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Joe,

-Yes, gets easier, but takes time.

-Many people (including myself) are just as bothered by the subsequent anxiety. If you have a lot of anxiety please do not hesitate to get it treated.

-Accupuncture can be good for anxiety, and headaches caused by the visual change and eye strain, but it can’t do anything for the eye itself.

-NAION has an association with hypertension and possibly with sleep apnea. Get checked for both if you can. Managing cardiovascular health is always important (heart attacks and strokes are much more common than NAION, so its worth doing just for that). ?Stay hydrated especially if you exercise.

-If you are still within three weeks of onset it is possible that your vision will continue to change a bit. Keep seeing your neuro-opthalmologist especially if you have any further changes, or if you get severe headaches.

-In addition to the effects on your affected eye (dead retinal ganglion/optic nerve cells), you may have other issues for a while with your eyes working together, or with your brain making sense of the new input. Here are some suggestions that made a difference for me:

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• If you wear glasses try to find a low vision optometrist. This is not a substitute for a neuro-opthalmologist, but they will have more insight into what works with vision correction, and more patience for trying different things. ?
• I got yellow/orange tinted sunglasses and used them for the first year. Somehow the enhanced contrast helped relax my eyes, or maybe it was just having a bit less light.
• I do have a large curved monitor, and I love it. My wife hates it though.
• I have to work hard (exercise) to maintain my body awareness on my right (bad) side, or I get clumsy. Anything that uses your whole body. Exercise nearly always improves my outlook.

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There are some things we are not supposed to do, but the evidence about their association with NAION is equivocal at best:

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• Avoid certain medications. Your doc will tell you which ones, but among them are PDE5 inhibitors (eg Viagra).
• Avoid high altitudes.
• If you have surgery tell the anesthesiologist about the NAION. You don’t want to have your BP go too low. ?
• Be careful with strenuous exercise until the swelling of your optic nerve head has resolved. This is usually ~6 weeks—your doc will tell you when the swelling has resolved. If you are a weightlifter you may really need to back off on intensity and weight. The point is to avoid suddenly raising your intraocular pressure or getting really dehydrated. Ask your doc about this.

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Good luck,

Adam

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