Re: digital magnifiers for visually impaired
I bought an Amazon Fire HD tablet to use as a reader. ?The screen is much larger and the cost is similar to a regular Kindle. It works very much the same way.?
|
NO-COST MAGNIFYER -- HARVARD AFFILATE HOSPITAL
https://masseyeandear.org/makeagift/supervision
|
Re: digital magnifiers for visually impaired
Thank you so much I will be getting the hands free magnifier from Vision Australia. Very useful. Can I ask if any one uses Kindle to read books with? If so, which one??
|
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Re: Top 5 Low Vision Magnifiers
toggle quoted message
Show quoted text
Top 5 Low Vision Magnifiers by Admin December 24, 2024 Devices 10 Min Read Facebook Twitter Youtube Maya Williams Living with low vision can turn the simplest o… Source: Vision Buddy - Wearable Glasses for Legally Blind
|
I'm thinking that perhaps there may be an initial swelling of the optic nerve which could be brought on by severe pain, or anything else, that might disrupt the normal flow of blood to the optic nerve.? If the initial vision loss isn't significant, we could possibly compensate for it, not realizing we're having problems with our vision.? And then there might later be another disruption of blood flow which brings on the major loss of vision.?
Is it believed that high BP can create a clot, due to the small cup/disc ratio, which reduces the blood flow as does a decrease in BP??
On Sun, Mar 9, 2025 at 2:08?PM Pamela Chadick via <apchadick88= [email protected]> wrote: It’s so interesting reading these responses and it’s a bit of a relief to hear other stories that are so similar to what I’ve experienced. I find that there just aren’t many people who understand what NAION looks like. It’s difficult to explain what I actually see and I really don’t talk about it with many people My doctor in 2005 said that, depending on the nerves damaged and the amount of damage, each persons vision is unique to them. I will say there wasn’t pain in either episode. Both times were just sudden vision loss, heavy steroids to try to stop inflammation, and then the adjustment period. My second episode happened February 12, so I’m still in adjustment, seeing where it settles.? So my question is: what things have any of you found that help? Glasses do help some, but I switch back and forth between prescription, readers, magnifying, etc. Are there any out there that are a big help? What resources? I’m a librarian, so I know there is a free app for audiobooks through a government program. Just trying to navigate this situation and am eager to uncover anything and everything that might be of assistance.? ? I participated in a covid vaccine trial early in the COVID days and have had 4 boosters since without any issues.? I have flown on overseas trips, no problems, had surgery, no problems, had a cpap and then inspire when my AHI was within reason.? At the time of NAION I was and had been taking daily 325mg ASA for decades to the point I bruised and bled easily. My blood pressure tends to run higher and my cholesterol levels are very low. As far as I can tell, most of the “possible” factors causing NAION are not well defined and are at this point questionable.?
-- Diane Keasler DLKeasler@...
Life is the school, love is the lesson.
|
HARVARD AFFILIATE no cost magnifying app
https://masseyeandear.org/makeagift/supervision
|
|
|
digital magnifiers for visually impaired
|
Top 5 Low Vision Magnifiers
Top 5 Low Vision Magnifiers by Admin December 24, 2024 Devices 10 Min Read Facebook Twitter Youtube Maya Williams Living with low vision can turn the simplest o… Source: Vision Buddy - Wearable Glasses for Legally Blind
|
Re: NAION or actually a case of ocular shingles?
The pain I mentioned was maybe two years prior to NAION and specifically a couple of months past a painful bout of shingles on my upper left torso. ?It was jaw pain, also on my left side and was diagnosed (misdiagnosed maybe) as trigeminal neuralgia. I had no pain whatsoever at the time of my NAION in my left eye. ?
|
Re: NAION or actually a case of ocular shingles?
I didn’t have severe pain prior to my episode. I had it after… painful eye movements up and to the sides.?
I had always gotten headaches and migraines behind my left eye only and that is also the same eye I eventually had my episode in. Everyone says is coincidence but it can’t be in my mind.
The painful eye movements is more of a sign of optic neuritis and not NAION, but the sudden vision loss was exactly how NAION presents.?
Still don’t know the exact cause of my vision loss and doubt I ever will.
