On Jul 28, 2024, at 5:08?PM, Marc Gold via groups.io <marcgold@...> wrote:

?

Hi Michael,

Thank you for constructing this necessary website. Here are some suggestions, use whatever you think might be useful, edit as seems?necessary:

"The first year is fraught with shock, fear, anxiety, and challenges of all sorts."

I would have written:

The first reaction to being diagnosed with NAION (which very few people have even heard of) is fraught with shock, fear, anxiety, and challenges of all sorts. This period of emotional toil can last for weeks, months or even longer.?

Questions arise - for example:

Am I going blind? What did I do wrong that caused this condition?

(Will my other eye also go bad - (bilateral)??

But with time most people's eyes, brain, attitude and coping skills adjust and life goes on. Many report that NAION hasn't changed their lives nearly as much as they feared.

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I would add these resources to the website:

(and see attachments - Dr. Sohan Singh Hayreh is considered by many to be one of the world's main experts on NAION):

Sohan Singh Hayreh, MD, MS, PhD, DSc, FRCS, FRCOphth (Hon)
Professor Emeritus of Ophthalmology & Director Ocular Vascular Clinic
Department of Ophthalmology & Visual Sciences
College of Medicine, University of Iowa
200 Hawkins Drive
Iowa City, Iowa 52242-1091

I would go through past entries to the NAION?group - lot's of good material?there to?be found.

Thanks,

Marc Gold

Newport Beach, California

<23805-Texto do Trabalho-94419-1-10-20210421.pdf>

<Hayreh_SS_ION_2013.pdf>

<Mgmt_OIN_2011.pdf>

<Misconceptions about NAION.docx>

<NAION - My Story.docx>

<10 Things I Hate and Love about NAION.docx>