Re: Immunotherapy induced NAION
Hi Lisa, I first noticed a loss of vision in the bottom half of my left?eye on October 6, 2014, but I still had my central vision. ?3 1/2 weeks later I lost my central vision and on November 4,
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Scott MacCumber
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#982
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Re: Immunotherapy induced NAION
Idk.. this is so new for me I had 20/ 20 vision before this happened so I¡¯m not used to my eye being blurry. Maybe the eye has settled in. When I¡¯m outside it¡¯s different , when I close the
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Lisa f
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#981
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Re: Immunotherapy induced NAION
Lisa, I am not a doctor* so I don¡¯t know. Its just that I personally had not heard of progression going longer than a couple of weeks, and I know that there are some things that have similar
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Amy + Adam
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#980
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Re: Immunotherapy induced NAION
And PS, if my explanation wasn't clear before... that is very similar to what happened to me...partial darkness at the beginning, followed by full field of vision loss (the tissue paper effect) in the
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Bobbie James
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#979
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Re: Immunotherapy induced NAION
I think so. Mine was a couple weeks of changes before it settled into what I have now.
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Bobbie James
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#978
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Re: Immunotherapy induced NAION
Yes neurologist opthamology along with a team of neurologists before her in the ER at the Cleveland clinic. I had 2 mris and a cat scan. The part of my eye that wasn¡¯t affected was pretty clear 2
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Lisa f
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#977
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Re: Immunotherapy induced NAION
Hello Lisa-- Did you get diagnosed with NAION by a neuro-ophthalmologist or at least a retina specialist? Four weeks seems like a long time for things to still be getting worse. Take care, Adam Sent:
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Amy + Adam
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#976
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Re: Immunotherapy induced NAION
STAY HYDRATED! Diane Keasler Life is the school, love is the lesson.
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Diane Keasler
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#975
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Re: Immunotherapy induced NAION
Thanks for replying, I am just interested to know others experiences since I¡¯m going through that period now of waiting for stabilization to see what my vision is going to be like. I started 4 weeks
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Lisa f
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#974
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Re: Immunotherapy induced NAION- Migraines
Thanks so much, Clare, for sharing the events of your "perfect storm."? I find it so helpful to know what may have contributed to others' NAION onset and what might be good for me to avoid. Diane
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Diane Keasler
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#973
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Re: Immunotherapy induced NAION
No, it has never changed/gotten better once it stabilized after the swelling went down. That is, at the beginning it was dark at the top and I could see the bottom half. Now it's mostly not so dark
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Bobbie James
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#972
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Re: Immunotherapy induced NAION- Migraines
Hi All, I have had right sided migraines with and without aura's since I started BCP in my 20's.? My NAION is in my right eye.?The headaches (HA's) have lessened after menopause (I am now 61) but
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Clare C
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#971
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Re: Immunotherapy induced NAION
Bobbie, did your vison ever get better and if so how long before it did? Thanks, Brandi
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bdc@...
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#970
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Re: Immunotherapy induced NAION
Debra, I too have had migraines since my 30s, I'll say. I'm 61 now and had my NAION episode right after I turned 58. I sort of stopped having migraines when I hit menopause, but still get headaches on
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Bobbie James
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#969
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Re: Medications
You¡¯re right. No one knows for sure and it seems everyone¡¯s story is a little different. I took Amoxicillin and then two weeks later I got NAION. I¡¯ve been told it was a coincidence. Probably
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Joyce Forsberg
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#968
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Re: Medications
And no one knows if the ibuprofen or the cortisone shot had any effect either.
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GaryGBrown
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#967
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Re: Medications
Joyce, Given that NAION is a result of decreased oxygen to the optic nerve and my blood pressure was already in the low range as is yours, and no one knows how any medication will affect every single
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Diane Keasler
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#966
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Medications
Anyone have thoughts about antibiotics and other meds? I have NAION in my right eye. I¡¯ve just been prescribed Augmentin for a bad sinus infection. I was also prescribed Albuterol Sulfate and told
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Joyce Forsberg
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#965
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Re: Acupuncture!
TO ALL: The details of Joe's acupuncture procedure are contained in this link: https://www.healthcmi.com/Acupuncture-Continuing-Education-News/1482-acupuncture-improves-optic-neuropathy-patient-vision
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Deane Williams
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#964
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Re: Ischemic optic neuropathy
Hi,I have been following the thread re acupuncture protocols.Joe, might you resend the detailed list?as I¡¯m not finding it in the emails I¡¯ve received. I lost most of my vision, including
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Claudettelmt
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#963
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