Hi dear Caroline. You have helped me before so much and I appreciate. Thank you. Both my eyes are in bad shape. I have had a dragged retina since born in my left eye so I have less than 20perce t vision in that eye and NAION effected my only good right eye 4 years ago. I have always relied on my once good ey to see. My left one just went on holiday lol. I can see colour well and I don’t have any streaks or blind spots. My vision is just blurry. I have lost a lot of contrast and I find detail difficult to see. I just assumed that if they made my lens stronger, it would get rid of the blur I was but nothing g seems to work. I just don’t understand how I can have a weak script when my vision is still blurry yet my Optometrist has tried so hard to lift my vision. All a mystery to me X?
On Sat, 28 Sep 2024 at 1:00?AM, Caroline J via <gcarolinejoyce= [email protected]> wrote: Hi Chiarina,
You need an optometrist who sees beyond your lab results and listens to your needs. With my bilateral NAION, my dominant eye is centrally blind with many scotoma streaks. My left eye has a few scotomas with good peripheral vision. My brain has adapted and improved over the past 1 1/2 years, but my dominant right still spreads the gray gloom to my overall vision. With myopia, too, I recently went back to contacts because I feel I need ALL of my vision, including my peripheral. They strengthened my RX, and my new contacts felt off. Then I realized my dominant eye was responding to the stronger Rx and trying to dominate with the gray smears. So, I put my old weaker contact lens in my right, use my stronger Rx in my left, and for the first time, my left eye is dominant without battling my right.? I am ecstatic over the clarity.?
I know we are all unique in our experiences, but for those if us who have a “good” eye and a poor eye, it may be worth trying to lessen the Rx strength of the poor eye to help establish a stable dominance of the good eye.
I hope this helps some of you!
On Fri, Sep 27, 2024 at 2:42?AM Chiarina Blake via <jc.blake2= [email protected]> wrote: Hi there. Why can’t my glasses help me see clearer? Why do they say that I have a very light eye script why can’t they just make the script stronger? Thank you?
|
Well I hope that your optometrist can correct it for you, Chiarina. You say he’s not aware of your Naion, and that is something you must make sure he understands. Many don’t know much about it, but a little research on their part can fix that. When he is testing, surely he runs the corrective options in the instruments until you can see as clearly as possible. You did not say if you are single impacted or bilaterally, and the level/type of issue. You both need to be on the same page.
toggle quoted message
Show quoted text
On Sep 27, 2024, at 9:14?p.m., Chiarina Blake via groups.io <jc.blake2@...> wrote:
? Thank you for your kind response David. I meant to say weaker script. My vision is clear but blurry. Sorry I didn’t make myself clear. I can see colour etc but have lost detail due to the bluriness. An optometrist who doesn’t know my issues told me I had a very weak script. I just thought that if I have such blurriness, why haven’t I got a stronger script? Yet, I believe my optometrist knows what he is doing and I do trust him but I just don’t get it. Thank you X? On Sat, 28 Sep 2024 at 3:35?AM, David Cattle via <djacattle= [email protected]> wrote: When you say clearer, do you mean the hazing or just blurry? I don’t know the term “very light eye script” what does that mean? Mild farsight? Have you tried contacts, I went to daily contacts 18 months ago, vision is way better than with glasses, except that the double image effect from having disparate eyes is not correctable with contacts. ? David ? ? Hi there. Why can’t my glasses help me see clearer? Why do they say that I have a very light eye script why can’t they just make the script stronger? Thank you?
|
Thank you for your kind response David. I meant to say weaker script. My vision is clear but blurry. Sorry I didn’t make myself clear. I can see colour etc but have lost detail due to the bluriness. An optometrist who doesn’t know my issues told me I had a very weak script. I just thought that if I have such blurriness, why haven’t I got a stronger script? Yet, I believe my optometrist knows what he is doing and I do trust him but I just don’t get it. Thank you X?
On Sat, 28 Sep 2024 at 3:35?AM, David Cattle via <djacattle= [email protected]> wrote: When you say clearer, do you mean the hazing or just blurry? I don’t know the term “very light eye script” what does that mean? Mild farsight? Have you tried contacts, I went to daily contacts 18 months ago, vision is way better than with glasses, except that the double image effect from having disparate eyes is not correctable with contacts. ? David ? ? Hi there. Why can’t my glasses help me see clearer? Why do they say that I have a very light eye script why can’t they just make the script stronger? Thank you?
|
Please share your experience, for friends who were affected bilaterally?
I am still very anxious after I was diagnosed NAION a month ago.
Always worried about my other eye.
For those of us affected bilaterally, would you mind share your experience :
1, How long apart for two eyes to be affected?
2, Do you manage to live normally after that?
?
|
Hello David, my first experience with a double image with my co tact lenses improved when I reduced the strength of my bad eye’s contact lens.?
