Re: Knee Replacement Surgery

#1918

I had an Inspire device implant in July. I sent the surgeon directions from my NO, discussed the points on the directions with the anesthesiologist and had no issues at all. ?I have an appointment February 4 with a surgeon regarding total knee replacement as well.?

Re: Question about the shingles vaccine

#1917

I have also had all of the Covid, RSV, pneumonia, and flu vaccines that were available to me. I plan on getting the shingles vaccine this month as well. Other than a slightly sore arm, no issues.

Paula

--

Professor Paula McGlasson?? She, Her, Hers

Chair & Production Manager, URI Theatre

(401) 874-2712 office

(401) 315-2227 home

(401) 743-1039 cell

paulam@...??

Re: Question about the shingles vaccine

#1916

I’ve had the shingles, pneumonia, influenza, RSV and COVID (3x) since NAION. ?I’ve not had an issue and will continue with them as needed.?

Question about the shingles vaccine

#1915

开云体育

Hi everyone,

Thank you all so much for all of your support and information on this wonderful group!

I have a question about the experiences people have had with the shingles vaccine and with any other vaccines.?

It is so hard to decide what to do about that! Any thoughts and information about your experiences would be greatly appreciated!

Thank you!

Amanda?

Re: Knee Replacement Surgery

#1914

开云体育

Jennifer, I have NAION in both sides plus diabetic retinopathy. I’m getting eye shots lasers, cataract removal and now I’m going for another operations on both eyes for retina possible detachment. I am 65. So have they told you why they aredoing the operation? Do you have diabetic retinopathy??

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On Jan 11, 2025, at 05:27, jen fire via groups.io <jennifire1@...> wrote:

?
Thank you for telling me your experience and glad all went well

Get

From: [email protected] <[email protected]> on behalf of Jareer Uri via groups.io <jareeruri.realty@...>
Sent: Saturday, January 11, 2025 6:27:48 PM
To: [email protected] <[email protected]>
Subject: Re: [NAION] Knee Replacement Surgery
?

I am a 44 year old male and I have naion in my right eye that happened to me after a really bad covid infection in July of 2021 that had me hospitalized for 5 days. I recently had 2 separate surgeries on both my feet both times requiring me to be on anesthesia my anesthesiologist informed me of the risks of another nation even happening but he said they would take measures to minimize and blood pressure problems. I went through both surgeries 3 months apart without any problems. But there is always a risk. I hope this helps.?

Re: Knee Replacement Surgery

#1913

开云体育

Thank you for telling me your experience and glad all went well

Get

Show quoted text

From: [email protected] <[email protected]> on behalf of Jareer Uri via groups.io <jareeruri.realty@...>
Sent: Saturday, January 11, 2025 6:27:48 PM
To: [email protected] <[email protected]>
Subject: Re: [NAION] Knee Replacement Surgery

?

I am a 44 year old male and I have naion in my right eye that happened to me after a really bad covid infection in July of 2021 that had me hospitalized for 5 days. I recently had 2 separate surgeries on both my feet both times requiring me to be on anesthesia my anesthesiologist informed me of the risks of another nation even happening but he said they would take measures to minimize and blood pressure problems. I went through both surgeries 3 months apart without any problems. But there is always a risk. I hope this helps.?

Re: Knee Replacement Surgery

#1912

I am a 44 year old male and I have naion in my right eye that happened to me after a really bad covid infection in July of 2021 that had me hospitalized for 5 days. I recently had 2 separate surgeries on both my feet both times requiring me to be on anesthesia my anesthesiologist informed me of the risks of another nation even happening but he said they would take measures to minimize and blood pressure problems. I went through both surgeries 3 months apart without any problems. But there is always a risk. I hope this helps.?

Re: Knee Replacement Surgery

#1911

I am having an operation under general anaesthetic in the next few weeks. No problems. No one has said, I can’t have the op.?

