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Re: Ischemic optic neuropathy
Hi?
As I mentioned in another thread I have a big blood pressure drop after eating and apparently one in three older people like me experience it. It's called postprandial hypotension . My doctor wasn't really familiar with it. My blood pressure when I visited my doctor previously was almost perfect so he had no reason to suspect I had blood pressure problems. Instead of eating 3 meals a day, I now have 6 smaller meals. |
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Re: Ischemic optic neuropathy
I think the main common thing with most of us the bundled veins and small disk. I also was in good health, but over weight. I lost 45 pounds and walk 5 miles every morning. My attack was in my left eye in 2005. I take 2000 mg omega 3 fish oil and a low dose aspirin everyday. This has worked for me, I continue to do most everything I always did. I have no central vision in my left eye, but 20/20 in my right eye.
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On Sunday, February 12, 2023, 12:16 PM, GaryGBrown via groups.io <bhmvol@...> wrote:
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Re: Ischemic optic neuropathy
Untreated high BP coupled with an undiagnosed moderate sleep apnea condition. Going on 16 years now without any further NAION recurrence. I now take BP meds with100% compliance using a CPAP machine. No other causal factors were found back in 2007 after a total NAION loss in my right eye. I am light skinned with western European background and that also did not help. |
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Re: Ischemic optic neuropathy
No, I have high BP and no anemia. My sleep study didn¡¯t mandate a cpap but I¡¯m on one anyway due to the suggestion of my NO. ?My cholesterol levels have always been below the suggested levels and I¡¯ve never taken the little blue pill (which are considered to possibly be a factor).?
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Re: Ischemic optic neuropathy
Oops, forgot no diabetes...? On Sun, Feb 12, 2023, 11:56 AM Bobbie James via <rrjames61=[email protected]> wrote:
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Re: Ischemic optic neuropathy
Lisa, I have none of the "usual" factors..no sleep apnea, no low blood pressure, no high cholesterol,? no hypertension, no anemia, no high blood pressure for which I take meds, no surgery, no Covid Vax, nothing...I was overweight by about 70 lbs for awhile, but at the time I was diagnosed at 58 I had just lost a bunch of weight (without any crazy meds or fad dieting).? Mine is only in one eye, and its like looking through tissue paper...pretty consistent since it happened 3 years ago...no change in vision.? Doc says my other eye has a "disk at risk," which I understand to mean my disk is a small space which increases the chances that if blood flow to that optic nerve is stopped, for whatever reason, and there is swelling it could happen again. I hope sharing my story helps you somehow...all the best,? Bobbie On Sat, Feb 11, 2023, 10:30 PM Lisa f <Lisabieznieks@...> wrote: How severe is your eye damage? Did the damage change at all in the weeks after initially noticed? |
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Re: Ischemic optic neuropathy
¿ªÔÆÌåÓýGood post Chiarina. Couldn¡¯t agree more with your post. Find most days you get some form of frustration from the lack of vision. As to what caused it not a clue I had never been fitter than I was when I had my first episode at 57. Driving wise much the same as you I only drive in day light and only places I¡¯m familiar with. This is allowed with an annual eye test from the British drivers licensing centreOn 12 Feb 2023, at 05:15, Chiarina Blake <jc.blake2@...> wrote:
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Re: Ischemic optic neuropathy
Hi LIsa.? Yes.? This is my story too.? I think it was 6 months for the eye to stabilize and then the sight you have is the sight you will live with.? Glasses have only helped me a little.? My vision is still a little blurry.? My doctor told me it won't get worse and may not get any better.? I can still see and do daily activities but I have had to give up my work as a teacher and I cannot drive long distances.? My vision is like looking through a dirty window or window mesh.? I hope all goes well with you.?? On Sun, Feb 12, 2023 at 1:26 PM Lisa f <Lisabieznieks@...> wrote: I was diagnosed four weeks ago. My right eye almost half is very blurry. I have sleep apnea and low blood pressure not due to meds. The only thing drs found after 2 cat scans. 1 mri is high cholesterol. Drs told me 6 weeks for eye to be stable for a new eye exam to get glasses. Does this scenario sound familiar to anyone? Sincerely, Lisa |
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Re: Ischemic optic neuropathy
¿ªÔÆÌåÓýThere is no single path.? My vision got better over time, but others not so much.? Everyone also has different level of damage.? It matters a lot where the damage is, central vision or not.? My doctor told me second attacks are rare because initial? damage is usally associated with having a disk at rist, crowded space behind the eye.? He said that the first attack usually frees up space reducing the risk of another.? ?Even so it is in the back of my mind.? I just try and keep it there. -------- Original message -------- From: Lisa f <Lisabieznieks@...> Date: 2/11/23 7:30 PM (GMT-08:00) Subject: Re: [NAION] Ischemic optic neuropathy |
