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DeafBlind Leadership NOW, 5th edition


 

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DeafBlind Leadership NOW

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Fifth Edition

July 30, 2024

167 signatures as of 8 p.m.

Including: 5 current DeafBlind HKNC employees

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This is a special kind of petition, signed only by DeafBlind. If you identify as DeafBlind and would like your name added to the petition:

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Please email jlc@... with:

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Your name

Your credentials, such as degrees and certificates--optional

Your current or former jobs or roles¡ªoptional

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Hearing and sighted friends and DeafBlind alike are encouraged to spread our call for signatures and public statements of support. Anyone wishing to speak directly to Helen Keller Services Board of Trustees can write to Larry Kinitsky, Chair, at lkinitsky@...

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A new, updated, and numbered edition of this petition will be circulated every day for eleven days as it gathers more and more names. Signatures are accepted until August 5, 2024, when the latest version will be sent to HKS Board of Trustees and the U.S. Department of Education.

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Feel free to forward, post on Facebook and via other social media, discuss our cause across all media, and initiate a variety of other actions. Organizations and agencies, whether DeafBlind-related or -adjacent or in solidarity, are urged to consider making public statements.

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Thank you for your support!

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The Petition

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We, the undersigned members of various DeafBlind communities, are fed up with Helen Keller National Center continuing to be controlled by hearing and sighted people. HKNC¡¯s mission is to serve DeafBlind, yet has always resisted DeafBlind representation and leadership.

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Helen Keller Services, HKNC¡¯s distant parent entity, recently selected yet another hearing and sighted person to be HKNC¡¯s next executive director. Qualified DeafBlind candidates, including the top finalist, were passed over. HKNC has never had a DeafBlind person hold the position.

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The current HKS Board of Trustees has only one DeafBlind representative.

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Qualified DeafBlind leaders had expressed interest in the director position or applied for it since at least 1956, when HKNC was known as the Anne Sullivan Macy Services federal pilot program. There have been protests before. In recent years, HKNC made unspoken but clear promises that a DeafBlind director would be hired ¡°next time.¡±

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Enough is enough. It¡¯s time.

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We make the following four demands:

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First, a DeafBlind person is appointed executive director of HKNC.

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Second, HKNC is separated from Helen Keller Services (for the Blind), so that HKNC becomes its own, autonomous entity.

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Third, HKNC¡¯s newly created Board of Trustees is made up of 70 percent or more DeafBlind members.

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Fourth, HKS and all of its subsidiaries will not retaliate against any HKS or HKNC employee, family member, or student for any civil action related to the selection process or related issues.

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With this petition, we are also taking the opportunity to introduce ourselves a little, to demonstrate how diverse and talented we are. HKNC has no excuses.

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The HKS Board of Trustees has until August 9, 2024, to comply with our first demand and begin legally binding transition processes toward fulfilling the next two demands. Failure to do so will prompt the second stage of our movement.

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Signed,

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Five current DeafBlind HKNC employees

Requesting anonymity

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Lisa Ainscough

¡°³§³¾¾±±ô±ð!¡±

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Carolynsue M. Alflen

Founder and former president, Missouri DeafBlind Association

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Bryan L. Alkire, J.D.

Former HKNC student

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Nicole Alleman

Former board member, American Association of the DeafBlind

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Xayan al-Amin

Student, College of the Sequoias, Fashion Design and Merchandising

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Annie LeJeune Arabie

Loving housewife

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Dan Arabie

Founder, National Association of the DeafBlind

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Jorge H. Aristizabal

¡°I vote for this petition!¡±

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Heidi Aulenbach

Seattle Lighthouse for the Blind

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Karen Bailey, L.M.S.W., L.C.S.W.

Michigan

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Jennifer Baratta

Former job seeker from Helen Keller National Center

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Denis Bardet

France?

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Laurie Barnes

President, Alberta Society of the DeafBlind

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Jeremy Best

Co-founder, DeafBlind Social of Central Florida

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Nandani Bhowan

¡°Keep in touch!¡±

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Ed Borrone

Master woodworker

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Erin Bradford

Librarian

¡°DeafBlind Can!¡±

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Tashi Bradford, Ph.D. candidate

Linguistics, Radboud University; owner, Totaal Languaging

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Morgan Breese, M.A.

