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Hi Do you have ear ringing too?
|
????????? If the problem is congestion, rather than a drippy nose, antihistamines could just make it worse by drying the nose out.? Rather than a neti pot, I have an attachment
for my waterpik that allows me to blow isotonic saline up my nose.? I make my own saline.? I also use intranasal steroids, but my nose if often too congested for them to get up far enough, so I use a nasal spray to open up one nostril and then hit it with
the steroid spray.
?
?
-- not for colds, rather for allergies
?
Karl L. Wuensch, Professor and ECU Scholar/Teacher, Dept. of Psychology
East Carolina University, Greenville NC? 27858-4353, USA,?
Voice:? 252-328-9420???? Fax:? 252-328-6283
toggle quoted message
Show quoted text
From: [email protected] < [email protected]> On Behalf Of
Bobbie James via groups.io
Sent: Monday, November 28, 2022 8:04 PM
To: [email protected]
Subject: Re: [NAION] Flu and NAION
?
|
This email originated from outside ECU.
|
?
Cool.? Do you use a neti pot?
?
One thing you do is wash out your nose.? I use NeilMed sinus rinse.
-------- Original message --------
Date: 11/28/22 4:19 PM (GMT-08:00)
Subject: Re: [NAION] Flu and NAION
I did some Googling and believe it to be true, so then the option is antihistamines?? Also read about the differences between the two.? I've learned a lot today...
?
On Mon, Nov 28, 2022, 6:48 PM Wuensch, Karl Louis <WUENSCHK@...> wrote:
????????? I think it is true that all drugs effective as decongestants are vasoconstrictors.?
?
Karl L. Wuensch, Professor and ECU Scholar/Teacher, Dept. of Psychology
East Carolina University, Greenville NC? 27858-4353, USA,?
Voice:? 252-328-9420???? Fax:? 252-328-6283
?
|
This email originated from outside ECU.
|
?
Are all decongestants vasoconstrictors? Honestly have no idea.??
My NO's have always instructed -no vasoconstrictors.?
?
On Mon, Nov 28, 2022, 4:36 PM Bobbie James <rrjames61@...> wrote:
Wondering where you got that advice.? My NO has never said I can't take a decongestant.?
?
You can not take decongestants.
-------- Original message --------
Date: 11/28/22 12:00 PM (GMT-08:00)
Subject: [NAION] Flu and NAION
Hi all,
I started with flu-like symptoms today, including a low-grade fever. Any thoughts on what I can and cannot take for treatment? I was diagnosed with NAION in my right eye in May of 2021.
Thanks,
Joyce
|
I use the bottle, but the neti pot would work.
toggle quoted message
Show quoted text
-------- Original message -------- From: Bobbie James <rrjames61@...> Date: 11/28/22 5:04 PM (GMT-08:00) Subject: Re: [NAION] Flu and NAION
Cool.? Do you use a neti pot? One thing you do is wash out your nose.? I use NeilMed sinus rinse.
-------- Original message -------- Date: 11/28/22 4:19 PM (GMT-08:00) Subject: Re: [NAION] Flu and NAION
I did some Googling and believe it to be true, so then the option is antihistamines?? Also read about the differences between the two.? I've learned a lot today... On Mon, Nov 28, 2022, 6:48 PM Wuensch, Karl Louis < WUENSCHK@...> wrote:
????????? I think it is true that all drugs effective as decongestants are vasoconstrictors.?
?
Karl L. Wuensch, Professor and ECU Scholar/Teacher, Dept. of Psychology
East Carolina University, Greenville NC? 27858-4353, USA,?
Voice:? 252-328-9420???? Fax:? 252-328-6283
?
|
This email originated from outside ECU.
|
?
Are all decongestants vasoconstrictors? Honestly have no idea.??
My NO's have always instructed -no vasoconstrictors.?
?
On Mon, Nov 28, 2022, 4:36 PM Bobbie James <rrjames61@...> wrote:
Wondering where you got that advice.? My NO has never said I can't take a decongestant.?
?
You can not take decongestants.
