Hi
This survey sounds like a good idea.? Here are my responses: -
SEX female
FIRST INCIDENT - AGE 66
CURRENT AGE -? 67
SECOND INCIDENT AGE -? ?N/A
AFFECTED EYE - LEFT EYE
UNAFFECTED EYE - RIGHT EYE, SHOWS DAMAGE ON MRI SCAN BUT VISION OKAY
USING OZEMPIC OR SIMILAR - NO
HYPERTENSION - YES AT TIME OF NAION ATTACK BUT NOT NOW
POSSIBLE NOCTURNAL HYPOTENSION - YES
DIABETES -? NO
SLEEP APNOEA - NO
CAUSAL RELATIONSHIP TO COVID ILLNESS - NO
CAUSAL RELATIONSHIP TO COVID VACCINE - NO
STILL DRIVING - YES (SHORT DISTANCES ONLY, MAX 30 MINS)?
OTHER? -? TESTS FOLLOWING NAION FOUND I HAD SEVERAL VASCULAR ISSUES;? HIGH CHOLESTEROL, HIGH SUGAR & SODIUM, MILD ARRYTHMIA & SLIGHTLY OVERWEIGHT.? THESE NOW MOSTLY UNDER CONTROL.? TAKING A LOW DOSE STATIN AND MINI ASPIRIN DAILY.? NOW DRINKING MORE WATER AND
WALKING 5 MILES DAILY.
On Mon, 17 Mar 2025 at 3:59?pm, Terry Berelowitz via ?<craigberelowitz=
[email protected]> wrote:
HULLO ALL
FEAR OF NAION AFFECTING OUR HEALTHY EYE LIVES WITH ALL OF US
WE LOOK AT THE STATS FOR REASSURANCE
IT WOULD BE SO HELPFUL, I¡¯M SURE TO ALL TO HAVE A QUICK SURVEY IN OUR GROUP
PKEASE DO ANSWER SO THAT WE CAN APPRECIATE THE REAL PICTURE
I¡¯LL START
SEX MALE
FIRST INCIDENT AGE 62
CURRENT AGE 66
SECOND INCIDENT AGE ?N/A
COMPROMISED DISC CUP RATIO?
AFFECTED EYE YES
UNAFFECTED EYE YES
USING OZEMPIC OR SIMILAR NO
HYPERTENSION YES
POSSIBLE NOCTURNAL HYPOTENSION
DIABETES NO
SLEEP APNOEA NO
CAUSAL RELATIONSHIP TO COVID ILLNESS MAYBE
CAUSAL RELATIONSHIP TO COVID VACCINE MAYBE
STILL DRIVING YES
OTHER?
THIS WILL BE AN INVALUABLE SURVEY
From:[email protected] on behalf of Chiarina Blake via groups.io
Sent:?Monday, March 17, 2025 05:45
To:[email protected]
Subject:?Re: [NAION] SURVEY
I¡¯LL START
SEX female
FIRST INCIDENT AGE 58
CURRENT AGE 64
SECOND INCIDENT AGE ?N/A
AFFECTED EYE YES
UNAFFECTED EYE YES
USING OZEMPIC OR SIMILAR NO
HYPERTENSION No
POSSIBLE NOCTURNAL HYPOTENSION yes
DIABETES NO
SLEEP APNOEA Yes
CAUSAL RELATIONSHIP TO COVID ILLNESS No
CAUSAL RELATIONSHIP TO COVID VACCINE No
STILL DRIVING No
OTHER?
NAION affected my only good functioning eye. I was born with an under developed retina in my other eye. Confirmed cause of my attack was Sleep Apnea
On Mon, 17 Mar 2025 at 3:59?pm, Terry Berelowitz via
?<craigberelowitz=
[email protected]> wrote:
HULLO ALL
FEAR OF NAION AFFECTING OUR HEALTHY EYE LIVES WITH ALL OF US
WE LOOK AT THE STATS FOR REASSURANCE
IT WOULD BE SO HELPFUL, I¡¯M SURE TO ALL TO HAVE A QUICK SURVEY IN OUR GROUP
PKEASE DO ANSWER SO THAT WE CAN APPRECIATE THE REAL PICTURE
I¡¯LL START
SEX MALE
FIRST INCIDENT AGE 62
CURRENT AGE 66
SECOND INCIDENT AGE ?N/A
COMPROMISED DISC CUP RATIO?
AFFECTED EYE YES
UNAFFECTED EYE YES
USING OZEMPIC OR SIMILAR NO
HYPERTENSION YES
POSSIBLE NOCTURNAL HYPOTENSION
DIABETES NO
SLEEP APNOEA NO
CAUSAL RELATIONSHIP TO COVID ILLNESS MAYBE
CAUSAL RELATIONSHIP TO COVID VACCINE MAYBE
STILL DRIVING YES
OTHER?
THIS WILL BE AN INVALUABLE SURVEY
PLEASE DO ANSWER
THANK YOU
TERRY
MEDICAL SPECIALIST
On Mon, 17 Mar 2025 at 05:29, George Ousler via ?<sailfishin=
[email protected]> wrote:
Hi Marc,
Thanks for your post. I feel obligated to let you know that I was in your shoes not too long ago (March 2024) and unfortunately suffered from a second NAION in my neighboring eye after using a GLP (Mounjorno) for approximately 6
months. I completely understand the risk vs. benefit ratio and that the improvements from weight loss, etc. are tremendous but I have to say that the potential loss of vision in both eyes is devastating. Once you have a NAION in both eyes, there may be significant
blind spots based on the areas between your two eyes that overlap and therefore have true total vision loss (when there is only one eye involved, the neighboring eye compensates to the point where you don't notice the vision loss). I'm not suggesting that
you change your opinion / plan, rather, just be sure that you can't control your diabetes, etc. through diet, other medications, etc. to try to prevent an ischemic event from GLP induced decreased blood flow. Also, do you have crowded disc syndrome (small
cup to disc ratio in both eyes)? As you know, once it occurs, you can't reverse it. I've been seeing a neuro-ophthalmologist at Mass Eye and Eye who has been researching and publishing on the association between NAION and GLPs. Please google Dr. Rizzo at Mass
General Hospitals and NAION to learn more. Happy to discuss more Marc (and anyone else in this group) to share my experience - once you have a second NAION, the game changes significantly. Thanks.
George ?
On Sunday, March 16, 2025 at 10:57:23 PM EDT, Marc Gold via ?<marcgold=
[email protected]> wrote:
The evidence of a link between Semaglutide and NAION is indeed very weak. I already have NAION in one eye.?
The improvement of my diabetes, weight, heart and kidney status worries me far more than the small chance my other eye could be affected by Ozempic.
I start Ozempic next week @ 1 mg. per week. My physician concurs that the benefits far outweigh the risks. I'll take my chances, which are not high at all:
Even though we have demonstrated a higher risk of NAION in persons with T2D exposed to once-weekly semaglutide,
it is important to keep in mind that use of semaglutide comes with substantial advantages for patients as given by the improved glycemic control, reduction in risk of cardiovascular disease as well as the beneficial effects of weight loss [1]. As such, the
observed incidence rate of NAION of 0¡¤228 per 1000 person-years for persons with T2D exposed with once-weekly semaglutide may not discourage semaglutide treatment but needs to be acknowledged as a potential risk.
This is truly a miracle drug in the same way that penicillin, statin drugs, Covid vaccines, insulin and Sildenafil have demonstrated. We are lucky to live in this age of pharmaceutical advances and wonders.
I will report my progress which should allay some of your concerns about?Semaglutide and NAION.
Marc
Tracey Dowsing