On Sun, Mar 9, 2025 at 12:23?PM Deane Williams via <pyroartist= [email protected]> wrote:
Paul and Gary,
? You mentioned severe pain. That is not normally seen in most NAION
episodes. Most just wake up in the morning with lost vision and
don't report any pain.
So you may be on to something as both of you presented with severe
pain.
Dean
On 3/8/2025 10:28 AM, Paul Campano via
wrote:
I had my "attack" in early August of 2022-within a
month my vision decreased to 20/800 and has remained so until
now.? During the first 6 weeks of this episode, the pain was so
bad I could not put my head on the pillow-I thought I had a
severe ethmoid sinus infection that caused inflammation near the
optic nerve, but I could not get anyone to listen.? Finally, an
MRI in November did confirm that I did have some "congestion" in
the ethmoid sinus region, but the doctors didn't think it was
significant.
?
In February 2024, I had an
ocular shingles attack on the same side-the pain was unbearable
despite starting anti-viral therapy within 3 days of the
outbreak.? To this day I have numbness in the bridge of my nose,
right eyebrow, and right eyelid (my right eye had the NAION
attack).? I still must monitor my diet to avoid foods high in
arginine and I take 3 grams of lysine a day to reduce the risk
of another attack.? I cannot tolerate further anti-viral therapy
due to a sensitivity that leads to kidney inflammation.
?
In my research on my
condition, I have discovered that ocular shingles does not
always present with a rash-my neuro-ophthalmologist report on my
condition said he thought I had a small disk to cup ratio but
still wasn't 100% sure I had NAION.? Also, ocular shingles has a
very high rate of reoccurrence within 5 years and taking the
shingles vaccine increases that risk.? Could this have been a
shingles attack all along?
Paul
The two hardest tests on the spiritual road are the patience
to wait for the right moment and the courage not to be
disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be
pure, for there are those who care; I would be strong, for
there is much to suffer; I would be brave, for there is much
to dare-Howard Walter
?
?
?
1/ my case: during
mega-heavy workload, arguing with feds (ultimately involving
Mr. Obama's office), in 2015 .. NAION attack, LEFT eye, 30%
vision loss. Can still drive, if carefully.
?
2/ after a search, found
great N.O. at top medical school, USAF during Vietnam
(treated P.O.W. cases), published authority.
?
ON CATARACT SURGERY ..
N.O. advised, as much as possible, wait until ABSOLUTE last
minute. Much research about, said surgery, involved with
additional NAION attacks.
?
*** IN ANY EVENT .. IN ANY
MEDICAL TREATMENT .. ADVISE THAT NAION IS PRESENT.?
? ? ? ? ? KEEP REPEATING
-- NAION IS PRESENT.
?
? ? ? ? ? MANY PROVIDERS
HAVE A DIFFICULT TIME, LISTENING CAREFULLY.?
? ? ? ? ? PUT IT WRITING,
COPY TO THEIR LEGAL COUNSEL.
?
ON RETINAL TREATMENT ..
very small hole in RIGHT eye, just discovered. Now .. WAIT
& SEE. Medical school clinic, very aware, of stakes
involved.
?
To conclude: standand
order .. step by step, day by day. We're not going to live
forever.
?
On Wednesday, March 5, 2025 at 11:49:18 AM EST,
James Chevalley via
<jimchevalley@...> wrote: ?
?
There is so little known about NAION.?
And the info we gave seems full of
contradictions.? Like no anesthesia, or no flying,
scuba diving. Even some face lotions used for
Rosecia suggest a problem . Novacaine at the
dentist. The list seems endless. With so few
patients there is no money ear marked for
research. I wish there were more clear answers . I
also think there should be a screening of the
optic nerve during an eye exam that would give
people a heads up if they were prone to this
problem.? I'm 72 and have been to the eye doctor
every year for an eye exam since I was 10 years
old. Even after a retina tear on both eyes and a
vistrectomy I was NEVER told about NAION till it
happened 9 days after I had the 2nd vistrectomy.?
??? All the tests and MRIs after the fact they
claim my BP dropped too far .? ?? Very gut
wrenching..
On Tue, Mar 4, 2025, 3:55 PM Pamela
Chadick via
<apchadick88= [email protected]>
wrote:
Exactly! The most difficult thing is not
knowing, or being able to prevent. I’ve been
hypervigilant about protecting my left eye
over the years and have been told that the
chances of it occurring in that eye were slim.
