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Re: Questions re: Visit Summary of Instructions (Pages 1-9 & 10))


 

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Yes for me; about 25% both eyes, though NAION so far in one eye only, but it¡¯s about 90% impaired.

On May 10, 2025, at 19:11, Deane Williams via groups.io <pyroartist@...> wrote:

? To everyone:
When you write about your first or second NAION event please let us know if you have
?a low cup-to-disc ratio in that eye as that would be helpful in understanding why it may have happened.
Often, that is the number one cause, but not always.

Thank you.

Deane
(moderator)



On 5/10/2025 12:36 PM, Mstusick@... via groups.io wrote:
Cliff and Debra
I agree with Deborah sometimes we will never know what caused the second event. I had no conditions that any of the doctors could find that could even cause the first event ?and the second was five months later . ?all tests were negative ?and ?I was int ?pretty much perfect health.After my first event they all assured me that my chances of a second event was minimal. My newest NO felt very differently and said it is her experience that the chances of a second event is greater than 30 to 40% over a two to five year period. She noticed the swelling in the second eye before I even had any symptoms and for six weeks I was 2020 and then it got worse even with steroid treatment. Being bilateral is certainly life-changing. Try to go on with your life and enjoy every day.Not knowing what else I could have done has been difficult but overtime I am learning to adapt . My best to all of you ,
Mike

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