On Fri, Sep 27, 2024 at 1:35?PM David Cattle via <djacattle= [email protected]> wrote: When you say clearer, do you mean the hazing or just blurry? I don’t know the term “very light eye script” what does that mean? Mild farsight? Have you tried contacts, I went to daily contacts 18 months ago, vision is way better than with glasses, except that the double image effect from having disparate eyes is not correctable with contacts. ? David ? ? Hi there. Why can’t my glasses help me see clearer? Why do they say that I have a very light eye script why can’t they just make the script stronger? Thank you?
|
When you say clearer, do you mean the hazing or just blurry? I don’t know the term “very light eye script” what does that mean? Mild farsight? Have you tried contacts, I went to daily contacts 18 months ago, vision is way better than with glasses, except that the double image effect from having disparate eyes is not correctable with contacts. ? David ?
toggle quoted message
Show quoted text
From: [email protected] <[email protected]> On Behalf Of Chiarina Blake via groups.io
Sent: Thursday, September 26, 2024 11:43 PM
To: [email protected]
Subject: [NAION] Glasses.? Hi there. Why can’t my glasses help me see clearer? Why do they say that I have a very light eye script why can’t they just make the script stronger? Thank you?
|
Re: Hoping for some positive news
Eibhlin, do you have any idea what caused your loss 17 years ago?
Diane Keasler
Life is the school, love is the lesson.
On Friday, September 27, 2024 at 11:16:53 AM EDT, Eibhlin Fionn via groups.io <ourmissbrooks@...> wrote:
17 years this past March after an almost total loss in my right eye. The left remains stable with 20/20.
|
Re: Hoping for some positive news
toggle quoted message
Show quoted text
On 28 Sep 2024, at 1:16 am, Eibhlin Fionn via groups.io <ourmissbrooks@...> wrote:
? 17 years this past March after an almost total loss in my right eye. The left remains stable with 20/20.
|
Re: Hoping for some positive news
toggle quoted message
Show quoted text
On 27 Sep 2024, at 9:09 pm, Louie via groups.io <screwielouietoo@...> wrote:
?
Hi, I had my attack in my left eye in 2005. It took six months for my brain to adjust. I lost 45 pounds and started walking 5 miles+ everyday. I take 2000mg of fish oil everyday since my attack. My NO said the fish oil is good for the small blood vessels in your eye. I have been doing most everything?I always did, I drive a motor home, swim, dance, walk on the beach and living a normal life. Enjoy yourself! Screwie Louie’s iPhone?  ?  On Thursday, September 26, 2024, 10:50 PM, eggwah123 via groups.io <eggwah123@...> wrote: Hi everyone,
Would anyone diagnosed with NAION successfully keep it unilateral share their experience? For how many years?
I am very worry that my other eye will be affected too and hope to hear some positive example and learn from their experiences.
Thanks
?
|
Re: Hoping for some positive news
17 years this past March after an almost total loss in my right eye. The left remains stable with 20/20.
|
Hi Chiarina,
You need an optometrist who sees beyond your lab results and listens to your needs. With my bilateral NAION, my dominant eye is centrally blind with many scotoma streaks. My left eye has a few scotomas with good peripheral vision. My brain has adapted and improved over the past 1 1/2 years, but my dominant right still spreads the gray gloom to my overall vision. With myopia, too, I recently went back to contacts because I feel I need ALL of my vision, including my peripheral. They strengthened my RX, and my new contacts felt off. Then I realized my dominant eye was responding to the stronger Rx and trying to dominate with the gray smears. So, I put my old weaker contact lens in my right, use my stronger Rx in my left, and for the first time, my left eye is dominant without battling my right.? I am ecstatic over the clarity.?
I know we are all unique in our experiences, but for those if us who have a “good” eye and a poor eye, it may be worth trying to lessen the Rx strength of the poor eye to help establish a stable dominance of the good eye.
I hope this helps some of you!
On Fri, Sep 27, 2024 at 2:42?AM Chiarina Blake via <jc.blake2= [email protected]> wrote: Hi there. Why can’t my glasses help me see clearer? Why do they say that I have a very light eye script why can’t they just make the script stronger? Thank you?
|
Re: Hoping for some positive news
Hi, I had my attack in my left eye in 2005. It took six months for my brain to adjust. I lost 45 pounds and started walking 5 miles+ everyday. I take 2000mg of fish oil everyday since my attack. My NO said the fish oil is good for the small blood vessels in your eye. I have been doing most everything?I always did, I drive a motor home, swim, dance, walk on the beach and living a normal life. Enjoy yourself! Screwie Louie’s iPhone? ?
On Thursday, September 26, 2024, 10:50 PM, eggwah123 via groups.io <eggwah123@...> wrote: Hi everyone,
Would anyone diagnosed with NAION successfully keep it unilateral share their experience? For how many years?
I am very worry that my other eye will be affected too and hope to hear some positive example and learn from their experiences.
Thanks
?
|
Re: Hoping for some positive news
toggle quoted message
Show quoted text
On 27 Sep 2024, at 2:22 pm, Richard Wilcox <dick@...> wrote:
? Yes second eye is a real possibility but in the range of 20-25%. I have been unilateral for 24 years. ?You will eventually adjust as I did. A lot of days I forget all about it. Take care of yourself and pray hard.?
Blessings?
On Sep 26, 2024, at 11:32?PM, Michael B via groups.io <fauxevermb@...> wrote:
? My brother lost vision in one eye ten years ago. Said he was pretty well adapted at about a year. Also says he sometimes forget he only has monocular vision.? I’m only 7 months into it. It is not much of a concern. I don’t put much stock in the percentages that are put out. We don’t know what info went into coming up with those figures. IMHO. As Marianne said, live healthy. Diet, exercise, etc.? I created a website regarding the psychological, emotional and practical aspects of NAION. Still a work in progress and looking for feedback. ?
| |
Caroline J
Louie
Michael B