At this point, I’m most interested in finding
out what people are doing to better the
situation. Glasses, tools, computer screens
for easier reading, etc. I’ve been very
fortunate for 20 year in that my left eye was
so strong. Although, I’m not sure where
everything will settle, I can see pretty well
straight ahead with my left eye, Lost the
lower 1/3 and peripheral.
?
Pamela, so sorry to learn your
left eye now, after 20 years!, has
had a NAION attack.
?
I'm wondering, though you
don't have any of the typical
risk factors other than the
biggie, small cup to disc ratio,
if prior to this recent event,
you had something that
significantly either raised your
BP such as significant pain or
something that could have caused
a drop in blood pressure such as
dehydration?? It is so hard not
knowing what can be a trigger.?
?
Diane Keasler
?
Hello. I am no
longer using this email. Please
update your contacts and use DLKeasler@...
?
919-968-0099
?
THANK
YOU!!!
Life is the school, love is
the lesson.
?
?
On Tuesday, March 4, 2025 at
02:24:18 PM EST, Pamela Chadick via
<apchadick88= [email protected]>
wrote: ?
?
Hello,
I also have NAION in both
eyes. The first time when I
was 41in my right eye and most
recently 3 weeks ago in my
left eye. I'm now 61. I also
have small cup to disc ration
in both eyes. No diabetes, no
blood pressure problems,
really none of the risk
factors that others sometimes
have. I saw a dr. in Mobile,
Al who specializes in optic
nerve issues and she did
something interesting that she
said she's had good success
with . She prescribed a solu
medrol that I mixed with water
and drank every morning for a
few days and then I've been
taken 50 mg of prednisone for
the past 11 days. I'll start
tapering off tomorrow. My
doctor 20 years ago, who has
passed, prescribed the IV
steroids right away. I don't
have risk factors so the
steroids have been okay, and,
although I've been told that
there's no proof it helps
reduce the swelling in the
optic nerve, it helps me to
know that we're doing
something.
?
?
?
|
It’s so interesting reading these responses and it’s a bit of a relief to hear other stories that are so similar to what I’ve experienced. I find that there just aren’t many people who understand what NAION looks like. It’s difficult to explain what I actually see and I really don’t talk about it with many people My doctor in 2005 said that, depending on the nerves damaged and the amount of damage, each persons vision is unique to them. I will say there wasn’t pain in either episode. Both times were just sudden vision loss, heavy steroids to try to stop inflammation, and then the adjustment period. My second episode happened February 12, so I’m still in adjustment, seeing where it settles.? So my question is: what things have any of you found that help? Glasses do help some, but I switch back and forth between prescription, readers, magnifying, etc. Are there any out there that are a big help? What resources? I’m a librarian, so I know there is a free app for audiobooks through a government program. Just trying to navigate this situation and am eager to uncover anything and everything that might be of assistance.?
toggle quoted message
Show quoted text
On Mar 9, 2025, at 11:34?AM, GaryGBrown via groups.io <bhmvol@...> wrote:
? I participated in a covid vaccine trial early in the COVID days and have had 4 boosters since without any issues. ?I have flown on overseas trips, no problems, had surgery, no problems, had a cpap and then inspire when my AHI was within reason. ?At the time of NAION I was and had been taking daily 325mg ASA for decades to the point I bruised and bled easily. My blood pressure tends to run higher and my cholesterol levels are very low. As far as I can tell, most of the “possible” factors causing NAION are not well defined and are at this point questionable.?
|
I participated in a covid vaccine trial early in the COVID days and have had 4 boosters since without any issues. ?I have flown on overseas trips, no problems, had surgery, no problems, had a cpap and then inspire when my AHI was within reason. ?At the time of NAION I was and had been taking daily 325mg ASA for decades to the point I bruised and bled easily. My blood pressure tends to run higher and my cholesterol levels are very low. As far as I can tell, most of the “possible” factors causing NAION are not well defined and are at this point questionable.?
|
Re: NAION or actually a case of ocular shingles?
Paul and Gary,
? You mentioned severe pain. That is not normally seen in most NAION
episodes. Most just wake up in the morning with lost vision and
don't report any pain.
So you may be on to something as both of you presented with severe
pain.
