Re: interesting article in NYT
Thx. ON and NAION are often difficult to separate, medically.
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On Friday, October 4, 2024 at 10:34:53 AM EDT, Ruby <rcroyhome@...> wrote:
Thanks, Deane.? Let me try again:
On Fri, Oct 4, 2024 at 8:50?AM Deane Williams via <pyroartist= [email protected]> wrote:
Article is behind a paywall.
On 10/4/2024 9:43 AM, Ruby wrote:
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Re: interesting article in NYT
Article is behind a paywall.
On 10/4/2024 9:43 AM, Ruby wrote:
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Re: They Said Her NAION Vision Loss Was Hopeless... Until She Took a "Leap of Faith"
1/ He is NOT an M.D.
2/ NAION aligns with glaucoma, which has 3000% more patients. ? ? ? ? ?Any true treatment of NAION .. would align with glaucoma .. that would be, Nobel-level medicine.
? ? ? ? ? 3/ Best researcj on NAION, at Stanford Medical.
----
On Thursday, October 3, 2024 at 09:36:25 PM EDT, Paul Campano via groups.io <campano21@...> wrote:
Is there any validity to this at all?
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
---------- Original Message ----------
From: EHI <hello@...>
To: campano21@...
Date: 10/01/2024 7:39 PM EDT
Subject: They Said Her NAION Vision Loss Was Hopeless... Until She Took a "Leap of Faith"
?
?
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They Said Her NAION Vision Loss Was Hopeless... Until She Took a "Leap of Faith"
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Hi Paul,
Andrea finally felt like she had her dream life...
?
Her career as a nurse was thriving. She adored being a mom.
?
But just six months ago, she developed NAION in her left eye - and everything changed in an instant.
?
Andrea was left with critically low vision. And no answers from her doctors. They said her sight was gone forever.
?
She felt so hopeless, she almost gave up... until she found Dr. Rosenfarb online and decided to take the "leap of faith" that would change her life!
?
See Andrea's incredible story caught on video:
?
When you click to watch, you'll witness:
? The STUNNING vision improvements Andrea saw in just two weeks of treatment with Dr. Rosenfarb
? How Andrea almost resigned herself to permanent vision loss because of her other doctors' dismal prognosis
? The moment Andrea realized YOUR life can change with one decision - and her message for anyone else facing NAION
?
Andrea was skeptical. Terrified. Nearly paralyzed by fear and doubt after hearing "there's no hope" over and over...
?
But she still took the chance and trusted Dr. Rosenfarb with her precious sight.
?
And as you'll see in her powerful video - that leap of faith didn't just give Andrea her vision back. It gave her HERSELF back!
?
Go watch Andrea's transformation and feel her joy through the screen:
?
If you or someone you love is suffering vision loss that doctors call "hopeless"... please, let Andrea's words be your wakeup call.
?
There IS hope. There ARE answers. Andrea is living proof!
?
All you have to do is open your mind, open your heart... and take the leap.
?
Click to see the other side of hopelessness, through Andrea's eyes:
?
?
?
Your Vision Is our Mission
Acuvision Therapy and Eye Health institute
?
----------------------
Dr. Rosenfarb has helped over 10,000 eye patients from over 50 different countries over the last 25 years recover and preserve vision with safe and effective treatments.
If you're ready to start seeing great results,
We offer two AcuVision treatment programs:
1.?AcuVision IN-OFFICE treatment?(2-week vision recovery program)
or Call 908-928-0060
2.?AcuVision AT-HOME treatment?(12-Week vision recovery program).?Details on the at-home ACS 3000 treatment:?
?
Schedule a free one-on-one consultation to find out if or how we might be able to help you.
Click?here to?schedule your FREE Eye Patient Evaluation Call:?
|
Copyright ? 2024? Eye Health Institute, All rights reserved.
Product/Tech Support:
support@...
Patient Care:
PatientCare@...
