1/ my case: during mega-heavy workload, arguing with feds (ultimately involving Mr. Obama's office), in 2015 .. NAION attack, LEFT eye, 30% vision loss. Can still drive, if carefully.
2/ after a search, found great N.O. at top medical school, USAF during Vietnam (treated P.O.W. cases), published authority.
ON CATARACT SURGERY .. N.O. advised, as much as possible, wait until ABSOLUTE last minute. Much research about, said surgery, involved with additional NAION attacks.
*** IN ANY EVENT .. IN ANY MEDICAL TREATMENT .. ADVISE THAT NAION IS PRESENT.? ? ? ? ? ? KEEP REPEATING -- NAION IS PRESENT.
? ? ? ? ? MANY PROVIDERS HAVE A DIFFICULT TIME, LISTENING CAREFULLY.? ? ? ? ? ? PUT IT WRITING, COPY TO THEIR LEGAL COUNSEL.
ON RETINAL TREATMENT .. very small hole in RIGHT eye, just discovered. Now .. WAIT & SEE. Medical school clinic, very aware, of stakes involved.
To conclude: standand order .. step by step, day by day. We're not going to live forever.
On Wednesday, March 5, 2025 at 11:49:18 AM EST, James Chevalley via groups.io <jimchevalley@...> wrote:
There is so little known about NAION.? And the info we gave seems full of contradictions.? Like no anesthesia, or no flying, scuba diving. Even some face lotions used for Rosecia suggest a problem . Novacaine at the dentist. The list seems endless. With so few patients there is no money ear marked for research. I wish there were more clear answers . I also think there should be a screening of the optic nerve during an eye exam that would give people a heads up if they were prone to this problem.? I'm 72 and have been to the eye doctor every year for an eye exam since I was 10 years old. Even after a retina tear on both eyes and a vistrectomy I was NEVER told about NAION till it happened 9 days after I had the 2nd vistrectomy.? ??? All the tests and MRIs after the fact they claim my BP dropped too far .? ?? Very gut wrenching..
On Tue, Mar 4, 2025, 3:55 PM Pamela Chadick via <apchadick88= [email protected]> wrote: Exactly! The most difficult thing is not knowing, or being able to prevent. I¡¯ve been hypervigilant about protecting my left eye over the years and have been told that the chances of it occurring in that eye were slim. At this point, I¡¯m most interested in finding out what people are doing to better the situation. Glasses, tools, computer screens for easier reading, etc. I¡¯ve been very fortunate for 20 year in that my left eye was so strong. Although, I¡¯m not sure where everything will settle, I can see pretty well straight ahead with my left eye, Lost the lower 1/3 and peripheral. ? Pamela, so sorry to learn your left eye now, after 20 years!, has had a NAION attack.
I'm wondering, though you don't have any of the typical risk factors other than the biggie, small cup to disc ratio, if prior to this recent event, you had something that significantly either raised your BP such as significant pain or something that could have caused a drop in blood pressure such as dehydration?? It is so hard not knowing what can be a trigger.? 
Diane Keasler
Hello. I am no longer using this email. Please update your contacts and use DLKeasler@...
919-968-0099
THANK YOU!!! Life is the school, love is the lesson.
On Tuesday, March 4, 2025 at 02:24:18 PM EST, Pamela Chadick via <apchadick88= [email protected]> wrote:
Hello,
I also have NAION in both eyes. The first time when I was 41in my right eye and most recently 3 weeks ago in my left eye. I'm now 61. I also have small cup to disc ration in both eyes. No diabetes, no blood pressure problems, really none of the risk factors that others sometimes have. I saw a dr. in Mobile, Al who specializes in optic nerve issues and she did something interesting that she said she's had good success with . She prescribed a solu medrol that I mixed with water and drank every morning for a few days and then I've been taken 50 mg of prednisone for the past 11 days. I'll start tapering off tomorrow. My doctor 20 years ago, who has passed, prescribed the IV steroids right away. I don't have risk factors so the steroids have been okay, and, although I've been told that there's no proof it helps reduce the swelling in the optic nerve, it helps me to know that we're doing something.
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