Dean
On 3/8/2025 10:28 AM, Paul Campano via
groups.io wrote:
toggle quoted message
Show quoted text
I had my "attack" in early August of 2022-within a
month my vision decreased to 20/800 and has remained so until
now. ?During the first 6 weeks of this episode, the pain was so
bad I could not put my head on the pillow-I thought I had a
severe ethmoid sinus infection that caused inflammation near the
optic nerve, but I could not get anyone to listen. ?Finally, an
MRI in November did confirm that I did have some "congestion" in
the ethmoid sinus region, but the doctors didn't think it was
significant.
?
In February 2024, I had an
ocular shingles attack on the same side-the pain was unbearable
despite starting anti-viral therapy within 3 days of the
outbreak. ?To this day I have numbness in the bridge of my nose,
right eyebrow, and right eyelid (my right eye had the NAION
attack). ?I still must monitor my diet to avoid foods high in
arginine and I take 3 grams of lysine a day to reduce the risk
of another attack. ?I cannot tolerate further anti-viral therapy
due to a sensitivity that leads to kidney inflammation.
?
In my research on my
condition, I have discovered that ocular shingles does not
always present with a rash-my neuro-ophthalmologist report on my
condition said he thought I had a small disk to cup ratio but
still wasn't 100% sure I had NAION. ?Also, ocular shingles has a
very high rate of reoccurrence within 5 years and taking the
shingles vaccine increases that risk. ?Could this have been a
shingles attack all along?
Paul
The two hardest tests on the spiritual road are the patience
to wait for the right moment and the courage not to be
disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be
pure, for there are those who care; I would be strong, for
there is much to suffer; I would be brave, for there is much
to dare-Howard Walter
?
?
?
1/ my case: during
mega-heavy workload, arguing with feds (ultimately involving
Mr. Obama's office), in 2015 .. NAION attack, LEFT eye, 30%
vision loss. Can still drive, if carefully.
?
2/ after a search, found
great N.O. at top medical school, USAF during Vietnam
(treated P.O.W. cases), published authority.
?
ON CATARACT SURGERY ..
N.O. advised, as much as possible, wait until ABSOLUTE last
minute. Much research about, said surgery, involved with
additional NAION attacks.
?
*** IN ANY EVENT .. IN ANY
MEDICAL TREATMENT .. ADVISE THAT NAION IS PRESENT.?
? ? ? ? ? KEEP REPEATING
-- NAION IS PRESENT.
?
? ? ? ? ? MANY PROVIDERS
HAVE A DIFFICULT TIME, LISTENING CAREFULLY.?
? ? ? ? ? PUT IT WRITING,
COPY TO THEIR LEGAL COUNSEL.
?
ON RETINAL TREATMENT ..
very small hole in RIGHT eye, just discovered. Now .. WAIT
& SEE. Medical school clinic, very aware, of stakes
involved.
?
To conclude: standand
order .. step by step, day by day. We're not going to live
forever.
?
On Wednesday, March 5, 2025 at 11:49:18 AM EST,
James Chevalley via groups.io
<jimchevalley@...> wrote: ?
?
There is so little known about NAION.?
And the info we gave seems full of
contradictions.? Like no anesthesia, or no flying,
scuba diving. Even some face lotions used for
Rosecia suggest a problem . Novacaine at the
dentist. The list seems endless. With so few
patients there is no money ear marked for
research. I wish there were more clear answers . I
also think there should be a screening of the
optic nerve during an eye exam that would give
people a heads up if they were prone to this
problem.? I'm 72 and have been to the eye doctor
every year for an eye exam since I was 10 years
old. Even after a retina tear on both eyes and a
vistrectomy I was NEVER told about NAION till it
happened 9 days after I had the 2nd vistrectomy.?
??? All the tests and MRIs after the fact they
claim my BP dropped too far .? ?? Very gut
wrenching..
On Tue, Mar 4, 2025, 3:55 PM Pamela
Chadick via
<apchadick88= [email protected]>
wrote:
Exactly! The most difficult thing is not
knowing, or being able to prevent. I’ve been
hypervigilant about protecting my left eye
over the years and have been told that the
chances of it occurring in that eye were slim.
At this point, I’m most interested in finding
out what people are doing to better the
situation. Glasses, tools, computer screens
for easier reading, etc. I’ve been very
fortunate for 20 year in that my left eye was
so strong. Although, I’m not sure where
everything will settle, I can see pretty well
straight ahead with my left eye, Lost the
lower 1/3 and peripheral.
