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Locked Sticky Sticky: Advice on Dealing with the Emotional Side of NAION 2
So very sorry to have read about your NAION. Four words describe me in this remaining life now. Anxiety, apprehension, uncertainty and insecurity. It¡¯s going to be an everyday fight within you, because vision loss is something which you will always be aware of every waking moment of the day. The thought, why it happened to me will always crop in your mind. But believe me, there is no answer and there is nobody out there to protect you. You only have to get up every day, dust yourself and your thoughts and move on. Maybe your spouse will be the only person, who will be sympathetic towards you. You will always think that despite being a firm believer in God, despite not doing bad to anyone else, despite being a healthy person, despite being honest and nice person, why did it happen to me. Again, you will never find answer to these questions either within yourself or from someone else. But, despite all the bad (NAION), happened to you, you are the only one, who has to rise. Believe me, no meditation, no prayer, no visit to your place of worship will help. Just go out, meet people, laugh with them but never share your problem with them. No one is interested in your agonies. No one really cares or sympathises. Just meet people, so that the intensity of sorrow in your heart goes down. This is the only group, which will realise what you are going through because we are the fellow sufferers. Take the medication prescribed by your doctor regularly. Flying in an aircraft is not a risk at all. Low vision gadgets only help to a small extent. Use eye glasses for the better eye and you can take them anytime. Don¡¯t worry, nothing will happen to your better eye. Start driving, whenever you want. But remember, since your binocular vision and depth perception has suffered, you will relearn the distance judgement, if you drive slowly and regularly. Brights lights will bother you for a while. Use sunglasses outside. Dim your lights inside. Hope my post is able to answer questions you asked and also those you will ask yourself repeatedly but won¡¯t get a satisfactory answer ever. Hope this helps Aloke
Started by Deane Williams @ · Most recent @
/Steroids
1/ STEROIDS You are probably wondering about steroids, with 20% chance of 2nd attack in 5 years. That is a hard call, and only you can make it, with advice of your N.O. You have the call on this. Recommend you read up on topic, STAT, and have a plan On Mon, May 12, 2025 at 2:22 PM, Sharon Paquette via groups.io <Sjpaquette@...> wrote: I had my first occurrence of NAION last August and I lost about 80% of my vision in that eye. It was a huge adjustment. I have high blood pressure and I¡¯m diabetic and I also have crowded discs. I was taking my BP meds at night and my ON told me to stop doing that and take it in the morning. I was on Ozempic for a year before the occurrence and I stopped that immediately. The plan now is to do all I can to hopefully keep it from happening in my left eye, so I now have a sleep study scheduled. Is it normal to have that much vision loss with NAION? Most of the vision is gone, looks gray. The other 20% is blurry so I don¡¯t see anything clearly. If the same happens in my left eye, I would essentially be blind. It¡¯s scary! On Monday, May 12, 2025, 5:04 AM, eyenul via groups.io <eyenull@...> wrote: Chiarina, Have your naion settled in? Mine doesnt seem so since February. My vision has deteriorated but the NO believe I am worry too much.
Started by Russ Poter @
Steroids 33
How prevalent is steroid treatment after NAAION diagnosis? I¡¯ve had NAAION one month max, in one eye, triggered, I believe, by Ozempic, which I¡¯ve obviously stopped. Just had tests for carotid arteries, electrocardiogram and brain MRI without contrast, all negative. Have sleep apnea and type 2 dm, both well controlled. 79 years old.
