You're in the best place.?? Don't be nervous - hit that swelling with steroids - you've just gotta give it a go! ? Just for info - they started me on 80mg daily for 2 weeks and then down to 60mg reducing..... ? good luck hunny?
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Oh wow!! I'm so happy for you that the swelling went down in that eye!!!?
I'm here at the hospital now! So so nervous!
I'm so sorry to hear this story too Jenny.
Although there's contradictory advice around it - steroids seem to have worked for me.? Others say steroids can worsen vision - I just don't know.
I lost sight in my left eye Aug 22 - was put on IV steroids and then very high reducing dose of them for 2 months.?? The vision didn't remain stable and I lost about 60-70% central vision.
??? Have managed to kinda stay working and still driving with my one good eye.
Obviously TERRIFIED of losing it in the good remaining eye.
Happened to have a scheduled check up on March 20 with my neural opthamologist and they found the good eye optic nerve was apparently very swollen. I had no symptoms whatsoever - like most of us - and felt utterly sick and thought here it comes.
He put me on high dose steroids immediately and took me in as an inpatient to rule out other things - was in hosp for nearly 2 weeks.?? All tests have come back negative but the steroids DID TAKE THE optic nerve SWELLING DOWN.?? I still have good vision
in my other eye -holding on to each day as a miracle.
They don't understand where the inflammation is coming from but are going to do further localised eye scans with dyes to see if it's around the eye.?? Otherwise, I don't know what the future will be - they say long term steroids isn't good but I'm not
sure what other option I have.??? I just thank everything and everyone that the swelling reacted to the steroids and seems out of danger - for now!
Good luck!? Let us know what they say!
I was never given steroids and can't help but to think that would help this swelling. I guess I will know more tomorrow. It seems like most doctors don't know much about what to do with this. I just don't want my vision to get worse! Everyone is so sweet
and supportive in here!! It really helps to have people that understand.?
On Wed, Apr 12, 2023, 10:56 PM Chiarina Blake <
jc.blake2@...> wrote:
Hi there lovely. Sending you biggest hugs. We¡¯re you given steroids to reduce the swelling? I was put on a drip of steroids and then 2 weeks of steroid tablets. My nerve swelling reduced but I am left with some blurriness. At t he same time, I had a detached
retina and needed that operated on. I had it all! I like you, had sleep apnea and now use a CPA machine so make sure you do something g about that as it is a risk factor. Keep in touch and let us know how you are doing. Peace and love?
