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Large Type Version of last email 1st NAION Zoom Peer Support Group starts next week on Wed. April 23 (Correct Times, Details, & Zoom Link here)

 

Hello?NAION friends,

Here is a?suggested outline for our first NAION Peer Support Group Meeting ON Wednesday, April 23 (in most time zones). I
nformed Consent:?
This is a free peer support group and with your voluntarily participation you agree to release all other participants, volunteers and organizers of any and all liability. ?

We can change the format as we go and grow to accommodate the number of participants?and what seems to work best.?I am new at this Peer Group Support stuff but when I started going bilateral?on March 4, a few weeks ago, I knew I needed support a the best way to get is to give it!
?
Thank you all for giving me this opportunity and this sense of community.

?Zoom opens 15 min before Group start time to give people the opportunity to settle in and hit the ground running,?help anyone become familiar with mute and other features such as Speaker View and Gallery View,?Chat room which is a great option for questions and resource recommendations.

All participants with great ideas, experience with groups, and those with suggestions are welcome to email them.? Family members are welcome if over 18 years of age.?I went bilateral went bilateral in March so still adjusting and welcome any help and input my email address is: debrownstein@...


Welcome Introduction

? Technical Check: Ensure everyone is comfortable with the Zoom platform and can hear and see each other clearly.?Use mute when not speaking to minimize distractions.
? Ground Rules: Participants agree to confidentiality, respect, and active listening as core principles for the group.

Discussion and Sharing

? Icebreaker Question: Ask?some kind o?a question like ¡°What is your experience with NAION or what do you want from this NAION Zoom group?¡± To facilitate sharing and connection.?People may wish to share if they have NAION in one eye or both, their NAION time line. Perhaps ihey are not ready to share ant group level and that¡¯s 100% understandable and supported.
Allow time for participants to share their experiences and thoughts, ensuring no one dominates the conversation. Perhaps we use a volunteer timer who can alert the speaker at 3 minutes.?

Next Steps and Closing

??Next?Meeting:?April 30th same time same link.?Discuss frequency and timing of future meetings. ?Possible to add a?Saturday?meeting.?
? Action Items: Provide any necessary resources or next steps for participants.?Anything?from the chat room can be addressed.?
? Closing Remarks:?Thank?participants for their engagement and encourage feedback for future improvements.

__________________________________________________________________________________________________________
NEW TIMES??????Please double check you start time.

Our first NAION Zoom meeting will be held on?Wednesday, April 23, 2025 in many time zones but in other time zones it might be on Thursday the 24th., ?Please, please check?corresponding times?below because they were changed and corrections?confirmed by the World Clock Time Zone?

??Pacific Daylight Time?(PDT) 3:00?PM
??Mountain Standard Time?(MST)?3:00?PM?is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT, which is 4:00 PM.
??Mountain?Daylight?Time (MDT)?4:00?PM.
? Central Time (CDT): 5:00?PM.
? Eastern Time (EDT): 6:00?PM.
? London, UK (BST):?3:00 AM on April 24.
? Melbourne, Australia (AEST):?EST) should be 12:00 PM (noon) on April 24.

ZOOM LINK
The Zoom link to use is:

If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161

ZOOM TIPS and your informed?consent required for support group participation.
Use mute when?not speaking?to minimize distractions.
Speaker View?focuses on the active speaker.
Gallery View?shows all participants in a grid.
Use Chat Room as option for questions, comments and resource recommendations.
Lets try to keep sharing to 2 or 3 minutes to not dominate the conversation.?
Do not give Medical advise or tell people what to do.
you can talk about your opinions, ideas and ?experiences.
Be respectful and kind.
We are building community?together.

I
nformed Consent:?
This is a free peer support group and with your voluntarily participation you agree to release all other participants, volunteers and organizers of any and all liability. ?
 