Started by Andrew Watson @ · Most recent @
A NAION After Visit Summary of Instructions (Pages 1-9 & 10)) 7
Dear NIAON friends, Some Zoom participants on Saturday asked me to share with our email group what my Neuro-Ophthalmologist, Dr Y. Joyce Liao recommended to me when I was first diagnosed with NAION (vitamins, eye drops etc). I have attached in two pdfs (below) an after visit summary of her recommendations for me. When 21 months later I had my 2nd NAION event in the 2nd eye, she suggested I try Hyperbaric Oxygen treatments in addition to the protocol we had used previously. I did try the Hyperbaric treatments with positive results. She thought I was very receptive to that type of treatment since I showed great improvement quickly and she is more likely to recommend hyperbaric oxygen treatment to others as my HVF scores greatly improved. It is not covered by most insurances but it did go towards my yearly deductible In closing I just wanted to share what one Neuro-Ophthalmologist gave to me in my moments of need. Am not suggesting this would work as your path of healing but it is nice to compare strategies. All treatments should be monitored by your doctors. Watch a YouTube of Dr Liao with NAION patient. Best in vision, Debra B
Started by Debra B @ · Most recent @
AFFORDABLE TINTED GLASSES
My supplier .. https://tinyurl.com/2854yh68 I've also tried light blue (like Bono of U2) .. in addition to dark green, brown, yellow On Monday, May 12, 2025 at 09:51:13 AM EDT, Dina Zirlin via groups.io <dinazirlin3@...> wrote: My hubby has bilateral NAION. He wears yellow glasses over his prescription glasses which help but with the summer sun they are not reducing the light sensitivity enough for him to be comfortable outside. Has anyone had prescription sunglasses made then wear the yellow glasses over them? Apparently they cannot make sunglasses and yellow glasses in one. Thanks On Mon, May 12, 2025 at 8:41 AM Russ Poter via groups.io <russpoter@...> wrote: I wear dark green sunglasses, all the time. Helps a bit, stablizes some images Yellow lenses and brown lenses, also reported to have good outcomes. On Monday, May 12, 2025 at 05:45:29 AM EDT, Paul Stratford via groups.io <p.stratford@...> wrote: Hi Pamela I to am bi lateral. The events happened within 18 months of each other. I read at the time that the chances of it happening were 20 to 30%. I thought the second eye going would be catastrophic but life goes on and you do adjust. I still drive subject to a DVLA eye test every 12 months I¡¯m actually waiting for results at the moment. I only drive in day light and familiar areas. Be interesting to know how other bi lateral suffers get on as regards to driving. Other things I had to give up were were squash and golf. I have tried pickleball but get frustrated when I lose sight of the ball when it bounces. Tried going back to golf but as soon as the balls air born I lose it. Probably more down to the colour blindness which is as much a problem as sight. I have struggled with steps and once walked off a promenade on to a beach below lucky no one was sun bathing there. But this is more of a colour and depth issue. Be interesting to see what others have had to give up. On the benefits side because i can¡¯t distinguish faces very well I tend to stare more and this has led to a lot more people saying hello .Im 10 years on now so have come to terms with no medication and try not to reason why but still get caught out now and again. Have a great day Oaul On 11 May 2025, at 15:00, aheskin via groups.io <aheskin@...> wrote: ? I have not, but over the years of this group there have been a few people who reported more events. An NO said that is rare. less than 5%, because the attacks shrink the optic nerve and improve the disk ratio making another event very unlikely. I am bilateral but I have not relaxed about protecting my vision. I still do what I can to defend it like staying away as much as I can from anything the shrinks the blood vessels and taking any heart related drug in the morning. On 5/11/2025 6:39 AM, Pamela Chadick via groups.io wrote: I also have NAION in both eyes. After the first event, I was always told there was only a 15% chance of it recurring in the second eye. The second event has been tough, but I do still see well enough to drive in areas I¡¯m familiar with. The question that has recently come to mine and I plan to ask at my next appointment is - has anyone had this happen a third time, worsening the damage in either eye? On May 11, 2025, at 7:32 AM, Russ Poter via groups.io <russpoter@...> wrote: ?Ditto .. data via U of Iowa Medical On Sat, May 10, 2025 at 10:54 AM, Andrew Watson via groups.io <aowats3@...> wrote: I recall reading in my early research that amongst all stricken once, chance of second eye being affected is 15% within 5 years. Can¡¯t recall the source. Andy W. On May 10, 2025, at 16:33, Bestray Pty Ltd via groups.io <bestray@...> wrote: ? Hi everyone? By reading messages in this group, I have a feeling that second NAION is much more common than I expected. Is it a misperception? Or is it really quite common to have a second attack. I am very worried. thanks Cliff
Started by Russ Poter @
How common is second NAION attack? 19
Hi everyone? By reading messages in this group, I have a feeling that second NAION is much more common than I expected. Is it a misperception? Or is it really quite common to have a second attack. I am very worried. thanks Cliff
Started by Bestray Pty Ltd @ · Most recent @
Odds of 2nd attack: 20% w/in 5 years 6
Asked many times, in last 8 years .. recall data was from Univ of Iowa Medical I thought I could take those odds .. I am on year 10 My $0.02 .. stress can be big factor in NAION. So .. reduce stress ..