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On Sat, 11 Jan 2025 at 6:00?pm, jennifire1 via <jennifire1=[email protected]> wrote:

Dear Members

I am new to this group having been diagnosed with NAION peripheral vision loss in my left eye 6 months ago.

I would wecome hearing good news stories from those that have had knee replacement surgery which Iam scheduled to have 30th January. My anaesthetist (after receiving news from my ophthalmologist) of my condition is not willing to assist in the procedure even though under spinal epidural the risk of further vision loss was too high.

Iam apprehensive about NAION occuring in the unaffected eye. I am a healthy 65 yo woman. No diabetes or BP.?

?

New email address

#1910

Hi

Can the “caretaker” of this group please add my new address 

craigberelowitz@...

Thanks

Knee Replacement Surgery

#1909

Dear Members

I am new to this group having been diagnosed with NAION peripheral vision loss in my left eye 6 months ago.

I would wecome hearing good news stories from those that have had knee replacement surgery which Iam scheduled to have 30th January. My anaesthetist (after receiving news from my ophthalmologist) of my condition is not willing to assist in the procedure even though under spinal epidural the risk of further vision loss was too high.

Iam apprehensive about NAION occuring in the unaffected eye. I am a healthy 65 yo woman. No diabetes or BP.?

?

Re: James Nestor's book on improved breathing

#1907

开云体育

I read this book last year and it was an amazing read. Humans have discovered things thousands of years ago and then forgotten them and then re-discovered them several times. Live and learn.

On 11/28/2024 10:51 AM, Diane Keasler via groups.io wrote:

With sleep apnea often being a precursor to NAION, the information provided in James Nestor's Breath?could possibly naturally improve all our breathing and reduce some of our anxiety worrying if we will suffer another loss of vision.? The reported benefits of improved breathing are astounding and so encouraging!? It's also a very easy, informative, and entertaining read.

Diane Keasler

Life is the school, love is the lesson.

Virus-free.

Re: James Nestor's book on improved breathing

#1906

Thank you for the recommendation. ?Looking forward to the read. ?

?

Re: James Nestor's book on improved breathing

#1905

Thank you so much Diane. After your recommendation I put myself on the wait list for the audio version on my digital public library app, Libby.

-Debra B

Show quoted text

On Thu, Nov 28, 2024 at 7:52?AM Diane Keasler via <dlkeasler=[email protected]> wrote:

With sleep apnea often being a precursor to NAION, the information provided in James Nestor's Breath?could possibly naturally improve all our breathing and reduce some of our anxiety worrying if we will suffer another loss of vision.? The reported benefits of improved breathing are astounding and so encouraging!? It's also a very easy, informative, and entertaining read.

Diane Keasler

Life is the school, love is the lesson.

Re: James Nestor's book on improved breathing

#1904

Thanks, Diane. I just ordered it. Eileen

James Nestor's book on improved breathing

#1903

With sleep apnea often being a precursor to NAION, the information provided in James Nestor's Breath?could possibly naturally improve all our breathing and reduce some of our anxiety worrying if we will suffer another loss of vision.? The reported benefits of improved breathing are astounding and so encouraging!? It's also a very easy, informative, and entertaining read.

Diane Keasler

Life is the school, love is the lesson.

开云体育 in Pickleball

#1902

I've been playing Pickleball for 9 years, intermediate skills. ?My rally is still fine, but since my left eye NAION, I can no longer serve to save my life! ?I know it is a brain connection, but it is baffling to me.?

Any suggestions would be much appreciated!

Thank you kindly,

Lake

Re: NAION v eye stroke video

#1901

开云体育

EMAIL ADDRESS CHANGE

PLEASE NOTE

NEW EMAIL

craigberelowitz@...

Thank you

Terry Berelowitz?

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On 13 Nov 2024, at 01:26, Debra B via groups.io <debrownstein@...> wrote:

?
I found this YouTube video called “Understanding NAION vs. Eye Stroke: Key Differences, Similarities & Integrative Treatment Options”?

