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Odds of 2nd attack: 20% w/in 5 years


Russ Poter
 

Asked many times, in last 8 years .. recall data was from Univ of Iowa Medical?

I thought I could take those odds .. I am on year 10

My $0.02 .. stress can be big factor in NAION. So .. reduce stress ..


 

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Hi Mike
? ? ? ? ? Good to read your message. My events pretty much mirror yours. First eye at 57 years old 2nd event 18 months later again in very good health and given no specific reason. Like you say life changing. Could I ask which country your in ?

On 10 May 2025, at 21:13, Russ Poter via groups.io <russpoter@...> wrote:

?Asked many times, in last 8 years .. recall data was from Univ of Iowa Medical?

I thought I could take those odds .. I am on year 10

My $0.02 .. stress can be big factor in NAION. So .. reduce stress ..


 

what do you mean? did you have a second attack?


 

Did your have sleep apnea in the two attacks?


 

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I am in Michigan.Although trying to protect the second eye was stressful, being bilateral is tough.Medicine is really letting all of us down.It is because there is not enough money for big pharmaceutical companies. Might change with Ozempic ?news.Telling everyone there is no tx and no reason is hard to accept.I think there will be help but only if some will think outside the box . I am convinced the steroids I took for my second eye made a I big difference but only because I started then very early before there was vision loss just some changes in eye .They are hard on your body and not everyone can take them .Anyone who tells you they are not the standard of care is protecting themselves .The studies that show they don’t help is because they are almost always too late.once the nerve is in the cycle of continual edema the retinal cells have died from the pressure.?
Stay positive?
Mike

On May 11, 2025, at 1:14?AM, Bestray Pty Ltd via groups.io <bestray@...> wrote:

?
Did your have sleep apnea in the two attacks?


Russ Poter
 

Repeating .. MY NAION ATTACK

Happened at Walmart eyeglass shop .. after months of very hard work .. left eye went DARK? ..
O.D. (nice Black lady) said "Go to M.D., NOW
M.D., next day .. "Calling N.O. for you, NOW"
N.O. (rated 5/10) .. tedious response .. 0.0 on steroids

Could steroids have helped? Hard call .. so many factors .. time .. amount of damage ..
And I did NOT have that option, due to the tedious N.O.


On Sunday, May 11, 2025 at 10:11:00 PM EDT, Mstusick@... via groups.io <mstusick@...> wrote:


I am in Michigan.Although trying to protect the second eye was stressful, being bilateral is tough.Medicine is really letting all of us down.It is because there is not enough money for big pharmaceutical companies. Might change with Ozempic ?news.Telling everyone there is no tx and no reason is hard to accept.I think there will be help but only if some will think outside the box . I am convinced the steroids I took for my second eye made a I big difference but only because I started then very early before there was vision loss just some changes in eye .They are hard on your body and not everyone can take them .Anyone who tells you they are not the standard of care is protecting themselves .The studies that show they don’t help is because they are almost always too late.once the nerve is in the cycle of continual edema the retinal cells have died from the pressure.?
Stay positive?
Mike

On May 11, 2025, at 1:14?AM, Bestray Pty Ltd via groups.io <bestray@...> wrote:

?
Did your have sleep apnea in the two attacks?


 

A bit of advice. ?Ask yourself whether the race of the person in your story has any effect on the story. ?If not, leave it out. ?


Russ Poter
 

Stone-cold facts, dude --

HIGHLY PROFESSIONAL -- IMMEDIATELY ordered more exams .. cardiac stroke suspected?

FIRST O.D. exam by female?

FIRST O.D. exam by P.O.C.

A bit of advice. If you have 0.0 meaningful to add -- do 0.0.

How do you know that I am not a Black female? Did you ask yourself that?
------

On Mon, May 12, 2025 at 6:10 PM, Scott Fuller via groups.io
<scottfuller@...> wrote:
A bit of advice. ?Ask yourself whether the race of the person in your story has any effect on the story. ?If not, leave it out. ?


 

I give 0.0 f’s about who or what you are. ?I just can’t figure out why every one of these NAION support groups becomes dominated by an angry, argumentative, and know-it-all person who blocks out all useful dialogue between people attempting to share their stories and support each other. ?

-Scott Fuller
On May 12, 2025 at 3:41?PM -0700, Russ Poter via groups.io <russpoter@...>, wrote:

Stone-cold facts, dude --

HIGHLY PROFESSIONAL -- IMMEDIATELY ordered more exams .. cardiac stroke suspected?

FIRST O.D. exam by female?

FIRST O.D. exam by P.O.C.

A bit of advice. If you have 0.0 meaningful to add -- do 0.0.

How do you know that I am not a Black female? Did you ask yourself that?
------

On Mon, May 12, 2025 at 6:10 PM, Scott Fuller via groups.io
<scottfuller@...> wrote:
A bit of advice. ?Ask yourself whether the race of the person in your story has any effect on the story. ?If not, leave it out. ?


 

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Suggestion: take personal fights off-line and argue til the cows come hoe. My inbox is too full of personal animus whereas I’m looking for helpful suggestions.


On May 12, 2025, at 18:49, Scott Fuller via groups.io <scottfuller@...> wrote:

?
I give 0.0 f’s about who or what you are. ?I just can’t figure out why every one of these NAION support groups becomes dominated by an angry, argumentative, and know-it-all person who blocks out all useful dialogue between people attempting to share their stories and support each other. ?

-Scott Fuller
On May 12, 2025 at 3:41?PM -0700, Russ Poter via groups.io <russpoter@...>, wrote:
Stone-cold facts, dude --

HIGHLY PROFESSIONAL -- IMMEDIATELY ordered more exams .. cardiac stroke suspected?

FIRST O.D. exam by female?

FIRST O.D. exam by P.O.C.

A bit of advice. If you have 0.0 meaningful to add -- do 0.0.

How do you know that I am not a Black female? Did you ask yourself that?
------

On Mon, May 12, 2025 at 6:10 PM, Scott Fuller via groups.io
<scottfuller@...> wrote:
A bit of advice. ?Ask yourself whether the race of the person in your story has any effect on the story. ?If not, leave it out. ?


Russ Poter
 

Look in the mirror, pal. Not a good look

On Mon, May 12, 2025 at 6:49 PM, Scott Fuller via groups.io
<scottfuller@...> wrote:
I give 0.0 f’s about who or what you are. ?I just can’t figure out why every one of these NAION support groups becomes dominated by an angry, argumentative, and know-it-all person who blocks out all useful dialogue between people attempting to share their stories and support each other. ?

-Scott Fuller
On May 12, 2025 at 3:41?PM -0700, Russ Poter via groups.io <russpoter@...>, wrote:
Stone-cold facts, dude --

HIGHLY PROFESSIONAL -- IMMEDIATELY ordered more exams .. cardiac stroke suspected?

FIRST O.D. exam by female?

FIRST O.D. exam by P.O.C.

A bit of advice. If you have 0.0 meaningful to add -- do 0.0.

How do you know that I am not a Black female? Did you ask yourself that?
------

On Mon, May 12, 2025 at 6:10 PM, Scott Fuller via groups.io
<scottfuller@...> wrote:
A bit of advice. ?Ask yourself whether the race of the person in your story has any effect on the story. ?If not, leave it out. ?