Started by Russ Poter @ · Most recent @
Try Germany
There are alleged clinics in Germany and Moscow that make treatment claims about NAION, charging $25,000. Actually reading NIH documents -- and thinking seriously -- deter those with good sense. Go to Berlin or Moscow. No one is stopping you. Get happy, pal. On Sun, May 11, 2025 at 7:34 PM, Phil Moskowitz via groups.io <Pjmoskowitz@...> wrote: Russ, no need to attack anyone. Save that for Peter¡¯s authoritarian Facebook page that half of us have been kicked out of. No one is selling snake oil or false promises. The HBOT anecdote is just that, an anecdote. No one is saying it¡¯s scientifically proven as a ¡°cure¡±, but in her case it worked for her. If someone has the means to try and has no expectation as it being ¡°proven to work¡± let them try it¡­.. personally, my ¡°what if¡± of not trying weighs more heavily than the funds I would loose. Each persons risk tolerance and bank account is different. There¡¯s value in caution, but zero value in you attacking others. Phil Moskowitz LinkedIn On Sun, May 11, 2025 at 6:55 PM Russ Poter via groups.io <russpoter@...> wrote: Pal, you think you know more than those cited by NIH -- step forward. Waiting.. On Sun, May 11, 2025 at 4:56 PM, Deane Williams <pyroartist@...> wrote: Russ, No need to complain. On May 9th I asked if her 22 month old NAION case in her other eye was helped by the Oxygen treatment (as well as the recent attack on the second eye) and on May 10th she said it was helped dramatically. That leaves room for optimism. Perhaps you missed that. It is reproduced below: Hello Deane, Yes, in my case there was definite improvement in both eyes, the eye with the current optic swelling and the eye that was 21 months out. HVF tests show both had dramatic improvements. I will share data on these improvements in a few weeks as I am getting more testing done next week. I will share follow up data soon after. Best in vision, Debra B
Started by Russ Poter @
Hyperbaric oxygen therapy (HBOT) & NAION: Google A.I. search 7
Hyperbaric oxygen therapy (HBOT) has not been proven to be a beneficial treatment for non-arteritic anterior ischemic optic neuropathy (NAION), a condition causing vision loss. While HBOT can increase tissue oxygenation, it has not shown significant improvements in visual acuity or visual field in NAION patients. Some studies suggest potential benefits in certain cases, but more research is needed, and there is no widespread consensus on its efficacy for NAION. [1, 2, 3, 4, 5, 6, 7] Elaboration: [3, 3, 8, 8] NAION: NAION is a common cause of sudden vision loss in people over 50, affecting the optic nerve. [3, 3, 8, 8] Hyperbaric Oxygen Therapy (HBOT): HBOT involves breathing 100% oxygen under increased pressure, aiming to deliver more oxygen to tissues, including the optic nerve. [1, 4, 9, 10] Research Findings: Several studies have investigated HBOT for NAION, but the results are mixed. Some studies show no significant benefit in visual acuity or visual field, while others suggest potential benefits, especially in cases where treatment is started early. [2, 2, 5, 5, 6, 6, 7, 7] Mechanism of Action: HBOT may work by increasing tissue oxygenation, which can reduce damage to the optic nerve due to ischemia (reduced blood flow). [4, 4, 11, 11] Current Recommendations: There is no widely accepted recommendation for using HBOT as a primary or adjunctive treatment for NAION, and it is not routinely used. [3, 3, 9, 12, 12, 13] Alternative Treatments: Other potential treatments for NAION include optimizing vascular risk factors, addressing underlying conditions, and in some cases, intravitreal injections of anti-vascular endothelial growth factor (VEGF) agents. [3, 3, 12, 14, 14, 15, 15, 16, 