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George I had my NAION event one year ago on my first day of retirement. Lost most all vision in my left eye. At week 5 the retinal specialist who took over for the ophthalmologist somewhat reluctantly prescribed a 15 day prednisone regiment. It did what it is supposed to do and reduced the swelling. It very well may have subsided on its own. I did regain some vision, I¡¯d say 15% or so. I also have crowded disc. This happened to my brother 10 years ago so I¡¯m guessing it may run in part of the family anyway. I was also on low dose BP that may not have been necessary but was taking in the morning.? The whole thing inspired me to build a website to address the emotional and psychological aspects of sudden vision loss. I would be interested in you opinion of it if you wouldn't mind.? |
Michael Brown
707-333-3024
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On Feb 16, 2025, at 7:36?PM, George Ousler via groups.io <sailfishin@...> wrote:
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Hi There,
I have had a NAION in both eyes. First happened in my right?eye at age 41 and then the left eye just a few months ago at age 49. I have small cup?to disc ratio on both eyes (crowded disc syndrome from birth). The first occurrence happened after starting a low dose of BP meds that I provably didn¡¯t need. I was taking it at night which was incorrect. My BP dropped lower than it should have between the medication and diurnal (evening lowering) changes. I lost about 35% of my vision in the lower inferior visual field (6 to 9 o'clock). Then I most recently lost vision inferiority (3 to 6 o¡¯clock) in my left eye after taking monjourno (GLP2 similar to ozempic) for about 6 months. My neuro ophthalmologist out of mass eye and ear?in Boston is convinced it is due to monjourno - he published his resesrch?on the topic. I also work in research for ophthalmology and I¡¯m happy to explain more as needed. But the use of steroids for a NAION is not well supported. It is usually used as a last ditch effort for those who have serious vision loss in both eyes. However there are few studies that show it does anything helpful. If you are a diabetic and have high BP it may not be worth the side efforts of steroids. Long story short the use of steroids have not helped but if you don¡¯t have diabetes or high BP there is no risk of trying steroids. They need to be at high doses early after the NAION.??I will say that the GLP2 are very dangerous for those of us who have had NAIONs. Do not use these?drugs!!! Please let me know if I can help. George?
On Sunday, February 16, 2025, 9:57 PM, aowats3 via groups.io <aowats3@...> wrote:
How prevalent is steroid treatment after NAAION diagnosis? I¡¯ve had NAAION one month max, in one eye, triggered, I believe, by Ozempic, which I¡¯ve obviously stopped. Just had tests for carotid arteries, electrocardiogram and brain MRI without contrast, all negative. Have sleep apnea and type 2 dm, both well controlled. 79 years old.
Thank you. I switched to Jardiance, which is not GLP, and whispers not to carry the vision risk.
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Hi There,
I have had a NAION in both eyes. First happened in my right?eye at age 41 and then the left eye just a few months ago at age 49. I have small cup?to disc ratio on both eyes (crowded disc syndrome from birth). The first occurrence happened after starting a low dose of BP meds that I provably didn¡¯t need. I was taking it at night which was incorrect. My BP dropped lower than it should have between the medication and diurnal (evening lowering) changes. I lost about 35% of my vision in the lower inferior visual field (6 to 9 o'clock). Then I most recently lost vision inferiority (3 to 6 o¡¯clock) in my left eye after taking monjourno (GLP2 similar to ozempic) for about 6 months. My neuro ophthalmologist out of mass eye and ear?in Boston is convinced it is due to monjourno - he published his resesrch?on the topic. I also work in research for ophthalmology and I¡¯m happy to explain more as needed. But the use of steroids for a NAION is not well supported. It is usually used as a last ditch effort for those who have serious vision loss in both eyes. However there are few studies that show it does anything helpful. If you are a diabetic and have high BP it may not be worth the side efforts of steroids. Long story short the use of steroids have not helped but if you don¡¯t have diabetes or high BP there is no risk of trying steroids. They need to be at high doses early after the NAION.??I will say that the GLP2 are very dangerous for those of us who have had NAIONs. Do not use these?drugs!!! Please let me know if I can help. George?