-------- Original message --------
Date: 11/28/22 12:00 PM (GMT-08:00)
Subject: [NAION] Flu and NAION
Hi all,
I started with flu-like symptoms today, including a low-grade fever. Any thoughts on what I can and cannot take for treatment? I was diagnosed with NAION in my right eye in May of 2021.
Thanks,
Joyce
|
Cool.? Do you use a neti pot?
One thing you do is wash out your nose.? I use NeilMed sinus rinse.
-------- Original message -------- Date: 11/28/22 4:19 PM (GMT-08:00) Subject: Re: [NAION] Flu and NAION
I did some Googling and believe it to be true, so then the option is antihistamines?? Also read about the differences between the two.? I've learned a lot today... On Mon, Nov 28, 2022, 6:48 PM Wuensch, Karl Louis < WUENSCHK@...> wrote:
????????? I think it is true that all drugs effective as decongestants are vasoconstrictors.?
?
Karl L. Wuensch, Professor and ECU Scholar/Teacher, Dept. of Psychology
East Carolina University, Greenville NC? 27858-4353, USA,?
Voice:? 252-328-9420???? Fax:? 252-328-6283
?
|
This email originated from outside ECU.
|
?
Are all decongestants vasoconstrictors? Honestly have no idea.??
My NO's have always instructed -no vasoconstrictors.?
?
On Mon, Nov 28, 2022, 4:36 PM Bobbie James <rrjames61@...> wrote:
Wondering where you got that advice.? My NO has never said I can't take a decongestant.?
?
You can not take decongestants.
-------- Original message --------
Date: 11/28/22 12:00 PM (GMT-08:00)
Subject: [NAION] Flu and NAION
Hi all,
I started with flu-like symptoms today, including a low-grade fever. Any thoughts on what I can and cannot take for treatment? I was diagnosed with NAION in my right eye in May of 2021.
Thanks,
Joyce
|
One thing you do is wash out your nose.? I use NeilMed sinus rinse.
toggle quoted message
Show quoted text
-------- Original message -------- From: Bobbie James <rrjames61@...> Date: 11/28/22 4:19 PM (GMT-08:00) Subject: Re: [NAION] Flu and NAION
I did some Googling and believe it to be true, so then the option is antihistamines?? Also read about the differences between the two.? I've learned a lot today... On Mon, Nov 28, 2022, 6:48 PM Wuensch, Karl Louis < WUENSCHK@...> wrote:
????????? I think it is true that all drugs effective as decongestants are vasoconstrictors.?
?
Karl L. Wuensch, Professor and ECU Scholar/Teacher, Dept. of Psychology
East Carolina University, Greenville NC? 27858-4353, USA,?
Voice:? 252-328-9420???? Fax:? 252-328-6283
?
|
This email originated from outside ECU.
|
?
Are all decongestants vasoconstrictors? Honestly have no idea.??
My NO's have always instructed -no vasoconstrictors.?
?
On Mon, Nov 28, 2022, 4:36 PM Bobbie James <rrjames61@...> wrote:
Wondering where you got that advice.? My NO has never said I can't take a decongestant.?
?
You can not take decongestants.
-------- Original message --------
Date: 11/28/22 12:00 PM (GMT-08:00)
Subject: [NAION] Flu and NAION
Hi all,
I started with flu-like symptoms today, including a low-grade fever. Any thoughts on what I can and cannot take for treatment? I was diagnosed with NAION in my right eye in May of 2021.
Thanks,
Joyce
|
I did some Googling and believe it to be true, so then the option is antihistamines?? Also read about the differences between the two.? I've learned a lot today...
On Mon, Nov 28, 2022, 6:48 PM Wuensch, Karl Louis < WUENSCHK@...> wrote:
????????? I think it is true that all drugs effective as decongestants are vasoconstrictors.?
?
Karl L. Wuensch, Professor and ECU Scholar/Teacher, Dept. of Psychology
East Carolina University, Greenville NC? 27858-4353, USA,?
Voice:? 252-328-9420???? Fax:? 252-328-6283
?
|
This email originated from outside ECU.
|
?
