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I had thought NAAION essentially means ¡°blindness,¡± which is true in my case as I would estimate I¡¯ve lost at least 90% of my vision in the affected eye. But from reading here and elsewhere, I gather some people ¡°stabilize¡± at less drastic levels. Is this correct?
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My neuro ophthalmologist told me I was a perfect walking storm. Too many factors to point at one thing to cause this.?
Just glad I have stabilized.?
On Mon, Feb 17, 2025 at 9:49?AM Phil Moskowitz via <Pjmoskowitz= [email protected]> wrote: Devils advocate¡ how do you/they ¡°know¡± sleep apnea caused your NAION events? Did you have a puls ox or BP monitor on at night and they saw the dip?
Many people have sleep apnea and BP issues and never have NAION.?
Personally, I¡¯m not convinced that any one thing could have prevented my NAION. Seems to me that it¡¯s more like a lightening strike type event. While some factors may lead to being ¡°at risk¡± I haven¡¯t found one Dr who knows exactly why any of us have had a NAION event with 100% certainty.
On Sun, Feb 16, 2025 at 11:51?PM Chiarina Blake via <jc.blake2= [email protected]> wrote: Yes. Sleep apnea caused my NAIONz I left it untreated and had a drop in oxygen levels during the night. Starved my optic nerve.? How prevalent is steroid treatment after NAAION diagnosis? I¡¯ve had NAAION one month max, in one eye, triggered, I believe, by Ozempic, which I¡¯ve obviously stopped. Just had tests for carotid arteries, electrocardiogram and brain MRI without contrast, all negative. Have sleep apnea and type 2 dm, both well controlled. 79 years old.
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Devils advocate¡ how do you/they ¡°know¡± sleep apnea caused your NAION events? Did you have a puls ox or BP monitor on at night and they saw the dip?
Many people have sleep apnea and BP issues and never have NAION.?
Personally, I¡¯m not convinced that any one thing could have prevented my NAION. Seems to me that it¡¯s more like a lightening strike type event. While some factors may lead to being ¡°at risk¡± I haven¡¯t found one Dr who knows exactly why any of us have had a NAION event with 100% certainty.
On Sun, Feb 16, 2025 at 11:51?PM Chiarina Blake via <jc.blake2= [email protected]> wrote: Yes. Sleep apnea caused my NAIONz I left it untreated and had a drop in oxygen levels during the night. Starved my optic nerve.? How prevalent is steroid treatment after NAAION diagnosis? I¡¯ve had NAAION one month max, in one eye, triggered, I believe, by Ozempic, which I¡¯ve obviously stopped. Just had tests for carotid arteries, electrocardiogram and brain MRI without contrast, all negative. Have sleep apnea and type 2 dm, both well controlled. 79 years old.
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Yes. Sleep apnea caused my NAIONz I left it untreated and had a drop in oxygen levels during the night. Starved my optic nerve.?
How prevalent is steroid treatment after NAAION diagnosis? I¡¯ve had NAAION one month max, in one eye, triggered, I believe, by Ozempic, which I¡¯ve obviously stopped. Just had tests for carotid arteries, electrocardiogram and brain MRI without contrast, all negative. Have sleep apnea and type 2 dm, both well controlled. 79 years old.
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What is GLP? Thank you for your input. I ?was put in steroids drip as NAION affected my only good eye .? It reduced the swelling but I now have very minimal oedema left in the eye. My case was due to low ?blood pressure at night. Starved my optic nerve of oxygen. Now I am using a CPAP machine.?