On Sunday, February 16, 2025, 9:57 PM, aowats3 via groups.io <aowats3@...> wrote: How prevalent is steroid treatment after NAAION diagnosis? I¡¯ve had NAAION one month max, in one eye, triggered, I believe, by Ozempic, which I¡¯ve obviously stopped. Just had tests for carotid arteries, electrocardiogram and brain MRI without contrast, all negative. Have sleep apnea and type 2 dm, both well controlled. 79 years old.
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How prevalent is steroid treatment after NAAION diagnosis? I¡¯ve had NAAION one month max, in one eye, triggered, I believe, by Ozempic, which I¡¯ve obviously stopped. Just had tests for carotid arteries, electrocardiogram and brain MRI without contrast, all negative. Have sleep apnea and type 2 dm, both well controlled. 79 years old.
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HARVARD MEDICAL [NAION] GLP-1 drugs and NAION
https://www.massgeneralbrigham.org/en/about/newsroom/press-releases/popular-prescription-weight-loss-drugs-linked-to-uncommon-blinding-condition
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JAMA [NAION] GLP-1 drugs and NAION
First reports from Europe .. very serious .. here is formal report ..?https://jamanetwork.com/journals/jamaophthalmology/article-abstract/2829326
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Re: GLP-1 drugs and NAION
That is what my PCP and neuro ophthalmologist keeps telling me. Compounded by apnea and low blood pressure.?
My anatomy of inner eye contributes factors as well.?
My A1C, apnea and blood pressure are controlled now as well as other bloodwork.?
NAION has stabilized with 20/60 in one eye and 20/50 in the other. I got a double wammy - lucky me.?
And to be fair, the studies state they aren¡¯t clear whether it¡¯s the GLP1s or the diabetes that is the issue.?
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Re: GLP-1 drugs and NAION
I took Ozempic from Aug 5, 2024 to January 31, 2025, never more than 1 mg. On latter date, I was diagnosed with NAION. Almost totally blind in that eye.
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Re: GLP-1 drugs and NAION
And to be fair, the studies state they aren¡¯t clear whether it¡¯s the GLP1s or the diabetes that is the issue.?
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Diane Keasler
Life is the school, love is the lesson.
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FYI?
https://my.clevelandclinic.org/health/articles/22114-red-light-therapy
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I have information but not sure about it. Going to talk to ophthalmologist about it.?
I googled the information after a friend told me about?
On Fri, Feb 7, 2025 at 7:10?PM Chiarina Blake via <jc.blake2= [email protected]> wrote: Would love to learn more about this? Does anyone with NAION damage use red light therapy?
Thanks for opinions?
Cheryl Couch
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Does anyone with NAION damage use red light therapy?
Thanks for opinions?
Cheryl Couch
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Re: Knee Replacement Surgery
Hi, I am 72 yr old female. NAAION in August 2022 in left eye. They did a biopsy for Giant Cell in Vanderbilt while I was there for 5 days getting the high?dose steroid IV treatment.? General anesthesia. No problem.? Had a TKR? left knee in February 2024 in a smaller hospital nearby.? Anesthesiologist was aware of my condition, did epidural.? I never knew a thing. No problem.? Had shingles vax in March 2023, took out more vision in left eye.? ?Have had 4 covid vax prior to NAAION, no problems.? ?Have been told not to get any more vaccines, until I see an immunologist.? Good luck with your TKR and let us know how you get on.? A good website for TKR is Bonesmart, in case you haven't been there yet. On Sat, Jan 11, 2025 at 5:46?PM Joseph W Harrison via <joeharrison1776= [email protected]> wrote:
It was 30 years ago that NAION attacked my left eye and took out 80 percent of the vision.? Nothing else has occurred since then, and I've had all the usual vaccinations through all these years.? Two months ago, I also had surgery in my right (good) eye for cataract extraction, with the ophthalmologist fully aware of the NAION risks involved.? The surgery went smoothly and so far there have been no adverse results.? My right eye vision has vastly improved, in fact.? The doctor tells me that each of my optic nerves has a very strange shape which he has never seen before.? This sort of scares me, but at age 87, I figure that if the shape of that nerve did in fact contribute to the attack 30 years ago, I might just dodge any further bullets.? Or maybe the shape had nothing to do with it.? Who knows!? I keep an active lifestyle, a good diet, and hope for smooth sailing in my remaining years.
Thank you Lou for taking the time to respond
Get
Very encouraging, Louie, thanks for sharing!
Diane Keasler
Life is the school, love is the lesson.
