Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
Great information, thank you!
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
My husband was taking Sexenda and lost vision in both eyes, 7 months apart. We flew down to Baskin Palmer Institute in Miami and saw two ocular neurologists.? They both knew about the supposed connection between GLP. 1 and NAION. They both thought there is no true connection because there is not an increase in NAION worldwide yet there are so many people taking GLP’s. Just another prospective on the issue. ?
This (Ozempic), I am quite sure, is what caused my NAION in right eye. Took dosages up to 1 mg of Ozempic August ‘24-January ‘25. See online info about Massachusetts Eye and Ear (Harvard affiliated) discovery (which, they say, requires further study) that chances of obese and diabetic patients who take a GLP-1 medication (e.g. Ozempic, Weygovy) is 4-7x more likely than those taking other meds for these conditions. They found an “association,” by did not yet find a “causality.” I know this has been posted before, but we have many new people joining this group. ? Wow! I’ll have to take a look.?
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
I really appreciate hearing from any and all experiences.?
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On Apr 29, 2025, at 4:11?PM, Andrew Watson via groups.io <aowats3@...> wrote:
? This (Ozempic), I am quite sure, is what caused my NAION in right eye. Took dosages up to 1 mg of Ozempic August ‘24-January ‘25. See online info about Massachusetts Eye and Ear (Harvard affiliated) discovery (which, they say, requires further study) that chances of obese and diabetic patients who take a GLP-1 medication (e.g. Ozempic, Weygovy) is 4-7x more likely than those taking other meds for these conditions. They found an “association,” by did not yet find a “causality.” I know this has been posted before, but we have many new people joining this group. On Apr 29, 2025, at 17:19, cathysalder via groups.io <cathysalder@...> wrote:
? Wow! I’ll have to take a look.?
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
This (Ozempic), I am quite sure, is what caused my NAION in right eye. Took dosages up to 1 mg of Ozempic August ‘24-January ‘25. See online info about Massachusetts Eye and Ear (Harvard affiliated) discovery (which, they say, requires further study) that chances of obese and diabetic patients who take a GLP-1 medication (e.g. Ozempic, Weygovy) is 4-7x more likely than those taking other meds for these conditions. They found an “association,” by did not yet find a “causality.” I know this has been posted before, but we have many new people joining this group.
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Show quoted text
On Apr 29, 2025, at 17:19, cathysalder via groups.io <cathysalder@...> wrote:
? Wow! I’ll have to take a look.?
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
Wow! I’ll have to take a look.?
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
I was watching for that in Ozempic TV ads and all I saw at the
bottom of the list was "Vision Changes". HAH!
A HUGE, life-changing vision change!
On 4/29/2025 4:16 PM, cathysalder via
groups.io wrote:
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Wow! Thanks for sharing this article. It is really becoming a
related problem. Super frustrating as I know you’re like me and
never would have taken it is there was that side effect listed.?
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Re: "Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
Wow! Thanks for sharing this article. It is really becoming a related problem. Super frustrating as I know you’re like me and never would have taken it is there was that side effect listed.?
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"Ozempic, Wegovy took my vision, say grandma of 11 and NJ man — as more users report ‘devastating’ side effect"
https://nypost.com/2025/04/29/us-news/grandma-of-11-and-nj-man-join-growing-chorus-of-ozempic-wegovy-users-claiming-severe-vision-loss?utm_source=nypost&utm_campaign=android_nyp&utm_medium=social
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Re: Next Saturday Zoom, May 3 (Details and Link)
Thank you so much for accommodating us Brits so brilliantly - 4pm: what a treat. Sadly, though, I can't make it myself, as it's my grandson's birthday tea party! That's what we on this side of the pond call 'Sod's Law'. Maybe another time ...
On Mon, 28 Apr 2025 at 23:41, Debra B via groups.io <debrownstein@...> wrote: Re: Saturday Zoom, NAION?peer support group on May 3.?
Hello NAION friends, Our first Zoom meeting was exciting,?there were many wonderful?participants and?it was fun to talk with so many NAION people! Some?people?rreached?out to me about an?earlier time and a?weekend day might be easier?for them. ?So if you are interested and available please join us for one hour on this next Saturday.
When?
Saturday May 3,?Zoom?Room?opens 15 min before start time.
? Pacific Daylight Time (PDT) 8:00 AM?
? Central Time (CDT): 10:00 AM.
? Eastern Time (EDT): 11:00 AM. ? Dublin (IST) 4:00 PM? London, UK (BST): 4:00 PM ? Paris, 5:00 PM (CEST) 5:00 PM ? Cape Town, South Africa?(SAST) 5:00 PM ? Melbourne, Australia?(AEST)1:00?AM?May 4 ? Aukland, New Zealand (NZST)?3:00 AM?May 4 For?Zoom Link,?click on this web address:
Please note with your voluntarily??participation you agree to release all other participants, volunteers and organizers of any and all liability.?
