开云体育

Paul, This is so interesting. I love pickleball and have not been able to play since February. I have tried and my husband and friends have been great about trying to play with me, but it’s so frustrating, that I’ve stopped for now. The driving part is a little crazy and I’m hoping that at my next appt. I will get help with that. I don’t drive at night or in rainy conditions. Depth perception and color has been greatly affected this time around. I have a friend who is completely blind, so, I’m so grateful for all that I do see. But I’m hoping that I can find tools to get back to my independent self again soon!

On May 12, 2025, at 8:41?AM, Russ Poter via <russpoter=[email protected]> wrote:

?

I wear dark green sunglasses, all the time. Helps a bit, stablizes some images

Yellow lenses and brown lenses, also reported to have good outcomes.

On Monday, May 12, 2025 at 05:45:29 AM EDT, Paul Stratford via <p.stratford=[email protected]> wrote:

Hi Pamela I to am bi lateral. The events happened within 18 months of each other. I read at the time that the chances of it happening were 20 to 30%. I thought the second eye going would be catastrophic but life goes on and you do adjust. I still drive subject to a DVLA eye test every 12 months I’m actually waiting for results at the moment. I only drive in day light and familiar areas. Be interesting to know how other bi lateral suffers get on as regards to driving. Other things I had to give up were were squash and golf. I have tried pickleball but get frustrated when I lose sight of the ball when it bounces. Tried going back to golf but as soon as the balls air born I lose it. Probably more down to the colour blindness which is as much a problem as sight. I have struggled with steps and once walked off a promenade on to a beach below lucky no one was sun bathing there. But this is more of a colour and depth issue. Be interesting to see what others have had to give up. On the benefits side because i can’t distinguish faces very well I tend to stare more and this has led to a lot more people saying hello .Im 10 years on now so have come to terms with no medication and try not to reason why but still get caught out now and again. Have a great day Oaul

On 11 May 2025, at 15:00, aheskin via <aheskin=[email protected]> wrote:

?

I have not, but over the years of this group there have been a few people who reported more events.? An NO said that is rare. less than 5%, because the attacks shrink the optic nerve and improve the disk ratio making another event very unlikely.? I am bilateral but I have not relaxed about protecting my vision.? I still do what I can to defend it like staying away as much as I can from anything the shrinks the blood vessels and taking any heart related drug in the morning.

On 5/11/2025 6:39 AM, Pamela Chadick via wrote:

I ?also have NAION in both eyes. After the first event, I was always told there was only a 15% chance of it recurring in the second eye. The second event has been tough, but I do still see well enough to drive in areas I’m familiar with. The question that has recently come to mine and I plan to ask at my next appointment is - has anyone had this happen a third time, worsening the damage in either eye?

On May 11, 2025, at 7:32?AM, Russ Poter via <russpoter@...> wrote:

?Ditto .. data via U of Iowa Medical?

On Sat, May 10, 2025 at 10:54 AM, Andrew Watson via

<aowats3@...> wrote:

I recall reading in my early research that ?amongst all stricken once, chance of second eye being affected is 15% within 5 years. Can’t recall the source.

Andy W.

On May 10, 2025, at 16:33, Bestray Pty Ltd via <bestray@...> wrote:

?

Hi everyone?

?

By reading messages in this group, I have a feeling that second NAION is much more common than I expected.?
Is it a misperception? Or is it really quite common to have a second attack. I am very worried.

?

thanks

Cliff

?

?