On Saturday, January 11, 2025 at 09:21:50 AM EST, Louie via <screwielouietoo= [email protected]> wrote:
Hi, I had my attack in my left eye in 2005 and lost most of my vision in that eye. I have had two prostate surgeries, a total knee replacement. I have had shingles vaccine, Covid vaccine, flu vaccine etc., no issues in my right eye from any of these. I
have a small disk and bundled optic nerves like most of us. I have been taking 2000mg of fish oil, and walk seven miles each day since my NAION attack.?
Lou- Myrtle Beach SC
Screwie Louie¡¯s iPhone? ![]() ? ![]()
On Saturday, January 11, 2025, 2:00 AM, jennifire1 via <jennifire1=[email protected]> wrote:
Dear Members
I am new to this group having been diagnosed with NAION peripheral vision loss in my left eye 6 months ago.
I would wecome hearing good news stories from those that have had knee replacement surgery which Iam scheduled to have 30th January. My anaesthetist (after receiving news from my ophthalmologist) of my condition is not willing to assist in the procedure
even though under spinal epidural the risk of further vision loss was too high.
Iam apprehensive about NAION occuring in the unaffected eye. I am a healthy 65 yo woman. No diabetes or BP.?
?
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Re: Question about the shingles vaccine
I had 4 covid vaccines prior to NAAION.? No problems.? After? getting ok from all my doctors, had shingles vax 7 months after NAAION, had a flu-like reaction and lost more vision in the NAAION?eye.? I sure do wish we knew the little differences in each of us that cause such a variety of reactions.? I was told not to get another vax until I saw an immunologist.??
I also have had all the vaccines. No issues. ? Adam ? ? I, too, have had all the vaccines and have nothing but gratitude that they are there for the asking. Madelyne
On Jan 11, 2025, at 8:47 AM, Paula Mcglasson via <paulam@...> wrote: ? I have also had all of the Covid, RSV, pneumonia, and flu vaccines that were available to me. I plan on getting the shingles vaccine this month as well. Other than a slightly sore arm, no issues.
--
Professor Paula McGlasson?? She, Her, Hers Chair & Production Manager, URI Theatre
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Re: Knee Replacement Surgery
It was 30 years ago that NAION attacked my left eye and took out 80 percent of the vision.? Nothing else has occurred since then, and I've had all the usual vaccinations through all these years.? Two months ago, I also had surgery in my right (good) eye for cataract extraction, with the ophthalmologist fully aware of the NAION risks involved.? The surgery went smoothly and so far there have been no adverse results.? My right eye vision has vastly improved, in fact.? The doctor tells me that each of my optic nerves has a very strange shape which he has never seen before.? This sort of scares me, but at age 87, I figure that if the shape of that nerve did in fact contribute to the attack 30 years ago, I might just dodge any further bullets.? Or maybe the shape had nothing to do with it.? Who knows!? I keep an active lifestyle, a good diet, and hope for smooth sailing in my remaining years.
Thank you Lou for taking the time to respond
Get
Very encouraging, Louie, thanks for sharing!
Diane Keasler
Life is the school, love is the lesson.
On Saturday, January 11, 2025 at 09:21:50 AM EST, Louie via <screwielouietoo= [email protected]> wrote:
Hi, I had my attack in my left eye in 2005 and lost most of my vision in that eye. I have had two prostate surgeries, a total knee replacement. I have had shingles vaccine, Covid vaccine, flu vaccine etc., no issues in my right eye from any of these. I
have a small disk and bundled optic nerves like most of us. I have been taking 2000mg of fish oil, and walk seven miles each day since my NAION attack.?
Lou- Myrtle Beach SC
Screwie Louie¡¯s iPhone? ![]() ? ![]()
On Saturday, January 11, 2025, 2:00 AM, jennifire1 via <jennifire1=[email protected]> wrote:
Dear Members
I am new to this group having been diagnosed with NAION peripheral vision loss in my left eye 6 months ago.
I would wecome hearing good news stories from those that have had knee replacement surgery which Iam scheduled to have 30th January. My anaesthetist (after receiving news from my ophthalmologist) of my condition is not willing to assist in the procedure
even though under spinal epidural the risk of further vision loss was too high.
Iam apprehensive about NAION occuring in the unaffected eye. I am a healthy 65 yo woman. No diabetes or BP.?
?
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Michael B
ReeRee
GaryGBrown