17] AI responses may include mistakes. [1] https://medicalgiving.stanford.edu/why-giving-matters/gaining-insight-into-vision-loss.html [2] https://www.sciencedirect.com/science/article/pii/S0002939414721142 [3] https://www.frontiersin.org/journals/ophthalmology/articles/10.3389/fopht.2022.848710/full [4] https://www.sciencedirect.com/science/article/abs/pii/S0002939414721142 [5] https://pubmed.ncbi.nlm.nih.gov/27265994/ [6] https://uhms.org/ar/uhm-search/hyperbaric-oxygen-therapy-for-perioperative-posterior-ischemic-optic-neuropathy-a-case-report/download.html [7] https://www.uhms.org/uhm-search/hyperbaric-oxygen-therapy-for-perioperative-posterior-ischemic-optic-neuropathy-a-case-report/download.html [8] https://pmc.ncbi.nlm.nih.gov/articles/PMC4289822/ [9] https://www.mdpi.com/2077-0383/13/1/29 [10] https://meassociation.org.uk/medical-matters/items/treatment-hyperbaric-oxygen-therapy-hbot/ [11] https://www.fwimed.com/blog/hyperbaric-oxygen-therapy-as-treatment-for-nerve-healing [12] https://pmc.ncbi.nlm.nih.gov/articles/PMC11182325/ [13] https://pmc.ncbi.nlm.nih.gov/articles/PMC5344641/ [14] https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2024.1344107/full [15] https://pmc.ncbi.nlm.nih.gov/articles/PMC10382054/ [16] https://www.pennmedicine.org/for-patients-and-visitors/find-a-program-or-service/ophthalmology/eye-stroke [17] https://link.springer.com/chapter/10.1007/978-3-319-98455-1_3
Started by Russ Poter @ · Most recent @
1 / Hyperbaric oxygen therapy (HBOT) & NAION: Google A.I. search 4
What also happens .. conditions change .. the brain adjusts to compensate.. things get better. Physics of light are complex. Sometimes I can see OK .. sometimes not. On Sun, May 11, 2025 at 4:56 PM, Deane Williams <pyroartist@...> wrote: Russ, No need to complain. On May 9th I asked if her 22 month old NAION case in her other eye was helped by the Oxygen treatment (as well as the recent attack on the second eye) and on May 10th she said it was helped dramatically. That leaves room for optimism. Perhaps you missed that. It is reproduced below: Hello Deane, Yes, in my case there was definite improvement in both eyes, the eye with the current optic swelling and the eye that was 21 months out. HVF tests show both had dramatic improvements. I will share data on these improvements in a few weeks as I am getting more testing done next week. I will share follow up data soon after. Best in vision, Debra B
Started by Russ Poter @ · Most recent @
UPDATED: 2nd NAION attack -- Google A.I. search results
A "second" NAION attack refers to a recurrence of NAION in the same eye, which is rare. A second attack in a different eye (bilateral NAION) is more common, with approximately 15% of individuals with NAION in one eye developing it in the other within 5 years. [1, 2] Elaboration: [2, 2] Recurrence in the same eye is rare: While a second attack of NAION in the same eye has been documented with the arteritic form (associated with giant cell arteritis), it is not typically seen with the non-arteritic form (NAION). [1, 2, 2] Bilateral NAION is more common: A second attack in the other eye (bilateral NAION) is more frequent, with about 15% of people experiencing it within 5 years of the initial attack. [1, 1, 3] Risk factors for bilateral NAION: Conditions like diabetes and obstructive sleep apnea can increase the risk of developing NAION in the second eye. Compliance with CPAP therapy in obstructive sleep apnea may help reduce the risk of a second attack, according to the North American Neuro-Ophthalmology Society. [1, 1, 4] Visual prognosis: Once vision in the affected eye stabilizes (typically within 2 months), further deterioration is not expected. [5, 5, 6, 6] Early diagnosis and management are crucial: If vision