?
Pamela, so sorry to learn your
left eye now, after 20 years!, has
had a NAION attack.
?
I'm wondering, though you
don't have any of the typical
risk factors other than the
biggie, small cup to disc ratio,
if prior to this recent event,
you had something that
significantly either raised your
BP such as significant pain or
something that could have caused
a drop in blood pressure such as
dehydration?? It is so hard not
knowing what can be a trigger.?
?
Diane Keasler
?
Hello. I am no
longer using this email. Please
update your contacts and use DLKeasler@...
?
919-968-0099
?
THANK
YOU!!!
Life is the school, love is
the lesson.
?
?
On Tuesday, March 4, 2025 at
02:24:18 PM EST, Pamela Chadick via
<apchadick88= [email protected]>
wrote: ?
?
Hello,
I also have NAION in both
eyes. The first time when I
was 41in my right eye and most
recently 3 weeks ago in my
left eye. I'm now 61. I also
have small cup to disc ration
in both eyes. No diabetes, no
blood pressure problems,
really none of the risk
factors that others sometimes
have. I saw a dr. in Mobile,
Al who specializes in optic
nerve issues and she did
something interesting that she
said she's had good success
with . She prescribed a solu
medrol that I mixed with water
and drank every morning for a
few days and then I've been
taken 50 mg of prednisone for
the past 11 days. I'll start
tapering off tomorrow. My
doctor 20 years ago, who has
passed, prescribed the IV
steroids right away. I don't
have risk factors so the
steroids have been okay, and,
although I've been told that
there's no proof it helps
reduce the swelling in the
optic nerve, it helps me to
know that we're doing
something.
?
?
?
|
Wow so many of the same stories. I am in Louisville KY. Age 68. Woke up one morning in late June of 2024 and vision blurred. Called PCP she said coul be allergies. Ok I had regular ophthalmologist appointment in two weeks, so would discuss if still issue. On July 15 He immediately sent me to ER. Just told me optic nerve enlarged. ?
Two days later and “lots” of test, , no resolution. Went back to ophthalmologist-vision still blurred and left eye worse than right eye.? Yep both eyes.? He sent me on to a more specialized ophthalmologist.? She did more tests. After three months with her, she sent me to a neuro- ophthalmologist.? His conclusion January 2025) was NAION and I had stabilized.? Peripheral vision in right eye a little better left about the same. Thankfully my vision is not too bad. I can drive. Reading and close up work sucks!!!? Lighting is my friend.? I got new lamps and makeup mirror, a girl has to see her face LOL.?
My PCP changed my meds that can mess with BP, they said I had multiple factors that could cause this. My BP is very low. Sleep Apnea(controlled) and T2D (controlled) not insulin dependent.?
So just learning to deal with vision loss and pray no more episodes.?
CLC Go Big Blue Nation
On Sun, Mar 9, 2025 at 11:13?AM Terry Berelowitz via <craigberelowitz= [email protected]> wrote:
Hi. Really appreciate all the sharing. I was 64 when I got it. Now, 66 THOROUGHLY understand and empathize, since the same thing happened to me two months ago. Frightening. May I ask your age? I say that because I’m thankful that at least I am 79 years old. I feel for persons to whom this has happened earlier in their lives. This is the first non-treatable condition with which I have been afflicted, and driving is if-ier for sure, and I will hesitate to drive in strange or crowded environs. Another huge impact for me is that I have been near-sighted or “monovision” (through cataract surgeries 8 years apart-one near, one far, and presto! No glasses!) my whole life. Now, because NAION affected my near-sighted right eye, I’m having to grab reading glasses to read ANYTHING!
AOW Ponte Vedra Beach, FL On Mar 9, 2025, at 08:04, Terry Berelowitz via <craigberelowitz= [email protected]> wrote:
Hullo All
I’m writing from Cape Town , South Africa. I lost most of the useful vision in my right eye from NAION July 22.?
First misdiagnosed, but after careful choice I got a speedy, 3 minute diagnosis from my second ophthalmologist.?
She, and many others talked about a gradual acceptance and accommodation. In a fashion this has come about.?
