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Re: Nine years since my NAION event

 

Hi Paul,
Thanks again for sharing.

What do you think is the cause of the 2nd attack? What did you do after the first attack to prevent the 2nd one? In retrospect, what is the lesson or opinion you can share with us?

Thanks a lot

On 6 Oct 2024, at 10:40 pm, Paul Stratford <p.stratford@...> wrote:

?Hi. First attack December 2015. Second attack March 2017. Still drive subject to a DVLC annuall eye test. Carried on life much the same as before the attack. Had to stop mountain biking squash and golf. Much to my disappointment. Lost my HGV licence. Can¡¯t drive at night. Struggle identifying faces. But the reality was that the fear of it happening in the second eye wasn¡¯t as bad as the reality
On 6 Oct 2024, at 11:51, Chuu chan via groups.io <eggwah123@...> wrote:

?It¡¯s good to hear that you are doing ok. How many years apart for the two attacks? And how do you manage? Thanks for sharing
Re: Nine years since my NAION event

 

Thanks for sharing

On 6 Oct 2024, at 10:40 pm, Paul Stratford <p.stratford@...> wrote:

?Hi. First attack December 2015. Second attack March 2017. Still drive subject to a DVLC annuall eye test. Carried on life much the same as before the attack. Had to stop mountain biking squash and golf. Much to my disappointment. Lost my HGV licence. Can¡¯t drive at night. Struggle identifying faces. But the reality was that the fear of it happening in the second eye wasn¡¯t as bad as the reality
On 6 Oct 2024, at 11:51, Chuu chan via groups.io <eggwah123@...> wrote:

?It¡¯s good to hear that you are doing ok. How many years apart for the two attacks? And how do you manage? Thanks for sharing
Re: Nine years since my NAION event

 

Hi. First attack December 2015. Second attack March 2017. Still drive subject to a DVLC annuall eye test. Carried on life much the same as before the attack. Had to stop mountain biking squash and golf. Much to my disappointment. Lost my HGV licence. Can¡¯t drive at night. Struggle identifying faces. But the reality was that the fear of it happening in the second eye wasn¡¯t as bad as the reality

On 6 Oct 2024, at 11:51, Chuu chan via groups.io <eggwah123@...> wrote:

?It¡¯s good to hear that you are doing ok. How many years apart for the two attacks? And how do you manage? Thanks for sharing
Re: Nine years since my NAION event

 

It¡¯s good to hear that you are doing ok. How many years apart for the two attacks? And how do you manage? Thanks for sharing
Re: Nine years since my NAION event

 

¿ªÔÆÌåÓý

I¡¯m bi lateral. It¡¯s not that bad

On 6 Oct 2024, at 11:32, Chuu chan via groups.io <eggwah123@...> wrote:

?
Thanks Marc for sharing. Wish you stay unilateral ?forever.?
Re: Nine years since my NAION event

 

Thanks Marc for sharing. Wish you stay unilateral ?forever.?
Re: Nine years since my NAION event

 

My NAION has been unilateral for 12 years. I am not bilateral but I am bisexual and I ride a bicycle.

M.

On Sun, Oct 6, 2024 at 3:46?PM Chuu chan via <eggwah123=[email protected]> wrote:
You did a good job staying unilateralfor 9 years. Well done and thanks for sharing.?
I feel anxious every time I read or hear someone says ¡° I am bilateral¡±.?
Re: Nine years since my NAION event

 

You did a good job staying unilateral for 9 years. Well done and thanks for sharing.?
I feel anxious every time I read or hear someone says ¡° I am bilateral¡±.?
Re: interesting article in NYT

 

Thx. ON and NAION are often difficult to separate, medically.

---

On Friday, October 4, 2024 at 10:34:53 AM EDT, Ruby <rcroyhome@...> wrote:


Thanks, Deane.? Let me try again:


On Fri, Oct 4, 2024 at 8:50?AM Deane Williams via <pyroartist=[email protected]> wrote:
Article is behind a paywall.

On 10/4/2024 9:43 AM, Ruby wrote:



Virus-free.
Re: interesting article in NYT

 

Thanks, Deane.? Let me try again:


On Fri, Oct 4, 2024 at 8:50?AM Deane Williams via <pyroartist=[email protected]> wrote:
Article is behind a paywall.

On 10/4/2024 9:43 AM, Ruby wrote:



Virus-free.
Re: interesting article in NYT

 

¿ªÔÆÌåÓý

Article is behind a paywall.