loss worsens or progresses beyond the expected timeframe, a re-evaluation should be conducted to rule out other causes. [5, 5] AI responses may include mistakes. [1] https://www.nanosweb.org/naion/ [2] https://emedicine.medscape.com/article/1216891-followup [3] https://jcsm.aasm.org/doi/10.5664/jcsm.2766 [4] https://bmcophthalmol.biomedcentral.com/articles/10.1186/s12886-018-1010-0 [5] https://eyewiki.org/Non-Arteritic_Anterior_Ischemic_Optic_Neuropathy_(NAION) [6] https://pmc.ncbi.nlm.nih.gov/articles/PMC3721361/ On Sunday, May 11, 2025 at 11:21:36 AM EDT, JimLely via groups.io <gaussianmist@...> wrote: I thought we were talking about the probability of 'other eye' involvement. This AI report seems to be addressing recurrence in the same eye. (But if I'm misinterpreting, it's because I have NAION.) On Sun, May 11, 2025 at 11:08 AM Russ Poter via groups.io <russpoter@...> wrote: In most cases of NAION (Nonarteritic Anterior Ischemic Optic Neuropathy), a "second" attack, meaning a recurrence of the condition in the same eye, is rare. While vision worsens initially, it often stabilizes after two weeks. However, the visual field loss may become less noticeable over time, especially if the other eye is normal. [1, 1, 2, 2, 3, 3, 4, 5] Here's a more detailed explanation: [1, 1] Initial Vision Loss: In NAION, vision typically worsens progressively over about two weeks. [1, 1] Progression and Stabilization: After the initial two-week period, the vision usually stabilizes, meaning it doesn't worsen further. [1, 1] Recurrence: While a second attack in the same eye is not common, it's not impossible. [1, 1, 2, 2, 6, 7, 8] Visual Field Loss: The area of visual field loss typically doesn't improve significantly over time. [3, 3] Other Eye: If the other eye is normal, the visual field loss might become less noticeable over time, as the brain adapts, according to the North American Neuro-Ophthalmology Society. [3, 3] AI responses may include mistakes. [1] https://pmc.ncbi.nlm.nih.gov/articles/PMC3721361/ [2] https://eyewiki.org/Non-Arteritic_Anterior_Ischemic_Optic_Neuropathy_(NAION) [3] https://www.nanosweb.org/naion/ [4] https://pmc.ncbi.nlm.nih.gov/articles/PMC2782939/ [5] https://www.nanosweb.org/naion/ [6] https://www.nanosweb.org/naion/ [7] https://jamanetwork.com/journals/jamaophthalmology/fullarticle/1214776 [8] https://emedicine.medscape.com/article/1216891-followup
Started by Russ Poter @
2nd NAION attack -- Google A.I. search results 2
In most cases of NAION (Nonarteritic Anterior Ischemic Optic Neuropathy), a "second" attack, meaning a recurrence of the condition in the same eye, is rare. While vision worsens initially, it often stabilizes after two weeks. However, the visual field loss may become less noticeable over time, especially if the other eye is normal. [1, 1, 2, 2, 3, 3, 4, 5] Here's a more detailed explanation: [1, 1] Initial Vision Loss: In NAION, vision typically worsens progressively over about two weeks. [1, 1] Progression and Stabilization: After the initial two-week period, the vision usually stabilizes, meaning it doesn't worsen further. [1, 1] Recurrence: While a second attack in the same eye is not common, it's not impossible. [1, 1, 2, 2, 6, 7, 8] Visual Field Loss: The area of visual field loss typically doesn't improve significantly over time. [3, 3] Other Eye: If the other eye is normal, the visual field loss might become less noticeable over time, as the brain adapts, according to the North American Neuro-Ophthalmology Society. [3, 3] AI responses may include mistakes. [1] https://pmc.ncbi.nlm.nih.gov/articles/PMC3721361/ [2] https://eyewiki.org/Non-Arteritic_Anterior_Ischemic_Optic_Neuropathy_(NAION) [3] https://www.nanosweb.org/naion/ [4] https://pmc.ncbi.nlm.nih.gov/articles/PMC2782939/ [5] https://www.nanosweb.org/naion/ [6] https://www.nanosweb.org/naion/ [7] https://jamanetwork.com/journals/jamaophthalmology/fullarticle/1214776 [8] https://emedicine.medscape.com/article/1216891-followup