Or Call:
908-928-0060
332 South Avenue E, Westfield NJ 07090
Want to change how you receive these emails?
You can .
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interesting article in NYT
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They Said Her NAION Vision Loss Was Hopeless... Until She Took a "Leap of Faith"
Is there any validity to this at all?
The two hardest tests on the spiritual road are the patience to wait for the right moment and the courage not to be disappointed with what we encounter----Paulo Coelho?
I would be true, for there are those who trust me: I would be pure, for there are those who care; I would be strong, for there is much to suffer; I would be brave, for there is much to dare-Howard Walter
toggle quoted message
Show quoted text
---------- Original Message ----------
From: EHI <hello@...>
To: campano21@...
Date: 10/01/2024 7:39 PM EDT
Subject: They Said Her NAION Vision Loss Was Hopeless... Until She Took a "Leap of Faith"
?
?
|
They Said Her NAION Vision Loss Was Hopeless... Until She Took a "Leap of Faith"
|
|
|
Hi Paul,
Andrea finally felt like she had her dream life...
?
Her career as a nurse was thriving. She adored being a mom.
?
But just six months ago, she developed NAION in her left eye - and everything changed in an instant.
?
Andrea was left with critically low vision. And no answers from her doctors. They said her sight was gone forever.
?
She felt so hopeless, she almost gave up... until she found Dr. Rosenfarb online and decided to take the "leap of faith" that would change her life!
?
See Andrea's incredible story caught on video:
?
When you click to watch, you'll witness:
? The STUNNING vision improvements Andrea saw in just two weeks of treatment with Dr. Rosenfarb
? How Andrea almost resigned herself to permanent vision loss because of her other doctors' dismal prognosis
? The moment Andrea realized YOUR life can change with one decision - and her message for anyone else facing NAION
?
Andrea was skeptical. Terrified. Nearly paralyzed by fear and doubt after hearing "there's no hope" over and over...
?
But she still took the chance and trusted Dr. Rosenfarb with her precious sight.
?
And as you'll see in her powerful video - that leap of faith didn't just give Andrea her vision back. It gave her HERSELF back!
?
Go watch Andrea's transformation and feel her joy through the screen:
?
If you or someone you love is suffering vision loss that doctors call "hopeless"... please, let Andrea's words be your wakeup call.
?
There IS hope. There ARE answers. Andrea is living proof!
?
All you have to do is open your mind, open your heart... and take the leap.
?
Click to see the other side of hopelessness, through Andrea's eyes:
?
?
?
Your Vision Is our Mission
Acuvision Therapy and Eye Health institute
?
----------------------
Dr. Rosenfarb has helped over 10,000 eye patients from over 50 different countries over the last 25 years recover and preserve vision with safe and effective treatments.
If you're ready to start seeing great results,
We offer two AcuVision treatment programs:
1.?AcuVision IN-OFFICE treatment?(2-week vision recovery program)
or Call 908-928-0060
2.?AcuVision AT-HOME treatment?(12-Week vision recovery program).?Details on the at-home ACS 3000 treatment:?
?
Schedule a free one-on-one consultation to find out if or how we might be able to help you.
Click?here to?schedule your FREE Eye Patient Evaluation Call:?
|
Copyright ? 2024? Eye Health Institute, All rights reserved.
Product/Tech Support:
support@...
Patient Care:
PatientCare@...
Or Call:
908-928-0060
332 South Avenue E, Westfield NJ 07090
Want to change how you receive these emails?
You can .
|
|
|
Re: Cataract surgery caution
Talk to your N.O. and M.D.
I'm not an M.D.
---
On Thursday, October 3, 2024 at 02:20:42 PM EDT, Diane Keasler via groups.io <dlkeasler@...> wrote:
Would you say for even a skin biopsy that there should be NO EPINEPHRINE in the local anesthesia used?? Thanks.
Diane Keasler
Life is the school, love is the lesson.