On Mon, 17 Feb 2025 at 2:36?pm, George Ousler via <sailfishin= [email protected]> wrote:
Hi There,
I have had a NAION in both eyes. First happened in my right?eye at age 41 and then the left eye just a few months ago at age 49. I have small cup?to disc ratio on both eyes (crowded disc syndrome from birth). The first occurrence happened after starting a low dose of BP meds that I provably didn¡¯t need. I was taking it at night which was incorrect. My BP dropped lower than it should have between the medication and diurnal (evening lowering) changes. I lost about 35% of my vision in the lower inferior visual field (6 to 9 o'clock). Then I most recently lost vision inferiority (3 to 6 o¡¯clock) in my left eye after taking monjourno (GLP2 similar to ozempic) for about 6 months. My neuro ophthalmologist out of mass eye and ear?in Boston is convinced it is due to monjourno - he published his resesrch?on the topic. I also work in research for ophthalmology and I¡¯m happy to explain more as needed. But the use of steroids for a NAION is not well supported. It is usually used as a last ditch effort for those who have serious vision loss in both eyes. However there are few studies that show it does anything helpful. If you are a diabetic and have high BP it may not be worth the side efforts of steroids. Long story short the use of steroids have not helped but if you don¡¯t have diabetes or high BP there is no risk of trying steroids. They need to be at high doses early after the NAION.??I will say that the GLP2 are very dangerous for those of us who have had NAIONs. Do not use these?drugs!!! Please let me know if I can help. George?
On Sunday, February 16, 2025, 9:57 PM, aowats3 via <aowats3=[email protected]> wrote: How prevalent is steroid treatment after NAAION diagnosis? I¡¯ve had NAAION one month max, in one eye, triggered, I believe, by Ozempic, which I¡¯ve obviously stopped. Just had tests for carotid arteries, electrocardiogram and brain MRI without contrast, all negative. Have sleep apnea and type 2 dm, both well controlled. 79 years old.
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George I had my NAION event one year ago on my first day of retirement. Lost most all vision in my left eye. At week 5 the retinal specialist who took over for the ophthalmologist somewhat reluctantly prescribed a 15 day prednisone regiment. It did what it is supposed to do and reduced the swelling. It very well may have subsided on its own. I did regain some vision, I¡¯d say 15% or so. I also have crowded disc. This happened to my brother 10 years ago so I¡¯m guessing it may run in part of the family anyway. I was also on low dose BP that may not have been necessary but was taking in the morning.? The whole thing inspired me to build a website to address the emotional and psychological aspects of sudden vision loss. I would be interested in you opinion of it if you wouldn't mind.? |
Michael Brown
707-333-3024
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On Feb 16, 2025, at 7:36?PM, George Ousler via groups.io <sailfishin@...> wrote:
?
Hi There,
I have had a NAION in both eyes. First happened in my right?eye at age 41 and then the left eye just a few months ago at age 49. I have small cup?to disc ratio on both eyes (crowded disc syndrome from birth). The first occurrence happened after starting a low dose of BP meds that I provably didn¡¯t need. I was taking it at night which was incorrect. My BP dropped lower than it should have between the medication and diurnal (evening lowering) changes. I lost about 35% of my vision in the lower inferior visual field (6 to 9 o'clock). Then I most recently lost vision inferiority (3 to 6 o¡¯clock) in my left eye after taking monjourno (GLP2 similar to ozempic) for about 6 months. My neuro ophthalmologist out of mass eye and ear?in Boston is convinced it is due to monjourno - he published his resesrch?on the topic. I also work in research for ophthalmology and I¡¯m happy to explain more as needed. But the use of steroids for a NAION is not well supported. It is usually used as a last ditch effort for those who have serious vision loss in both eyes. However there are few studies that show it does anything helpful. If you are a diabetic and have high BP it may not be worth the side efforts of steroids. Long story short the use of steroids have not helped but if you don¡¯t have diabetes or high BP there is no risk of trying steroids. They need to be at high doses early after the NAION.??I will say that the GLP2 are very dangerous for those of us who have had NAIONs. Do not use these?drugs!!! Please let me know if I can help. George?
On Sunday, February 16, 2025, 9:57 PM, aowats3 via groups.io <aowats3@...> wrote:
How prevalent is steroid treatment after NAAION diagnosis? I¡¯ve had NAAION one month max, in one eye, triggered, I believe, by Ozempic, which I¡¯ve obviously stopped. Just had tests for carotid arteries, electrocardiogram and brain MRI without contrast, all negative. Have sleep apnea and type 2 dm, both well controlled. 79 years old.