But, I continue weekly, at times daily to be very aware of my NAION.? The practical issues whilst driving. Suddenly finding someone entered the room and I never saw them. Not realising some that was sitting alongside me, actually had left the couch. Every now and then checking that in fact there was improvement, when there definitely wasn’t. Imagining that the good eye was showing subtle signs. Scared shit less that one day the right eye would be inflicted ,periodically imagining not being able to see at all. Frustrated that others can’t understand what it’s like to have suddenly lost vision. After all, I look healthy.?
I would love to hear the groups sentiments and experiences.?
Many thanks?
Terry BERELOWITZ? Reminder: ALL pharms should be treated with caution ..
|
I was 57, now i'm 60.
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
toggle quoted message
Show quoted text
On 03/09/2025 11:13 AM EDT Terry Berelowitz via groups.io <craigberelowitz@...> wrote:
?
?
Hi. Really appreciate all the sharing. I was 64 when I got it. Now, 66
THOROUGHLY understand and empathize, since the same thing happened to me two months ago. Frightening. May I ask your age? I say that because I’m thankful that at least I am 79 years old. I feel for persons to whom this has happened earlier in their lives. This is the first non-treatable condition with which I have been afflicted, and driving is if-ier for sure, and I will hesitate to drive in strange or crowded environs. Another huge impact for me is that I have been near-sighted or “monovision” (through cataract surgeries 8 years apart-one near, one far, and presto! No glasses!) my whole life. Now, because NAION affected my near-sighted right eye, I’m having to grab reading glasses to read ANYTHING!
?
AOW
Ponte Vedra Beach, FL
On Mar 9, 2025, at 08:04, Terry Berelowitz via <craigberelowitz= [email protected]> wrote:
Hullo All
?
I’m writing from Cape Town , South Africa. I lost most of the useful vision in my right eye from NAION July 22.?
?
First misdiagnosed, but after careful choice I got a speedy, 3 minute diagnosis from my second ophthalmologist.?
?
She, and many others talked about a gradual acceptance and accommodation. In a fashion this has come about.?
?
But, I continue weekly, at times daily to be very aware of my NAION.? The practical issues whilst driving. Suddenly finding someone entered the room and I never saw them. Not realising some that was sitting alongside me, actually had left the couch. Every now and then checking that in fact there was improvement, when there definitely wasn’t. Imagining that the good eye was showing subtle signs. Scared shit less that one day the right eye would be inflicted ,periodically imagining not being able to see at all. Frustrated that others can’t understand what it’s like to have suddenly lost vision. After all, I look healthy.?
?
I would love to hear the groups sentiments and experiences.?
?
Many thanks?
?
Terry BERELOWITZ?
Reminder: ALL pharms should be treated with caution ..
?
?
?
?
?
|
Hi. Really appreciate all the sharing. I was 64 when I got it. Now, 66
THOROUGHLY understand and empathize, since the same thing happened to me two months ago. Frightening. May I ask your age? I say that because I’m thankful that at least I am 79 years old. I feel for persons to whom this has happened earlier in their lives. This is the first non-treatable condition with which I have been afflicted, and driving is if-ier for sure, and I will hesitate to drive in strange or crowded environs. Another huge impact for me is that I have been near-sighted or “monovision” (through cataract surgeries 8 years apart-one near, one far, and presto! No glasses!) my whole life. Now, because NAION affected my near-sighted right eye, I’m having to grab reading glasses to read ANYTHING!
AOW Ponte Vedra Beach, FL On Mar 9, 2025, at 08:04, Terry Berelowitz via <craigberelowitz= [email protected]> wrote:
Hullo All
I’m writing from Cape Town , South Africa. I lost most of the useful vision in my right eye from NAION July 22.?
First misdiagnosed, but after careful choice I got a speedy, 3 minute diagnosis from my second ophthalmologist.?
She, and many others talked about a gradual acceptance and accommodation. In a fashion this has come about.?
But, I continue weekly, at times daily to be very aware of my NAION.? The practical issues whilst driving. Suddenly finding someone entered the room and I never saw them. Not realising some that was sitting alongside me, actually had left the couch. Every now and then checking that in fact there was improvement, when there definitely wasn’t. Imagining that the good eye was showing subtle signs. Scared shit less that one day the right eye would be inflicted ,periodically imagining not being able to see at all. Frustrated that others can’t understand what it’s like to have suddenly lost vision. After all, I look healthy.?