Manager, DeafBlind Program, Seattle Lighthouse for the Blind

"No thanks to benevolent ableism"

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Becca Brenowitz, M.P.A.

Protactile Theatre actress; secretary, barista, and line cook

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Esty Brenowitz, Ph.D. candidate

Gallaudet University

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Hayley Broadway, M.Ed.

Co-principal investigator, Protactike Kids grant, National Institutes of Health; owner, Touch Seeds

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Maria V. Brook

Never misses a meeting or an event

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Scott Burch, B.S.

President's Scholar, Gallaudet University

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Roberto Cabrera, M.S.

Former Senior Vocational Rehabilitation Counselor

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Christian Call

Podcaster, volunteer, France

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Emili Capili, M.A.

Public relations coordinator, DeafBlind Community of Texas

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Dr. Francis Casale

Former candidate for the position of executive director of HKNC

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Caroline Cerilli

Research Program Coordinator, Johns Hopkins Disability Health Research Center

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Aimee Chappelow

Program Specialist, Missouri SSP-CN Program; former V.R. counselor; past president, American Association of the DeafBlind

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Lisa Chiango

Assistive technology trainer, Perkins School for the Blind; vice president, DeafBlind Contact Center

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Fanny Chopot

Product Owner Cybersecurity, France

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John Lee Clark, Ph.D. candidate

Author of ¡°Touch the Future: A Manifesto in Essays¡±

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Keith Clark, M.A., C.P.A.C.C

Marketing manager; former director, DeafBlind Program, Seattle Lighthouse for the Blind

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Vincent Clark, M.A.

Retired DeafBlind specialist; former vice president, American Association of the DeafBlind

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Debra Cole

Educator, Lexington School for the Deaf

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Jason Corning

Accessibility consultant

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Iris Cruz-Whidden

Loyal member, Florida DeafBlind Association

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John Cunniff

Retired employee, Perkins School for the Blind; former president, DeafBlind Contact Center

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Nykkolas C. Dauzyn?

ProTactile educator and mentor; Dialectical Behavioral Therapist;?Certified Trauma-Informed Care Peer

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Mindy Dill, M.A.

Retired school counselor; former vice president, American Association of the DeafBlind

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Melissa Doty

Former HKNC student; all-around DeafBlind services

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Marsha Drenth, C.V.R.T., C.A.T.I.S. and T.V.I. in process

Access Technology Instructor; Social Worker; student, Salus-Drexel University

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Rhonda Eernisse, B.A.

Leader, Texas DeafBlind Camp; former case manager, Access Alaska, University of Alaska-Anchorage

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Jackie Engler-Morris

Interpreting and Professional Services Manager, DeafBlind Service Center

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David Ernest Ennis, B.S.

Artist

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Kristeen Elliott

Giraffee and cat lover

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Ridge G. Euler

"Peace and many thanks!"

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Lisa Ferris, M.Ed.

Curriculum specialist and co-owner, Miles Access Skills Training, LLC

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Lisa Flaherty-Vaughn

Vice president, DeafBlind Support and Access Network

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Zachary Fox, B.A.

Historian

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Jon Gabry Jr., B.F.A., M.A.

Fine artist;?educator; former HKNC student

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Erick Gallegos

Website accessibility specialist

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Laura Godbold, M.A.

Former adjunct professor, University of North Florida and Carolina University

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Divya Goel

Former HKNC employee; co-founder, DeafBlind Social of Central Florida

¡°This is my voice¡±

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Alberto Gonzales

Protactile Mentor

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Sarah Goodwin, M.S.

Adjunct instructor and doctoral student; board member, DeafBlind Community of Texas

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Andy Granda

Amateur endurance athlete

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Heather Grizzle

Horticulturalist, gardener, writer, mother of two young children, wife of a fellow DeafBlind

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Bryan R. Grubb

¡°I, Bryan R. Grubb, sign this petition¡±

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Suzanne ¡°Suzi¡± Guimond, M.A.

Former HKNC Regional Representative, Region 5; owner, Embrace Within LLC

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Diane Plassey Gutierrez

Retired guidance counselor

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Antonia Venesse Guy, B.A.