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Re: Ischemic optic neuropathy
I was diagnosed four weeks ago. My right eye almost half is very blurry. I have sleep apnea and low blood pressure not due to meds. The only thing drs found after 2 cat scans. 1 mri is high cholesterol. Drs told me 6 weeks for eye to be stable for a new eye exam to get glasses. Does this scenario sound familiar to anyone? Sincerely, Lisa
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Re: Ischemic optic neuropathy
Hi there Paula.? I had severe Sleep apnea and refused to use a CPAP machine.? My blood pressure got very low at night because of it.? Optic nerve was starved of oxygen? and hence my situation.?? On Fri, Jan 20, 2023 at 9:41 AM Paula Mcglasson <paulam@...> wrote:
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Re: Ischemic optic neuropathy
Welcome and sorry to hear?that this has happened to you.? ?In general none of us knows why this happened to us because the medical community doesn't know why it happens.? I do hope you get some sight back.? I'll keep my fingers?crossed.?? On Sat, Feb 11, 2023, 11:54 AM <bdc@...> wrote: i take medicine to lower my BP but am anemic...i take iron but it doesn't do much good.? fixing to have a endoscope to make sure i'm not bleeding anywhere. |
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new member
hi everyone...i just joined yesterday.? i am very new to NAION...i am a 48 year old female and on dec 4th i discovered that i my vision was very blurry.? it took a few weeks, but the dr diagnosed me w/ NAION in both eyes. which i was told was pretty rare.
? i had 3 days of IV steroids in the hospital and had 2 months of oral steroids. the swelling has gone down some but my eye sight is currently 20/400 in both eyes.? this has absolutely changed my life...i can't drive or work.? ?reading glasses help me see a little better with my left eye.? my right eye only see's blurriness and my refraction test is a zero, so no corrective lens will help.? i'm so scared because the more research i do, the more i realize that i'm probably not going to get any better.? i know this is a waiting game and i just need to be patient but it's so hard.? it also scares me because they are not certain why this happened to me so it i don't know if this will happen again and loose more sight.?? |
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Re: Immunotherapy induced NAION
I've had MWA since age 8 and my neuro-opthamologist said my MWA or the triptans (to treat the migraine) could be a factor (amongst other possibilities) but there is no conclusive evidence. I also have postprandrial hypotension and just before the NAION onset had immunotherapy. All 4 of these things have been implicated but it's not known which one or which combination is responsible.
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Re: Immunotherapy induced NAION
Does anyone have any research?or experience with the connection between Migraines with or without Aura and NAION? I have had MWA's?since 23 years old (I am now 72; NAION in left eye preceded by MWA in lower left eye that would not go away). Going to top Headache Neurologist at Weil?Cornell in NYC who says there is some research but not enough?to make the connection yet. DEBRA BROWN-GROSSMAN, MPH, RDN, CDE Pediatric and Adolescent Nutrition Specialist Adult Nutrition and Weight Management Consultant 518-888-2929? ?fax: 518-751-2403 On Wed, Feb 1, 2023 at 12:49 PM Michele Bunch <bunch.michele@...> wrote:
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Re: Immunotherapy induced NAION
@Nancy Title "Do you know the cream you were prescribed?"
It was?Imiquimod but I cannot be sure it was a contributing factor. I was just "polling" other group members so see if there was a common denominator, that is, could immunotherapy be causing NAION for SOME people. Perhaps, immunotherapy could be an undiscovered factor? It's known that some immunotherapies?can cause neuropathy. Immunotherapy was not without its side effects for me. I experienced strange headaches, joint pain and nausea which stopped when I ceased the immunotherapy.? |
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Re: Immunotherapy induced NAION
¿ªÔÆÌåÓýNancy,Immunotherapy drugs almost always end with "...mab" which stands for monoclonal anti-body. You can look those up on to be sure they are not. On 2/1/2023 12:24 PM, Nancy Title
wrote:
Do you know the cream you were prescribed? |
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Re: Immunotherapy induced NAION
Hello,? Yes, please share which?Dermatological immunotherapy you used. A few weeks ago, I?completed a 12-day round of?Fluorouracil topical 5% that my NO pre-approved. I have not noticed any vision change, but my migraines have returned. Thank you, On Wed, Feb 1, 2023 at 12:25 PM Nancy Title <nancytitle1@...> wrote:
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