On Thursday, October 3, 2024 at 02:14:10 PM EDT, Russ Poter via groups.io <russpoter@...> wrote:
Many of us have posted this .. in ANY surgical situation .. face-to-face, providers involved MUST acknowledge your NAION. And in writing. With witnesses.
Or leave.
Providers rush about, today. Their insurers will thank you, for being CLEAR with them.
----
On Thursday, October 3, 2024 at 12:28:57 PM EDT, Eibhlin Fionn via groups.io <ourmissbrooks@...> wrote:
For what it's worth:
I was advised back in 2007 that since they no longer use epinephrine in that surgery that the danger of loss has been lessened.
Since I have a cataract in my remaining non-NAION eye that is of interest. However, they go by your existing visual acuity and at 20/20 in that eye, I do not see it as a high concern at present.
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Re: Cataract surgery caution
Would you say for even a skin biopsy that there should be NO EPINEPHRINE in the local anesthesia used?? Thanks.
Diane Keasler
Life is the school, love is the lesson.
On Thursday, October 3, 2024 at 02:14:10 PM EDT, Russ Poter via groups.io <russpoter@...> wrote:
Many of us have posted this .. in ANY surgical situation .. face-to-face, providers involved MUST acknowledge your NAION. And in writing. With witnesses.
Or leave.
Providers rush about, today. Their insurers will thank you, for being CLEAR with them.
----
On Thursday, October 3, 2024 at 12:28:57 PM EDT, Eibhlin Fionn via groups.io <ourmissbrooks@...> wrote:
For what it's worth:
I was advised back in 2007 that since they no longer use epinephrine in that surgery that the danger of loss has been lessened.
Since I have a cataract in my remaining non-NAION eye that is of interest. However, they go by your existing visual acuity and at 20/20 in that eye, I do not see it as a high concern at present.
|
Re: Cataract surgery caution
Many of us have posted this .. in ANY surgical situation .. face-to-face, providers involved MUST acknowledge your NAION. And in writing. With witnesses.
Or leave.
Providers rush about, today. Their insurers will thank you, for being CLEAR with them.
----
On Thursday, October 3, 2024 at 12:28:57 PM EDT, Eibhlin Fionn via groups.io <ourmissbrooks@...> wrote:
For what it's worth:
I was advised back in 2007 that since they no longer use epinephrine in that surgery that the danger of loss has been lessened.
Since I have a cataract in my remaining non-NAION eye that is of interest. However, they go by your existing visual acuity and at 20/20 in that eye, I do not see it as a high concern at present.
|
Re: Cataract surgery caution
For what it's worth:
I was advised back in 2007 that since they no longer use epinephrine in that surgery that the danger of loss has been lessened.
Since I have a cataract in my remaining non-NAION eye that is of interest. However, they go by your existing visual acuity and at 20/20 in that eye, I do not see it as a high concern at present.
|
Nine years since my NAION event
In 2015, happened during MEGA-INTENSE work projects. Left eye, suddenly went 30% dark.? My N.O.: "you are lucky, it was not worse." (Dang)
"Danger zone" for 2nd attack, research indicates 5 years. So, I'm (probably) OK.?
Now semi-retired, work at being "calm." (Michael Sealey recordings)
Still concerned about cataract surgery.?
Have a hard decision to make, in next year -- surgery or not.
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Re: Cataract surgery caution
Noted in my last M.D. visits ..
1/ thanks to trial lawyers .. anything possibly risky .. avoided at all costs. (Emergencies -- different matter)
2/ Thus .. in risky matters .. PATIENT, fully informed .. must make final decision. As in, 40-page lawsuit-waiver forms.
------
On Thursday, October 3, 2024 at 08:16:00 AM EDT, Diane Keasler via groups.io <dlkeasler@...> wrote:
These are the last two paragraphs from the following link.