On 10/4/2024 9:43 AM, Ruby wrote:



Virus-free.
Re: They Said Her NAION Vision Loss Was Hopeless... Until She Took a "Leap of Faith"

 

1/ He is NOT an M.D.

2/ NAION aligns with glaucoma, which has 3000% more patients.
? ? ? ? ?Any true treatment of NAION .. would align with glaucoma .. that would be, Nobel-level medicine.
? ? ? ? ?
3/ Best researcj on NAION, at Stanford Medical.

----

On Thursday, October 3, 2024 at 09:36:25 PM EDT, Paul Campano via groups.io <campano21@...> wrote:


Is there any validity to this at all?

The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?

I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter

---------- Original Message ----------
From: EHI <hello@...>
To: campano21@...
Date: 10/01/2024 7:39 PM EDT
Subject: They Said Her NAION Vision Loss Was Hopeless... Until She Took a "Leap of Faith"
?
?
They Said Her NAION Vision Loss Was Hopeless... Until She Took a "Leap of Faith"

Hi Paul,


Andrea finally felt like she had her dream life...

?

Her career as a nurse was thriving. She adored being a mom.

?

But just six months ago, she developed NAION in her left eye - and everything changed in an instant.

?

Andrea was left with critically low vision. And no answers from her doctors. They said her sight was gone forever.

?

She felt so hopeless, she almost gave up... until she found Dr. Rosenfarb online and decided to take the "leap of faith" that would change her life!

?

See Andrea's incredible story caught on video:

?

When you click to watch, you'll witness:

? The STUNNING vision improvements Andrea saw in just two weeks of treatment with Dr. Rosenfarb

? How Andrea almost resigned herself to permanent vision loss because of her other doctors' dismal prognosis

? The moment Andrea realized YOUR life can change with one decision - and her message for anyone else facing NAION

?

Andrea was skeptical. Terrified. Nearly paralyzed by fear and doubt after hearing "there's no hope" over and over...

?

But she still took the chance and trusted Dr. Rosenfarb with her precious sight.

?

And as you'll see in her powerful video - that leap of faith didn't just give Andrea her vision back. It gave her HERSELF back!

?

Go watch Andrea's transformation and feel her joy through the screen:

?

If you or someone you love is suffering vision loss that doctors call "hopeless"... please, let Andrea's words be your wakeup call.

?

There IS hope. There ARE answers. Andrea is living proof!

?

All you have to do is open your mind, open your heart... and take the leap.

?

Click to see the other side of hopelessness, through Andrea's eyes:

?

?

?

Your Vision Is our Mission

Acuvision Therapy and Eye Health institute

?



----------------------

Dr. Rosenfarb has helped over 10,000 eye patients from over 50 different countries over the last 25 years recover and preserve vision with safe and effective treatments.

If you're ready to start seeing great results,

We offer two AcuVision treatment programs:


1.?AcuVision IN-OFFICE treatment?(2-week vision recovery program)
 or Call 908-928-0060

2.?AcuVision AT-HOME treatment?(12-Week vision recovery program).?Details on the at-home ACS 3000 treatment:?

?

Schedule a free one-on-one consultation to find out if or how we might be able to help you.

Click?here to?schedule your FREE Eye Patient Evaluation Call:?

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Or Call:
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interesting article in NYT

 


They Said Her NAION Vision Loss Was Hopeless... Until She Took a "Leap of Faith"

 

¿ªÔÆÌåÓý

Is there any validity to this at all?

The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?

I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter

---------- Original Message ----------
From: EHI <hello@...>
To: campano21@...
Date: 10/01/2024 7:39 PM EDT
Subject: They Said Her NAION Vision Loss Was Hopeless... Until She Took a "Leap of Faith"
?
?

Re: Cataract surgery caution

 

Talk to your N.O. and M.D.

I'm not an M.D.

---


On Thursday, October 3, 2024 at 02:20:42 PM EDT, Diane Keasler via groups.io <dlkeasler@...> wrote:


Would you say for even a skin biopsy that there should be NO EPINEPHRINE in the local anesthesia used?? Thanks.

Diane Keasler

Life is the school, love is the lesson.


On Thursday, October 3, 2024 at 02:14:10 PM EDT, Russ Poter via groups.io <russpoter@...> wrote:


Many of us have posted this .. in ANY surgical situation .. face-to-face, providers involved MUST acknowledge your NAION. And in writing. With witnesses.

Or leave.

