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Re: Steroids


 

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One of the conditions I always wondered about was Factor V Leiden ¨C which I have. It¡®s a mutation of one of the blood clotting agents and can (but not always) cause abnormal blood clots.

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David

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From: [email protected] <[email protected]> On Behalf Of iphigenia koumenis via groups.io
Sent: Wednesday, March 5, 2025 1:44 PM
To: [email protected]; [email protected]
Subject: Re: [NAION] Steroids

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Hello the way I understand?it is that hypoxia and hypoglycemia?caused by low blood circulation in the eye causes the optic nerve to first swell and then become necrotic?due to apoptosis. This can occur due to low blood pressure or other reasons nobody could understand. I saw many doctors and nobody understands it.?

I also had solu medrol 1 g per day x 3 days?infused cortisone with no effect.?

My right eye has only 1/3 vision. I am a scientist and my job involves travel and driving. I am 56 years old and it was a total surprise as I am?fit and didn¡¯t have high bp nor did I have high cholesterol or triglycerides. Remains a mystery and I am scared of the other eye as well.

Very difficult condition and I empathize with all of you.?

Regards

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On Wednesday, March 5, 2025, 9:10 PM, Diane Keasler via groups.io <dlkeasler@...> wrote:

Is this right - changes in blood pressure can cause optic nerve to swell?

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Is this also right, we can have a swollen optic nerve with no vision loss?

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But if we have a swollen optic nerve and then a significant enough change in blood pressure, that could be the trigger for the vision loss?

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Diane Keasler

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Hello. I am no longer using this email. Please update your contacts and use DLKeasler@...

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505 Chatham Drive

Chapel Hill, NC

27516

919-968-0099

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THANK YOU!!!


Life is the school, love is the lesson.

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On Wednesday, March 5, 2025 at 01:16:37 PM EST, James Chevalley via groups.io <jimchevalley@...> wrote:

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And I'll bet nobody mentioned NAION as a risk factor...

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On Wed, Mar 5, 2025, 12:16 PM GaryGBrown via <bhmvol=[email protected]> wrote:

James, my experience was similar.? I had a retinal repair in August 2022 and my eye was filled with a silicon solution for 90 days to try to fend off scar tissue.? After 90 days it was back to surgery for flushing and filling the eye with clear solution. Initially I could see quite well. My one day post op appointment had the eye at 20/30 although there were some floaty kind of things going on which was ¡°normal.¡± ?The following week was similar, decent vision but the floaty things which I was told and I surmised was basically left over silicon continued.? I went in for the one week post op assessment and my vision was 20/300.? That said, since that time I¡¯ve had one 45 minute surgery with anesthesia and flown twice overseas. ? I have knee replacement surgery coming up in July.? Honestly, in my case. I¡¯d be willing to bet my NAION is directly related to swelling of the optical nerves due to the surgery.? None of the other ¡°reasons¡± were relevant for my case. ?

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