It may be that a causal relationship be?tween uncomplicated cataract surgery and optic neuropathy will not be con?clusively established in the literature, said Dr. Bhatti. However, the experts said, there’s enough evidence to justify proceeding with caution as well as to support counseling prospective patients with a history of optic neuropathy who are electing to undergo cataract surgery in the fellow eye. As Dr. Bhatti noted, “Thankfully, optic neuropathy following cataract surgery is relatively uncommon—again, [the incidence is] in that 1 in 1,000 to 3,000 range. But if patients have previ?ously experienced either garden-variety spontaneous NAION or PCSON in one eye and they’re considering cataract surgery in the other, it’s important for the surgeon to provide full disclosure and counsel them on the possible in?crease of risk in that fellow eye.”
Diane Keasler
Life is the school, love is the lesson.
|
These are the last two paragraphs from the following link.
It may be that a causal relationship be?tween uncomplicated cataract surgery and optic neuropathy will not be con?clusively established in the literature, said Dr. Bhatti. However, the experts said, there’s enough evidence to justify proceeding with caution as well as to support counseling prospective patients with a history of optic neuropathy who are electing to undergo cataract surgery in the fellow eye. As Dr. Bhatti noted, “Thankfully, optic neuropathy following cataract surgery is relatively uncommon—again, [the incidence is] in that 1 in 1,000 to 3,000 range. But if patients have previ?ously experienced either garden-variety spontaneous NAION or PCSON in one eye and they’re considering cataract surgery in the other, it’s important for the surgeon to provide full disclosure and counsel them on the possible in?crease of risk in that fellow eye.”
Diane Keasler
Life is the school, love is the lesson.
|
Re: Hoping for some positive news
Thanks Ann. It's a little comforting to hear that some people have been unilateral for years because I'm only at 7 months and open my good eye first every morning to make sure that my vision is still okay in that eye.?
Sent via the Samsung Galaxy S22 5G, an AT&T 5G smartphone
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Show quoted text
-------- Original message --------
From: "Ann Barolak via groups.io" <annolak@...>
Date: 10/2/24 9:21 PM (GMT-05:00)
Subject: Re: [NAION] Hoping for some positive news
I had a different set of stressors, but otherwise the same since the day I had my episode, on my 50th birthday. ?I turn 61 in two weeks, ?with gratitude for my good eye!
Ann in Philly?
On Oct 2, 2024, at 10:23?AM, Deane Williams <pyroartist@...> wrote:
? My wife has NAION in 1 eye, about 6 years ago.? She has the low cup to disc ratio in both eyes but her good eye remains good.
Her episode occurred during a period of stress. We had just lost our delightful dog to kidney disease and she was having tests done to
rule out breast cancer (turned out negative).
On 10/2/2024 7:45 AM, Chuu chan via groups.io wrote:
Any more good and comforting examples of staying unilateral for whatever period of time??
we all need encouraging news. Please
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Re: Hoping for some positive news
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Re: Hoping for some positive news
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Show quoted text
On Oct 3, 2024, at 11:21?AM, Ann Barolak via groups.io <annolak@...> wrote:
I had a different set of stressors, but otherwise the same since the day I had my episode, on my 50th birthday. ?I turn 61 in two weeks, ?with gratitude for my good eye! Ann in Philly? On Oct 2, 2024, at 10:23?AM, Deane Williams <pyroartist@...> wrote: ?
My wife has NAION in 1 eye, about 6 years ago.? She has the low cup
to disc ratio in both eyes but her good eye remains good.
Her episode occurred during a period of stress. We had just lost our
delightful dog to kidney disease and she was having tests done to
rule out breast cancer (turned out negative).
On 10/2/2024 7:45 AM, Chuu chan via
groups.io wrote:
Any more good and comforting examples of staying unilateral
for whatever period of time??
we all need encouraging news. Please
|
Re: Hoping for some positive news
I had a different set of stressors, but otherwise the same since the day I had my episode, on my 50th birthday. ?I turn 61 in two weeks, ?with gratitude for my good eye!
toggle quoted message
Show quoted text
On Oct 2, 2024, at 10:23?AM, Deane Williams <pyroartist@...> wrote: ?