Description: In this video, we break down the similarities and differences between Non-Arteritic Anterior Ischemic Optic Neuropathy (NAION) and eye stroke (Retinal Artery Occlusion)—two serious ischemic conditions impacting vision. Both conditions involve restricted blood flow, sudden vision loss, and share common risk factors, but differ in anatomical location, affected structures, and prognosis.

I personally am seeing an Acupuncturist for my ankle tendon and it has helped me enormously. So while I am at my Acupuncturist my doctor treats my eyes and I feel like it is helping me prevent getting NAION in my second eye. Anyway I wish I had tried it when I had my first event but I was too scared that I might injure my eye further but seeing how noninvasive it is I am happy I am doing it now.

Best wishes for clearer vision,
Debra B

On Mon, Nov 11, 2024 at 2:37?PM Ruby via <rcroyhome=[email protected]> wrote:
I was told by my NO and my NP that some drs. would refer to my NAION as an eye stroke, but it is not considered to be one. That has come to pass.? I am having a difficult time finding info that states why it is not?? If the optic nerve is without blood/oxygen for a devastating amount of time and ceases to fully function, how is that not a stroke?
Thanks so much for ALL imput.

Re: NAION v eye stroke video

#1900

I found this YouTube video called “Understanding NAION vs. Eye Stroke: Key Differences, Similarities & Integrative Treatment Options”?

Description: In this video, we break down the similarities and differences between Non-Arteritic Anterior Ischemic Optic Neuropathy (NAION) and eye stroke (Retinal Artery Occlusion)—two serious ischemic conditions impacting vision. Both conditions involve restricted blood flow, sudden vision loss, and share common risk factors, but differ in anatomical location, affected structures, and prognosis.

I personally am seeing an Acupuncturist for my ankle tendon and it has helped me enormously. So while I am at my Acupuncturist my doctor treats my eyes and I feel like it is helping me prevent getting NAION in my second eye. Anyway I wish I had tried it when I had my first event but I was too scared that I might injure my eye further but seeing how noninvasive it is I am happy I am doing it now.

Best wishes for clearer vision,

Debra B

Show quoted text

On Mon, Nov 11, 2024 at 2:37?PM Ruby via <rcroyhome=[email protected]> wrote:

I was told by my NO and my NP that some drs. would refer to my NAION as an eye stroke, but it is not considered to be one. That has come to pass.? I am having a difficult time finding info that states why it is not?? If the optic nerve is without blood/oxygen for a devastating amount of time and ceases to fully function, how is that not a stroke?
Thanks so much for ALL imput.

Re: When did you know you had a disc-at-risk?

#1899

开云体育

Sobering comments - but very ?helpful to put in perspective. ? Think we all look for causes, reasons and what we (or someone) did wrong but I think you’re right. ? We’re just unlucky.?

Andrea?

Show quoted text

On 12 Nov 2024, at 11:12, Aloke Gupta via groups.io <gaurieyeclinic@...> wrote:

? Let me share with all of you that there are huge number of patients who can be said to have?disc at risk, but hardly anyone progresses to NAION.

This was found to be a retrospective common factor to patients suffering from NAION.

Even if you?had known this beforehand, you cannot to anything to prevent NAION, the pathophysiology of which is drop in blood pressure in vessels supplying to the optic nerves.

Don’t blame your Optometrist, Ophthalmologist or yourself for this condition.

We are just plain unlucky - that’s all. Nothing more, nothing less.

Hope this helps

Aloke

On Tuesday, November 12, 2024, 7:55 AM, Joseph W Harrison via groups.io <joeharrison1776@...> wrote:

Most of these posts about knowledge of NAION by professionals refer to "opticians" and "optometrists".? I don't think we can rely on their abilities in this field.? Only ophthalmologists? can be expected to understand, and I've encountered several of them that also lack knowledge.? My attack was 30 years ago, and the first ophthalmologist I went to see (a good friend) had no idea; he referred me to another one in the same city (Washington, DC).? That one misdiagnosed it and when that finally became evident to him, he referred me to yet another? -- who finally got it right.? But whoever assesses it, sadly sees it after the fact, too late.