Are all decongestants vasoconstrictors? Honestly have no idea.??
My NO's have always instructed -no vasoconstrictors.?
?
On Mon, Nov 28, 2022, 4:36 PM Bobbie James <rrjames61@...> wrote:
Wondering where you got that advice.? My NO has never said I can't take a decongestant.?
?
You can not take decongestants.
-------- Original message --------
Date: 11/28/22 12:00 PM (GMT-08:00)
Subject: [NAION] Flu and NAION
Hi all,
I started with flu-like symptoms today, including a low-grade fever. Any thoughts on what I can and cannot take for treatment? I was diagnosed with NAION in my right eye in May of 2021.
Thanks,
Joyce
|
????????? I think it is true that all drugs effective as decongestants are vasoconstrictors.?
?
Karl L. Wuensch, Professor and ECU Scholar/Teacher, Dept. of Psychology
East Carolina University, Greenville NC? 27858-4353, USA,?
Voice:? 252-328-9420???? Fax:? 252-328-6283
toggle quoted message
Show quoted text
From: [email protected] < [email protected]> On Behalf Of
Bobbie James via groups.io
Sent: Monday, November 28, 2022 5:09 PM
To: [email protected]
Subject: Re: [NAION] Flu and NAION
?
|
This email originated from outside ECU.
|
?
Are all decongestants vasoconstrictors? Honestly have no idea.??
My NO's have always instructed -no vasoconstrictors.?
?
On Mon, Nov 28, 2022, 4:36 PM Bobbie James <rrjames61@...> wrote:
Wondering where you got that advice.? My NO has never said I can't take a decongestant.?
?
You can not take decongestants.
-------- Original message --------
Date: 11/28/22 12:00 PM (GMT-08:00)
Subject: [NAION] Flu and NAION
Hi all,
I started with flu-like symptoms today, including a low-grade fever. Any thoughts on what I can and cannot take for treatment? I was diagnosed with NAION in my right eye in May of 2021.
Thanks,
Joyce
|
Are all decongestants vasoconstrictors? Honestly have no idea.??
My NO's have always instructed -no vasoconstrictors.?
On Mon, Nov 28, 2022, 4:36 PM Bobbie James < rrjames61@...> wrote: Wondering where you got that advice.? My NO has never said I can't take a decongestant.?
You can not take decongestants.
-------- Original message -------- Date: 11/28/22 12:00 PM (GMT-08:00) Subject: [NAION] Flu and NAION
Hi all, I started with flu-like symptoms today, including a low-grade fever. Any thoughts on what I can and cannot take for treatment? I was diagnosed with NAION in my right eye in May of 2021. Thanks, Joyce
|
My NO's have always instructed -no vasoconstrictors.?
On Mon, Nov 28, 2022, 4:36 PM Bobbie James < rrjames61@...> wrote: Wondering where you got that advice.? My NO has never said I can't take a decongestant.?
You can not take decongestants.
-------- Original message -------- Date: 11/28/22 12:00 PM (GMT-08:00) Subject: [NAION] Flu and NAION
Hi all, I started with flu-like symptoms today, including a low-grade fever. Any thoughts on what I can and cannot take for treatment? I was diagnosed with NAION in my right eye in May of 2021. Thanks, Joyce
|
Wondering where you got that advice.? My NO has never said I can't take a decongestant.?
You can not take decongestants.
-------- Original message -------- Date: 11/28/22 12:00 PM (GMT-08:00) Subject: [NAION] Flu and NAION
Hi all, I started with flu-like symptoms today, including a low-grade fever. Any thoughts on what I can and cannot take for treatment? I was diagnosed with NAION in my right eye in May of 2021. Thanks, Joyce
|
You can not take decongestants.
toggle quoted message
Show quoted text
-------- Original message -------- From: Joyce Forsberg <jforsberg127@...> Date: 11/28/22 12:00 PM (GMT-08:00) Subject: [NAION] Flu and NAION
Hi all, I started with flu-like symptoms today, including a low-grade fever. Any thoughts on what I can and cannot take for treatment? I was diagnosed with NAION in my right eye in May of 2021. Thanks, Joyce
|
Hi all,
I started with flu-like symptoms today, including a low-grade fever. Any thoughts on what I can and cannot take for treatment? I was diagnosed with NAION in my right eye in May of 2021.