My wife has NAION in 1 eye, about 6 years ago.? She has the low cup
to disc ratio in both eyes but her good eye remains good.
Her episode occurred during a period of stress. We had just lost our
delightful dog to kidney disease and she was having tests done to
rule out breast cancer (turned out negative).
On 10/2/2024 7:45 AM, Chuu chan via
groups.io wrote:
Any more good and comforting examples of staying unilateral
for whatever period of time??
we all need encouraging news. Please
|
Re: ABOUT N.A.I.O.N. AND CATARACTS
This is very interesting info - thank you.
toggle quoted message
Show quoted text
On 2 Oct 2024, at 17:15, Russ Poter via groups.io <russpoter@...> wrote:
?
ABOUT N.A.I.O.N. AND CATARACTS
Many NAION patients are older. Cataracts are an issue for older persons.
https://en.wikipedia.org/wiki/Cataract.?
Given questions whether cataract surgery (CS) can cause another NAION event, caution about CS is strongly advised. (https://en.wikipedia.org/wiki/Cataract_surgery)
OF CONCERN TODAY .. CS can be delayed .. ONLY SO LONG.
? ? ?That is: the longer a patient waits .. the bigger the issue of INOPERABLE cataracts becomes.?
? ? ?Over time, a cataract will become thicker, to the point, it cannot be removed safely.
A very complex matter.?
? ? ?It is risky, so only the patient can make the final decision. Said patient, being well-informed of benefits and risks involved.
—-
There is much debate, about how NAION patients should respond to their (ultimate) time with cataracts.
Many concerns that cataract surgery —
https://en.wikipedia.org/wiki/Cataract_surgery
? ? ?can trigger another NAION event.
My NAION M.D., a national NAION expert and USAF M.D. for Vietnam POWs who is now retired .. recommended that I wait until “the absolute last minute” to have cataract surgery.?
? ? ?That is, when it causes problems, in daily life.
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ABOUT N.A.I.O.N. AND CATARACTS
ABOUT N.A.I.O.N. AND CATARACTS
Many NAION patients are older. Cataracts are an issue for older persons. https://en.wikipedia.org/wiki/Cataract.?
Given questions whether cataract surgery (CS) can cause another NAION event, caution about CS is strongly advised. (https://en.wikipedia.org/wiki/Cataract_surgery)
OF CONCERN TODAY .. CS can be delayed .. ONLY SO LONG. ? ? ?That is: the longer a patient waits .. the bigger the issue of INOPERABLE cataracts becomes.? ? ? ?Over time, a cataract will become thicker, to the point, it cannot be removed safely.
A very complex matter.? ? ? ?It is risky, so only the patient can make the final decision. Said patient, being well-informed of benefits and risks involved.
—-
There is much debate, about how NAION patients should respond to their (ultimate) time with cataracts.
Many concerns that cataract surgery — https://en.wikipedia.org/wiki/Cataract_surgery ? ? ?can trigger another NAION event.
My NAION M.D., a national NAION expert and USAF M.D. for Vietnam POWs who is now retired .. recommended that I wait until “the absolute last minute” to have cataract surgery.? ? ? ?That is, when it causes problems, in daily life.
|
Re: Hoping for some positive news
My wife has NAION in 1 eye, about 6 years ago.? She has the low cup
to disc ratio in both eyes but her good eye remains good.
Her episode occurred during a period of stress. We had just lost our
delightful dog to kidney disease and she was having tests done to
rule out breast cancer (turned out negative).
On 10/2/2024 7:45 AM, Chuu chan via
groups.io wrote:
Any more good and comforting examples of staying unilateral
for whatever period of time??
we all need encouraging news. Please
|