Started by Russ Poter @ · Most recent @
NOTE: a history of NAION: Prof. S.S. Hayreh, MD, PhD, Univ of Iowa Medical .. R.I.P.
https://www.nature.com/articles/s41433-023-02711-9 "Much of Professor Hayreh¡¯s research legacy has become so engrained in the modern practice of ophthalmology that many are not aware of the full extent of his work .. "He was the first to distinguish between ischaemic and non-ischaemic central retinal vein occlusions, and to classify ischaemic optic neuropathies as anterior or posterior. "He identified nocturnal hypotension as a risk factor for both non-arteritic anterior ischaemic optic neuropathy and glaucoma. "He made significant contributions to the vasogenic theory of glaucoma, and his work on the pathogenesis of papilloedema led to the reintroduction of optic nerve sheath fenestration as a treatment for this condition."
Started by Russ Poter @
Questions re: Visit Summary of Instructions (Pages 1-9 & 10)) 7
Hello Cliff, Yes, I was tested for sleep apnea after my first event and I had a light case of it. I don¡¯t know how accurate the test was actually but I catch myself forgetting to breathe when I am awake so I embraced any possible way I could prevent a 2nd eye event and I always use the CPAP machine and get great scores (.01 events per hour) consistently. So I conclude that sleep apnea did not cause my second eye event. Although having NAION in both eyes is very challenging indeed I find relief because I am not waiting for the other shoe to drop. Having an event in my 2nd eye is not the end of the world, I am no longer in fear of losing the second eye. I am just in fear that I will trip over my large dog or something else. I suspect my first event was from a combination of dehydration due to hot yoga with no proper humidity. Because two weeks before my first event my eyes became super watery and sensitive to any light. I knew at the time I had not been taking the time to drink enough water and my sinuses were acting weird in the hot yoga room. After hot yoga I was running around without a jacket in cold weather which may have caused a cold which caused the weeping eyes and extreme light sensitivity which preceded my first event by a couple of weeks. My doctor says we will never know and it is likely that multiple things triggered my first event. Best in Vision, Debra B On Sat, May 10, 2025 at 7:18 AM Bestray Pty Ltd via groups.io <bestray@...> wrote: Hi Debra, Sorry to hear you had a second attack in the other eye. Just want to know, do you have sleep apnea? If yes, do you use CPAP machine to treat the condition? Thanks Cliff On 11 May 2025, at 12:07 am, Debra B via groups.io <debrownstein@...> wrote: ? Re Hyperbaric Oxygen Therapy Hello Deane, Yes, in my case there was definite improvement in both eyes, the eye with the current optic swelling and the eye that was 21 months out. HVF tests show both had dramatic improvements. I will share data on these improvements in a few weeks as I am getting more testing done next week. I will share follow up data soon after. Best in vision, Debra B On Fri, May 9, 2025 at 3:10 PM Deane Williams via groups.io <pyroartist@...> wrote: Debra, Thanks for sharing. Very interesting! We all need more doctors that are not afraid to try a new approach. Did the hyperbaric oxygen treatment help both eyes? I'm sure we all would welcome a treatment that works with older NAION cases. Were the results noticeable to you and dramatic? Deane (moderator) On 5/9/2025 5:28 PM, eyenul via groups.io wrote: Thank you Debra. Really appreciate it. On Sat, 10 May 2025, 04:33 Debra B via groups.io, <debrownstein@...