Thanks,
Joyce
|
N.O. .. neuro-opthamologist .. the specialist for NAION .. as opposed to the average opthalmologist ..
In my case .. the managing opthalmologist immediately saw vision failure, and immediate ordered a CAT scan and ER exam .. super fast ..
Everyone should have such professional treatment...
On Fri, Nov 25, 2022 at 7:32 PM, Chiarina Blake <jc.blake2@...> wrote: Sorry. I don’t understand?
NT: if you don't mind me asking .. where is your N.O.? Mine is at University of Michigan/Ann Arbor
Thx.
On Friday, November 18, 2022 at 11:24:49 AM EST, Nancy Title < nancytitle1@...> wrote:
Couldn’t agree with you more.? I also had total knee replacement late August and my N.O. wrote notes to give the anesthesiologist and I had no problems.? I also had cataract surgery (done by my N.O.) on both eyes, 2 weeks apart ( I am bilateral) a couple years ago and I am so happy I did it. On Nov 18, 2022, at 7:34 AM, Eibhlin Fionn via <ourmissbrooks= [email protected]> wrote:
For what it's worth:
Total knee replacement late August. I am healing extremely well with no ill effects to my NAION (total loss in one eye in 2007) eye. Weekly PT continues on.
Spoke to anesthesia doctor a week before and also the attending hospital crew the day of.
The surgeon was well aware of my Naion diagnosis. Knee surgery is more stressful than hip surgery for obvious reasons but I have no regrets. The other knee was done in 2018 also with great success. I stupidly stalled on having my knees done for probably 10+ years due to fear of further vision loss.
I totally understand the fear of undergoing surgery for those of us with this non curable eye condition but sometimes you have to set that aside. With that said, I am more concerned about what cataract surgery's outcome might be down the road. But? I was assured that they don't use epinephrine any more.
"Courage!" said the lion. I hope this post prevents someone out there from postponing necessary
surgery due to similar fears. Quality of life factors in plus the ability to walk freely in this life.
|
Sorry. I don’t understand?
NT: if you don't mind me asking .. where is your N.O.? Mine is at University of Michigan/Ann Arbor
Thx.
On Friday, November 18, 2022 at 11:24:49 AM EST, Nancy Title < nancytitle1@...> wrote:
Couldn’t agree with you more.? I also had total knee replacement late August and my N.O. wrote notes to give the anesthesiologist and I had no problems.? I also had cataract surgery (done by my N.O.) on both eyes, 2 weeks apart ( I am bilateral) a couple years ago and I am so happy I did it. On Nov 18, 2022, at 7:34 AM, Eibhlin Fionn via <ourmissbrooks= [email protected]> wrote:
For what it's worth:
Total knee replacement late August. I am healing extremely well with no ill effects to my NAION (total loss in one eye in 2007) eye. Weekly PT continues on.
Spoke to anesthesia doctor a week before and also the attending hospital crew the day of.
The surgeon was well aware of my Naion diagnosis. Knee surgery is more stressful than hip surgery for obvious reasons but I have no regrets. The other knee was done in 2018 also with great success. I stupidly stalled on having my knees done for probably 10+ years due to fear of further vision loss.
I totally understand the fear of undergoing surgery for those of us with this non curable eye condition but sometimes you have to set that aside. With that said, I am more concerned about what cataract surgery's outcome might be down the road. But? I was assured that they don't use epinephrine any more.
"Courage!" said the lion. I hope this post prevents someone out there from postponing necessary
surgery due to similar fears. Quality of life factors in plus the ability to walk freely in this life.
|
Thank you for you words of wisdom. My vision is okay but hazy so I lose detail and clarity the further away something is and my near vision has been effected too. Contrast and detail are an issue for me but I noticed that depending on weather, time of day, my vision changes to either good or bad. Xxxx
A college friend works in machine vision, optics and lasers.? He said that, depending on a lot of factors, including angle & brightness, vision can have many factors? (e.g., color).