I would love to hear the groups sentiments and experiences.?
Many thanks?
Terry BERELOWITZ? Reminder: ALL pharms should be treated with caution ..
|
THOROUGHLY understand and empathize, since the same thing happened to me two months ago. Frightening. May I ask your age? I say that because I’m thankful that at least I am 79 years old. I feel for persons to whom this has happened earlier in their lives. This is the first non-treatable condition with which I have been afflicted, and driving is if-ier for sure, and I will hesitate to drive in strange or crowded environs. Another huge impact for me is that I have been near-sighted or “monovision” (through cataract surgeries 8 years apart-one near, one far, and presto! No glasses!) my whole life. Now, because NAION affected my near-sighted right eye, I’m having to grab reading glasses to read ANYTHING!
AOW
toggle quoted message
Show quoted text
On Mar 9, 2025, at 08:04, Terry Berelowitz via groups.io <craigberelowitz@...> wrote:
Hullo All
I’m writing from Cape Town , South Africa. I lost most of the useful vision in my right eye from NAION July 22.?
First misdiagnosed, but after careful choice I got a speedy, 3 minute diagnosis from my second ophthalmologist.?
She, and many others talked about a gradual acceptance and accommodation. In a fashion this has come about.?
But, I continue weekly, at times daily to be very aware of my NAION.? The practical issues whilst driving. Suddenly finding someone entered the room and I never saw them. Not realising some that was sitting alongside me, actually had left the couch. Every now and then checking that in fact there was improvement, when there definitely wasn’t. Imagining that the good eye was showing subtle signs. Scared shit less that one day the right eye would be inflicted ,periodically imagining not being able to see at all. Frustrated that others can’t understand what it’s like to have suddenly lost vision. After all, I look healthy.?
I would love to hear the groups sentiments and experiences.?
Many thanks?
Terry BERELOWITZ? Reminder: ALL pharms should be treated with caution ..
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Hi Terry,
My NAION event happened to my right eye in August 2022--my vision is 20/800. ?I still have peripheral vision but cannot read at all with the right eye.
Having lost depth perception, driving has become difficult-I rarely drive at night; too many close calls. ?It took about 6 months before my brain adjusted and I could easily trim my fingernails. ?Support from the medical community was non-existent--extremely frustrating. ?I'm using supplements to thin my blood, worried that a tendency to clot might be the reason for my condition, but that is just a guess. ?I never had the covid vaccine (but I had covid twice), but it has been shown to increase the risk of retinal vein occlusion--while that is a different condition from NAION, it also leads to blindness and also involves blockage of blood vessels feeding a structure required for sight. ?The people at the retinal specialist office told me if I did have the vaccine, i'd probably be totally blind!
Friends and family always ask if i've had any improvement, but the answer is no. ?It's been a difficult, lonely, frustrating road--my faith in God is what keeps me going. ?I've learned so much more from this message board than from any other source, including my specialists-at least i'm not alone. ?I keep all of you in my prayers-God bless and reach out when you need too-there are many great and brave people on this site who support you 100%.
Paul
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
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On 03/09/2025 8:04 AM EDT Terry Berelowitz via groups.io <craigberelowitz@...> wrote:
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Hullo All
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I’m writing from Cape Town , South Africa. I lost most of the useful vision in my right eye from NAION July 22.?
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First misdiagnosed, but after careful choice I got a speedy, 3 minute diagnosis from my second ophthalmologist.?
?
She, and many others talked about a gradual acceptance and accommodation. In a fashion this has come about.?
?
But, I continue weekly, at times daily to be very aware of my NAION.? The practical issues whilst driving. Suddenly finding someone entered the room and I never saw them. Not realising some that was sitting alongside me, actually had left the couch. Every now and then checking that in fact there was improvement, when there definitely wasn’t. Imagining that the good eye was showing subtle signs. Scared shit less that one day the right eye would be inflicted ,periodically imagining not being able to see at all. Frustrated that others can’t understand what it’s like to have suddenly lost vision. After all, I look healthy.?
?
I would love to hear the groups sentiments and experiences.?
?
Many thanks?
?
Terry BERELOWITZ?
Reminder: ALL pharms should be treated with caution ..
?
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GaryGBrown
ReeRee