> wrote: Dear NIAON friends, Some Zoom participants on Saturday asked me to share with our email group what my Neuro-Ophthalmologist, Dr Y. Joyce Liao recommended to me when I was first diagnosed with NAION (vitamins, eye drops etc). I have attached in two pdfs (below) an after visit summary of her recommendations for me. When 21 months later I had my 2nd NAION event in the 2nd eye, she suggested I try Hyperbaric Oxygen treatments in addition to the protocol we had used previously. I did try the Hyperbaric treatments with positive results. She thought I was very receptive to that type of treatment since I showed great improvement quickly and she is more likely to recommend hyperbaric oxygen treatment to others as my HVF scores greatly improved. It is not covered by most insurances but it did go towards my yearly deductible In closing I just wanted to share what one Neuro-Ophthalmologist gave to me in my moments of need. Am not suggesting this would work as your path of healing but it is nice to compare strategies. All treatments should be monitored by your doctors. Watch a YouTube of Dr Liao with NAION patient. Best in vision, Debra B
Started by Debra B @ · Most recent @
Sleep Apnea 7
Hi everyone, Just wonder among us who suffer NAION, how many have sleep apnea? My NO says Sleep Apnea is a contributing factor to NAION. Do you have untreated sleep apnea when you got NAION? Thanks Cliff
Started by Bestray Pty Ltd @ · Most recent @
1 / DB: the print version of that YouTube video on NAION
KEY POINT IN ALL THIS .. after initial NAION attack .. patient IMMEDIATELY sought treatments .. IMHO, probably saved 50% of his vision in left eye --- On Saturday, May 10, 2025 at 12:05:31 AM EDT, Russ Poter via groups.io <russpoter@...> wrote: The patient in the YouTube video from Stanford Medical https://medicalgiving.stanford.edu/news/how-vision-loss-helped-me-see-the-world-in-a-new-light.html On Saturday, May 10, 2025 at 12:03:29 AM EDT, Russ Poter via groups.io <russpoter@...> wrote: DB .. this is the print version of that YouTube video .. https://medicalgiving.stanford.edu/why-giving-matters/gaining-insight-into-vision-loss.html On Friday, May 9, 2025 at 04:33:32 PM EDT, Debra B via groups.io <debrownstein@...> wrote: Dear NIAON friends, Some Zoom participants on Saturday asked me to share with our email group what my Neuro-Ophthalmologist, Dr Y. Joyce Liao recommended to me when I was first diagnosed with NAION (vitamins, eye drops etc). I have attached in two pdfs (below) an after visit summary of her recommendations for me. When 21 months later I had my 2nd NAION event in the 2nd eye, she suggested I try Hyperbaric Oxygen treatments in addition to the protocol we had used previously. I did try the Hyperbaric treatments with positive results. She thought I was very receptive to that type of treatment since I showed great improvement quickly and she is more likely to recommend hyperbaric oxygen treatment to others as my HVF scores greatly improved. It is not covered by most insurances but it did go towards my yearly deductible In closing I just wanted to share what one Neuro-Ophthalmologist gave to me in my moments of need. Am not suggesting this would work as your path of healing but it is nice to compare strategies. All treatments should be monitored by your doctors. Watch a YouTube of Dr Liao with NAION patient. Best in vision, Debra B
Started by Russ Poter @
1 / DB: the print version of that YouTube video on NAION
