Re: Something that may (or may not) help -- a "curved" computer monitor
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Joe, I have to ask, was it Hopkins?? That's where I go, and I was given no direction by my NO or anyone in her practice.? It wasn't until I reached out and sort of complained to the patient advocacy group that I was at least directed to the low vision folks and saw an occupational therapist.? My issue is eye strain and computers - the brightness,?etc.? I'm a lawyer, so my work consists mainly of reading and writing... mostly on the computer.? The occupational therapist taught me different ways to adjust the contrast, invert the display (white letters and black background seems to help), and magnify the entire screen using Windows' accessibility features.? Stuff like that.??
To your other questions, after 3 years I've not adjusted that well.? That is my vision, or lack thereof, is top of mind every day, just less so depending on my activity.? Being around others and being busy and/or doing things I like to do helps.? Talking and listening to?folks in this group is another big plus.? We share stories, insights,?useful tips and tricks (like the curved monitor recommendation recently) and keep?each other updated on any research, news and/or clinical trials for new meds/treatments (there hasn't been much...).? It is the only connection I have to anyone who understands what it has been like to lose vision.
I did try acupuncture?when it first happened to me and I felt like the pressure on the back of my eye eased up a bit, but that could have just been the swelling going down.?
I won't repeat what others have said about staying or getting healthy in general - you get it...
Good luck and definitely keep in touch.?
Thank you so much. This was very insightful. I been to one of the best hospitals in the states and they really gave me no direction.? Joe, -Yes, gets easier, but takes time. -Many people (including myself) are just as bothered by the subsequent anxiety. If you have a lot of anxiety please do not hesitate to get it treated. -Accupuncture can be good for anxiety, and headaches caused by the visual change and eye strain, but it can¡¯t do anything for the eye itself. -NAION has an association with hypertension and possibly with sleep apnea. Get checked for both if you can. Managing cardiovascular health is always important (heart attacks and strokes are much more common than NAION, so its worth doing just for that).? Stay hydrated especially if you exercise. -If you are still within three weeks of onset it is possible that your vision will continue to change a bit. Keep seeing your neuro-opthalmologist especially if you have any further changes, or if you get severe headaches. -In addition to the effects on your affected eye (dead retinal ganglion/optic nerve cells), you may have other issues for a while with your eyes working together, or with your brain making sense of the new input. Here are some suggestions that made a difference for me: ? - If you wear glasses try to find a low vision optometrist. This is not a substitute for a neuro-opthalmologist, but they will have more insight into what works with vision correction, and more patience for trying different things. ?
- I got yellow/orange tinted sunglasses and used them for the first year. Somehow the enhanced contrast helped relax my eyes, or maybe it was just having a bit less light.
- I do have a large curved monitor, and I love it. My wife hates it though.
- I have to work hard (exercise) to maintain my body awareness on my right (bad) side, or I get clumsy. Anything that uses your whole body. Exercise nearly always improves my outlook.
? There are some things we are not supposed to do, but the evidence about their association with NAION is equivocal at best: ? - Avoid certain medications. Your doc will tell you which ones, but among them are PDE5 inhibitors (eg Viagra).
- Avoid high altitudes.
- If you have surgery tell the anesthesiologist about the NAION. You don¡¯t want to have your BP go too low. ?
- Be careful with strenuous exercise until the swelling of your optic nerve head has resolved. This is usually ~6 weeks¡ªyour doc will tell you when the swelling has resolved. If you are a weightlifter you may really need to back off on intensity and weight. The point is to avoid suddenly raising your intraocular pressure or getting really dehydrated. Ask your doc about this.
? ? Good luck,
Adam
? ? ? Thank you and Sorry to hear that. ? Yes it does get easier. It will probably take up to 12 montbs but the brain does adapt. As for treatments and medication I personally would just try to carry on as normal and not to look for solutions for it can be an obsession. I have had mine in both eyes for 7 years and yes it Anne annoying but don¡¯t let it rule you. You control it. Good luck ? I am new to this. Just had this happen 3 weeks ago. I have a few questions.? 1.? Does it get easier to deal and cope with. I find myself exhausted at the end of the day because of the amount of focus I have to put into life. If that makes sense? ? 2.? Has anyone tried and has had positive results with acupuncture.? 3.? Any ideas on what to do to promote health in good eye. I am doing a lot of cardiovascular related exercise etc.? 4.? Does anyone know of any exercises or therapy that can be done with NAION to help.? ? On Mon, Dec 12, 2022 at 2:11 AM Chiarina Blake <jc.blake2@...> wrote: Thank you. I am getting a Lap Top. Do you have any suggestions for a machine that suits us?better? ? I just tried it .. so far, less tiring on NAION eye .. something to do with curvature, eye has to "strain" less It was $129, when I bought it. It helps sometimes .. sometimes not. Depends on how much NAION damage, lighting, positioning .. It is designed for "gamers" .. others find helpful? My $0.02 Links in the message (1) |  Robot or human?
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