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
Let’s have fun, Debra B?(volunteer) NAION Bilateral since March 4, 2025
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Re: Next Saturday Zoom, May 3 (Details and Link)
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Re: Saturday Zoom, NAION?peer support group on May 3.?
Hello NAION friends, Our first Zoom meeting was exciting,?there were many wonderful?participants and?it was fun to talk with so many NAION people! Some?people?rreached?out to me about an?earlier time and a?weekend day might be easier?for them. ?So if you are interested and available please join us for one hour on this next Saturday.
When?
Saturday May 3,?Zoom?Room?opens 15 min before start time.
? Pacific Daylight Time (PDT) 8:00 AM?
? Central Time (CDT): 10:00 AM.
? Eastern Time (EDT): 11:00 AM. ? Dublin (IST) 4:00 PM? London, UK (BST): 4:00 PM ? Paris, 5:00 PM (CEST) 5:00 PM ? Cape Town, South Africa?(SAST) 5:00 PM ? Melbourne, Australia?(AEST)1:00?AM?May 4 ? Aukland, New Zealand (NZST)?3:00 AM?May 4 For?Zoom Link,?click on this web address:
Please note with your voluntarily??participation you agree to release all other participants, volunteers and organizers of any and all liability.?
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
Let’s have fun, Debra B?(volunteer) NAION Bilateral since March 4, 2025
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Next Saturday Zoom, May 3 (Details and Link)
Re: Saturday Zoom, NAION?peer support group on May 3.?
Hello NAION friends, Our first Zoom meeting was exciting,?there were many wonderful?participants and?it was fun to talk with so many NAION people! Some?people?rreached?out to me about an?earlier time and a?weekend day might be easier?for them. ?So if you are interested and available please join us for one hour on this next Saturday.
When?
Saturday May 3,?Zoom?Room?opens 15 min before start time.
? Pacific Daylight Time (PDT) 8:00 AM?
? Central Time (CDT): 10:00 AM.
? Eastern Time (EDT): 11:00 AM. ? Dublin (IST) 4:00 PM? London, UK (BST): 4:00 PM ? Paris, 5:00 PM (CEST) 5:00 PM ? Cape Town, South Africa?(SAST) 5:00 PM ? Melbourne, Australia?(AEST)1:00?AM?May 4 ? Aukland, New Zealand (NZST)?3:00 AM?May 4 For?Zoom Link,?click on this web address:
Please note with your voluntarily??participation you agree to release all other participants, volunteers and organizers of any and all liability.?
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
Let’s have fun, Debra B?(volunteer) NAION Bilateral since March 4, 2025
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Re: Our new NAION Zoom Group starts Wednesday April 23,2025
I really enjoyed our conversation and look forward to the next one. Thank you for putting this together and for everyone’s input and shared life experiences. ?It feels good to visit with people who really “get it” instead of trying to explain to people what it’s like.?
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Re: Our new NAION Zoom Group starts Wednesday April 23,2025
Hi Pamela. I did meet with a low vision speciality and found him very helpful. He told me about some goggles you can add your prescription to that you buy on amazon and they were only around $15. I did purchase a pair and hacn’t tried them in our swim spa yet but hopefully soon.?
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Re: Possible Zoom meet Saturday or Sunday
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Re: Possible Zoom meet Saturday or Sunday
Thanks - yes, i would welcome a slightly more congenial time for UK NAION sufferers than 11pm. My days of attending all-night 'raves' are sadly long gone. How about 9pm or even 10pm? That would still give Californians and others a decent time.
On Thu, 24 Apr 2025 at 23:27, Debra B via groups.io <debrownstein@...> wrote: There is an option to attend a new Zoom meetup for those unable to attend the last one (yesterday).?
?I just want everyone to have an opportunity to talk with other NAION people. We are not alone.
I can set it up another Zoom for anytime you might want Saturday or Sunday.? I just want help verifying time zones.? I live in California but can get up in the middle of the night with no problem.
Please let me know if you have any interest directly at?
my email below. Include your time zone and time preferences.
Thank you,? Debra B
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Re: Possible Zoom meet Saturday or Sunday
I was unable to participate Wednesday. Life got in the way. Either day works for me. I am in EST in KY.?
Debra thank you for organizing this event.?
I know the emails I see, have provided valuable information that I am going to use to discuss with my ophthalmologist and PCP.?
Cheryl C.?
There is an option to attend a new Zoom meetup for those unable to attend the last one (yesterday).?
?I just want everyone to have an opportunity to talk with other NAION people. We are not alone.
I can set it up another Zoom for anytime you might want Saturday or Sunday.? I just want help verifying time zones.? I live in California but can get up in the middle of the night with no problem.
Please let me know if you have any interest directly at?
my email below. Include your time zone and time preferences.
Thank you,? Debra B
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Possible Zoom meet Saturday or Sunday
There is an option to attend a new Zoom meetup for those unable to attend the last one (yesterday).?