The patient in the YouTube video from Stanford Medical https://medicalgiving.stanford.edu/news/how-vision-loss-helped-me-see-the-world-in-a-new-light.html On Saturday, May 10, 2025 at 12:03:29 AM EDT, Russ Poter via groups.io <russpoter@...> wrote: DB .. this is the print version of that YouTube video .. https://medicalgiving.stanford.edu/why-giving-matters/gaining-insight-into-vision-loss.html On Friday, May 9, 2025 at 04:33:32 PM EDT, Debra B via groups.io <debrownstein@...> wrote: Dear NIAON friends, Some Zoom participants on Saturday asked me to share with our email group what my Neuro-Ophthalmologist, Dr Y. Joyce Liao recommended to me when I was first diagnosed with NAION (vitamins, eye drops etc). I have attached in two pdfs (below) an after visit summary of her recommendations for me. When 21 months later I had my 2nd NAION event in the 2nd eye, she suggested I try Hyperbaric Oxygen treatments in addition to the protocol we had used previously. I did try the Hyperbaric treatments with positive results. She thought I was very receptive to that type of treatment since I showed great improvement quickly and she is more likely to recommend hyperbaric oxygen treatment to others as my HVF scores greatly improved. It is not covered by most insurances but it did go towards my yearly deductible In closing I just wanted to share what one Neuro-Ophthalmologist gave to me in my moments of need. Am not suggesting this would work as your path of healing but it is nice to compare strategies. All treatments should be monitored by your doctors. Watch a YouTube of Dr Liao with NAION patient. Best in vision, Debra B
Started by Russ Poter @
DB: the print version of that YouTube video on NAION
DB .. this is the print version of that YouTube video .. https://medicalgiving.stanford.edu/why-giving-matters/gaining-insight-into-vision-loss.html On Friday, May 9, 2025 at 04:33:32 PM EDT, Debra B via groups.io <debrownstein@...> wrote: Dear NIAON friends, Some Zoom participants on Saturday asked me to share with our email group what my Neuro-Ophthalmologist, Dr Y. Joyce Liao recommended to me when I was first diagnosed with NAION (vitamins, eye drops etc). I have attached in two pdfs (below) an after visit summary of her recommendations for me. When 21 months later I had my 2nd NAION event in the 2nd eye, she suggested I try Hyperbaric Oxygen treatments in addition to the protocol we had used previously. I did try the Hyperbaric treatments with positive results. She thought I was very receptive to that type of treatment since I showed great improvement quickly and she is more likely to recommend hyperbaric oxygen treatment to others as my HVF scores greatly improved. It is not covered by most insurances but it did go towards my yearly deductible In closing I just wanted to share what one Neuro-Ophthalmologist gave to me in my moments of need. Am not suggesting this would work as your path of healing but it is nice to compare strategies. All treatments should be monitored by your doctors. Watch a YouTube of Dr Liao with NAION patient. Best in vision, Debra B
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NAION & OZEMPIC: THE HARVARD MEDICAL INVESTIGATION
Specialists discuss concerns over impact of semaglutide on the eye Specialists discuss concerns over impact of semaglutide on the eye A paper recently published in JAMA Ophthalmology by Hathaway and colleagues at Harvard suggested a potential association between prescribed semaglutide and an increased risk for nonarteritic anterior ischemic optic neuropathy.Semaglutide is a GLP-1 r Repeating .. exercise .. healthy living .. diet .. are good things Unhealthy living .. commonality in premature death and disease
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What smart medical doctors do NOT self-prescibe
https://www.goodrx.com/hcp-articles/providers/self-prescribing-laws-by-state They want to be HEALTHY
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