On Mon, Nov 11, 2024 at 5:03?PM Diane Keasler via <dlkeasler=[email protected]> wrote:

COULDN'T AGREE MORE!

Diane Keasler

Life is the school, love is the lesson.

On Monday, November 11, 2024 at 05:47:56 PM EST, Tracey Dowsing via <thedowsinggirls=[email protected]> wrote:

Hi Ruby, I wasn’t told for ages. I saw references from other sufferers to crowded discs and so asked my optician whether this applied to me. She told me no. Later, when having further tests I was shown scan results of my optic nerve head and told that I definitely had 2 discs at risk. This was several months after my initial first episode of NAION. I get very frustrated at the lack of knowledge and expertise for our condition.
So difficult to get support and understanding, let alone useful advice.

On 11 Nov 2024, at 22:32, Ruby via <rcroyhome=[email protected]> wrote:

?
Hey folks, this may have been discussed previously, but I am curious as to when each of you discovered you had a disc-at-risk.
After my attack, I asked my optometrist,?if surgeon?would have discovered it during cataract surgery, and my optom said he already knew about it.? The more I think about the fact that he had had this information about my eye for some time and didn't share it with me, bothers me, and I feel like that is something all optometrists should let their patients in on.? That way, if we have any of the possible contributing factors, we would be more apt to act on them.

Re: When did you know you had a disc-at-risk?

#1898

Let me share with all of you that there are huge number of patients who can be said to have?disc at risk, but hardly anyone progresses to NAION.

This was found to be a retrospective common factor to patients suffering from NAION.

Even if you?had known this beforehand, you cannot to anything to prevent NAION, the pathophysiology of which is drop in blood pressure in vessels supplying to the optic nerves.

Don’t blame your Optometrist, Ophthalmologist or yourself for this condition.

We are just plain unlucky - that’s all. Nothing more, nothing less.

Hope this helps

Aloke

Show quoted text

On Tuesday, November 12, 2024, 7:55 AM, Joseph W Harrison via groups.io <joeharrison1776@...> wrote:

Most of these posts about knowledge of NAION by professionals refer to "opticians" and "optometrists".? I don't think we can rely on their abilities in this field.? Only ophthalmologists? can be expected to understand, and I've encountered several of them that also lack knowledge.? My attack was 30 years ago, and the first ophthalmologist I went to see (a good friend) had no idea; he referred me to another one in the same city (Washington, DC).? That one misdiagnosed it and when that finally became evident to him, he referred me to yet another? -- who finally got it right.? But whoever assesses it, sadly sees it after the fact, too late.

On Mon, Nov 11, 2024 at 5:03?PM Diane Keasler via <dlkeasler=[email protected]> wrote:
COULDN'T AGREE MORE!

Diane Keasler

Life is the school, love is the lesson.

On Monday, November 11, 2024 at 05:47:56 PM EST, Tracey Dowsing via <thedowsinggirls=[email protected]> wrote:

Hi Ruby, I wasn’t told for ages. I saw references from other sufferers to crowded discs and so asked my optician whether this applied to me. She told me no. Later, when having further tests I was shown scan results of my optic nerve head and told that I definitely had 2 discs at risk. This was several months after my initial first episode of NAION. I get very frustrated at the lack of knowledge and expertise for our condition.
So difficult to get support and understanding, let alone useful advice.

On 11 Nov 2024, at 22:32, Ruby via <rcroyhome=[email protected]> wrote:

?
Hey folks, this may have been discussed previously, but I am curious as to when each of you discovered you had a disc-at-risk.
After my attack, I asked my optometrist,?if surgeon?would have discovered it during cataract surgery, and my optom said he already knew about it.? The more I think about the fact that he had had this information about my eye for some time and didn't share it with me, bothers me, and I feel like that is something all optometrists should let their patients in on.? That way, if we have any of the possible contributing factors, we would be more apt to act on them.