, Dr. Errol Rummel: ?

He was extremely helpful in improving distance (driving), and reading vision improvements.?

Hope this helps¡­. Feel free to reach out to me anytime with any additional questions/concerns.

Thx - Mike?


On Apr 21, 2025, at 9:58?AM, Pamela Chadick via??<apchadick88=[email protected]> wrote:

Hello, Unfortunately I will miss the zoom meeting -it's my husband and my 37th wedding anniversary- but I do have a question. Have you been to a low vision clinic, and if so, are there tools there that are helpful for NAION. If so, what are they? I have NAION in both eyes and glasses are minimally helpful.?
Thanks for any information any of you may have.?

On Sat, Apr 12, 2025 at 12:53?PM Debra B via??<debrownstein=[email protected]> wrote:
Hello NAION Friends,

So glad there was a strong response indicating interest in supporting each other on Zoom.

Our first NAION Zoom meeting will be held on
Wednesday, April 23, 2025
@ 3:00 PM in California (PDT)?corresponding times are

? Mountain Time (MDT): 4 PM
? Central Time (CDT): 5 PM
? Eastern Time (EDT): 6 PM
? London, UK (BST): 11 PM
? Melbourne, Australia (AEST): 8 AM on April 24.

The Zoom link and other details will follow. All participants with great ideas, experience with groups, and those with suggestions are welcome to email them.? Family members are welcome if over 18 years of age. This is a free peer support group and with your voluntarily participation you agree to release all other participants, volunteers and organizers of any and all liability.?











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