Certified Professional Astrologer; owner, Astro Woke; board member, Deaf Women United

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Thor Halvorsen, B.A.?
Rehabilitation Counselor for the Hard of Hearing

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John Hamilton, Jr.

HKNC student

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Cristina Hartmann, J.D., M.F.A.

Writer

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Casey Hassett

Founder, Tucson DeafBlind Social; chairperson, Community Outreach Program for the Deaf

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Adrienne Haugen

Past president, Minnesota DeafBlind Association; co-founder, Minnesota Speaking DeafBlind Group

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Guinevere Head-Allen

Associate teacher and paraprofessional; student, Gallaudet University

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Jennifer Hess, M.A.

Clinical Mental Health Counseling; president, Board of Trustees, DeafBlind Service Center

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Mike Higgins

Director, Linda Laurie Associates

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Chris Holbrook

¡°DeafBlind need to be on the board!¡±

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Donna Huff

Former coordinator, Pittsburgh DeafBlind Gathering

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Amanda Lee Huston

Former HKNC student

¡°You can¡¯t put us in one mold¡±

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Sarah Idler, C.D.I.

ASL interpreter

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Katherine Inman, B.A.

Graduate student, T.V.I. in process

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Tracie Fields Inman

Writer; former first vice president, National Federation of the Blind Deafblind Division

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Tara L. Invidiato, M.Ed.

Former vice president, American Association of the DeafBlind; Tactifying Language Integrations

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Ashley (AJ) Jackson, M.S.W.

Recent graduate, Gallaudet University

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Ronald Jackson

¡°MY name is Ronald Jackson¡±

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Timothy Jackson

Former president, American Association of the DeafBlind

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James Jensen

Former HKNC student

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Najma Johnson, M.A.

Director, Multicultural Student Programs, Gallaudet University; owner, Grow Touch, plant shop tailored for DeafBlind

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Debra Kahn

President, Washington State DeafBlind Citizens; Braille instructor

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Melissa Kosa

¡°I support this 100 percent!¡±

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Jaimi Lard

Retired spokesperson, Perkins School for the Blind; former president, DeafBlind Contact Center

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Jon Leitzke

Student, Rochester Institute of Technology

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Riss Leitzke, M.B.A. candidate

Accessibility Coordinator, Wilderness Inquiry

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Sheila Loos

¡°Proud DeafBlind mother and grandmother in Kansas City, Missouri!¡±

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Craig MacLean

Creator, Five-Star Disability blog

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Christopher Magliocchino

Retired IBM employee; proud sibling; cat lover

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Victoria Magliocchino, M.Ed.

Retired teacher, Florida School for the Deaf and the Blind; past president, Florida DeafBlind Associaton

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Steven McCoy

Producer-Journalist, Sessions with Steven

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Sarah K. McMillen, M.A.

Educator

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Anne McQuade

Director, DeafBlind Access of the South

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Kelly Monahan

Founder, DeafBlind Escape Cruises

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Victorica D. Monroe, PhD candidate

Author of ¡°Swishing¡±

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Morrison, M.Ed.

Accessibility Consultant and Trainer?

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Lea E. Moynihan, M.A.

Former employee of ?the State of North Carolina

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Teresa Myers

Missouri

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Katie Noel

Mail inserter, Tandem

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Ryan Ollis, B.A.

DeafBlind Program Coordinator

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Angie C. Orlando, M.F.A.

Author of ¡°Through the Tunnel: Becoming DeafBlind¡±

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Sonia Orsingher

France?

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Patrick Pallies, M.S.W.

DeafBlind Specialist, New Jersey Commission for the Blind and Visually Impaired

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Angela Palmer, M.A.

Artist

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Karen Park, B.A.?

Certified Horticulturist and Consultant; founder, Ecological Horticulture of Deaf; former coordinator, DeafBlind Communuty Class

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Heather Lee Pavey, B.S.

DB YEA! Mentor; retreat director, DeafBlind Community of Texas?

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Angele Periard

"Thank you!"

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Randall Pope

President, North Carolina Association of the DeafBlind; former president, American Association of the DeafBlind

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Guillaume Portalier

Vocational rehabilitation counselor, France

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Samantha Porter

Former president, American Association of the DeafBlind

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Diane Poulin

Protactile Educator

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Kim Powers

Dynamo

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Lenore Pressley

Vice President, Northern California Association of the DeafBlind

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Concetta Pucci, PhD., L.I.C.S.W., L.C.S.W.

