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THOROUGHLY understand and empathize, since the same thing happened to me two months ago. Frightening. May I ask your age? I say that because I’m thankful that at least I am 79 years old. I feel for

Hi Terry, My NAION event happened to my right eye in August 2022--my vision is 20/800. I still have peripheral vision but cannot read at all with the right eye. Having lost depth perception, driving

Hullo All I’m writing from Cape Town , South Africa. I lost most of the useful vision in my right eye from NAION July 22. First misdiagnosed, but after careful choice I got a speedy, 3

Reminder: ALL pharms should be treated with caution

Anecdotally, a couple of years before NAION I had shingles, upper left torso, in July. In September I developed a searing pain in my left jaw which was diagnosed as trigeminal neuralgia. ?TN and

I had my "attack" in early August of 2022-within a month my vision decreased to 20/800 and has remained so until now. During the first 6 weeks of this episode, the pain was so bad I could not put my

1/ my case: during mega-heavy workload, arguing with feds (ultimately involving Mr. Obama's office), in 2015 .. NAION attack, LEFT eye, 30% vision loss. Can still drive, if carefully. 2/ after a

James, that makes three of us being afflicted within days of a vitrectomy or similar procedure.

Mine happened 9;Days after a vistrectomy. I believe it was due to the surgery but Georgia Retina never mentioned anything about me being at risk. In fact I never heard the word NAION even

Also see https://omim.org/entry/258660 a platelet (involved in clotting) associated factor. There actually may be enough available data to know if there is an association between factor V Leiden and

That is seen in contrast MRI of orbit and brain.?I did that and showed nothing?However this is normally standard of care. Not sure if you did that procedure. Also get checked for propensity for

One of the conditions I always wondered about was Factor V Leiden – which I have. It‘s a mutation of one of the blood clotting agents and can (but not always) cause abnormal blood clots. David

Hello the way I understand?it is that hypoxia and hypoglycemia?caused by low blood circulation in the eye causes the optic nerve to first swell and then become necrotic?due to apoptosis. This can

Is this right - changes in blood pressure can cause optic nerve to swell? Is this also right, we can have a swollen optic nerve with no vision loss? But if we have a swollen optic nerve and then a

And I'll bet nobody mentioned NAION as a risk factor... [email protected]> wrote:

James, my experience was similar. ?I had a retinal repair in August 2022 and my eye was filled with a silicon solution for 90 days to try to fend off scar tissue. ?After 90 days it was back to

There is so little known about NAION. And the info we gave seems full of contradictions. Like no anesthesia, or no flying, scuba diving. Even some face lotions used for Rosecia suggest a problem .

Exactly! The most difficult thing is not knowing, or being able to prevent. I’ve been hypervigilant about protecting my left eye over the years and have been told that the chances of it occurring in

Pamela, so sorry to learn your left eye now, after 20 years!, has had a NAION attack. I'm wondering, though you don't have any of the typical risk factors other than the biggie, small cup to disc

Hello, I also have NAION in both eyes. The first time when I was 41in my right eye and most recently 3 weeks ago in my left eye. I'm now 61. I also have small cup to disc ration in both eyes. No