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Debra, Thanks for leading this effort. I'll be on the call (Tim Trela) with my wife Maryclare who has NAION in both eyes. The incidents were 3 years apart with the most recent occurring in July

Thank you! Looking forward to the meeting tomorrow. [email protected]> wrote:

Thank You, Mike! Yes, the first time around set me back for a minute, but my left eye was 20/20 and I really hardly missed a beat. This time is different. Incredibly frustrating. I'm driving around my

Thank you so much for organizing this zoom call. It looks like I will not be able to change my work schedule to attend the meeting. Is it possible for you to please record the call? It would be so

Pam, I also have bilateral NAION, it happened sequentially (2015 & 2022) - the 2022 episode was life changing as it ended my career. It did drive me to frequent a low vision Specialist in NJ, Dr.

Hello, Unfortunately I will miss the zoom meeting -it's my husband and my 37th wedding anniversary- but I do have a question. Have you been to a low vision clinic, and if so, are there tools there

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Science Friday is interviewing someone who is blind and discussing how to design accomodations for the blind (April 18). It should be available on the podcast later this week. Anne

Hello Lake, You will see the Zoom Link in the past two emails. Zoom Link is in two emails from me subject lines: “Large Type Version of 1st NAION Zoom Peer Support Group starts next week on Wed.

Will you be posting the Zoom link here?? Thanks, Lake Garren 941-321-2977

I’m in Cape Town, South Africa. I’ll try to join on waking. Thanks for your wonderful efforts Terry [email protected]> wrote:

Hello NAION friends, Here is a suggested outline for our first NAION Peer Support Group Meeting ON Wednesday, April 23 (in most time zones). I nformed Consent: This is a free peer support group and

*Hello NAION friends,* *Here is a suggested outline for our first NAION Peer Support Group Meeting ON Wednesday, April 23 (in most time zones). I* *nformed Consent: *This is a free peer support group

Thanks for feedback.? Hope to hear from you soon in May!

I’m a medical specialist. I, too have unilateral NAION I’m not denigrating all the recent posts re acupuncture and supplements, but I must caution all to be circumspect when trying all of the

Hi Chiarina, The doctor only prescribe me with a low dose of vitamin B1, B6 and B12 supplement. Thank you for your feedback. [email protected]> wrote:

Hi Gary, Thanks for the update. Did you start the supplements immediately after the episode? May I know how long have you been taking them? Thanks! [email protected]> wrote:

There are similarities between glaucoma and NAION. Areas of mutual interest? Glaucoma is 30x bigger than NAION -- more research $$ NAION patients are NOT immune from glaucoma?

Here in Australia there has been much discussion about the over use of Vitamin B supplements. Too much of it can become toxic [email protected]> wrote:

Hi Ainul, while I haven’t had another attack, and my NAION seems to be stabile, I’m not sure if the supplements were helpful. ?My doctor said my vision would likely improve some after the attack