?I just want everyone to have an opportunity to talk with other NAION people. We are not alone.
I can set it up another Zoom for anytime you might want Saturday or Sunday.? I just want help verifying time zones.? I live in California but can get up in the middle of the night with no problem.
Please let me know if you have any interest directly at?
my email below. Include your time zone and time preferences.
Thank you,? Debra B
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Re: NAION Peer Support Zoom LINK & Time
Hi George,?
Sorry you were not able to attend.? We will do Zoom Group again next month, did not video record it because of privacy concerns. Would a Saturday Zoom work better for you? And what time-zone are you in?
Thank you, Debra B
On Wed, Apr 23, 2025 at 5:35?PM George Ousler via <sailfishin= [email protected]> wrote:
Hi Deb,
I wish I could have made the Zoom! But my workday went later than expected. I will definitely attend the next meeting. In the meantime, was the meeting recorded? And if so, is this something that you can share? Thanks so much!
All the Best,?
George?
On Wednesday, April 23, 2025 at 07:46:40 PM EDT, Debra B via <debrownstein= [email protected]> wrote:
Oh Paul, we missed you. ?
We will do another ZOOM Meetig next month if you want to try again.? I had no requirement for a Zoom account to join our meeting… ?So I just asked “Perplexity”, the AI App if someone ?needed a Zoom account to join a Zoom meeting and these are the answers I received: “You do not need a Zoom account to join a Zoom meeting as a participant. You can join simply by clicking the meeting link or entering the meeting ID and passcode provided by the host. Joining without an account is possible via the Zoom app or directly from a web browser with limited features.
However, if the meeting host has enabled authentication profiles requiring participants to sign in, then you must have a Zoom account to join. Also, creating a Zoom account is necessary if you want to host your own meetings, send invitations, or access personal settings”
“You can join a Zoom meeting without a Zoom account by simply clicking the meeting invite link or entering the meeting ID and passcode on Zoom’s website or app as a guest. When prompted, you can join from your browser by clicking “Join from your browser” without downloading the Zoom app. You will need to enter your name to join the meeting. This allows access to basic meeting features without signing in.
However, if the host has enabled authentication restrictions, you may be required to sign in with a Zoom account to join.
In summary, to join without an account:
? Click the meeting link or go to
? Enter the meeting ID and passcode
? Choose “Join from your browser” if you don’t want to download the app
? Enter your display name and join the meeting
This works on desktop or mobile devices.”
Best vision,? Debra B
On Wed, Apr 23, 2025 at 3:05?PM Paul Campano via <campano21= [email protected]> wrote:
For some reason I can't establish a zoom account-their support site is worthless!
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
?
?
Hello NAION friends,
You are invited to attend our?free NAION?peer support group. Please note with your voluntarily ?participation you agree to release all other participants, volunteers and organizers of any and all liability.?
?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time.
? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
?
Where?
Zoom Link click?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
?
We are building a NAION?community together.?
Thank you,
Debra B?
Volunteer
NAION Bilateral since March 4, 2025
?
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Re: NAION Peer Support Zoom LINK & Time
Thank you Russ, great suggestion.?
ABOUT SETTING TIME?
recommend use Greenwich Mean Time (GMT: LONDON: 00:00 base) .. NYC, +5
global simplicity..
On Wed, Apr 23, 2025 at 2:51 PM, Debra B via Hello NAION friends, You are invited to attend our? free NAION? peer support group. Please note w ith your voluntarily ? participation you agree to release all other participants, volunteers and organizers of any and all liability.?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time. ? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
Where?Zoom Link click ?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
We are building a NAION?community together.?
Thank you,
Debra B? Volunteer NAION Bilateral since March 4, 2025
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Re: NAION Peer Support Zoom LINK & Time
ABOUT SETTING TIME?
recommend use Greenwich Mean Time (GMT: LONDON: 00:00 base) .. NYC, +5
global simplicity..
On Wed, Apr 23, 2025 at 2:51 PM, Debra B via groups.io <debrownstein@...> wrote: Hello NAION friends, You are invited to attend our? free NAION? peer support group. Please note w ith your voluntarily ? participation you agree to release all other participants, volunteers and organizers of any and all liability.?
When? TODAY ?4/23/05 ?
Zoom?Room opens 15 min before start time. ? Pacific Daylight Time (PDT) 3:00 PM?
? Mountain Standard Time (MST) 3:00 PM is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT
? Mountain Daylight Time (MDT) 4:00 PM.
? Central Time (CDT): 5:00 PM.
? Eastern Time (EDT): 6:00 PM.
? London, UK (BST): 3:00 AM on April 24.
? Melbourne, Australia (AEST): EST) should be 12:00 PM (noon) on April 24.
Where?Zoom Link click ?here ?or click on this web address:
If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161
We are building a NAION?community together.?
Thank you,
Debra B? Volunteer NAION Bilateral since March 4, 2025
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