Providers rush about, today. Their insurers will thank you, for being CLEAR with them.

----

On Thursday, October 3, 2024 at 12:28:57 PM EDT, Eibhlin Fionn via groups.io <ourmissbrooks@...> wrote:


For what it's worth:

I was advised back in 2007 that since they no longer use epinephrine in that surgery that the danger
of loss has been lessened.

Since I have a cataract in my remaining non-NAION eye that is of interest. However, they go by your
existing visual acuity and at 20/20 in that eye, I do not see it as a high concern at present.
Re: Cataract surgery caution

 

Would you say for even a skin biopsy that there should be NO EPINEPHRINE in the local anesthesia used?? Thanks.

Diane Keasler

Life is the school, love is the lesson.


On Thursday, October 3, 2024 at 02:14:10 PM EDT, Russ Poter via groups.io <russpoter@...> wrote:


Many of us have posted this .. in ANY surgical situation .. face-to-face, providers involved MUST acknowledge your NAION. And in writing. With witnesses.

Or leave.

Providers rush about, today. Their insurers will thank you, for being CLEAR with them.

----

On Thursday, October 3, 2024 at 12:28:57 PM EDT, Eibhlin Fionn via groups.io <ourmissbrooks@...> wrote:


For what it's worth:

I was advised back in 2007 that since they no longer use epinephrine in that surgery that the danger
of loss has been lessened.

Since I have a cataract in my remaining non-NAION eye that is of interest. However, they go by your
existing visual acuity and at 20/20 in that eye, I do not see it as a high concern at present.
Re: Cataract surgery caution

 

Many of us have posted this .. in ANY surgical situation .. face-to-face, providers involved MUST acknowledge your NAION. And in writing. With witnesses.

Or leave.

Providers rush about, today. Their insurers will thank you, for being CLEAR with them.

----

On Thursday, October 3, 2024 at 12:28:57 PM EDT, Eibhlin Fionn via groups.io <ourmissbrooks@...> wrote:


For what it's worth:

I was advised back in 2007 that since they no longer use epinephrine in that surgery that the danger
of loss has been lessened.

Since I have a cataract in my remaining non-NAION eye that is of interest. However, they go by your
existing visual acuity and at 20/20 in that eye, I do not see it as a high concern at present.
Re: Cataract surgery caution

 

For what it's worth:

I was advised back in 2007 that since they no longer use epinephrine in that surgery that the danger
of loss has been lessened.

Since I have a cataract in my remaining non-NAION eye that is of interest. However, they go by your
existing visual acuity and at 20/20 in that eye, I do not see it as a high concern at present.
Nine years since my NAION event

 

In 2015, happened during MEGA-INTENSE work projects. Left eye, suddenly went 30% dark.?
My N.O.: "you are lucky, it was not worse." (Dang)

"Danger zone" for 2nd attack, research indicates 5 years. So, I'm (probably) OK.?

Now semi-retired, work at being "calm." (Michael Sealey recordings)

Still concerned about cataract surgery.?

Have a hard decision to make, in next year -- surgery or not.
Re: Cataract surgery caution

 

EmojiEmojiEmoji

Noted in my last M.D. visits ..

1/ thanks to trial lawyers .. anything possibly risky .. avoided at all costs. (Emergencies -- different matter)

2/ Thus .. in risky matters .. PATIENT, fully informed .. must make final decision. As in, 40-page lawsuit-waiver forms.

------

On Thursday, October 3, 2024 at 08:16:00 AM EDT, Diane Keasler via groups.io <dlkeasler@...> wrote:


These are the last two paragraphs from the following link.

It may be that a causal relationship be?tween uncomplicated cataract surgery and optic neuropathy will not be con?clusively established in the literature, said Dr. Bhatti. However, the experts said, there¡¯s enough evidence to justify proceeding with caution as well as to support counseling prospective patients with a history of optic neuropathy who are electing to undergo cataract surgery in the fellow eye.

As Dr. Bhatti noted, ¡°Thankfully, optic neuropathy following cataract surgery is relatively uncommon¡ªagain, [the incidence is] in that 1 in 1,000 to 3,000 range. But if patients have previ?ously experienced either garden-variety spontaneous NAION or PCSON in one eye and they¡¯re considering cataract surgery in the other, it¡¯s important for the surgeon to provide full disclosure and counsel them on the possible in?crease of risk in that fellow eye.¡±



Diane Keasler

Life is the school, love is the lesson.
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