I¡¯m in Cape Town, South Africa. I¡¯ll try to join on waking. Thanks for your wonderful efforts

Terry

On Wed, 16 Apr 2025 at 18:06, Debra B via <debrownstein=[email protected]> wrote:
Hello?NAION friends,

Here is a?suggested outline for our first NAION Peer Support Group Meeting ON Wednesday, April 23 (in most time zones). I
nformed Consent:?
This is a free peer support group and with your voluntarily participation you agree to release all other participants, volunteers and organizers of any and all liability. ?

We can change the format as we go and grow to accommodate the number of participants?and what seems to work best.?I am new at this Peer Group Support stuff but when I started going bilateral?on March 4, a few weeks ago, I knew I needed support a the best way to get is to give it!
?
Thank you all for giving me this opportunity and this sense of community.

?Zoom opens 15 min before Group start time to give people the opportunity to settle in and hit the ground running,?help anyone become familiar with mute and other features such as Speaker View and Gallery View,?Chat room which is a great option for questions and resource recommendations.

All participants with great ideas, experience with groups, and those with suggestions are welcome to email them.? Family members are welcome if over 18 years of age.?I went bilateral went bilateral in March so still adjusting and welcome any help and input my email address is: debrownstein@...


Welcome Introduction

? Technical Check: Ensure everyone is comfortable with the Zoom platform and can hear and see each other clearly.?Use mute when not speaking to minimize distractions.
? Ground Rules: Participants agree to confidentiality, respect, and active listening as core principles for the group.

Discussion and Sharing

? Icebreaker Question: Ask?some kind o?a question like ¡°What is your experience with NAION or what do you want from this NAION Zoom group?¡± To facilitate sharing and connection.?People may wish to share if they have NAION in one eye or both, their NAION time line. Perhaps ihey are not ready to share ant group level and that¡¯s 100% understandable and supported.
Allow time for participants to share their experiences and thoughts, ensuring no one dominates the conversation. Perhaps we use a volunteer timer who can alert the speaker at 3 minutes.?

Next Steps and Closing

??Next?Meeting:?April 30th same time same link.?Discuss frequency and timing of future meetings. ?Possible to add a?Saturday?meeting.?
? Action Items: Provide any necessary resources or next steps for participants.?Anything?from the chat room can be addressed.?
? Closing Remarks:?Thank?participants for their engagement and encourage feedback for future improvements.

__________________________________________________________________________________________________________
NEW TIMES??????Please double check you start time.

Our first NAION Zoom meeting will be held on?Wednesday, April 23, 2025 in many time zones but in other time zones it might be on Thursday the 24th., ?Please, please check?corresponding times?below because they were changed and corrections?confirmed by the World Clock Time Zone?

??Pacific Daylight Time?(PDT) 3:00?PM
??Mountain Standard Time?(MST)?3:00?PM?is only correct for areas not observing daylight saving (e.g., Arizona); most of the Mountain region will be on MDT, which is 4:00 PM.
??Mountain?Daylight?Time (MDT)?4:00?PM.
? Central Time (CDT): 5:00?PM.
? Eastern Time (EDT): 6:00?PM.
? London, UK (BST):?3:00 AM on April 24.
? Melbourne, Australia (AEST):?EST) should be 12:00 PM (noon) on April 24.

ZOOM LINK
The Zoom link to use is:

If the link isn't working use:
Meeting ID: 627 175 4286
Passcode: 7388161

ZOOM TIPS and your informed?consent required for support group participation.
Use mute when?not speaking?to minimize distractions.
Speaker View?focuses on the active speaker.
Gallery View?shows all participants in a grid.
Use Chat Room as option for questions, comments and resource recommendations.
Lets try to keep sharing to 2 or 3 minutes to not dominate the conversation.?
Do not give Medical advise or tell people what to do.
you can talk about your opinions, ideas and ?experiences.
Be respectful and kind.
We are building community?together.

I
nformed Consent:?
This is a free peer support group and with your voluntarily participation you agree to release all other participants, volunteers and organizers of any and all liability. ?

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