Thank you. I switched to Jardiance, which is not GLP, and whispers not to carry the vision risk.
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Hi There,
I have had a NAION in both eyes. First happened in my right?eye at age 41 and then the left eye just a few months ago at age 49. I have small cup?to disc ratio on both eyes (crowded disc syndrome from birth). The first occurrence happened after starting a low dose of BP meds that I provably didn¡¯t need. I was taking it at night which was incorrect. My BP dropped lower than it should have between the medication and diurnal (evening lowering) changes. I lost about 35% of my vision in the lower inferior visual field (6 to 9 o'clock). Then I most recently lost vision inferiority (3 to 6 o¡¯clock) in my left eye after taking monjourno (GLP2 similar to ozempic) for about 6 months. My neuro ophthalmologist out of mass eye and ear?in Boston is convinced it is due to monjourno - he published his resesrch?on the topic. I also work in research for ophthalmology and I¡¯m happy to explain more as needed. But the use of steroids for a NAION is not well supported. It is usually used as a last ditch effort for those who have serious vision loss in both eyes. However there are few studies that show it does anything helpful. If you are a diabetic and have high BP it may not be worth the side efforts of steroids. Long story short the use of steroids have not helped but if you don¡¯t have diabetes or high BP there is no risk of trying steroids. They need to be at high doses early after the NAION.??I will say that the GLP2 are very dangerous for those of us who have had NAIONs. Do not use these?drugs!!! Please let me know if I can help. George?
On Sunday, February 16, 2025, 9:57 PM, aowats3 via groups.io <aowats3@...> wrote: How prevalent is steroid treatment after NAAION diagnosis? I¡¯ve had NAAION one month max, in one eye, triggered, I believe, by Ozempic, which I¡¯ve obviously stopped. Just had tests for carotid arteries, electrocardiogram and brain MRI without contrast, all negative. Have sleep apnea and type 2 dm, both well controlled. 79 years old.
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How prevalent is steroid treatment after NAAION diagnosis? I¡¯ve had NAAION one month max, in one eye, triggered, I believe, by Ozempic, which I¡¯ve obviously stopped. Just had tests for carotid arteries, electrocardiogram and brain MRI without contrast, all negative. Have sleep apnea and type 2 dm, both well controlled. 79 years old.
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HARVARD MEDICAL [NAION] GLP-1 drugs and NAION
https://www.massgeneralbrigham.org/en/about/newsroom/press-releases/popular-prescription-weight-loss-drugs-linked-to-uncommon-blinding-condition
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JAMA [NAION] GLP-1 drugs and NAION
First reports from Europe .. very serious .. here is formal report ..?https://jamanetwork.com/journals/jamaophthalmology/article-abstract/2829326
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Re: GLP-1 drugs and NAION
That is what my PCP and neuro ophthalmologist keeps telling me. Compounded by apnea and low blood pressure.?
My anatomy of inner eye contributes factors as well.?
My A1C, apnea and blood pressure are controlled now as well as other bloodwork.?
NAION has stabilized with 20/60 in one eye and 20/50 in the other. I got a double wammy - lucky me.?
And to be fair, the studies state they aren¡¯t clear whether it¡¯s the GLP1s or the diabetes that is the issue.?
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Re: GLP-1 drugs and NAION
I took Ozempic from Aug 5, 2024 to January 31, 2025, never more than 1 mg. On latter date, I was diagnosed with NAION. Almost totally blind in that eye.
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Re: GLP-1 drugs and NAION
And to be fair, the studies state they aren¡¯t clear whether it¡¯s the GLP1s or the diabetes that is the issue.?
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Diane Keasler
Life is the school, love is the lesson.
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FYI?
https://my.clevelandclinic.org/health/articles/22114-red-light-therapy
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ReeRee
Michael B
GaryGBrown