University Professor and Licensed Clinical Social Worker?

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Richard Putt

Former HKNC student; retired fiscal employee

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Timothy Putt

Former federal government employee

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Cheryl L. Rhodes

Co-founder, Florida DeafBlind Association

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Jay Rhodes

Graduate student, Gallaudet University

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Elio Riggillo

Protactile Educator

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Jayce T. Romero

Former HKNC client

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Yashaira ¡°Yash¡± Romilus

Protactile Educator; co-founder, Protactile Theatre; former HKNC student

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Amy Rowson, B.S.

Educator; former trainer, Missouri SSP Program

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Trudy Ryall

Australia

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Marc Safman

C.E.O., Safman Consulting; co-founder, New York DeafBlind Advocates

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Winfield Sainpreux

Artist; founder, Florida DeafBlind Events

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Jane Sayer

Chairperson, Mantioba Deaf-Blind Association

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Heather Schoenwald, M.S.

Johns Hopkins University; Liberty Resources Inc.; former director, Oregon Commission for the Blind

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Barry R. Segal, M.A.

Instructor, Saint Paul College

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Faruqee Sikder

¡°¸é±ð²õ±è±ð³¦³Ù´Ú³Ü±ô±ô²â¡±

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Robert T. Sirvage, M.A.

Design researcher

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Anna Slye

Co-founder, DeafBlind Social of Central Florida

¡°Make sure you add my name to the petition¡±

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Allyson Snow

Protactile mentor

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Sidney Snow?

Board member, DeafBlind Community of Texas?

Debbie Sommer

Seattle Lighthouse for the Blind

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Nancy Sommer

Former Independent Living Skills instruction, Seattle Lighthouse for the Blind

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Thomas Soret

President, Unanimes France; co-chair, French national task force on deafblindness

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Jesse Stanley

President, DeafBlind Support and Access Network; director, DeafBlind Retreat of New England

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Patty Starr
Retired, New York DeafBlind Advocates

Cai Steele

¡°The irony is I¡¯m (a student) here at HKNC right now¡±

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Angela Theriabult

Executive Director, DeafBlind Service Center

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Andr¨¦ Thibeault, M.A.

Ancien charg¨¦ de cours, Facult¨¦ d'¨¦ducation de l'Universit¨¦ d'Ottawa; Ancien vice-pr¨¦sident, Association du Syndrome de Usher du Qu¨¦bec

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Jennifer Thompson

Former HKNC student, 2011

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Tonilyn Todd

Determined

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Jesus Valdes

Former HKNC student, 2023; board member, DeafBlind Contact Center

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Soline Vennetier, Ph.D. candidate

Co-founder, R¨¦seau National des SourdAveugles

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Bruce Visser, M.A.

One of three DeafBlind siblings; master craftsman; access technology trainer

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Rhonda Voight-Campbell

Protactile Educator; owner, Two Fronds Consulting

¡°DeafBlind Know Best!¡±

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Angeli Wahlstedt

Former software developer

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Liz Walker

¡°I¡¯m a supporter of the whole DeafBlind community!¡±

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Lara Rose Wall

President, Florida DeafBlind Association; founder, PT Dream Adventures and DeafBlind Voyage

¡°It¡¯s time we kicked HKNC¡¯s butt¡±

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Ann Warren

Vice president, Georgia Association of the DeafBlind; art director, DeafBlind Access of the South Retreat

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Annmaree Watharow, Ph.D.

Researcher, University of Sydney

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Krista Webb

Wood-burning artist

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Theresa Wells

Former HKNC student; founder, Breezin¡¯ Bytes, LLC

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Arizona Welsh

Former treasurer, American Association of the DeafBlind

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Molly Wezel-Peterson

President, Minnesota DeafBlind Association

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Brett Wilhelm

HKNC student and intern; president, Sight and Sound Impaired of St. Louis; manager, Missouri and Nebraska SSP programs

¡°Time has long since come to spread a positive example¡±

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John Winstead

Former president, American Association of the DeafBlind

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Kathryn Zarate

Former HKNC employee; current vice president, Florida DeafBlind Association

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Caterina Zorrilla

Artist; former HKNC student

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