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Re: New Member


 

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Hi Claire
Like you I am new to all this. I was diagnosed in August with NAION in my left eye. It¡¯s very traumatic. I had my initial tests in Eye Casualty and further visual field testing and now await an appointment with the consultant. My GP also tested BP and cholesterol. I¡¯m now on a statin and a baby aspirin a day.
?I feel very alone and frightened at times. Nobody I know has ever heard of this condition.?
Since being diagnosed in August I have now discovered I have a fairly serious heart condition and my cardiologist has put me on bp medication prior to surgery. I¡¯m so worried as Low blood pressure seems to be one of the causes. I sound quite a crock but in reality I am a very active healthy ( at least I thought I was) 67 year old.?


On 29 Dec 2022, at 13:55, Clare C via groups.io <chcommon@...> wrote:

?

Hello,? ?

I am a new member to this group.? My vision loss happened in my right lower eye in early November.? Although this is my first post, it is certainly not the first time I have visited this site.? I found the information/tips/suggestions on handling the vision loss and how best to preserve the vision in my remaining ¡°good¡± eye most helpful. The discussions on the emotional impact of this diagnosis was especially helpful as the diagnosis caused me much anxiety.? I'd never heard of NAION.??

Risk factors I have include ¡°Disc at Risk¡± in my left eye, headaches, and suspected sleep apnea (testing next week). Anecdotally, we vacationed for 4 days at an altitude of 7000-9000 ft (I live below 1000 ft) a week before my attack.? I¡¯ve?never stayed at that?high of an altitude for that length of time before and I suffered a bad altitude headache while there.? I know there are many theories to the cause of NAION but I can¡¯t help but think there is a relationship between the altitude, my possible sleep apnea, my HA and my NAION attack.??

I was treated with oral steroids?and I am taking a baby ASA per day.? I do plan to ask my ophthalmologist about starting bromodine gtts.? I read the discussion and research article on citicoline but I am unsure yet if I will try?

Thanks again for the support during those difficult first weeks.? ?

Clare


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