In general .. after a few months of NAION .. your brain will neurologically "adjust" to NAION .. and your vision should stabilize.??
Mine did .. first few months after my left eye went 35% dark .. I bumped into everything.
Much better, now .. ?
On Tuesday, November 22, 2022 at 10:26:25 PM EST, Chiarina Blake < jc.blake2@...> wrote:
Hi everyone.? Today, I am having a bad vision day.? Some days are good and some days are bad.? What causes this fluctuation in vision clarity as its most worrying and frustrating.? What can I do to stabilize it?? Thank You.?
|
I am not on Facebook but the person who ran
the trial is. His name is Valen Chia and
his page is
Someone could contact him about his clinical trial NCT03046693 and
ask what the
results showed.
Thank you.
On 11/23/2022 8:08 PM, Amy + Adam via
groups.io wrote:
toggle quoted message
Show quoted text
?
?
It has definitely been tried but the
results are equivocal because the studies have been small.
More generally, see drugs.com (or other similar):
Citicoline
Common Name(s):?CDP-choline, Citicoline, Cytidine
5′-diphosphocholine, Cytidine diphosphate-choline
?by
Drugs.com. Last updated on Nov 1, 2022.
Clinical
Overview
Use
Citicoline has been
investigated for the treatment of depression, schizophrenia,
stroke, Parkinson disease, brain injury, and cognitive
deficits (ie, mild to moderate dementia and Alzheimer
disease, cerebrovascular disorders), as well as for its
ophthalmologic effects. However,
clinical trial results have been inconsistent; therefore,
citicoline cannot be recommended for any indication.
?
The paper you referred to is not the best,
IMO. The NAION entries in Tables 2,3,and 4 for work by the
author of the review article are essentially identical. ?At
best, this is sloppy. But frankly, as a scientist who also has
NAION, it makes me pretty angry. ?
?
There is also ?
This clinical trial was completed in 2017, but has posted no
results (really, how long does it take to do the analysis on
and publish results from 38 individuals)..
?
It is cheap and probably can’t hurt. It
seems to have neuroprotective effect in rat models of
glaucoma. But I don’t see anyone prescribing it for any
neurodegenerative condition.
?
?
?
?
?
?
?
I guess he has not read the study. Have him
read it:
NAION is mentioned in table 2,3 and 4 and in section 3.2.
Dean
On 11/23/2022 10:24 AM, Bobbie James
wrote:
For what it's worth, my?NO at Hopkins
Wilmer Eye Institute said, "I have never heard of
citicoline being studied or "tried" for non-arteritic
anterior ischemic optic neuropathy."
?
On Wed, Nov 23, 2022 at 10:08 AM
Deane Williams <pyroartist@...>
wrote:
Citicoline is the only supplement I
am aware of that has been studied and has shown some
effect on NAION. It is very safe and inexpensive so
worth a try.
I would also strongly recommend vitamin D3. I take
5000 units a day and my vit D level tests at the high
end of the normal range. Most modern societies are
deficient in vitamin D because people no longer work
out in the sun all day but are inside offices and
factories. Sunshine is what creates vitamin D in your
skin. This deficiency has been shown to aggravate
several modern health problems including cancer.
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They claim a lot, and people with money sometimes chase them .. with few scientifically-rigorous outcomes.
Pass.
-----
On Thursday, November 24, 2022 at 04:37:04 AM EST, Medi Far <f.far977@...> wrote:
Some trials in Swiss and Germany claim we do it, I can't continue my life with old naion left and pion both.
I am unaware of any stem cell therapy that would aid NAION, which has elements of glaucoma. If that were the case, it would be on the front page of "The New York Times."
On Thursday, November 24, 2022 at 04:29:24 AM EST, Medi Far < f.far977@...> wrote:
Hi Do you want to do stem cell therapy? Or did you?
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